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Amyotrophic Lateral Sclerosis (ALS) Message Board
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Old 03-22-2011, 01:06 PM   #1
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Twitching for over two months

In the beginning of the year I started having muscle twitching that happened mainly in my legs but has since popped up everywhere throughout the body. I was worried I had MS because I felt weak and fatigued some days. Had a million blood tests. Everything came back normal. Had a MRI last month and there was a small Hyperintensity flare which was non specific and did not point towards MS. Neurologist thought everything looked fine. My regular Dr. and Neurologist looked at me like I was some crazy hypochondriac when I told them my symptoms. Almost three months later I still have muscle twitching that goes away only when I sleep. The min I wake up and start moving around, my legs wake up as well. I will have twitching randomly throughout my body as well. Im so terrifed I have ALS or some other disease. I know the mind is a powerful thing and you can make yourself paranoid but I cant help it. Im a 34 yr old married mother of 3 children and I just want to be ok. I work as a nurse and I know I am very stressed. My electrolytes are fine. I just want to know there are others that are experiencing the same thing and know how I feel

 
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Old 03-22-2011, 05:37 PM   #2
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Re: Twitching for over two months

Remember ALS does not come and go, even at rest. You're muscle twitching doesn't sound like ALS related muscle twitching. My moms twitching looked like little creepy crawlies under her skin AND she could NOT feel them. ALS muscle twitching shows up in the affected body part first, almost always after noticable muscle atrophy and severe weakness. Weight loss is usually present due to loss of muscle.

I have MS. I have random muscle twitches, different parts of the body, fatigue and weakness. This sounds like more of a possibility. Remember there are hundreds of things that can cause symptoms like you are having. I would recommend repeating your MRI (with and without contrast) in 6 months if the problems still persist. Also, get a doctor that will acknowledge that you are having ligitimate issues. It helps to journal your symptoms, when they come and go, etc.....

ALS is rare and MS is managable. I was 36 when diagnosed, I have 2 kids and work full time. Try not to let anxiety get to you...be your own health advocate. Wishing you the best

 
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Old 03-23-2011, 01:26 PM   #3
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Re: Twitching for over two months

Thanks,
Its hard not to worry. I was terrified of MS too. Since they only found one small Hyperintensity flare they didnt think I had MS. It can also be related to High BP or Cholesterol. I have a history of both. I have heard that Fibromyalgia can cause muscle twitches as well. There was a reversal of curvature noted at the C/4-5. That cannot cause twitching throughout the body though. So frustrating. Its good to see that you are positive and going on working with MS. My friend has MS as well and refuses to give in to it. She said its all how you approach it. I will repeat in 6 months to a year if things progress. I think it could be the start of demylination. Do you take anything to help with muscle twitching?

 
Old 03-23-2011, 07:25 PM   #4
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Re: Twitching for over two months

No I don't take anything for muscle twitching. Visit the MS board. It is a much more active site. There are several folks on that board that have a lot of helpful advice You are right about the MRI. Migraines, High BP, and cholesterol can cause non specific hyperintensities. I think a second MRI down the road would be a benefit. MS can take time to show up on a MRI. The McDonald criteria is a list that helps get to a MS diagnosis. Good Luck....Hope you feel better.

 
Old 03-27-2011, 06:55 AM   #5
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rayswife HB User
Re: Twitching for over two months

First of all, try to RELAX! The anxiety will make everything worse. I, too, am a nurse. My husband has only recently been diagnosed, but he has shown symptoms for almost 2 years now. Some of the "specialist" he saw told him to wait it out, the footdrop would resolve in about 2 years! I have been saying since day 1 that this looks like ALS. Please find a really good, qualified specialist in Neurology Diagnostics. They can rule out and/or find a correct diagnosis. I truly wish you luck. There are many other Motor Neuron Diseases that are treatable. I pray you have one of those treatable ones:-))

 
Old 03-29-2011, 02:30 AM   #6
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Re: Twitching for over two months

Lyme disease? Wouldnt I know if I had been bitten by a deer tick though? I mean I do live in an area that is full of deer but,... Hmm. I will check it out. Thanks!

 
Old 03-30-2011, 02:22 AM   #7
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Re: Twitching for over two months

Oh wow! What I would give for a twitch free night and without arthritic pain that comes and goes in my hands and wrists. I will check it out. Thanks!

 
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