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Old 08-24-2004, 05:51 AM   #1
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Jordie HB User
Cool To all the dizziness sufferers

Hi guys, I have been reading a lot of posts about dizziness / spaciness / disequilibrium etc. and just want to share my experience and opinion on how to get rid of this.

I suffered for several months with constant dizziness, like I was on a boat, plus spaced out. I too had the MRI / ear specialist. It was a very scary part of my life.

I am generally free from it now unless I get anxious:

Here's what I learned:

1. I began feeling this straight after the most major panic attack I've ever had in hospital (knee operation). This is proof in itself that it's panic and anxiety that does cause it. - I know, I had trouble believing this and was convinced I had a tumor.

2. It totally consumed me the entire time, I could think of nothing else

3. Once I knew there was no tumor, and I accepted it was anxiety, I began to get better.

4. Getting better is done by ignoring it. Very very hard, I know, I've been there remember. But I kept myself busy, I went swimming to relax, I saw the chiro / or osteopath for back and neck adjustments and massages.

5. Looking back, I realise how it stayed with me for a long time, because I wouldn't let it leave, by feeding it - ie. stressing out.

6. Now when I get anxious or panicky, sure enough, I get those feelings again, but this time they only last till I've calmed down. Sure, every now and then the floor will seem to move under my foot but I just ignore it - BAH.

You all will get over this but you need to be very strong and push the anxious feelings out of your system. Participate in something you enjoy, take up a hobby, sing, walk in the parks. Try to focus outwardly if you can, rather than inwardly.

I hope this helps some of you, I know how bad it is. I actually ended up some nights on the kitchen floor in the feetal position bawling my eyes out. First you have to believe that its anxiety, that's all.

Good luck to all you good people out there, and I wish you dizzy free days to enjoy the world.

 
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Old 08-24-2004, 06:43 AM   #2
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chriscwharris HB User
Re: To all the dizziness sufferers

thanks for the post, I have had similar thoughts myself! I generally get by OK now, I have the odd bad days when i "let" it get to me.

I think to myself, I managed 32 years of my life without any PA's, I'm not planning on the next 32 with them!

 
Old 08-25-2004, 04:44 AM   #3
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Re: To all the dizziness sufferers

Great attitude. Life without these was certainly much easier.

I certainly look at things differently now, but often in a good way. Like I don't take things for granted anymore. When I feel good, I actually notice it and am glad for it.

I had a dizzy experience today, only for a minute or so. I just went, woahh, nearly fell over. Then went straight onto something else.

 
Old 08-25-2004, 07:08 AM   #4
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junior26 HB User
Re: To all the dizziness sufferers

I have accepted that it was anxiety since day one, but I'm still spaced out 24/7. I really can't control the anxiety. It's getting worse even though I think of it less. I'm beginning to think I have an adrenal gland problem.

 
Old 08-25-2004, 10:18 PM   #5
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CaptainUtah HB User
Re: To all the dizziness sufferers

Im with you junior.....I can ignore it to a point and can minimally function now, but it's still ALWAYS there. dont know what to think. it's been 18 montsh

 
Old 08-26-2004, 06:38 AM   #6
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Re: To all the dizziness sufferers

CaptainUtah, along with your constant dizziness, do you get episodes of near-fainting? Once in a while, I will get this "WOAH!!" feeling like I'm about to pass out.

Do you get those as well?

 
Old 08-26-2004, 07:36 AM   #7
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Re: To all the dizziness sufferers

Quote:
Originally Posted by junior26
I have accepted that it was anxiety since day one, but I'm still spaced out 24/7. I really can't control the anxiety. It's getting worse even though I think of it less. I'm beginning to think I have an adrenal gland problem.
It is adrenaline, it is a part of the anxiety/panic/stress disorder. But if you keep thinking about your adrenaline glands and a disease or disorder there, all you are going to do is cause adrenaline over adrenaline effect and you are going to be in panic mode. Just don't worry about your adrenaline glands. If you want, you can ask your doctor for the test and the ACTH test which will tell what your pituatary gland is doing, but really, it is the cortisol out of the adrenaline glands that is causing your havoc and the only way you are going to get it to calm down is to walk through your symptoms and try your hardest not to pay attention to them. I know this is difficult, I still stumble, but at least try and you will find alot of your symptoms will eventually/gradually disappear.

 
Old 08-26-2004, 08:20 AM   #8
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Re: To all the dizziness sufferers

It's difficult to "try" to not think about something, isn't it? If I try not to think of an elephant, I think of an elephant. But I think that we see your point.

But most of us, I'm sure, are trying to go about our daily lives, but it's still there with everything we do. As for me, I don't keep myself from doing anything or from going anywhere. But the feeling is always with me, no matter what I do, no matter where I go. It really sucks. The docs refuse to run specific tests on me (I'm in Canada) and tell me to see a psychologist, and my psychologist at the Montreal Anxiety Clinic told me to go back to the hospital for further testing because he has never heard of 24/7 dizziness as a result of anxiety.

 
Old 08-26-2004, 11:43 AM   #9
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Re: To all the dizziness sufferers

Quote:
Originally Posted by junior26
It's difficult to "try" to not think about something, isn't it? If I try not to think of an elephant, I think of an elephant. But I think that we see your point.

But most of us, I'm sure, are trying to go about our daily lives, but it's still there with everything we do. As for me, I don't keep myself from doing anything or from going anywhere. But the feeling is always with me, no matter what I do, no matter where I go. It really sucks. The docs refuse to run specific tests on me (I'm in Canada) and tell me to see a psychologist, and my psychologist at the Montreal Anxiety Clinic told me to go back to the hospital for further testing because he has never heard of 24/7 dizziness as a result of anxiety.

Hey, I feel for you, cause I know how hard this is. I'm not clean from it either and I suffer from Post Traumatic STress Disorder. So I know how those panic attacks can be. I just read material, as much as I can on the subject PD, PTSD, GA, etc. and take the positive ends of it and keep moving on. But if you're Psych is telling to to have tests, get a letter from him/her and take it back to the hospital for testing. If the tests come back all normal, then you will know that you are okay. It's just anxiety. You might have something like an inner ear disorder that can cause dizziness. I know plenty of people who have this. Get a full exam, from head to toe to ease your mind. Will Canada do this for you?

Andrea

 
Old 08-26-2004, 01:58 PM   #10
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Re: To all the dizziness sufferers

Today, I had to come home from work because I felt like passing out constantly. The passing-out feeling always coincides with severe nasal/head pressure, which happens at the exact same time. Like as if my head will explode. It sucks because today's my birthday, and it's probably my worse day symptom-wise since this all started.

Anyway, I took the afternoon to finally find a family doctor. Not too easy here in Quebec. But I managed to find one that was taking new patients.

 
Old 08-26-2004, 02:51 PM   #11
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Re: To all the dizziness sufferers

Quote:
Originally Posted by junior26
Today, I had to come home from work because I felt like passing out constantly. The passing-out feeling always coincides with severe nasal/head pressure, which happens at the exact same time. Like as if my head will explode. It sucks because today's my birthday, and it's probably my worse day symptom-wise since this all started.

Anyway, I took the afternoon to finally find a family doctor. Not too easy here in Quebec. But I managed to find one that was taking new patients.

This sounds like sinus to me. I would definitely besides blood work, have your inner ears checked and your sinuses. Also, run a thyroid test to see if you are hyper. Stay in touch, concerned to know if you are alright and a very very happy birthday to you!

Andrea

 
Old 08-26-2004, 03:14 PM   #12
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Re: To all the dizziness sufferers

I agree, it sounds very much like a sinus, allergy or inner ear problem.
Have a great Birthday!!

 
Old 08-26-2004, 07:20 PM   #13
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Re: To all the dizziness sufferers

Had the blood work done. All pretty much normal. That included a normal TSH level, so it's not thyroid related.

 
Old 08-27-2004, 04:42 PM   #14
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Re: To all the dizziness sufferers

I can't believe how hard it is for some of you to find a doctor. It's so easy here,(aust) we just go to any medical centre and make an appointment. It must be hard.

18 months is a long time to be feeling this way. My thoughts are if you have ruled out inner ear / thyroid / blood pressure problems etc. then try a chrio or osteopath.

My osteo told me that when people are stressed and anxious, they hold their bodies rigidly without even realising it. I've been having terrible pain across my butt (I think they're glut muscles) and I've only just begin noticing that I constantly hold them tense. Anyway, holding your body like this over an extended period of time realigns your muscles / bones. This can cause pressure on the many tiny nerve endings. Apparently the ones in my neck were bunched up, causing head problems such as headaches, dizziness, spaciness etc. I must stress here that 1 or 2 treatments wont do anything, it takes a few months to put everything back where it should be. This is the same principles as in Yoga. That is designed to realign your body properly.
Have you all tried the osteo/chiro angle? I think it would be worth it, plus it just makes you feel better too. There's a manager at my work who has severe dizziness, to the point of nearly passing out several times a day. He has had every test known to man, MRI scans etc, inner ear. They can't find a thing wrong with him. He still hasn't been to the osteopath, but I am urging him to now try that. It's important to rule everything else out, then you have nothing to lose by trying.

Let me know if you guys have tried, or if anyone has had success. Remember, it's a treatment program, not a couple of sessions.

Jordie.

 
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