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Amyotrophic Lateral Sclerosis (ALS) Message Board
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Old 12-16-2008, 12:11 PM   #1
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to those concerned their symptoms are ALS

To those worried about their symptoms possibly being ALS:
Blood tests can be a waste of money and time unless they are done at Igenix labs in California and/or a recently approved CDC test done at Bowen Labs in North Florida, which I think is a dark field microscope with flourescent dye and black light to illuminate the bacterium. I feel Lyme Disease caused my ALS and I recommend visiting Lyme threads and aggressively looking for a Lyme-literate medical doctor. In my notes I have names of such doctors in almost every corner of the country. Just trying to help. I've had ALS diagnosed since 2002. I will be trying blood dialysis soon, similar to that used in Gullian-Barre therapy.

 
Old 01-12-2009, 02:47 PM   #2
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Re: to those concerned their symptoms are ALS

My family member hasn't been tested for Lyme Disease but maybe we will ask that he is.

 
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Old 01-13-2009, 11:43 AM   #3
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Re: to those concerned their symptoms are ALS

If you cannot find an aggressive Lyme doctor on your own, please PM me know what state you are from, and I will try to help if I can.

Last edited by Administrator; 02-13-2009 at 12:46 PM.

 
Old 01-14-2009, 01:39 PM   #4
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Re: to those concerned their symptoms are ALS

We are from IL not so terribly far from St. Louis MO

 
Old 01-17-2009, 08:29 PM   #5
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Re: to those concerned their symptoms are ALS

I was told that shortness of breath is NOT a symptom of Lyme's breaks my heart.

 
Old 02-03-2009, 12:27 PM   #6
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Re: to those concerned their symptoms are ALS

There are some good doctors out there in MI; MO; KS

As for the shortness of breath, I think they go with both diseases. I think it is due to diaphragm paralysis and excessive mucous production. I have a trache and am on a vent. We use a suction machine to pull mucous from my lungs. It fills a 1000 ml container over a three day period.

I also have a feeding tube,which has enabled me to gain weight back. I weighed 110 lbs when I got the tube in Jan. '06. By the time I was hospitalized in Sept. '07 with my third pneumonia, my 6-foot frame was back up to 215 lbs.
I am currently under the care of <a doctor that> uses alternative naturopathic methods.
Hope you can find help.

Last edited by Administrator; 02-13-2009 at 12:46 PM. Reason: <edited: do not post doctor names. Members may PM if they want those.>

 
Old 02-07-2009, 07:41 PM   #7
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Re: to those concerned their symptoms are ALS

Yes, shortness of breath is a symptom of Lyme.

Quote:
Originally Posted by iljewel View Post
I was told that shortness of breath is NOT a symptom of Lyme's breaks my heart.

 
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