Hi. I am new to the boards, but I was hoping that some of you might have some insight into what is going on with my daughter. Every doctor that I talk to tells me a different story.
My daughter is 13 years old and is always fatigued. She has had numerous blood tests done, which have been in the normal range of everything. One doctor just tested her ferritin, hemoglobin and hematocrit and said her levels might be to blame for her fatigue. Ferritin = 17, hemoglobin = 11.7 and hematocrit = 35.3.
Can you tell me if these levels are enough to make her so exhausted.
Some doctors say her ferritin level alone isn't enough to make her exhausted because the other two leves were in the normal range.
The Dr's that are saying ferritin alone isn't enough to cause her symtpoms I believe are wrong. As someone that suffers from iron d. anemia I can tell you ferritin alone is enough to cause you to be sick. I can tell you her ferritin is just to low. She's in normal ranges yes, but when your a 17 and your number could be all the way up in the 200's, your low. Some people don't report feeling optimal till their ferritin even touches the 50's. Her crit and globin are also a little bit below normal, which can signal the beginning of iron d. anemia as well.
What do the Dr's plan on doing wait till she gets lower before they treat it? Obviously something is going on here and you need to take her health in your hands and find a Dr. that will take care of it or take care of it yourself. Ferritin is a very hard number to raise and can take months, depending on what is causing hers to be low.
Sorry but I disagree with the Dr's and can sympathize with your daughter. I'm sure she doesn't feel well at all.
Thank you so much for your reply. It's nice to speak to someone that understands.
Every doctor that I have spoken to, including her pediatricians, have said that low ferritin alone is not enough to cause fatigue. The only one that has said her fatigue could be caused by low ferritin is a nurse practioner.
I absolutely am going to take this matter into my own hands because school is starting soon and I don't know how she's going to make it through the day. She sleeps for at least 10 hours at night and is still exhausted.
On top of the fatigue, she has muscle aches, headaches, gets short of breath and is very pale. She, also, gets quite irritable because she doesn't feel good.
Thanks, again for your reply. I'll post again when I have an update.
I wonder if every single one of those Dr's has ever felt what we feel. I was living a perfectly normal life up to this anemia. After things are just horrible, headaches, dizzy, dizzy, dizzy, tired, sick, tired, lets not even talk about panic and depression!. The nurse practitioner knows what she's talking about. My heart goes out to your daughter because I honestly don't know how she is going to make it either. Sometimes I can't even get through the grocery store, I can't even imagine a school day.
If the Dr's aren't prescribing her anything for her iron I would suggest maybe a multi-vitamin. Have her take it with a big glass of OJ. Find some foods that she likes that are high in iron, cook in cast iron pans.
While your doing that find a good hematologist (I say hematologist because they specialize with this) or a Dr. that is going to take this a little more serious. There is a cause and something is causing her numbers to go low. Does she have heavy periods (if she does have a period). Could she have Celiac's (gluten intolerance). Etc. Most of the things that cause anemia are easily treated, it just takes a long time to get numbers to go back up and I really would hate to see them allow her to slip below the "low but ok" lines because they don't want to investigate further.
Also did you get her vitamin b12 and D levels checked? If not, do. Seems a lot of people that have anemia are low on these as well. Might be worth it just to check, they both have some yucky symptoms as well.