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Amyotrophic Lateral Sclerosis (ALS) Message Board
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Old 08-24-2003, 07:58 PM   #1
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SteelMagnolia HB User
Post Our ALS Story--or at least the beginning

I am so thankful to find a site where I can share feelings about my husband's ALS. This has been the most devastating two years of my life. It has also been the most rewarding period of my life.
His symptoms first appeared in the fall of 1999, about the time my mother began to have a series of hospital stays and his mother died. Needless to say, he did not get to the correct doctor early enough. Although, what good would that have done?
His first symptom was very scary. He is a police officer and was at the shooting range qualifying with his pistol. He shot rounds with his right hand, then began to fire with his "off" or left hand. With the first shot, his arm dropped to his side and twisted grotesquely with the gun pointed ******d. His friends had to pry the weapon from his hand. Later that month, he almost dropped our granddaughter as he carried her in from the car. I caught her as his left arm dropped away from under her. He began having pain that ran from his left armpit to his elbow. Gradually, he lost the use of that arm.
More of my fascinating(?) story later. My hint for the day: If you are having trouble drinking water, try chipped ice from a snow cone machine. We got ours for less than $20 at a local discount store. Works much better than the hammer an ziplock bag I was using!!

 
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Old 08-25-2003, 09:43 AM   #2
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Hi. I am glad you found this site as well. This forum helped me through so much while my father suffered from ALS. Your husband was having first symptoms in 99, so how is he today? My thoughts and prayers go out to you and your family. This disease is a tragedy and a blessing at the same time. If you need to talk we are all here to listen. Good luck
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Old 08-27-2003, 07:22 AM   #3
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Welcome, Sounds like my story in the beginning. I too cant use my arms very effectivly. I dont seem to have any symptoms with swallowing or walking yet, however, I tire easily. I seem to swallow more than I use too, or I ve read so much about ALS that I am more consience about it. Mine started with my left arm the same way,excluding the stiffness. I too am curious as to how he progressed since 99. My symtoms started May 2002. I have not yet been actually diagnosed with ALS but I believe I am going in that direction?? My prayers to you and your husband, and again, welcomr to the board, Slaughter is really helpful on this board and you will find her here for what ever the reason.

 
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