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Amyotrophic Lateral Sclerosis (ALS) Message Board
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Old 05-25-2008, 09:06 PM   #1
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masonsmom1031 HB User
Unhappy probable als???

my dad was diagnosed with probable als(because everything else was ruled out). he has severe atrophy in his hands(they are almost in fists), weakness in his legs with stiffness(he has started to fall) but he has started to see a chiropractor and has had opening of both hands and increased strength. i guess my question is... would he have any improvement if it was als? he's been to 9 doctors so far with different diagnoses. we are even pursuing lyme disease at this point. any input would be appreciated. thanks,
cheryl
ps first symptoms began in october 2007 (its been fast)

 
Old 06-05-2008, 02:37 PM   #2
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progressive88 HB User
Re: probable als???

Hey there -

Some of the things you are describing sound very familiar. My grandmother had ALS. It started out with a few "falls" she had. She thought she was just becoming clumsy..... we took her to numerous Dr.'s and had the same run around you seem to be experiencing Without making this a long story ...b/c it is.. here were here symptoms in order of progression.....

1. Falling down or loss of balance
2. atrophy of the feet (the started to curve down - hence why she was falling)
3. Hardening/stiffening of the muscles in the limbs
4. Atrophy of the hands ( the near fists)
5. Got hard for her to speak
6. Slowness in breath

I hesitate to continue..... ALS attacks all of the voluntary muscles before it goes to the involuntary (diaphram, heart, etc)

She struggled with this very debilitating disease for about 2.5 years. They avg time is 2-5 years for patients with ALS.

I surely hope that this is not the case for you and your family. If you'd like to know more.... I would give you all of the knowledge we have. You will need massive family support. I hope I can help.


 
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