Re: PKD and aneurysm
i had my aneurysm induced by PKD back in 2005. i had NO headpain what so ever til after it was coiled. you can actually have many or no symptoms with aneurysm, thats why they are so freaking scarey. i just happened to have a VERY thorough neurosurgeon who did my spinal cord surgery a few years before take what little symptoms i did have seriously and send me for an MRA which showed mine. i also had wats called a cavernous hemangioma in my spinal cord, which is another form of vascular malformation too. at first he really did not connect it to my PKD tendencies since i was born with this in my cord, but just did not know it til i needed an MRI after i herniated a c spine disc. it just showed. but once the aneurysm also showed up,he really felt that they were all connected to PKD.
my aneurysm symptoms were a bunch of heat "flushes' that would just pop in about the middle of the top of my head and then just kind of "flush' down the back into my neck. and i had some 'off' feelings in my head once in a while. i NEVER ever would have thought i actually had a aneurysm,espescially since i never had an actual headache from it. that is why i am sooo greatful for having one of the best neurosurgeons. it was that MRA that revealed it. i had recently had an MRI done of my brain/c spine areas and it did not actually show there either. it was only seeable on the MRA and the angiogram i was sent for to see if it was coilable.
i really am glad you have someone on top of your care enough to actually send you for the BEST type of test to reveal possible aneurysm. i really do think if you do actually have one,it would most definitely show itself on the MRA. all that type of test does is look only at all the arteries in your brain with no soft tissue structures to get in the way of possibly not seeing it like mine was. i do hope they find nothing up there to worry about. please keep me posted. Marcia
11-20-01,placement of hardware for failed fusion
9-22-03,removal of cavernous hemangioma that was inside spinal cord. Neuro damage to L hand L leg and R leg.