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Old 04-18-2013, 01:38 PM   #1
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karibarry HB User
I am scheduled for my first IV iron infusion- scared

I am scared and excited all at once! I so badly want to feel better!
I had my appt with my hematologist today and all my labs either dropped or stayed the same after a uterine ablation in January and tripling my iron intake.
Ferritin-3 was a 5
Iron- 30 was 38
HGB- 11.2 (I used to be in the 14-15 range)
Iron saturation- 9

I hope I don't get any bad side effects!

 
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Old 04-18-2013, 01:53 PM   #2
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Re: I am scheduled for my first IV iron infusion- scared

I had my first one on Tuesday with Venofer. I did have reactions, but I got about 3/4 of the bag. They gave me benodryl, tylenol and then steroids. But, I am fine. After effects for me have been tired, joint aches, and slight headache. I will try again on May 8th with Feraheme.

Good luck!!!!!

 
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Old 04-19-2013, 07:27 AM   #3
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Re: I am scheduled for my first IV iron infusion- scared

I had my first venofer infusion almost three months ago. I did very well, no reactions at all. I go back to the hematologist on May 1 to see how my counts are doing and find out if I need another infusion or am good for a while longer. My body has no iron stores so I will have infusions for the rest of my life. I hope everything goes good for you.

 
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Old 04-19-2013, 09:09 PM   #4
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Re: I am scheduled for my first IV iron infusion- scared

Quote:
Originally Posted by Daehyma View Post
I had my first one on Tuesday with Venofer. I did have reactions, but I got about 3/4 of the bag. They gave me benodryl, tylenol and then steroids. But, I am fine. After effects for me have been tired, joint aches, and slight headache. I will try again on May 8th with Feraheme.

Good luck!!!!!

Hi, Daehyma! I just wanted to jump in to this conversation because I saw that you are having Feraheme infusions soon. Just a word of encouragement, I have had two sessions with it, and it has been AMAZING for me. I hope you have the same experience. I am only in the clinic for an hour or hour and a half. They gave me the pre-IV Benodryl, etc. first, of course. Then the actual Feraheme took maybe 3 or 4 minutes to administer. It was just in a push syringe that they hooked up to my IV line. Then I just stayed for observation and saline!

I had no side effects that I could tell. I actually felt a little energy boost starting that day. I did notice with both if the sessions that I sweated a bit and felt like my body temperature rose a little throughout the day, but extreme coldness was one of my iron deficiency symptoms, so perhaps it just felt more noticeable because of that.

The best part is that my ferritin level went from a 13 to a 198 after just those two sessions! I honestly didn't believe them. I thought they were looking at the wrong data or something. I go in a couple weeks to check if my levels are holding in place.

I'll be praying for all of you who are undergoing infusions that you'll have good experiences and awesome results!

 
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Old 04-29-2013, 09:50 AM   #5
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ineediron HB User
Re: I am scheduled for my first IV iron infusion- scared

Hi, I'm new on the board, but not new to anemia. Last fall i had 8 weeks of IV iron infusions (1 hr each) I did not have any side effects, thankfully. But my ferritin has dropped again and they want me to come do it again, ugh. I really am hoping I can find a good oral iron supplement I can take that will keep my numbers up. I've tried Bifera, Bifera-RX, and Proferrin as well as Vitron-C and countless others.

You didnt say when you're going in, but good luck!

 
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Old 05-02-2013, 10:09 AM   #6
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Daehyma HB User
Re: I am scheduled for my first IV iron infusion- scared

Thanks for letting me know, Madi24. I go back Wednesday with blood work on Tuesday so we will see what the venofer did for me. Thanks for the encouragement. Much appreciated.

 
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