| Re: any help will do
We more or less just chatted, her typing, my talking.
I also made up a "conversation/question/statement" book using a small recipe collection book that had empty sleeves inside that you would normally put recipes in that you clipped from a magazine, or typed yourself. I typed up different sentences for her, either asking for something or making a statement, such as: "I need a drink of water", "I need to lay down", "thank you for helping me," etc. She would flip to the sentence she wanted to communicate. When she was unable to use her hands anymore, I would turn the pages for her and she would nod when I found what she wanted to say. It was a slow process but helped her to communicate some of her thoughts and needs.
Another friend who had ALS, couldn't talk at all but was able to write fairly legibly until the day she died.
BTW, I'm a hospice volunteer for ALS patients and I know how important it is to provide some means of communication for them, as it's so frustrating to not be able to express oneself with this debilitating illness.
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