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Old 11-25-2003, 10:27 PM   #1
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Debeeg HB User
Smile New to this site,so pleased to have found you

[COLOR=Green][FONT=Book Antiqua]Hi I am so happy to have found this site. Let me tell you alittle about myself, I was DX'd with MS in 1994, I felt that I would not let this bring me down, but it did bring my marriage down, of 17 yrs, In the year 2000, I was not feeling real well, I had had a headache for over a week, And I was just extremly tired, But I thought that I was just pushing myself, my oldest was graduating, I was doing things for that, my youngest was playing softball, and I was team mom. I finally gave in and went to the doctor, He asked me if I had noticed how yellow I looked? MMMMM No he drew blood, and gave me the same old lecture, to pace myself, that I was pushing the MS. I went home and got back to business, 9pm that evening my Dr called and told me to get to the hospital. My RBC was 4.6., That was my first bought , was DX'd with auto imune hemolytic anemia. I was given 2 transfusions, and put on Prednisone, the weight has been a night mare, I did not have probs againd until this last april went to the Dr and basically the samething, this time my Hemotologist tried Retuxin treatment., I have felt fine until this last week, Now I feel like I am dropping again, I have an appointment at 10:30 am to be checked, now I dont know what is going to happen, it is scarey, I don't know what to do, I am so glad that I have found this site. I will be visiting here often, glad to have met you

 
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Old 11-26-2003, 09:44 AM   #2
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Re: New to this site,so pleased to have found you

Hey there, glad to see you've found us! I've found this site to be a good place for support, info, and a little venting now and then! I don't know much about hemolytic anemia - do they know what's causing it? I've been diagnosed with iron-deficiency anemia and have been dealing with this now for just about a year....and am hopefully on my way to getting some more direct answers, allowing me to get on with my life! I hope your appointment goes well and that they've caught it in time before needing to transfuse you. Good luck

 
Old 11-26-2003, 05:51 PM   #3
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Wink Re: New to this site,so pleased to have found you

Hey thanx for replying, I am so happy that I have found this also. Well they did catch it this time in time, I dropped to just below 8, so I am now back on prednesone 70 mg a day, and go back next week, I guess the next step for me is a spleenectomy now. The first time i was in the hospital they did all the test to see what mine was caused from, it was not caused from a virus, or medication, I have just been chosen to be one of the lucky ones to have 2 autoimune deseases. I am special That is ok, I am happy that I did not have to be admitted and have more transfusions, and I still can spend the holidays with my kids. Thank you again hope to talk to you soon!
Quote:
Originally Posted by amwood
Hey there, glad to see you've found us! I've found this site to be a good place for support, info, and a little venting now and then! I don't know much about hemolytic anemia - do they know what's causing it? I've been diagnosed with iron-deficiency anemia and have been dealing with this now for just about a year....and am hopefully on my way to getting some more direct answers, allowing me to get on with my life! I hope your appointment goes well and that they've caught it in time before needing to transfuse you. Good luck

 
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