b12 deficiency - Anemia Message Board

sam9 · 07-11-2002, 05:11 PM

Hi ,I have recently been dx'd with b12 deficiency and was put on b12 injections once a week for a month( just finished) and then am supposed to go to once a month. I still don't feel great ,have an elevated systolic, for me anyway, of 149 (I'm usually 114 to 118)and usually have to take a 1 -2 hour nap in the afternoon to get through the day if I do anything that is slightly physically demanding. I am (or was) a very active person and this is driving me crazy! Does anyone have an idea of how long it takes to feel "normal" again and does this mean towards the end of the month you start to get symptoms again? I would reaaly appreciate some info. Thanks

ourjen · 09-08-2002, 12:43 AM

Hi Sam9, I just wondered how you are getting on as I myself have just been diagnosed with vitamin B12 deficiency. Thanks Jen

[Please do not post personal contact details......Thanks, moderator3]

[This message has been edited by moderator3 (edited 09-08-2002).]

sam9 · 09-10-2002, 07:41 AM

Hi,
I'm still feeling tired and weak.I had a mma which was ok so I guess I don't have pernicious anemia and I had a cat scan which ruled out a tumor ,ulcer etc. It's been 5 months now of this.The b12 shots have helped a little but don't seem to be the cure.
What tests have you had so far?
Best wishes
Sam9

dozykiwi · 12-01-2004, 08:10 PM

I've also just been diagnosed with B12 deficiency (am usually around 104), which makes a lot of sense - although I'm not vege or suffering from any digestive disorder, I have been always been short of breath, pale, tired and with freezing hands and feet. The test for pernicious anemia was negative. I have had 2x injections so far - a fortnight apart - and am now waiting for my next which will be a monthly. Noticed an improvement for about the first week with both, but then experienced what I can only describe as a "come down". I become moody, fatigued and irritable like I've never experienced before. I'm starting to wonder if the shots are a cure worse than the symptoms, is there anything else apart from B12 injections I could try?

turl · 12-05-2004, 12:27 PM

I just found this board.......

I've been visiting another board, elsewhere, for peripheral neuropathy (which in some cases can be caused by B12 defs)--came upon it doing a google search for B12 info.

Anyway, thanks to info learned there, I'm taking daily sublingual doses of METHYLCOBALAMIN. I'm finally feeling better and my breathing is getting better. Seems even though you're getting a high dose in a B12 shot, usually it's in the form of cyanocobalamin, which isn't the "natural" form used by the body......and it's not as often as needed. Research has shown that sublingual supplements CAN increase your B12 levels (old thought was that only shots worked). The two types the body uses are: methyl-B12 which is used in the brain and for nerve regeneration, and adenosyl-B12 (dibencozide) which is used at the cellular level (energy). Hydroxo-B12 gets converted into these 2 types. If a person has trouble with conversion, especially with Cyano-B12, he's not likely to get the dose that'll help him feel more immediate effects (though whatever you do get will be better than nothing!). Someone on that board never felt much of anything while getting the cyano- shots but finally started feeling better after switching to methyl-B12.

Anyway, just thought I'd throw that out there.......certainly can't hurt to get something other than the cyano- and take it daily and see if that helps!

Tab