It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Anemia Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 12-05-2011, 02:03 PM   #1
Member
(female)
 
Join Date: Jul 2004
Posts: 52
geogal HB User
Had my first iron infusion and extremely fatigued

Hello.

I have struggled with iron-deficiency anemia for about a decade. My hemoglobin levels bounce around between 6 and 9 and have actually been lower on a few occasions. I began the iron infusion therapy on Friday. Now, granted, when my levels are low, I am tired. However, I slept a lot during the next two days after the infusion. Four days later and, after minimal activity (i.e. doing dishes), I feel I need to lie down.

Has this happened to anybody else? My next infusion is next week. Should this get better soon?

 
Reply With Quote
Old 12-07-2011, 11:15 AM   #2
Member
(female)
 
Join Date: Jul 2004
Posts: 52
geogal HB User
Re: Had my first iron infusion and extremely fatigued

Quote:
Originally Posted by geogal View Post
Hello.

I have struggled with iron-deficiency anemia for about a decade. My hemoglobin levels bounce around between 6 and 9 and have actually been lower on a few occasions. I began the iron infusion therapy on Friday. Now, granted, when my levels are low, I am tired. However, I slept a lot during the next two days after the infusion. Four days later and, after minimal activity (i.e. doing dishes), I feel I need to lie down.

Has this happened to anybody else? My next infusion is next week. Should this get better soon?
Well, six days later and yesterday I woke up and felt like I came out of a fog. Still a bit tired but the absolute fatigue is gone. I also gained a good amount of weight after the infusion (from the IV???) but that suddenly dropped off yesterday and today as well. I see people are reading this so I'll try and update after my second infusion next week to let you know if I have the same side effects or not.

Last edited by geogal; 12-07-2011 at 11:16 AM.

 
Reply With Quote
Sponsors Lightbulb
   
Old 12-07-2011, 05:26 PM   #3
Senior Veteran
(male)
 
jonnstar's Avatar
 
Join Date: Mar 2010
Posts: 1,873
jonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB Userjonnstar HB User
Re: Had my first iron infusion and extremely fatigued

I'd think that within 10 days you'd start to feel better, as the new blod cells begin to percolate through your system.

A daily Centrum with dinner might be a good idea, to provide all the other bits and peices the body needs to make blood apart from iron.

If you're still feeling this way after 14 days, speak to your doctor.
__________________
The desire to take medicines is what seperates man from the lower animals - William Ostler

Multiple anecdotes do not equal evidence - Me

 
Reply With Quote
Old 12-12-2011, 01:42 PM   #4
Newbie
(female)
 
Join Date: Dec 2011
Location: Roanoke VA
Posts: 1
wandtmac92 HB User
Re: Had my first iron infusion and extremely fatigued

I hope you're feeling better today...

The 1st time I received treatment I felt horrible even fluish for days which is normal. I had to receive 3 treatments in a 6 week period before the word normal was used. I now receive them ever 8 to 10 mos. Not everyone has to continue to be monitored but my body simply refuses to absorb any iron it consume. I've been a very good eater my adult life and for some reason my level have been low since the age of 30. I'm now 41 and I've learned to not push myself when extremely tired.

I wish you the best of luck.
Traci

 
Reply With Quote
Old 12-13-2011, 02:46 PM   #5
Newbie
(female)
 
Join Date: Dec 2011
Location: Portland OR
Posts: 9
Pax1 HB User
Re: Had my first iron infusion and extremely fatigued

I had four infusions, one a week for four weeks. After the first one, I kind of got a rash, but after that they were fine.

It's hard to tell if the infusion makes me tired as I feel tired anyway. My level was also at 6 but it's come up considerably now. I am not symptom free however which is what I want.

the good part of the infusions is that you get the iron without the side effects of the iron pills.

 
Reply With Quote
Old 12-14-2011, 01:13 PM   #6
Junior Member
(male)
 
Join Date: Nov 2011
Location: Dallas, TX USA
Posts: 29
DaleP HB User
Re: Had my first iron infusion and extremely fatigued

Pax,
Your level is at six your gonna need seething a bit stronger than an OTC. It blows my mind how some people on this board are recommending a daily supplement to someone who is anemic. If you take an oral, stay away from the iron salts - especially if your on a PPI or an H2 antagonist. I understand that you want to have a clearer sense for a solution, but some of what is said on this board is scary. Please go see your doctor, let them run a lab, and make a determination. They have a much clearer understanding about you than some people on a chat board. Hope you get better - all the best.

Last edited by DaleP; 12-14-2011 at 01:14 PM.

 
Reply With Quote
Old 12-17-2011, 05:42 PM   #7
Member
(female)
 
Join Date: Jul 2004
Posts: 52
geogal HB User
Re: Had my first iron infusion and extremely fatigued

I really appreciate the replies. Thank you! Two weeks later and I feel quite a bit better. I'm not fatigued. I am still taking a late afternoon nap when the tiredness really sets in but afterward I have some energy which was not happening before. I was supposed to have my second infusion yesterday. I had changed it from the week before and had to change it again. I now have it Monday. I'm a bit nervous because I don't want to go through that intense fatigue and flu-like feeling again. I do really think this is working though so I am hopeful that my levels are a bit higher and it won't be so tough on me?

Interesting side effect of the infusion though...I have been a serious ice chewer for the last couple years due to the anemia. The craving has been overwhelming and I go through cups of it daily. Immediately after the infusion, everything tasted odd and I no longer wanted ice. I am not craving it and it does not taste good to me anymore. Has that ever happened to anybody else?

 
Reply With Quote
Old 12-21-2011, 07:01 PM   #8
Member
(female)
 
Join Date: Jul 2004
Posts: 52
geogal HB User
Re: Had my first iron infusion and extremely fatigued

Update two days after my second infusion:

Felt really fatigued again after the infusion. Slept most of the day and a bit of the next. I wonder if it is not so much the iron as the Benadryl. I tend to be really affected by medications. They Benadryl pretty much knocked me out both times after they started it in the IV. Last time I did feel ill and I am sure that was the iron but this time I am only tired. Had more energy today though so I am really thinking this iron is working. I have an appointment to check my levels the first week of January. I'll post and update then as well.

 
Reply With Quote
Old 12-22-2011, 09:45 AM   #9
Newbie
(female)
 
Join Date: Dec 2011
Location: Portland OR
Posts: 9
Pax1 HB User
Re: Had my first iron infusion and extremely fatigued

Quote:
Originally Posted by geogal View Post
Update two days after my second infusion:

Felt really fatigued again after the infusion. Slept most of the day and a bit of the next. I wonder if it is not so much the iron as the Benadryl. I tend to be really affected by medications. They Benadryl pretty much knocked me out both times after they started it in the IV. Last time I did feel ill and I am sure that was the iron but this time I am only tired. Had more energy today though so I am really thinking this iron is working. I have an appointment to check my levels the first week of January. I'll post and update then as well.
It is the Benadryl. It wipes you out. But the first infusion I didn't have the benadryl and I got hives. I finished my fourth infusion a few weeks ago and I'm feeling pretty good now. I still get worn out kind of quickly but not nearly as much as I was before the infusions

 
Reply With Quote
Old 02-04-2012, 09:18 AM   #10
Member
(female)
 
Join Date: Jul 2004
Posts: 52
geogal HB User
Re: Had my first iron infusion and extremely fatigued

Just had to leave an update. I am sure my exhaustion after the infusion was the Benadryl. But, like the other poster stated, I'd rather be exhausted than rashy (or worse!). I had two infusions and, oh my goodness, I feel so much better. I cannot even begin to tell you how wonderful it feels to have energy. I've gone so long without it!

I had two infusions. No, they weren't easy on me physically but I am so thankful for them. I had my check up several weeks ago and my iron levels look excellent! They couldn't even detect iron in me before the infusion. My hemoglobin levels are up to 11 which is still just a little low but I haven't had levels that high since I can remember! I feel so much better. My next check up, if there are no issues, is this summer.

 
Reply With Quote
Old 02-05-2012, 11:18 AM   #11
Junior Member
(female)
 
bleetchblonde's Avatar
 
Join Date: Jan 2012
Location: Northern California
Posts: 26
bleetchblonde HB User
Re: Had my first iron infusion and extremely fatigued

Please, Geogal,
Keep us updated (me)about your iron infusions.
I've been severely iron deficient for 2 1/2 years now & think I'm getting closer to the infusions. (can't tolerate oral iron).
While I'm a bit nervous about the infusions, I get a better feeling reading more recent posts about them. When I hear you're feeling better, it gives me hope, where I feel pretty hopeless now.
Good luck, I hope you continue to feel alive again!!
Thank you,
Debbie

 
Reply With Quote
Old 02-05-2012, 11:19 AM   #12
Junior Member
(female)
 
bleetchblonde's Avatar
 
Join Date: Jan 2012
Location: Northern California
Posts: 26
bleetchblonde HB User
Re: Had my first iron infusion and extremely fatigued

Please, Geogal,
Keep us updated (me)about your iron infusions.
I've been severely iron deficient for 2 1/2 years now & think I'm getting closer to the infusions. (can't tolerate oral iron).
While I'm a bit nervous about the infusions, I get a better feeling reading more recent posts about them. When I hear you're feeling better, it gives me hope, where I feel pretty hopeless now.
Good luck, I hope you continue to feel alive again!!
Thank you,
Debbie

 
Reply With Quote
Old 02-20-2012, 08:37 PM   #13
Newbie
(female)
 
Join Date: Feb 2012
Location: Milwaukee WI USA
Posts: 2
peggydwi HB User
Re: Had my first iron infusion and extremely fatigued

Quote:
Originally Posted by geogal View Post
well, six days later and yesterday i woke up and felt like i came out of a fog. Still a bit tired but the absolute fatigue is gone. I also gained a good amount of weight after the infusion (from the iv???) but that suddenly dropped off yesterday and today as well. I see people are reading this so i'll try and update after my second infusion next week to let you know if i have the same side effects or not.
what is iron infusion? I had blodd transfusions in the hospital. Little confused.

 
Reply With Quote
Old 02-21-2012, 01:30 PM   #14
Junior Member
(female)
 
bleetchblonde's Avatar
 
Join Date: Jan 2012
Location: Northern California
Posts: 26
bleetchblonde HB User
Re: Had my first iron infusion and extremely fatigued

I go for my 2nd & last infusion tomorrow.
I too, was very tired-more than usual. But I don't think it was from the benedryl as I take benedryl every night because my sinuses stuff up.
I was very tired, like my body was just put thru something...you know?
So I expect to be tired more than usual tomorrow & the next couple days. I stocked up on what I need.
And if I'm not tired, then Yay!!!
Overall geogal, do you feel better? More energy?
I'll check in the next couple days.
Debbie

 
Reply With Quote
The following user gives a hug of support to bleetchblonde:
geogal (03-17-2012)
Old 03-17-2012, 08:50 AM   #15
Member
(female)
 
Join Date: Jul 2004
Posts: 52
geogal HB User
Re: Had my first iron infusion and extremely fatigued

Hi Debbie (and anybody else reading this).

Oh my goodness, I am just so recommending this for anybody who struggles with anemia. Several months later and I feel great. I am not kidding when I say I probably haven't had this much energy since before my daughter was born. I' gained about 10 lbs which surprised me. I guess I'm hungrier as well? But, I'm back into walking and have lost about half that.

Yes, infusions weren't easy on me. That exhaustion afterward was not fun but if my levels are ever that low again, I'll be in there in a heartbeat. Wish I had done this years ago. I feel like I've lost years where I could have been doing so much more, you know?

The minute I find out anybody has struggled with anemia for years, I recommend this.

So, Debbie, how are you doing?

Last edited by Administrator; 03-18-2012 at 08:34 AM.

 
Reply With Quote
The Following User Says Thank You to geogal For This Useful Post:
lfurer (04-17-2012)
Reply Reply

Similar Threads
Thread Thread Starter Board Replies Last Post
Worried about iron infusion, please answer! BriansMom444 Anemia 17 07-31-2011 12:43 PM
Has any had the iron infusion not work? GypsyZale Anemia 5 07-16-2010 10:14 AM
Dextran infusion concerned first timer altaztaz Anemia 15 05-25-2010 04:44 AM
Hematologist and Iron Infusion Missa21 Anemia 9 04-10-2009 09:00 AM
Iron Infusions ECM20 Anemia 7 03-28-2008 10:56 AM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 07:43 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!