I just returned from Houston after seeing my ALS Specialist.I am somewhat relieved, but still not out of the woods. Seems as though they have discovered some subset variables of ALS.
Mine is called Bibrachial Amyotrophic Diplegia.
As you know by my past post I was diagnoised with PLS by by local Nuero.I was not convinced with that cause of the atrophy in my shoulders and arms. I do have the symptoms of ALS accept for signs of upper neuron problems. Motor neuron diease, progressive muscular atrophy might be the parent in my case.
Will have to wait and see the progression from this point on.
Here is a link to read about the new findings. Seems as if my Specialist DR APPel does not make quick DS about ALS. Which is good.There are so many variables to this disease. http://www.neurologyreviews.com/jul0...02_entity.html
I hope Vatash sees this, as I think we have the same symptoms.