I'm sorry that you are dealing with this horrible disease. I most sorry that you feel "used". Please realize that most people don't know what to say. Many people use this board searching for help and answers. This disease is aggressive, fast, and leaves most unable to cope with this disease and the situation that it puts them and their families.
I lost my mother to ALS this past January. She had limb onset. She died after 10 months. The disease progresses different for everyone. I had to leave my family (I have 2 small children) to care for her. My situation is still so fresh and real. It all happened so fast. I don't know what to say...again many don't. The problem with ALS is there are not many positives to lend. My one positive and the thing that I am most grateful for is spending the last months of my moms life with her, giving her everything I could. We had wonderful moments together. We shared conversations about everything. Many many tears and laughs. I never thought we could have been closer to her, but going through this with a love one brings you to a level of intimacy that most never experience. I have no regrets, knowing that I did everything and gave everything I could. When she passed i knew her suffering and helpless feeling was over. I know she is dancing in a better place!
Surround yourself with family, friends and support. Enjoy your moments together. They will be difficult but rewarding when you reflect. I know that me and my family can face any challenge after living this. My kids learned a lot about being a family from this experience.
As to your question, I don't know about bulbar onset. I wish I could help. Please, please don't feel used. I doubt ANYBODY meant to do this. This site is not for vindictive people.