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Old 10-23-2011, 06:55 PM   #1
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Recommended Locations For ALS Treatment and Clinical Trials

I have been diagnosed by two neurologists in Memphis. Not secure with the empathy and knowledge from theses M.D.'s. Can anyone tell me what locations I should go to receive an assessment of my curreent ALS conditions and, hopefully, a recommendation on clinical trial or trials. Thank you!!!

 
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Old 10-24-2011, 04:02 AM   #2
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Re: Recommended Locations For ALS Treatment and Clinical Trials

Since you live in Memphis, I would contact the MDA/ALS CENTER AT VANDERBILT UNIVERSITY MEDICAL CENTER in Nashville.
Specifically Peter D. Donofrio, M.D., who is the Director of the ALS clinic and is world -renowned.

Good luck

 
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Old 10-24-2011, 07:59 AM   #3
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Re: Recommended Locations For ALS Treatment and Clinical Trials

Thank you for the recommendation. As I mentioned, I have not had good luck in Memphis obtaining referrals from the 3 neurologists who have diagnosed me. Have you or someone you know/have known dealt with Dr. Donofrio?

Once again, my thanks!

Sincerely,
Al Pruett

 
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Old 10-24-2011, 05:36 PM   #4
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Re: Recommended Locations For ALS Treatment and Clinical Trials

Al, may I ask how old you are?

 
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Old 10-24-2011, 06:12 PM   #5
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Re: Recommended Locations For ALS Treatment and Clinical Trials

I will be 65 in a few days. Thank you!

 
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Old 10-24-2011, 06:52 PM   #6
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Re: Recommended Locations For ALS Treatment and Clinical Trials

So they definitely diagnosed you with ALS? No possibility of PLS?

 
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Old 10-24-2011, 06:56 PM   #7
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Re: Recommended Locations For ALS Treatment and Clinical Trials

Hi Al,
A friend of my family saw Dr Donofrio. He's a renowned ALS expert in the US.
There are others, in other states. Check out the World Federation of Neurology Research Group on Motor Neuron Diseases. They have a worldwide database of ALS clinics ...By country and also, for the US, by state. You'll find Donofrio listed.

zuzu

 
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Old 10-24-2011, 06:58 PM   #8
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Re: Recommended Locations For ALS Treatment and Clinical Trials

The Memphis expert administered nerve and muscle coductivity tests as well as a host of blood tests. He stated based on the nerve and muscle tests he was certain I had ALS and no other disease. How does PLS differ from ALS in regard to the muscle and nerve tests, i.e. could can a neurologist differentiate? Thank you for helping!!

 
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