Hi all, At the end of march it will be one year to when I was diagnosed with ALS / my progression remains slow (thank god) but my steak day are over, my speech is very slow and soft / swallowing has deteriorated my twitching / cramping and stiffness has increased and they last a lot longer, left side of my body is showing muscle wasting but with love of my family and friends I remain positive / strong and am going on a trip to Hawaii with my girls (Nellie and Menka) on 30th of March for 9 nights(can't wait). Something new that has started over the last few weeks is I have been sweating a lot mainly my forehead and legs is this part of this ugly disease? I will be seeing my doctor this week hoping he can tell, mean while I would like to ask if anyone else with ALS is or experienced this as well. Looking forward to your reply's..Thank you so much Joanna.
I had a number of tests before my diagnosis 6 mths worth (you name it I had it) and Lyme Disease was one of them it came back negative with a few more diseases that have the same symptoms all came back negative. I have an appt with my Doctor this Friday. Thank you for reply.
Your new onset of excessive sweating (hyperhidrosis) could be related to changes in the autonomic system. Scientists are just beginning to really look into autonomic changes as early markers for the disease. My husband was recently diagnosed with Respiratory Onset ALS (aggressive) because of dyspnea on exertion and inappropriate fatigue for the task. His hyperhidrosis started at least 6-7 years ago. He is now very dry....skin is dry, rarely sweats at all.
Hope this helps.
Last edited by Whippetlover; 06-18-2014 at 10:42 AM.