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Amyotrophic Lateral Sclerosis (ALS) Message Board
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Old 06-09-2009, 08:10 AM   #1
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trisha36 HB User
painful hips and legs

Hi im a 36 yr and i suffer all the time with painful hips and legs, when im walking i could cry as the pain is really bad as it feels like my legs a screaming at me to stop. when in lying down my hips really give me deep pain so i have to sit up. been for test for athritis and thyroid but all have come back clear so not sure what i can do next....

 
Old 06-09-2009, 06:36 PM   #2
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blues1986 HB User
Re: painful hips and legs

Have you been dx with ALS? As far as I know, and I looked up everything on ALS, pain is not associated with it. In fact, that usually points away from this disease.

 
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Old 06-10-2009, 06:17 AM   #3
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vh90453 HB User
Re: painful hips and legs

I'm not sure why you're on the ALS board. Sounds to me like it could be coming from your lower spine, maybe a herniated disc.

 
Old 06-10-2009, 09:36 AM   #4
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Re: painful hips and legs

Are you taking any medications? Sometimes they can cause painful side effects.

 
Old 06-11-2009, 05:08 PM   #5
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schao HB User
Re: painful hips and legs

Trisha--

I saw the subject to your post--and that is me too! My legs are worse at night though. My hips and legs are a mess....I've had sooo many tests done and no doctor can find anything. But I am in tons of pain everyday--I see a pain management doc and take pain meds to help me.

schao

 
Old 06-11-2009, 09:39 PM   #6
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Weezi HB User
Re: painful hips and legs

Have you seen a physical therapist? I have been formally dx'd with fibro but rheumy is still working out other causes. I went to PT today and my therapist said I need to get x-rays of my knees and hips before treating me again. He wants to know what is going on in the joints before he proceeds. I have already had a full-body bone scan but they want more detail. I am exhausted from the doctor visits alone but I do feel like the PT is moving in the right direction. I was referred to a great therapist who is quite concerned and wants some answers as to what is going on with me. He worked on a muscle that was in a spasm, boy was that painful! Nothing like more pain to forget the pain your are already in I am sure the last thing you want to think about right now is PT but maybe they could help shed some light on your problem.
weezi

 
Old 06-12-2009, 11:01 PM   #7
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Re: painful hips and legs

I have ALS living with ALS for ten years now. I am bed bound and on bi-pap 24/7 I have very bad leg and knee pains sometimes feel like my knees are going to lock up and no one can move them.I also have deep nerve pain. I get PT and take Baclofen and Carpidopia , also use Fentayle Pain Patch and massage. It never goes away totally. the worst I progressed th worst it get. Sorry pain meds spelled wrong. I use to go to local ALS suport meetings, I have hundreds of Pals friends I blong to other ALS groyps , one PLM where there is ovr 3 thousand memebers and YES ALS cause much Pain.

 
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