*Cat*
09-17-2002, 09:47 PM
I've noticed that when I become more worried or stressed my jaw immediately begins to ache and progressively gets worse.
Sometimes when I've been feeling almost "normal", something will worry me(I have an anxiety disorder which does not help) and my jaw will immediately go back into the severe pain mode.
does this happen to anyone else??
Thanks
Cat
Sometimes when I've been feeling almost "normal", something will worry me(I have an anxiety disorder which does not help) and my jaw will immediately go back into the severe pain mode.
does this happen to anyone else??
Thanks
Cat
Sponsor
thisstarr
09-17-2002, 11:38 PM
Hi Cat,
Yes, Yes, Yes, I have notice everytime I get upset or stressed out my jaw hurts worse and I get bad pain in my head (the headache from hell) It is so hard not to get stressed when your in all this pain!!
I think it is very common that stress makes TMJ worse!
Take care,
Starr
Yes, Yes, Yes, I have notice everytime I get upset or stressed out my jaw hurts worse and I get bad pain in my head (the headache from hell) It is so hard not to get stressed when your in all this pain!!
I think it is very common that stress makes TMJ worse!
Take care,
Starr
*Cat*
09-20-2002, 08:33 PM
Thanks Starr
I cannot believe how much stress will effect my pain. It frustrates me, and it's so hard when people who don't feel it say "can't you just take some tylenol?" Ya, I wish@!!
I've also noticed that if I eat certain cold things, my jaw will start hurting again. And sometimes I notice it feels kind of hot, for no reason at all.
thanks again, I really need the support.
Cat
I cannot believe how much stress will effect my pain. It frustrates me, and it's so hard when people who don't feel it say "can't you just take some tylenol?" Ya, I wish@!!
I've also noticed that if I eat certain cold things, my jaw will start hurting again. And sometimes I notice it feels kind of hot, for no reason at all.
thanks again, I really need the support.
Cat
andreaphilip3
09-21-2002, 12:47 AM
totally yes!!!!!! that prob why mine is killing me these days.
thisstarr
09-23-2002, 01:10 AM
Hi Cat,
It is so nice to have someone that "really" understand your pain, thats why I like this board so much... :)
I hate when my friends say "I know how you feel I hate headaches".. :mad: ha...It upsets me so much because they dont know how I feel, to live with this pain 24-7 is hell and they just dont understand...half of them dont even know what tmj is..
I am hear for you, if you need to vent go ahead...I always take it out on my boyfriend but dont mean to...He saids he understand my pain but he's not the one that has to live with it! It is tough I try to be strong but somedays I just break down in tears because the pain is so bad....I know you can understand that....I just wish there was no such thing as TMJ....
Wish you well,
Starr
It is so nice to have someone that "really" understand your pain, thats why I like this board so much... :)
I hate when my friends say "I know how you feel I hate headaches".. :mad: ha...It upsets me so much because they dont know how I feel, to live with this pain 24-7 is hell and they just dont understand...half of them dont even know what tmj is..
I am hear for you, if you need to vent go ahead...I always take it out on my boyfriend but dont mean to...He saids he understand my pain but he's not the one that has to live with it! It is tough I try to be strong but somedays I just break down in tears because the pain is so bad....I know you can understand that....I just wish there was no such thing as TMJ....
Wish you well,
Starr
Bren30
09-24-2002, 01:50 AM
Yep Cat..I agree with you all.. after 8 years of explaining what I go through each day...They look at me like I'm just crazy.No one can see the problem so they just dont get it.If your Knee was twisited the way your Jaw is with TMJD they might understand.
My husband thinks I eat Darvocet everyday..."take a advil and see how it works ".. "then something stronger"...Nope..It just don't work that way.If I wait we will be at the E.R. later.
Well I just thought I would add my 2 cents....
Bren
My husband thinks I eat Darvocet everyday..."take a advil and see how it works ".. "then something stronger"...Nope..It just don't work that way.If I wait we will be at the E.R. later.
Well I just thought I would add my 2 cents....
Bren
*Cat*
09-24-2002, 01:13 PM
Starr:
I agree, it really is such a help to my mental sanity to know others understand this pain! Sometimes it does make me feel like I must be imagining it somehow, you know? Ugh. :(
I hear you with the boyfriend. My husband, though very supportive, drives me insane with his answers to things. Like when he'll confuse the symptoms, or assume it's better just because I'm not fully in tears.....it isn't his fault, but it is impossible to describe each and every level of pain to him! I'm 24, and never imagined that something that shouldn't have happened would.....so I have MANY years left to deal with the pain.
Ok, I'm rambling, but thank you!!! :)
Bren:
I'm so sorry you've been going through this for 8 years!! It's just such a horrible thing :(
I feel like people are going to start to believe that I"m either a wimp(when I have pain!) or am crazy and a hypochondriac(sp??)......I mean, now that it is new in my life people tend to be understanding. But, I'm just waiting for them to say "buck up cupcake!" I can actually hear it now, and sadly I wish it were that easy.
Thanks for telling me your story. I really feel good knowing people understand!
Cat :)
I agree, it really is such a help to my mental sanity to know others understand this pain! Sometimes it does make me feel like I must be imagining it somehow, you know? Ugh. :(
I hear you with the boyfriend. My husband, though very supportive, drives me insane with his answers to things. Like when he'll confuse the symptoms, or assume it's better just because I'm not fully in tears.....it isn't his fault, but it is impossible to describe each and every level of pain to him! I'm 24, and never imagined that something that shouldn't have happened would.....so I have MANY years left to deal with the pain.
Ok, I'm rambling, but thank you!!! :)
Bren:
I'm so sorry you've been going through this for 8 years!! It's just such a horrible thing :(
I feel like people are going to start to believe that I"m either a wimp(when I have pain!) or am crazy and a hypochondriac(sp??)......I mean, now that it is new in my life people tend to be understanding. But, I'm just waiting for them to say "buck up cupcake!" I can actually hear it now, and sadly I wish it were that easy.
Thanks for telling me your story. I really feel good knowing people understand!
Cat :)
thisstarr
09-25-2002, 03:57 AM
Hi Cat :)
Wow you feel excatly like me, that is how I feel..I sometimes wonder is this pain going to last forever? Or is it even real! You know your not crazy but you feel the pain your in is not normal! It really messe's with your mental state! But having you :) and everyone else that has in-lighten my life with stories of there tmj makes me feel so much better.. I really thought I was going to go nuts, and I just could not believe I was the only one suffering like this! And going to doctor after doctor and them not even knowing what is wrong made me feel more crazy http://www.healthboards.com/ubb/dizzy.gif
My boyfriend is the same way, he thinks if I am not balling my eyes out I am ok! :mad: I am never ok..It is so hard to act like your "ok" when your not! You tell people you dont feel good, and they just brush it off..if they new the hell I went though everyday, they would want to be dead! My boyfriend really trys to be supportive, he does little things to help me, he will hold me at night while I am crying my eyes out, or get me my ice pack or rub my head...I know it bugs him, I know he is sick of me being sick...he wont amit it, but you just know! He just cant understand what I feel,like you or anyone else that suffers from tmj..there is no way I could possiably understand this pain if it was someone else in my shoes..telling me what I go though...you can "say" you understand but you dont! I have to ask, Do you forget things easy? My boyfriend is always swearing he has to tell me things over and over and I dont listen? He says "I told you like 5 times" but I can swear he didnt? I know he didnt say what he claims he did, I was just wondering if forgeting is part of tmj.....
I am right there with you I am 23, It is just not fair we never ask to be in this pain....dont you miss being normal?..lol....I sure do, being able to fall asleep in 2 seconds, (my boyfriend, not fair..) not having to take a million pills hoping they will help you fall asleep or just help you cope! :( looking at the clock hit, 2,3,4 o'clock...wondering how much sleep your going to get..too have a night where I am not screaming in tears because of the pain....Or a day without a headache or pain in my jaw, or the pain behind my eyes...or a day where I can have engery and do whatever I want...god I miss these things....I wish this day would come that I am tmj free, but I dont count on it :( sorry..had to vent for a minute!I need to ask you, do you forget things easily? My boyfriends swears he told me things over and over and that day will come and I will not remember he said anything...and he will scream at me saying..."I told you like 5 times" And I can swear up and down he didnt? does this happen to you? and do you get spacey at times..like you feel you there but your not?
So how is your tmj process going? Can you give me any pointers on anything you have tried or are doing? I have had Tmj since I was 16 but it didnt get really bad untill a year and a half ago....What are you taking?
maybe I can help you on some stuff too....
hope to hear from you....
Starr
[This message has been edited by thisstarr (edited 09-25-2002).]
[This message has been edited by thisstarr (edited 09-25-2002).]
[This message has been edited by thisstarr (edited 09-25-2002).]
Wow you feel excatly like me, that is how I feel..I sometimes wonder is this pain going to last forever? Or is it even real! You know your not crazy but you feel the pain your in is not normal! It really messe's with your mental state! But having you :) and everyone else that has in-lighten my life with stories of there tmj makes me feel so much better.. I really thought I was going to go nuts, and I just could not believe I was the only one suffering like this! And going to doctor after doctor and them not even knowing what is wrong made me feel more crazy http://www.healthboards.com/ubb/dizzy.gif
My boyfriend is the same way, he thinks if I am not balling my eyes out I am ok! :mad: I am never ok..It is so hard to act like your "ok" when your not! You tell people you dont feel good, and they just brush it off..if they new the hell I went though everyday, they would want to be dead! My boyfriend really trys to be supportive, he does little things to help me, he will hold me at night while I am crying my eyes out, or get me my ice pack or rub my head...I know it bugs him, I know he is sick of me being sick...he wont amit it, but you just know! He just cant understand what I feel,like you or anyone else that suffers from tmj..there is no way I could possiably understand this pain if it was someone else in my shoes..telling me what I go though...you can "say" you understand but you dont! I have to ask, Do you forget things easy? My boyfriend is always swearing he has to tell me things over and over and I dont listen? He says "I told you like 5 times" but I can swear he didnt? I know he didnt say what he claims he did, I was just wondering if forgeting is part of tmj.....
I am right there with you I am 23, It is just not fair we never ask to be in this pain....dont you miss being normal?..lol....I sure do, being able to fall asleep in 2 seconds, (my boyfriend, not fair..) not having to take a million pills hoping they will help you fall asleep or just help you cope! :( looking at the clock hit, 2,3,4 o'clock...wondering how much sleep your going to get..too have a night where I am not screaming in tears because of the pain....Or a day without a headache or pain in my jaw, or the pain behind my eyes...or a day where I can have engery and do whatever I want...god I miss these things....I wish this day would come that I am tmj free, but I dont count on it :( sorry..had to vent for a minute!I need to ask you, do you forget things easily? My boyfriends swears he told me things over and over and that day will come and I will not remember he said anything...and he will scream at me saying..."I told you like 5 times" And I can swear up and down he didnt? does this happen to you? and do you get spacey at times..like you feel you there but your not?
So how is your tmj process going? Can you give me any pointers on anything you have tried or are doing? I have had Tmj since I was 16 but it didnt get really bad untill a year and a half ago....What are you taking?
maybe I can help you on some stuff too....
hope to hear from you....
Starr
[This message has been edited by thisstarr (edited 09-25-2002).]
[This message has been edited by thisstarr (edited 09-25-2002).]
[This message has been edited by thisstarr (edited 09-25-2002).]
thisstarr
09-25-2002, 04:23 AM
PS. Doe's working out help with you pain.....It seems to make my worse
Starr
[This message has been edited by thisstarr (edited 09-25-2002).]
Starr
[This message has been edited by thisstarr (edited 09-25-2002).]
thisstarr
09-25-2002, 04:24 AM
I accidently press sumit to many times....lol...So I had to write something in the space because it would not let me delete..sorry....everyone!!!
[This message has been edited by thisstarr (edited 09-25-2002).]
[This message has been edited by thisstarr (edited 09-25-2002).]
Bren30
09-26-2002, 11:31 AM
You know guys...
TMJD not only effects your face...Its in your muscles, bones , nerves and keeps your entire body in a constant ache.SO you feel bad all the time.Its not just one thing..Its Many.
I had surgery Last Dec to put my disk back in place and now I'm dealing with the muscles....So maybe one thing at a time...Yes they say exercise is a great thing..But when are you suppose to feel like it?
Just be careful with the meds....I'm dealing with alot of issues on that subject.But what are you suppose to do?
Good Day....Bren
TMJD not only effects your face...Its in your muscles, bones , nerves and keeps your entire body in a constant ache.SO you feel bad all the time.Its not just one thing..Its Many.
I had surgery Last Dec to put my disk back in place and now I'm dealing with the muscles....So maybe one thing at a time...Yes they say exercise is a great thing..But when are you suppose to feel like it?
Just be careful with the meds....I'm dealing with alot of issues on that subject.But what are you suppose to do?
Good Day....Bren
*Cat*
09-26-2002, 07:55 PM
Hey Starr and Bren!!
Starr,
YES! I do forget things.....it scares me to death! My husband will answer a question I have asked, and the next minute I ask him again. He will laugh and say "hey, you just asked that" But then he realizes I forgot I did. It doesn't happen often, but YES I have noticed that. Could that be TMJ related! I also notice that I forget how to spell things sometimes....and I used to be a wonderful speller by nature. Hmm, it really is making me think.
It hasn't been a long time for me yet, but I'm really scared. Sometimes I wake up and seem to feel fine, and then by mid morning I feel like curling up in my bed in the fetal position, crying :( I hate this.
So you had TMJ even before your accident? How scary is it to have that much pain when you were that young. I know when I was 18 that I would have freaked out....not that it was exactly that LONG ago, but still!
Hugs, I really appreciate being able to talk to you about this!
Cat
Bren,
I did not know just how much TMJ affects. I have just started doing severe research on the topic, and honestly have not had a lot of luck. I'm scared that it effects the nerves as well, though it makes sense considering some of my symptoms!
How is the surgery repair going? And yes, I agree take things slowly. Goodluck to you on that front, I will keep you in my thoughts!!
Do you notice that walking makes your TMJ act up? I usually go for walks for exercise, down the street for about 2 miles a day. But, since this happened I sometimes can't even get much further than my driveway with out feeling like I'm going to start crying from the pain. :( How can we exercise with that type of pain??? I agree with you and hear you!
Hugs!
Cat
You know guys...
TMJD not only effects your face...Its in your muscles, bones , nerves and keeps your entire body in a constant ache.SO you feel bad all the time.Its not just one thing..Its Many.
I had surgery Last Dec to put my disk back in place and now I'm dealing with the muscles....So maybe one thing at a time...Yes they say exercise is a great thing..But when are you suppose to feel like it?
Just be careful with the meds....I'm dealing with alot of issues on that subject.But what are you suppose to do?
Good Day....Bren
Starr,
YES! I do forget things.....it scares me to death! My husband will answer a question I have asked, and the next minute I ask him again. He will laugh and say "hey, you just asked that" But then he realizes I forgot I did. It doesn't happen often, but YES I have noticed that. Could that be TMJ related! I also notice that I forget how to spell things sometimes....and I used to be a wonderful speller by nature. Hmm, it really is making me think.
It hasn't been a long time for me yet, but I'm really scared. Sometimes I wake up and seem to feel fine, and then by mid morning I feel like curling up in my bed in the fetal position, crying :( I hate this.
So you had TMJ even before your accident? How scary is it to have that much pain when you were that young. I know when I was 18 that I would have freaked out....not that it was exactly that LONG ago, but still!
Hugs, I really appreciate being able to talk to you about this!
Cat
Bren,
I did not know just how much TMJ affects. I have just started doing severe research on the topic, and honestly have not had a lot of luck. I'm scared that it effects the nerves as well, though it makes sense considering some of my symptoms!
How is the surgery repair going? And yes, I agree take things slowly. Goodluck to you on that front, I will keep you in my thoughts!!
Do you notice that walking makes your TMJ act up? I usually go for walks for exercise, down the street for about 2 miles a day. But, since this happened I sometimes can't even get much further than my driveway with out feeling like I'm going to start crying from the pain. :( How can we exercise with that type of pain??? I agree with you and hear you!
Hugs!
Cat
You know guys...
TMJD not only effects your face...Its in your muscles, bones , nerves and keeps your entire body in a constant ache.SO you feel bad all the time.Its not just one thing..Its Many.
I had surgery Last Dec to put my disk back in place and now I'm dealing with the muscles....So maybe one thing at a time...Yes they say exercise is a great thing..But when are you suppose to feel like it?
Just be careful with the meds....I'm dealing with alot of issues on that subject.But what are you suppose to do?
Good Day....Bren
thisstarr
09-27-2002, 07:39 PM
Hi Cat,
I think it is TMJ related..I know I do forget a lot of things..it scares me because he will swear he told me over and over and I cant remember! http://www.healthboards.com/ubb/confused.gif I use to be a good speller too, now I can even remember how to spell the easiest things....tmj really messes you up!
When I first strted getting my headaches I thought I was going to go crazy...I didnt have a clue why I was having them I went to so many doctors and know one could figure out what was wrong with me and that scared me even more! :eek: it was a never ending nightmare!!!
I am just glad I have you and everyone one here to chat with it helps me so much!!! Hope your doing ok!
Take care,
Starr
I think it is TMJ related..I know I do forget a lot of things..it scares me because he will swear he told me over and over and I cant remember! http://www.healthboards.com/ubb/confused.gif I use to be a good speller too, now I can even remember how to spell the easiest things....tmj really messes you up!
When I first strted getting my headaches I thought I was going to go crazy...I didnt have a clue why I was having them I went to so many doctors and know one could figure out what was wrong with me and that scared me even more! :eek: it was a never ending nightmare!!!
I am just glad I have you and everyone one here to chat with it helps me so much!!! Hope your doing ok!
Take care,
Starr
thisstarr
10-01-2002, 05:41 AM
Hi Cat,
I was thinking of you hope your doing ok? Someday are better then others... I wanted to ask you do you wear a splint at all? And what medication are you taking?
Hope to hear from you, :wave:
Starr~
I was thinking of you hope your doing ok? Someday are better then others... I wanted to ask you do you wear a splint at all? And what medication are you taking?
Hope to hear from you, :wave:
Starr~
*Cat*
10-02-2002, 09:33 PM
Hey Starr
I haven't had a chance to check in here the past few days :( I haven't been feeling all that great(besides the TMJ stuff!)
I have been feeling really confused lately, almost to the point where it seems like I cannot think straight!?!? I'm supposed to be going in to see my family doctor again next week, because the muscle relaxers I am on do not really help. I'm really nervous taking pills, especially pain pills....so I've been hesitant. I've been reading what all of you are taking, and I realized that maybe it would help a little?
Either way, I'll let you all know! How have you been feeling? Are things going well? I read your post below about how to make family and friends understand.....ugh. I understand that completely.
I'll try to write more later, my jaw has been killing me all day.
Hugs
Cat
I haven't had a chance to check in here the past few days :( I haven't been feeling all that great(besides the TMJ stuff!)
I have been feeling really confused lately, almost to the point where it seems like I cannot think straight!?!? I'm supposed to be going in to see my family doctor again next week, because the muscle relaxers I am on do not really help. I'm really nervous taking pills, especially pain pills....so I've been hesitant. I've been reading what all of you are taking, and I realized that maybe it would help a little?
Either way, I'll let you all know! How have you been feeling? Are things going well? I read your post below about how to make family and friends understand.....ugh. I understand that completely.
I'll try to write more later, my jaw has been killing me all day.
Hugs
Cat
thisstarr
10-07-2002, 03:47 AM
Hi Cat,
I know how you feel I think it is "normal" well in the life of tmj to be confused, I still have that problem often, but there was a time I felt confused for days, I thought I was going nuts.. :eek: I feel spaced out alot, I hate that feeling, It could be the medication you are taking as well! Do you wear a splint at all?
I have been doing ok, I have my good days and my bad days, I went to a new dentist last week and he made me a splint to try out to see if it will help with my headaches and jaw pain, he was so nice to let me try it out to see if it works I didnt have to pay anything yet, but if it does works I have to pay $750 for it for rent it for $75 a month. http://www.healthboards.com/ubb/rolleyes.gif
I have been wearing it and it seems to help a little but I am still in a lot of pain...I feel I am doomed forever with this pain. I wish there was a magic pill to get rid of our pain.....
hope you get to feeling better,
Take Care,
Starr
I know how you feel I think it is "normal" well in the life of tmj to be confused, I still have that problem often, but there was a time I felt confused for days, I thought I was going nuts.. :eek: I feel spaced out alot, I hate that feeling, It could be the medication you are taking as well! Do you wear a splint at all?
I have been doing ok, I have my good days and my bad days, I went to a new dentist last week and he made me a splint to try out to see if it will help with my headaches and jaw pain, he was so nice to let me try it out to see if it works I didnt have to pay anything yet, but if it does works I have to pay $750 for it for rent it for $75 a month. http://www.healthboards.com/ubb/rolleyes.gif
I have been wearing it and it seems to help a little but I am still in a lot of pain...I feel I am doomed forever with this pain. I wish there was a magic pill to get rid of our pain.....
hope you get to feeling better,
Take Care,
Starr
*Cat*
10-10-2002, 01:07 PM
Hey Starr,
Thanks for your post :) I'm glad that you have a dentist who is willing to work with you, and offers you that payment plan! That's great, and I really hope the splint helps you!!
To answer your question, I don't have a splint...I've just begun the process of determining what I need..or should I say the doctors have! I'm seeing him this afternoon, and am really nervous. I think he is planning on having me get x-rays done, but I'm not sure yet.
If this splint helps with your headaches, please let me know!! I will keep my fingers crossed for you!! Even if it helps a little it is worth something right?
I'm really scared about all this. Every morning I wake up and hope that I'll have a "good" day. Ugh. :(
Goodluck and thanks for checking up on me!
Cat
Thanks for your post :) I'm glad that you have a dentist who is willing to work with you, and offers you that payment plan! That's great, and I really hope the splint helps you!!
To answer your question, I don't have a splint...I've just begun the process of determining what I need..or should I say the doctors have! I'm seeing him this afternoon, and am really nervous. I think he is planning on having me get x-rays done, but I'm not sure yet.
If this splint helps with your headaches, please let me know!! I will keep my fingers crossed for you!! Even if it helps a little it is worth something right?
I'm really scared about all this. Every morning I wake up and hope that I'll have a "good" day. Ugh. :(
Goodluck and thanks for checking up on me!
Cat
Elaine
10-10-2002, 02:51 PM
Star, Bren, Cat, and whoever I missed????
If you are taking medications, muscle relaxers, anti-depressants, anti-anxiety, pain meds, that is why you can't remember things. I didn't start taking much of anything until this last year and I am in a fog. I told my husband that I could remember things from 20 years ago, but I can't remember five minutes ago. I guess we have a choice, something that eases the pain or something that makes you lose your mind so you can forget the pain!!! I have been so dizzy lately and I know that is an effect of TMJD with or without meds. I am feeling so sick lately that I almost think something else is going on and I am not sure I want to know.
Take care,
Elaine
If you are taking medications, muscle relaxers, anti-depressants, anti-anxiety, pain meds, that is why you can't remember things. I didn't start taking much of anything until this last year and I am in a fog. I told my husband that I could remember things from 20 years ago, but I can't remember five minutes ago. I guess we have a choice, something that eases the pain or something that makes you lose your mind so you can forget the pain!!! I have been so dizzy lately and I know that is an effect of TMJD with or without meds. I am feeling so sick lately that I almost think something else is going on and I am not sure I want to know.
Take care,
Elaine