It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Amyotrophic Lateral Sclerosis (ALS) Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 02-20-2013, 05:43 AM   #1
Newbie
(male)
 
Join Date: Jul 2012
Location: Lebanon
Posts: 5
ksufw HB User
ALS - Last Phase

Dear All, My father is suffering with ALS from 3 Yrs. He is now on respirator and fully paralyzed. He is not able to sleep more than 3 hours /day. Doctors are not giving a hope and told us to wait and see.
When he went out from the hospital (Tracheo), he faced 2 infections (Pneumonia and urinary).
Now he is better, trying to adapat. He is a veryyy brave Man.
Can someone tell me what we expect in the near future ?
Anyone faced or facing this case ?
I appreciate your help.

 
Reply With Quote
Old 03-05-2013, 09:36 PM   #2
Newbie
(female)
 
Join Date: Feb 2013
Location: Ontario, Canada
Posts: 3
Chase452 HB User
Re: ALS - Last Phase

ALS is so varied and so different for each person
My father passed away from ALS October 31,2012
He had been fighting the disease for 2 years and was not compleetly paralized but he was begining not to be able to walk any longer. The morning he passed he took a shower with the help of a nurse, got dressed and sitting in his chair. He had compleet resperatory failure that morning and just drifted off to sleep. My dad had a feeding tube and was on oxygen and had a bi-pap for nightime. Up until the week of his passing he was walking rather well with the aid of a walker.
This disease is horrible and robs the person of the very basics of life, walking, talking, eating...
Like I said to begin I can't tell you what to expect but things can happen fast with this disease. They say that when the doctor puts you on Oxygen your time is short. My dad did have some pre-existing conditions but when he was diagnosed he had been a strong man. He was a fireman when I was growing up. He was so brave dealing with it and trying to keep a good humour through it all.
I wish you and your family all the best and you will be in my thoughts.

 
Reply With Quote
Sponsors Lightbulb
   
Old 03-07-2013, 11:51 PM   #3
Newbie
(male)
 
Join Date: Jul 2012
Location: Lebanon
Posts: 5
ksufw HB User
Re: ALS - Last Phase

Thank you Chase452 for your support and I am really sorry about your father.
The disease is really horrible and very difficult for the patient and his family
Thank you again

 
Reply With Quote
Old 05-16-2013, 07:49 PM   #4
Junior Member
(female)
 
Join Date: Nov 2011
Location: Portland, Maine USA
Posts: 22
Jenny1267 HB UserJenny1267 HB UserJenny1267 HB User
Re: ALS - Last Phase

The day my husband passed away was similar to what Chase described. In fact he was walking up stairs (14 of them) three days before he died. It happened very quickly. He was confused, so I took him to the ER and he died there 4 hours later. He battled the disease for 5 years, and was 45 when he died. He too was very brave. I wish I had more definitive answers for you, but the course of the disease varies with each person. A couple of weeks before he died his ankles and feet started swelling... so I kept them elevated to help fight that.. and he did not want to eat much. he was still very lucid until that last night. I am sorry you have to go through all of this. My thoughts and prayers are with you and your family.

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Celebrex Klonopin
Lasix
Lexapro
Lipitor
  Morphine
Paxil
Potassium
Wellbutrin
Xanax







All times are GMT -7. The time now is 03:45 PM.



Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!