Hey there -
Some of the things you are describing sound very familiar. My grandmother had ALS. It started out with a few "falls" she had. She thought she was just becoming clumsy..... we took her to numerous Dr.'s and had the same run around you seem to be experiencing
Without making this a long story ...b/c it is.. here were here symptoms in order of progression.....
1. Falling down or loss of balance
2. atrophy of the feet (the started to curve down - hence why she was falling)
3. Hardening/stiffening of the muscles in the limbs
4. Atrophy of the hands ( the near fists)
5. Got hard for her to speak
6. Slowness in breath
I hesitate to continue..... ALS attacks all of the voluntary muscles before it goes to the involuntary (diaphram, heart, etc)
She struggled with this very debilitating disease for about 2.5 years. They avg time is 2-5 years for patients with ALS.
I surely hope that this is not the case for you and your family. If you'd like to know more.... I would give you all of the knowledge we have. You will need massive family support. I hope I can help.