Family Links: How Many Persons In Your Extended Family Have ALS / Similar Disease?? - Amyotrophic Lateral Sclerosis (ALS) Message Board

Anonymity · 12-12-2002, 10:23 AM

Family Links: How Many Persons In Your Extended Family Have ALS Or A Similar / Related Disease??

I am curious as to genetic links and links between similar diseases. My paternal grandfather died of ALS at 42 years old.

Have you heard of or experienced possible links between diseases like ALS, Rheumatoid Arthritis, MD, MS, Cystic Fibrosis, Genetic Disorders, Fibromyalgia, Neurological Disorders, Mental Disorders, Autism, or others?

Thank you in advance.

[This message has been edited by Anonymity (edited 02-05-2003).]

Anonymity · 12-26-2002, 04:16 PM

I see that people are viewing this post. Please, PLEASE respond.

Even a simple "yes" (you have noticed some possible genetic links) or "no" (you have not noticed any) would be helpful.

Thank you.

[This message has been edited by Anonymity (edited 01-22-2003).]

jaykir · 02-01-2003, 05:43 AM

hi
my husband was dx in 2002,but had the symptoms a year proir,with bad body cramps and weakness in the hands,at this stage his both hands are affected,left leg wit drop foot,right leg slightly affected wearing splints on both legs,and now chest muscles are starting to weaken still getting 96%oxygen
iam hoping to get all the information on this disease i can,so ican look after him properly andto understand this terrible disease

Anonymity · 02-05-2003, 12:32 PM

I am so sorry to hear of your husband's diagnosis. It is very admirable of you to try to care for him and to educate yourself on ALS. This board remains rather quiet, but hopefully, more persons will respond to you regarding themselves or loved ones who have ALS.

Good luck, and I do hope that you and your husband can remain strong while trying to deal with ALS.

P.S. Does anyone else in your family have any significant health conditions? I'm always curious about these things, as I mentioned in my first post.

Butterfly819 · 02-17-2003, 09:54 PM

i'm glad to see people talk about this disease up until about 9 years ago, i had no clue what it was. then my father was diagnosed with it. i was 15 years old when he passed away, i am 21 now, but it still feels like yesterday. ALS is a horrible disease, i can't stress it enough. so i just want everyone who goes on here to know, if there's anything i can do for you... just let me know.