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Amyotrophic Lateral Sclerosis (ALS) Message Board
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Old 01-28-2012, 06:53 PM   #1
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Unhappy Help! Terrified of als!

Okay guys, here's what's been going on. Two months ago, I was sitting in class and I had a full blown panic attack for no reason. It subsided within an hour or so, and I was fine for the rest of the day. The next day, I woke up and I had slight weakness and fatigue in my left arm and my left leg, they felt heavy, and my arm felt like it was pulling down every time I tried to lift it. I then noticed the hand movements were a little clumsier in my arm and I felt kind of like the muscles were pulling in my left leg (no pain) and I couldn't make the same kind of ankle movements. A week later, the feeling spread to my other arm, then another week later to my other leg. I also started having some twitching and doing constant muscle tests. I would get sore after doing a few push-ups and it would last for a day or two. I didn't have much progression for a while, but then, a week or two ago, I noticed the heaviness got worse in my left arm and left leg, then in my right arm (not sure about my right leg). I now have random twitched all over my body from under my eye to my calf and everywhere in between. Now, when I lift certain things, it feels like there are ropes attached to the bottom of them pulling down or something. I can still pick them up, it just feels like it takes more effort. I've noticed weird things, and been paranoid about every indent I see in my muscles, thinking they're atrophy. I also think I might see atrophy in my tongue. It's been a little harder to talk lately, my girlfriend says I'm not slurring or everything. Also, I did some measuring and my left calf is slightly smaller than my right. I have NO IDEA if it's due to wasting or if it's just always been like that. Also, every time I move my bottom lip over my teeth it shakes and quivers (I don't know if this is normal). Some of my muscles in my arms don't tense up or move like they used to, it's kind of hard to explain. I also frequently experience times where my arms feel EXTREMELY light every once in a while. One more thing that really concerns me, in my left hand, when I move my pinky down, my ring finger doesn't move more than a little bit with it. In my right hand, on the other hand (no pun intended), my ring finger curls with my pinky. I have no idea if this is normal, how long it's been around, etc. I went to a neuro-psychiatrist and he said some of my symptoms "may be neurological in nature" and scheduled an MRI. My doctor, on the other hand, seems to think it's all perceived and possibly somatic in nature. I'm completely terrified...does this sound like ALS to any of you guys? Are there any other disorders that could cause these symptoms? HELP!

 
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Old 01-28-2012, 10:27 PM   #2
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Re: Help! Terrified of als!

By the way, I'm 17, if that matters to anyone.

 
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Old 01-30-2012, 07:20 AM   #3
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Re: Help! Terrified of als!

It really doesnt sound like ALS as you are really too young and ALS is more or less gradual onset and progresses a little slower than what you explain. I am not a neurologist though so go ahead with the brain MRI and it is likely something called benign fasiculation syndrome. Chances aer you have had some of these issues before and now you are just more aware. DO yourself a favor and DO NOT LOOK SYMPTOMS UP on the internet. That freaks a lot of people out. I have done it myself and it is nerve wracking!!!!! Best of luck.

 
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Old 01-30-2012, 01:18 PM   #4
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Re: Help! Terrified of als!

Thank you so much Johnny. The thing that really scares me right now though is that I'm having some trouble breathing and swallowing too. I'm really terrified and I hope I get some answers from the MRI. I was also looking up some stuff about Lyme and Gluten Sensitivity causing ALS like neurological symptoms. Do you think this could be the case for me?

 
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Old 01-30-2012, 02:00 PM   #5
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Re: Help! Terrified of als!

Quote:
Originally Posted by xxchrisolausxx View Post
Thank you so much Johnny. The thing that really scares me right now though is that I'm having some trouble breathing and swallowing too. I'm really terrified and I hope I get some answers from the MRI. I was also looking up some stuff about Lyme and Gluten Sensitivity causing ALS like neurological symptoms. Do you think this could be the case for me?

 
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Old 01-30-2012, 02:04 PM   #6
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Re: Help! Terrified of als!

Well, I doubt it could be Lyme's though possible. Depends on where you live or have been exposed to the probper deer tick that carries Borrelia. Dysphagia can be related to reflux as well as the short of breath and so can ANXIETY! Please, stay off the internet looking for symptoms. Just hang in there and keep up aprised of what the MRI shows. My experience is that worry makes symptoms appear and whatever you got much worse. SO if you want to feel better, the first thing to do is get off the internet! SOunds crazy but it is true. But again, just hang in there.

 
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Old 01-30-2012, 02:05 PM   #7
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Re: Help! Terrified of als!

I also found some stuff about Myasthenia Gravis and stuff like that. I'm sorry, I know I sound hysterical, but I'm scared as hell. I'm only 17 and my life was just starting to turn around. I hope to God this isn't ALS. There are a bunch of other conditions that can mimic ALS symptoms, though, right?

 
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Old 01-30-2012, 02:07 PM   #8
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Re: Help! Terrified of als!

Thanks Johnny, is there any way I can get in touch with you outside this forum? If nothing else, you've calmed my nerves a little bit.

 
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