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Amyotrophic Lateral Sclerosis (ALS) Message Board
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Old 09-12-2005, 03:39 PM   #1
gdk gdk is offline
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Question muscle wasting before weakness?

My husband has had symptoms of twitching which have worsened - they are all over his body. He saw a neurologist who looked at him for about 5-10 mins and told him he did not have als, however he continues to have the twitching and has started to become sore, especially in his shoulders, arm areas. However, what is concerning us is that he seems to be developing dents/depressions around his muscles - ie. atrophy (?) His arms, hands are looking "stringy". I am trying to reassure him that it could be something else, because from what I have read, he should be noticing weakness, tripping etc before he would have substantial, visual muscle loss. Also - he does not appear to be losing weight.

I would really appreciate hearing from anyone who may have a comment - - my husband has an appointment with a muscle specialist coming up at the end of the month, and I am trying to keep him positive.
Thanks,
gdk

 
Old 09-14-2005, 05:08 PM   #2
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Re: muscle wasting before weakness?

I hope you will post back here what your husband finds out. His case sounds almost exactly like mine. I've been dealing with doctors for a year and no answers. I've had several tests and all have come back normal. My arms fatigue easily (or maybe it's just a sore feeling) and my legs have the dents you describe. My chiropractor says my muscles feel "ropey". I have no weakness and this has been going on for over a year and a half. I haven't seen a muscle doctor yet. You can also e-mail me if you wish at [ please read and follow the posting rules - no emails ] I would sure love to hear what your husband finds out.




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Old 09-14-2005, 06:01 PM   #3
gdk gdk is offline
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Re: muscle wasting before weakness?

Kaylynn,
Thank you so, so much for responding - it is a relief to hear from someone. I had posted on on this site as well as another, and no one had responded so I wasn't sure if what was happening was either (a) all in our heads or (b) something sooo horrific that no one wanted to submit anything. I had been fairly positive all along but my husband is terrified, and now that his appointment with the specialist is getting closer, I am getting more worried as well. It feels better just to know that there are similar symptoms "out there". I will definately post further after he sees the specialist ( removed - please read and follow the posting rules ) am hoping it will be good news.

Last edited by moderator2; 09-15-2005 at 12:17 PM. Reason: please report posting rules violations - do not reply to them

 
Old 09-15-2005, 12:54 PM   #4
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Re: muscle wasting before weakness?

hi gdk and kaylynn

my trouble started with dimpling and twitching. i found out i had lyme disease.

please visit the lyme threads for more info.

jon

 
Old 09-15-2005, 05:10 PM   #5
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Re: muscle wasting before weakness?

Jon, I have thought about Lyme. I mentioned getting tested to my doctor and you know what he said? He doesn't believe in testing because a lot of times a false positive shows up and then people freak out! I still may pursue it in the future because I know it is a possibility.

gdk, I will be very anxious to hear what the muscle doctor says. I wish I had been referred to one and depending on what your husband finds out I may insist on one. I have had two emg's and two nerve conduction tests and several other tests and all have come out negative. Doctors don't feel it is als but I guess you always worry.

Last edited by Kaylynn; 09-17-2005 at 07:21 AM.

 
Old 09-21-2005, 09:20 AM   #6
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Cool Re: muscle wasting before weakness?

Sorry to hear about your husbands illness. I was diagnosed in 2003 with als. I had no early warnings that I noticed. Cervical fusion in 1997 left me weaker in my arms and shoulders, but I was very physically active, While fishing, I noticed my left arm became very weak, did not notice that my muscle behind my shoulder had atrophy. After seeing my neurologiist, EMG test, muscle biopsy, blood work, mri, and several more visits, i was diagnosed. Twiching, never really started until after my arm became weak. I have progressed rather slowly, yet It has moved to my right arm as well. My hands have become almost useless, and I can feel weakness and see loss of muscle in my legs now. ALS symtoms vary from person, I think you should see a Neurologist and have the emg test. It is a long process, as there are no test specfically for ALS. I will pray that everything will be ok, I know how not knowing can be very stresfull, and that alone can cause problems.
Good luck, and my prayers are with you.

 
Old 09-21-2005, 11:19 AM   #7
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Re: muscle wasting before weakness?

Thanks for posting GI - the waiting has been frustrating. The appointment with the specialist is next week (it was scheduled months ago!). It is especially hard because every time a new "symptom" occurs, we are wondering, is it als? is it in his head because of the concern? etc etc. - and who knows if we will even find anything out at this time.

 
Old 10-01-2005, 07:59 AM   #8
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Re: muscle wasting before weakness?

Kaylynn - if you are still checking in:
My husband saw the neuromuscular specialist and had his emg plus some other test on his muscles. The doctor is very confident that it is NOT als. During the tests, the dr saw some of the twitching - He sent my husband for a number of blood tests (one of which I believe is for lyme). Hopefully the tests will reveal something. Take care.

 
Old 10-05-2005, 04:40 PM   #9
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Re: muscle wasting before weakness?

gdk,
That is good news that the dr. does not suspect als. But I know he's very frustrated at not knowing what is wrong. I sure am. They did a bunch more blood tests this week, one of them for Lyme. Keep me posted.

 
Old 11-07-2005, 05:57 PM   #10
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Re: muscle wasting before weakness?

My father has experienced muscle twitching and loss of muscle in both arms and shoulders. His thenar eminence (muscle below the thumb) is now flat on both of his hands and he has trouble feeding himself. He was tentatively diagnosed with ALS but after EMG found out that he has MMN (multifocal motor neuropathy). It usually starts out on one side of the body and progresses. He was treated with IVIG (human immunoglobulin) therapy but It really didn't help. You might want to ask your neurologist about MMN. I've read that with a lot of people the IVIG has helped them to regain some muscle or at least stop the progression. At least MMN is not life threatening, just a pain in the butt.

 
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