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Old 11-28-2007, 02:30 PM   #1
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Some Not-So-Great Test Results Today

Well, they aren't "bad", but not what I was expecting which leaves me a tad depressed.

Back in January, my ferritin was 5, in March it was 5, in April it was 12, in September it was 24. The latest (taken Monday) was 20. So it went down. Guess my Flintstones are no longer doing the trick.

My hemoglobin was 13.6, hematocrit was 37.9.

Those have been fairly stable, although I think in September my hemoglobin was 14.0 (different lab, though).

Worst of all, my GP, who I had a THOROUGH conversation with on Monday about the Flintstones told me that I no longer needed to take the "horsepills" anymore and could switch to a multi-vitamin with iron. Typical.

I think I'm going to drown myself in a bowl of ice cream tonight.

 
Old 11-28-2007, 03:24 PM   #2
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Re: Some Not-So-Great Test Results Today

Christine--I know what you mean, my turn is coming up in January and I'm already having anxiety about the results. On a day with symptoms I freak thinking that my Ferritin is dropping. That's what this stuff does to people.

Your results are disappointing to you I know, but they are NOT bad results as you say, really. I have a friend that doesn't take the iron she should (because she's not anemic), and her Ferritin went to 20 something and back to 5, those are bad results. Sorry about the Flintstones. I think that it depends on how much are bodies use up that makes the Ferritin go up and down. It seems to go up and down all the time if tested, it is to be expected. Just eat some steak and you will be fine.

My H & H are almost the same numbers as yours. My hgb was 13.6 last time checked.

Are you saying that he wants you to change to a Multi-vitamin instead of Flintstones? Is this to get more iron?

Sometime back you asked about the ingredients in my iron and I didn't have the info. because they give it to me in a zip-lock. Well, now they gave it to me in a box with the ingredients listed, if you want I will post them for you. Let me know.

Enjoy the ice cream and think of us. Tomorrow will be a better day. Eat a steak and your numbers will be right back up there! I wish I could do that but I don't eat red meat and I might not be in this situation in the first place. Although, I do eat corned beef to try to boost my Ferritin about 4 times a month. I think it makes a great difference. Hang in there! FLFLOWERGIRL

 
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Old 11-28-2007, 03:29 PM   #3
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Re: Some Not-So-Great Test Results Today

No, he didn't want me to change from the Flinstones. He obviously THINKS I'm taking a high dose OTC supplement even though the other day he went over his notes and acknowledged that I don't take them. I told him I was taking 2 Flinstones per day and he made note of that.

Obviously when he was leaving the message on my machine about my results, he wasn't looking at my file.

Yes, that would be great if you could post the ingredients.

I've also asked several pharmacists about this Polyiron you are taking and they are clueless.

 
Old 11-29-2007, 08:07 AM   #4
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Re: Some Not-So-Great Test Results Today

I see what you mean now, I was confused about what he wanted you to take.

Some of the doctors that I have been to for other reasons haven't heard about Poly-Iron 150 that's the generic name and the one that I get. They seem to only know about FS that's the most common one, you know what I mean? I think you might try and call your GI doc and ask, I'm sure he will know about it, that's who prescribed it for me, and told me you don't need a script. I sent my friend, she asked at the pharmacy and they gave it to her too. I pay under $18.00 per month for #60, 2X daily. I don't care what it costs I just want anything that I can tolerate.

I will list the brand names, please note that they also have other ingredients and are not all created equal: Fe-Tinic 150, Hytinic, Niferex and Nu Iron 150.
________________________________________ __________________________________
Supplement Facts: Serving Size: 1 Capsule, Iron (Elemental) (As Polysaccharide Iron)150mg 833% Daily Value.
________________________________________ __________________________________
OTHER INGREDIENTS: Gelatin, Microcrystalline Cellulose, Stearic Acid, Sodium Lauryl Sulfate, Citric Acid, Croscarmellose Sodium, Polyethylene Glycol, Titanium Dioxide, FD &C Yellow #5 Lake*, Polyvinylpyrrolidone, FD&C Blue #1 Lake, FD&C Red #40 Lake and FD&C Red #3 Lake.

*Contains FD&C Yellow #5 Lake (Tartrazine) as a color additive.
Adult dosage 1-2 capsules daily.

Hope you can at least get some information on it. It saved me from the alternative. FLFLOWERGIRL

 
Old 11-29-2007, 08:15 AM   #5
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Re: Some Not-So-Great Test Results Today

Thanks for posting the inactive ingredients. That's what I need to see. It contains Polyvinylpyrrolidone which can also be another name for Povidone which I suspect I am allergic to.

 
Old 11-29-2007, 08:30 AM   #6
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Re: Some Not-So-Great Test Results Today

Yes, your correct in saying Povidone is the same as PVP. Sorry about your luck. I wonder if you checkout the ingredients on some of the other brand names, it may not be in those. FLFLOWERGIRL

 
Old 11-29-2007, 08:54 AM   #7
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Re: Some Not-So-Great Test Results Today

I did some internet checking on the Poly Iron 150 and it appears to be the same thing as Niferex? It looks like I can outright buy the Poly Iron 150 over the internet but that I need a prescription for the Niferex which is basically the same thing? I'm kind of confused but I may not be looking at the websites correctly.

 
Old 11-29-2007, 09:09 AM   #8
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Re: Some Not-So-Great Test Results Today

I think the difference is a script is required for brand names and generic are not maybe??
Nu-iron also has Povidone in it, does the Niferex? Niferex has the same PI Complex and also B-12 and Folic vitamins added that generic Poly does not. I don't know if that's an issue for you. Do you ever feel like a research scientist or what? FLFLOWERGIRL

 
Old 11-29-2007, 10:35 AM   #9
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Re: Some Not-So-Great Test Results Today

I certainly feel a heck of a lot smarter than my doctors these days!

 
Old 11-29-2007, 07:05 PM   #10
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Re: Some Not-So-Great Test Results Today

Yes, I'm graduating to ~Specialist~ now, I seem to know more than my Hematologist at this point. FLFLOWERGIRL

 
Old 11-30-2007, 12:52 AM   #11
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Re: Some Not-So-Great Test Results Today

Christine - sorry to hear about your results. It's so hard when you try to do all the right things and then get so buoyed up when it comes time to get the results and they dont turn out how you anticipated. The main thing is dont give up and keep taking the Flinstones even if your results are lower. It could simply be a phase your body is going through and it doesnt necessarily mean the Flinstones no longer work. Can you up the Flinstones perhaps?

I went through a similar thing with the iron supplement i'm on. I thought why keep taking it when my figures dropped instead of increasing. Then out of desperation i gave the iron injections a go and that only raised my ferretin up by 9points. Then i went back on the supplements and felt depressed, frustrated and wondered where to from here. I then decided to resume the supplements, give them another go, but seriously looked at my diet and made a few changes, which is crazy as my diet is good, but i found things to change anyway.

I went back to making that beetroot juice and drinking it daily and started eating an egg a day as well as eating either fresh/dried apricots (they contain copper & cobalt which is excellent for anemia), no coffee except for that herbal coffee made from chicory/barley and i also discovered chicken liver pate, which i would put on toast and some slices of tomato for either breakfast or lunch and that is when i started to feel different and more positive which makes me think maybe my iron has gone up a little b/c i never felt this way before, except when i was up to my 4th week of the iron injections, maybe not bouncing with as much energy as i did for a few weeks back then, but at a better place than i used to be. I have to get a blood test either Dec or Jan so will only know then whether what i'm feeling is as a direct result of the ferretin going up.

I still think the lower your iron the more difficult it is to get it rising and i dont think any of us are going to see huge results after each test and sometimes our levels will go down instead of up or might stay stationary.

Just out of curiosity, what sort of ice cream did you have

 
Old 11-30-2007, 01:34 AM   #12
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Re: Some Not-So-Great Test Results Today

FLFLOWERGIRL - i noticed in the list of ingredients you provided back on page 1 of this thread that one of them was Sodium Lauryl Sulphate? Can that be right? I thought that that was one of the ingredients in shampoo and was what made the suds when you shampoo your hair, unless SLS in your product is a natural form, which i think you can get from certain plants. Even so i always was under the assumption that SLS was put into products to clean. Am very curious now.

 
Old 11-30-2007, 04:02 AM   #13
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Re: Some Not-So-Great Test Results Today

Actually, SLS can be in many products. I've seen it. I've always heard it's best to avoid it but what are you gonna do when you've got to find something to work.

 
Old 11-30-2007, 08:21 AM   #14
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Re: Some Not-So-Great Test Results Today

I have no idea about that one. Hum......FLFLOWERGIRL

 
Old 11-30-2007, 09:25 PM   #15
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Re: Some Not-So-Great Test Results Today

Christine-Sorry to hear that your results were not as good as you hoped. If you were ok with the ferrous fumarate which I believe you said was in the flintstones- why not take ferrous fumarate?? Take the flintstones as you have and add ferrous fumarate to up your intake of the iron. I am taking Twinlabs ferrous fumarate- I just checked the ingredients and there is not pvp or povidone or anything that remotely sounds like that ingredient. So , maybe that would work for you.I understand you are bummed out by the labs, but maybe you just need to up the ferrous fumarate and not necessarily need to search out something else esp. if the ferrous fumarate is a type of iron that you tolerate well. Good luck to you on this.

 
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