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Amyotrophic Lateral Sclerosis (ALS) Message Board
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Old 03-26-2007, 04:55 PM   #1
Join Date: Mar 2007
Location: Seattle, WA USA
Posts: 2
mars329 HB User
ALS onset???

I'm a seemingly healthy 36 year old male and I'm scared to death that I may be exhibiting the onset of ALS. About 4 years ago I was having some trouble swallowing on a regular basis. The doc told me it was just acid reflux, so I started taking Zantac and that seemed to resolve the issue. Around the same time my lips started quivering... It couldn't visibly be detected, but I could feel it. I chalked that one up to stress, since it was going through some personal stuff. In time, that also went away.

Now, over the past week or two I've been getting tons and tons of twitches all over my body... Biceps (mostly right), shoulder (deltoid), chest, eye, calves, and in my side (near my lat), and occasionally in my quads and hamstrings. Also, the lip quivering and acid reflux seem to be back, but not as persistent. I guess that could be chalked up to the stress of worrying that I may have ALS. I should mention that I had surgery in November '06 to repair 2 herniated disks. I heard that sometimes disk compression, etc. can cause twitches.

I don't think I have any other symptoms. No clumsiness, no tightness or cramps. Come to think of it, I have noticed some pins and needles on occasion. If the twitches keep happening I'll go to the doctor. In the meantime, I'm going to keep doing research taking magnesium, potassium and making sure I'm properly hydrated.

If someone could tell me their story... Maybe what the onset was like, what the first symptoms were, how long it took to progress and what steps were taken to diagnos it, etc. Or even if anyone out there had similar symptoms and but it turned out not to be ALS. Anything would be helpful. Thanks in advance.

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Old 03-26-2007, 09:00 PM   #2
Join Date: Mar 2006
Posts: 4
browniiz HB User
whoops sorry

Last edited by browniiz; 03-26-2007 at 09:03 PM.

Old 03-26-2007, 09:02 PM   #3
Join Date: Mar 2006
Posts: 4
browniiz HB User
Re: ALS onset???

Okay, my story.
About a year after a painful accident and about a month after finding my thyroid was messed up I began to see and feel muscles spasms (twitches), called fasciculations. They were mainly in my legs, my feet and less frequently in my arms and hands. Very soon after I noticed this weird twitching I began to develop severe cramping, legs, feet and hands. Once it all happened at once while I was driving with no place to pull over. I was misdiagnosed by a neurologist who told me I had ALS. That was 5 years ago and I am fine although still twitching. Last year I went to an ALS specialist and he told me what I already knew, I have benign fasciculation syndrome,
a bit annoying but harmless. ALS is very rare and usually you have some really bad stuff going on before you even suspect you are that sick.
Calm down, see a specialist to ease your mind and
above all if he says you are fine believe him

Old 03-26-2007, 11:11 PM   #4
Join Date: Mar 2007
Location: Seattle, WA USA
Posts: 2
mars329 HB User
Re: ALS onset???

Thanks for your story... That eases my mind a little.

What kind of specialist would you recommend? A neurologist or someone even more specialized?

When you say "bad stuff going on", what do you mean?

Last edited by mars329; 03-26-2007 at 11:11 PM.

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