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Old 01-28-2012, 12:04 AM   #1
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What the numbers mean

I REALLY need to understand what the #s in my bloodwork mean. I was told by the nurse (Rhuemy's) that I was very very anemic. He said I had leukopenia and had a very anemic score of 26. He said we usually do more but she wants to try Slow-Fe first and keep watching your blood.

I know that Leukopenia has to do with low white blood cells but I don't know what the "26" is off a scale of what red blood scale?? IOW, what does it measure exactly?

I have been on Methotrexate for 2 yrs and started Benlysta 3 month ago. I cannot take steroids. These along with aspirin, percocets and Opana ER as well as other meds for everything seem to be working. I am pleased with the B infusions and know they are helping

Now with the anemia I have been very sick 3 weeks out of the last 4 weeks. I am finished with another round of antibiotics but I am having a surging heartbeat, fatigue, shortness of breath,,,etc, all the usual symtoms of anemia.

Any help would be so appreciated!
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Old 02-01-2012, 02:51 PM   #2
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Re: What the numbers mean

I wish I could help you-I'm new here myself.
I've been sick w/no treatment other than B-12 shots once a month now, for 2 1/2 years.
Please someone? Can someone answer this person questions?

Why is it so hard to find info on anemia? I've been all over the Internet just to hit walls. Or overseas.

I wish you well. I'm terrified myself (for me) & many others who can't find answers.

 
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Old 02-02-2012, 08:53 PM   #3
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Re: What the numbers mean

I'd start taking a Slow Fe every morning, and a Centrum every evening with dinner right away, and get checked again in 4 weeks to see if things are improving. Keep taking the iron for 6 months or so, and keep taking the Centrum long term.

Aspirin is about the worst pain releiver for causing blood loss from the stomach through minor occult bleeding, you'd probably be better off using ibuprofen if your doctor approves.
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Last edited by jonnstar; 02-02-2012 at 08:56 PM.

 
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Old 02-03-2012, 07:41 AM   #4
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Re: What the numbers mean

Thanks for your reply!
What if you cannot tolerate oral iron?
I've been anemic-lost 45lbs, can't eat, tired, anxious, etc-and Still the insurance won't okay iron infusions.
My hematologist said my iron levels are dropping so low that the insurance 'should' ok the infusions in a couple months. Couple months! And a maybe at that?
This rotten condition, I've had for 2 1/2 yrs & has changed my life drastically and all I want is to feel human again.
Debbie

 
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Old 02-03-2012, 10:15 PM   #5
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Re: What the numbers mean

There is good info about anemia on anemia.org. That is the best source I have found so far. Good luck.

 
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Old 02-05-2012, 07:02 PM   #6
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Re: What the numbers mean

Try Sundown Perfect Iron, it is well adsorbed, and lacks the side effects of ferrous sulphate.

It is cheaply avaliable online if you cant find it in your local pharmacy.

Dose is 2 tabs daily.
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Old 02-05-2012, 07:06 PM   #7
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Re: What the numbers mean

I can't tolerate any oral iron. My life would be bearable if I could.

Debbie

 
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Old 02-07-2012, 12:25 AM   #8
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Re: What the numbers mean

Quote:
Originally Posted by jonnstar View Post
I'd start taking a Slow Fe every morning, and a Centrum every evening with dinner right away, and get checked again in 4 weeks to see if things are improving. Keep taking the iron for 6 months or so, and keep taking the Centrum long term.

Aspirin is about the worst pain releiver for causing blood loss from the stomach through minor occult bleeding, you'd probably be better off using ibuprofen if your doctor approves.
allergic to them all except aspirin. I have had tests upper and lower if you know what I mean. I also had a test which confirm I have a muscle that is working against me when I try to swallow.
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Old 02-07-2012, 02:57 PM   #9
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Re: What the numbers mean

Maybe try liquid ferrous sulphate then, (Ferrous Sulphate Elixir USP, your pharmacist should have it) mixed up in some orange juice, and a childerens chewable multivitamin? That should be easier to swallow.

If you have to take aspirin, atleast make it Bufferin, as this is less harmfull to the stomach than regular aspirin (remember the old advert...Bufferin, faster for your headache, better for your stomach)
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Old 08-16-2012, 05:38 PM   #10
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Re: What the numbers mean

I take liquid iron, floradix, just double the regular dosage, along with a 1000 mcg sublingual B12 with folic acid, and I drink orange juice close to the time I take my iron. I've also found some surprising iron rich foods like red lentil pasta, chickpea pasta and force myself to eat lean red meat once a week. I definitely feel a difference, I won't have my levels checked again for at least 6 weeks though.

 
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Old 08-16-2012, 05:40 PM   #11
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Re: What the numbers mean

I can't tolerate any of the stuff that is prescribed or behind the counter for iron. It makes me violently ill. I take Floradix liquid iron supplement with no problems though.

 
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