Re: What are the earliest symptoms of ALS?????
My father passed in 2003 of ALS. We went through a HUGE process of testing before they diagnosed him. But... in the meantime my family and I did our research, and knew it was ALS. My dad requested his medical records and when I looked through them I noticed a huge elevation in his Kinase levels. (very abnormal) It took us about three doctors, many tests and about 9 months of hell before they diagnosed him with ALS. I agree that for your dad it may be too soon to just come out and say it is ALS. It is devistaing to hear "ALS." I hope your doc has more sense than that. More TESTS! demand it! there are numerous diseases out there that mimic ALS. Push the doctors, and see more than one. If is is ALS there is not much time. The average patient survives about 18 months, depending on the progression they can survive as long as 5 years. Rilutek is the FDA approved drug out right now for ALS, and for some people it works great. The sooner the RIGHT diagnoses the better. I only wish there was a better way to diagnose it. Maybe one day. Good luck....my thoughts and prayers are with you at this time. if there is anything I can do please contact me.
P.S. have the docs test for Guillain-Barre Syndrome.
Proud Mom of Two Girls
To view links or images in signatures your post count must be 10 or greater. You currently have 0 posts.