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Old 10-04-2008, 12:38 AM   #1
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Pernicious Anemia, Leukemia link

Hello, I am new to this site. I have pernicious anemia and Haemochromotosis. On my mother's side of the family, both of these were common with 4 immediate members of my mothers family dying of Leukemia (including my mother). Both my sisters had Haemochromotosis, and one also has pernicious anemia. Does anyone know if there is any proven link between Perincious Anemia & Leukemia? I am currently having 2 monthy injecitons of B12, but am not faring well. I am thinking of increasing it to monthly to see if I improve. I suffer from numbness, fatigue, forgetfulness, and joint aches. Is this common? Thanks for any advice.

 
Old 10-04-2008, 08:50 AM   #2
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Re: Pernicious Anemia, Leukemia link

Hi Heather. Welcome to the Anemia Board! Wow, you really got the double whammy here. My husband has HH and our children are carriers. Do you mind telling me at what age you found out that you had H because I am still learning how this can affect other family members and when it shows up.

To answer your question, I have not heard anything about PA being related to Leukemia. Do you see a Hematologist for your H because they would be able to answer this question for you. If you are not already seeing a Hematologist, I would do so, due to your multiple hereditary disorders in your family.

Regarding B-12, your symptoms are common from what I know and have read on this board. Symptoms are different, however, for everyone. Some of your symptoms are also common for HH, though this may not be the reason at all.

Did you mean that you were going to weekly injections? There is a great book on B-12; it is entitled, Could It Be B-12? You may want to check it out, It's full of good information on what type of B-12 you should be receiving, how often and also how you can supplement with SL B-12 on a daily basis in between injections. Perhaps this would help. Good luck to you and keep us posted! FLFLOWERGIRL

 
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Old 10-04-2008, 09:41 PM   #3
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Re: Pernicious Anemia, Leukemia link

Thank you so much for your reply. I was diagnosed with H at age 44. I wasn't showing any signs, but my eldest sister (who was 49) was diagnosed and hence myself and another sister (45yrs) were both tested and diagnosed. By this time, our mother had passed away from Leukemia, but my father has shown to be a carrier. The Dr's said our mother probably had it, but because of all her other problems, it was not diagnosed. Two of my nieces are carriers, and one of my daughters is a carrier. None of the grandchildren have been tested so far, as we were advised to wait until they were nearing 20yrs and then have them tested. My treatment varies depending on results of testing, but I am currently having 4 monthly treatment for that. I will be visiting my specialist again in about 4 weeks, and will ask him the question about a relationship between all my problems. When I was diagnosed with PA, I didn't really understand much about it and thought it meant I would just be a bit tired. I must say that as time goes on, I seem to feel worse! I sometimes think I am getting old before my time!! Hope all goes will with you husband & children. Kind regards.

 
Old 10-08-2008, 05:58 PM   #4
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Re: Pernicious Anemia, Leukemia link

Heather--Thank you for your post! Sounds like your family caught the "H" factor in time before any damage was done. My husband found out at the age of 53 (no damage) through routine testing. So one of your daughters is a carrier? I thought that they would both be automatically if you had HH, forgive me I'm still learning. My husband got his ferritin results today and his Ferritin is at 29, we are extremely pleased about that! Does your doctor have a goal for your ferritin and Hct?

Your not old yet, you probably need more B-12! Good luck at your doctor's appointment. Thanks again for your answers. FLFLOWERGIRL

 
Old 10-12-2008, 03:05 AM   #5
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Re: Pernicious Anemia, Leukemia link

Heather, if you're having neurological symptoms - the numbness and such - it means you are still B12 deficient - somehow. That's the major differential between iron deficiency and b12 -- the neuro signs. You dont' get those with Iron deficiency. I would definitely see you doctor and make sure you figure out what's going on.

 
Old 10-12-2008, 05:05 AM   #6
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Re: Pernicious Anemia, Leukemia link

Quote:
Originally Posted by heather54 View Post
Hello, I am new to this site. I have pernicious anemia and Haemochromotosis. On my mother's side of the family, both of these were common with 4 immediate members of my mothers family dying of Leukemia (including my mother). Both my sisters had Haemochromotosis, and one also has pernicious anemia. Does anyone know if there is any proven link between Perincious Anemia & Leukemia? I am currently having 2 monthy injecitons of B12, but am not faring well. I am thinking of increasing it to monthly to see if I improve. I suffer from numbness, fatigue, forgetfulness, and joint aches. Is this common? Thanks for any advice.
Hi Heather
Yes they are all symptoms of B12 deficiency I suffered terribly I got so ill couldnt stand up with my eyes closed and memory loss numbness would drag my legs to the loo at night couldnt speak correctly it was scarey stuff...

How long have you been having injections for?

if you are having nuero symptoms I would think you need more injections for sure ! per month wont really hold to well its a mere drop in a big ocean so to speak... I beleive with neuro problems your levels should stay around 1500-2000 that is what my gastro recommended Do you know what type of B12 you are using?
I have Methylcobalamin this has worked the best for me I am on a aggresive form of therapy & it is working really well I have no more numbness and i have my head back at last!

You & I are both from Aus nice to see you here...

Goodluck

 
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