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Old 04-18-2001, 06:20 AM   #1
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Kezza HB User
Post Prenicious Anemia

Im 20 and have just been diagnosed with prenicious anemia as well as an iron and folate deficency. My doctor seems very reluctant to tell me anything about it littlelone treat it. I have had one B12 injection and felt far more tired and run down than i did beforehand. Can anyone tell me about this? Also should I be under the treatment of a specialist or is my doctor enough?

 
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Old 05-07-2001, 02:26 PM   #2
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I am 29 and have pernicious anemia also. I was originally diagnosed with Guillian Barre Syndrome, but after blood test, discovered I had pernicious anemia. I had it so bad that my hands and feet were numb all the time and my legs were so sore I could hardly lift them. It is my 12th week of this thing....my doctor sent me to a neurologist who discovered this. I have just taken my 4th b-12 injection and I have to say I feel the best I have in a long time. Energy like I never thought I could have again!! I have taken one shot once a week for a month (1000cc each time) Now I will get one once a month for 4 months, then take a blood test again to see how it looks. I have to tell you, the first shot did nothing for me either. It was not until the 3rd that I really started feeling better. This last one has made a big improvement!!!! Give it time and it will get better, I promise. it is odd that we have this at such an early age. Mostly older adults develop this. My mother was diagnosed with it 4 yrs ago. The doc thinks I may have inherited it from her. Feel free to email me I know how you feel!

 
Old 05-21-2001, 04:23 AM   #3
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Thanks for replying. It's nice to know im not the only young person with this horrible thing. I changed my doctor and he is of the opinon that i will know when i am in need of a B12 injection. I now have one every 10-14 days but usually by the seventh day im feeling bad again. Im going to have my levels checked again on Friday so it will be interesting to see if there is any improvement or not. How are you feeling now? Ive now had five and no longer feel so drained, but I also dont tend to push myself anymore and if I need to sleep I do so. Hopefully after a few more months of treatment we will both start to feel better!!

 
Old 07-20-2001, 10:22 AM   #4
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I was diagnosed with pernicious anemia when I was 34 years old. I went to my doctor with alot of seemingly unrelated ailments and the doctor treated me as if I was a hypochondriac. He sent me home and I got sicker. I went back about a month later and he still felt the same way even though I was visibly ill. He then took a blood test and called me back later that night to tell me that I was severely anemic and I should go into the hospital at once. I was so sick that when I went into the hospital I needed two pints of blood. Once in the hospital, a hemaetologist took a sample of bone marrow from my pelvis. About an hour later he came back and sat down and told me that I had Leukemia. He went over a schedule of chemotherapy that I would need and also told me that I had a 75% chance of being around in five years. I went into surgery the next day and they installed a Groshong catheter into my chest that went down into my heart. This was to be used for chemotherapy. I sat for three days thinking that I had leukemia and assuming that I would have to go through all sorts of harsh treatments until another doctor came in. This was about six hours before treatment was to start. He told me he did not think I had Leukemia but what I really had was Pernicious Anemia. I was sent home to await the findings of the bone marrow sample. I was given B12 shots and began to feel much better. Many things that were bothering me, sore tongue, tingling hands, and so on, felt better. My doctor told me at this point that it might still be a malignancy, as if his ego was bruised from being wrong! I later took a Schilling test that confirmed Pernicious Anemia. I am still, one year later, tired alot. I get B12 but I have been trying to find someone with a little more experience in this area.

 
Old 07-22-2001, 01:46 PM   #5
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Jennerizer HB User
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Kezza,

You should be getting shots on a regular basis, not just when you think you need one. By the time you realize that you have no energy, your b12 is at a low level. I had been getting the shot once every 4 weeks, but I noticed by the time I got to that 4th week, I was dragging. So I get the shot every 3 weeks. Why wait until your body is in need of it? You can't overdose on b12, but lack of it can cause a lot of damage. Find another doctor, yours doesn't sound like he knows what he's talking about.

 
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