Isew4work
01-21-2003, 11:31 PM
Hi,
I am new here. I feel like I have very small tmj problems after reading all of your threads on your serious conditions. I have a question for you who have been around this block a few too many times. I went to a tmj specialist 2.5 years ago after my regular dentist suggested I do so. I had a night gaurd made and went through pt for 8 weeks or so. I was feeling really good and the headaches had gone away. Then while eating popcorn my jaw locked up on me. IT was not too tragic and seemed to go back on it own after about 5-10 minutes. It happened just like that a few more times, no big deal really. I told my tmj specialist and he advised me to see an oral surgeon. I had arthocentesis done in November. My TMJ specialist (dds) and my oral surgeon both agree at using very non invasive treatments. The arthocentesis is an office procedure where they give you a general and flush the joints out with saline fluid to loosen any cartilege and let it be absorbed into your body. I recovered a bit rougher than I expected and had to go through another round of pt. Well after about 4 weeks of recover I noticed that my jaw was locking up very mildly, but much more often than before. I also noted that my popping hurt much worse than ever before. After waiting 8 weeks I told my specialist about the new symptoms. He has sent me back to the oral surgeon and they both agree that I now need Arthroscopic surgery to remove scar tissue and repair the area. I asked my surgeon if what he would do if the disk is perforated and he said he will try to repair it with the laser but that disk replacement is just too controversial and there are no suitable disks at this time.
Sorry to make this so long for you to read, but here is my question finally. Does it sound to you that I should have the arthroscopic surgery to relieve my fairly mild symptoms compared to most of you, or should I continue with my splint at night and just live with the mild lock ups and daily muscle tiredness and achiness? Are there any bad experiences with the laser surgery that I should know about while considering this? Does it sound to you like my Dr's are both fair in being non aggressive? They have both said to me to never let anyone do an open surgery on me, the results are just not good enough to chance it. Please tell me your experience in this matter. Thanks so much, I hope you all find some relief.
Mary Z.
I am new here. I feel like I have very small tmj problems after reading all of your threads on your serious conditions. I have a question for you who have been around this block a few too many times. I went to a tmj specialist 2.5 years ago after my regular dentist suggested I do so. I had a night gaurd made and went through pt for 8 weeks or so. I was feeling really good and the headaches had gone away. Then while eating popcorn my jaw locked up on me. IT was not too tragic and seemed to go back on it own after about 5-10 minutes. It happened just like that a few more times, no big deal really. I told my tmj specialist and he advised me to see an oral surgeon. I had arthocentesis done in November. My TMJ specialist (dds) and my oral surgeon both agree at using very non invasive treatments. The arthocentesis is an office procedure where they give you a general and flush the joints out with saline fluid to loosen any cartilege and let it be absorbed into your body. I recovered a bit rougher than I expected and had to go through another round of pt. Well after about 4 weeks of recover I noticed that my jaw was locking up very mildly, but much more often than before. I also noted that my popping hurt much worse than ever before. After waiting 8 weeks I told my specialist about the new symptoms. He has sent me back to the oral surgeon and they both agree that I now need Arthroscopic surgery to remove scar tissue and repair the area. I asked my surgeon if what he would do if the disk is perforated and he said he will try to repair it with the laser but that disk replacement is just too controversial and there are no suitable disks at this time.
Sorry to make this so long for you to read, but here is my question finally. Does it sound to you that I should have the arthroscopic surgery to relieve my fairly mild symptoms compared to most of you, or should I continue with my splint at night and just live with the mild lock ups and daily muscle tiredness and achiness? Are there any bad experiences with the laser surgery that I should know about while considering this? Does it sound to you like my Dr's are both fair in being non aggressive? They have both said to me to never let anyone do an open surgery on me, the results are just not good enough to chance it. Please tell me your experience in this matter. Thanks so much, I hope you all find some relief.
Mary Z.
Sponsor
Marlene
01-21-2003, 11:49 PM
Hi Mary Z, & Welcome!
Please don't take this the wrong way, but, I think that even an arthrocentesis could be considered invasive/aggressive treatment - since they did actually "invade" the joints. I'm sure Elaine will pick up on this thread - she's the one who can tell you that one surgery leads to another ... and another ... and another. I would suggest perhaps seeking out someone else who is qualified in the treatment of TMJ - and has the credentials to back it up - that treats the condition "conservatively".
Marlene
Please don't take this the wrong way, but, I think that even an arthrocentesis could be considered invasive/aggressive treatment - since they did actually "invade" the joints. I'm sure Elaine will pick up on this thread - she's the one who can tell you that one surgery leads to another ... and another ... and another. I would suggest perhaps seeking out someone else who is qualified in the treatment of TMJ - and has the credentials to back it up - that treats the condition "conservatively".
Marlene
Cymy Sue
01-22-2003, 06:33 AM
Mary,
Marlene is right about the arthocentesis being an invasive procedure. Some Doctors speak of it as being minor, but anytime the joint is invaded, it is aggressive treatment. If you had increased pain and scarring from a "rinse out", you will possibly have more with the Arthroscopic Procedure.
I have had 2 Arthoplasties and that's supposed to be the most invasive. From what I read from members who have had Arthroscopies, the end result can be the same. (The only difference being the size of the scars.) Everytime your joint is invaded, there will be further scarring, possible nerve damage, worsening of ear problems and muscle problems.
I don't understand the fact that your Doctor is not sure about disc damage. In 1992, my Surgeon looked at my MRI and knew exactly what kind of disc damage I had.
He knew before he went in, that the disc had to come out. I know in 10 years, there has to be advancements in reading those films and knowing what to expect.
I may be wrong, but that sounds a little vague to me.
His statement regarding "nothing works for replacement is correct." So what does he intend to do? Is he going to remove the disc if it's not repairable?
HAS HE TOLD YOU WHAT TO EXPECT IN REGARD TO LIVING WITHOUT DISC? (If you're interested, I can tell you.)
If your symtoms are not unbearable, I would certainly rethink having any more procedures done. I would try every non-invasive treatment possible.
In most cases, everytime your joints are "worked on", you develope more problems.
I have had 2 Sagittal Splits (jaw breaks) and 2 Arthroplasties both sides. I have no disc. I am 50 years old, and in good health otherwise. They will not do any further surgeries for me, not even a "rinse out". They say I have too much scarring to get the scope in, too much nerve damage and too many other problems, created from the previous surgeries for any surgical procedure to work.
Please consider carefully the route you are about to take. I believe Elaine wrote in a post recently "That she wished she could just go back to the regular old TMJ problems." I do too.
Cymy Sue
Marlene is right about the arthocentesis being an invasive procedure. Some Doctors speak of it as being minor, but anytime the joint is invaded, it is aggressive treatment. If you had increased pain and scarring from a "rinse out", you will possibly have more with the Arthroscopic Procedure.
I have had 2 Arthoplasties and that's supposed to be the most invasive. From what I read from members who have had Arthroscopies, the end result can be the same. (The only difference being the size of the scars.) Everytime your joint is invaded, there will be further scarring, possible nerve damage, worsening of ear problems and muscle problems.
I don't understand the fact that your Doctor is not sure about disc damage. In 1992, my Surgeon looked at my MRI and knew exactly what kind of disc damage I had.
He knew before he went in, that the disc had to come out. I know in 10 years, there has to be advancements in reading those films and knowing what to expect.
I may be wrong, but that sounds a little vague to me.
His statement regarding "nothing works for replacement is correct." So what does he intend to do? Is he going to remove the disc if it's not repairable?
HAS HE TOLD YOU WHAT TO EXPECT IN REGARD TO LIVING WITHOUT DISC? (If you're interested, I can tell you.)
If your symtoms are not unbearable, I would certainly rethink having any more procedures done. I would try every non-invasive treatment possible.
In most cases, everytime your joints are "worked on", you develope more problems.
I have had 2 Sagittal Splits (jaw breaks) and 2 Arthroplasties both sides. I have no disc. I am 50 years old, and in good health otherwise. They will not do any further surgeries for me, not even a "rinse out". They say I have too much scarring to get the scope in, too much nerve damage and too many other problems, created from the previous surgeries for any surgical procedure to work.
Please consider carefully the route you are about to take. I believe Elaine wrote in a post recently "That she wished she could just go back to the regular old TMJ problems." I do too.
Cymy Sue
Autumn Angel
01-22-2003, 10:18 AM
I too am facing an arthroscopy soon and I am thinking more and more about just leaving it be. Its a constant battle in my head to do it or not to do it. My 12 yr old does not want me to have the jaw alignment surgery at all I guess the thought of mommys jaw being broken even though I will be asleep scares her. Scares me too. My doc told me as a result of my arthroscopy I might lose the ability to raise my eyebrows for a few months and in some cases its perminant. Has anyone had this problem afterwards? I thought my bite was bad the doc acted like 24 was awful and then I read Elaine's post and shes just a 10?? That woman has strength thats forsure because I know how awful I feel not being able to eat subs and Big Macs. Cymy Sue you and Elaine have been so much help to me I just wanted to thank you both again for taking the time to warn and educate others on this long suffering and under researched disorder.
------------------
Cheers...Autumn
Female...42
TMJD...12 years
Anxiety/Panic Attacks (cured I hope)
Total Abdominal Hysterectomy due to endometrial bleeding after miscarriage (2002)
Hernia Repair(1998)
Apendectomy (infected) 1988
21 year old daughter born with Mullerian Aplasia
18 year old daughter bulimia survivor.
If I can help ANYONE with anything from a papercut to a life threatening illness, I will do my best just to be a friend. " A friend is someone who knows all your faults and loves you anyway".
------------------
Cheers...Autumn
Female...42
TMJD...12 years
Anxiety/Panic Attacks (cured I hope)
Total Abdominal Hysterectomy due to endometrial bleeding after miscarriage (2002)
Hernia Repair(1998)
Apendectomy (infected) 1988
21 year old daughter born with Mullerian Aplasia
18 year old daughter bulimia survivor.
If I can help ANYONE with anything from a papercut to a life threatening illness, I will do my best just to be a friend. " A friend is someone who knows all your faults and loves you anyway".
justanotherday
01-22-2003, 12:23 PM
how was your mouth opening before you had the arthrocentesis done? that procedure is only supposed to be used on people with severe limited opening. Your doctor really made a big blunder if you had a normal opening before it and he still went ahead and did it.
crystalll
01-22-2003, 12:27 PM
Hi Mary,
I also agree with Marlene and Cymy Sue. It sounds to me like your doctors are being quite aggressive.
Any dentist who specializes in TMJ dysfunction would most likely recommend a splint prior to doing any type of surgery. Please take Marlene's advice and try to seek out a dentist who has taken courses in the diagnosis and treatment of TMJD.
Crystal
I also agree with Marlene and Cymy Sue. It sounds to me like your doctors are being quite aggressive.
Any dentist who specializes in TMJ dysfunction would most likely recommend a splint prior to doing any type of surgery. Please take Marlene's advice and try to seek out a dentist who has taken courses in the diagnosis and treatment of TMJD.
Crystal
Isew4work
01-22-2003, 09:58 PM
I am sorry if I was not clear in the first post. I have been in treatment for 2 and a half year with splints, physical therapy and such. I still wear my splint at night and have started wearing it during the day again. I am seeing a specialist too, I put that he was a dds, but he started as a dds and is now a well known and very experienced tmj dr. He just felt he had done what he could for me and that arthocentesis was the next step. I am just really questioning wheather or not I want to go ahead with arthroscopic surgery. I have my MRI set for Friday and then the Surgeon will evaluate that next week. I will tell him that I am wearing my splint day and night now like I was supposed to have been doing in the first place, (but have only been wearing it at night)and that the lock ups are becoming less frequent. I think I am going to buy some time and not go ahead witht he surgery right now. I think I will hold off until I either feel more certian or am suffering worse than I am right now. Maybe if I wait as long as I can technology will catch up in this area. I know it is so understudied. Thanks for all of your opinions. I wish I had some testimonies from anyone who thought the surgery helped them out. I guess those people are feeling great and don't need to read these message boards, right???? Thanks again, I wish you all had better results. Mary Z
Elaine
01-22-2003, 11:47 PM
Mary,
I have always said that on "most" message boards there are good and bad results. When it comes to the TMJ board, I have only seen one success. I too, have heard the theory that people have gotten on with their life and just don't post but I don't believe it.
I am a firm believer that anytime the joint is messed with that scar tissue is a given, no matter what the doctors try to lead you to believe. Once you agree to any invasive treatment, there is no going back. Before you know it, open joint will be suggested. By then you will be so miserable you will agree to anything. I would buy some time if I were you. You can always go forward but you can never go back!!!
Take care,
Elaine
I have always said that on "most" message boards there are good and bad results. When it comes to the TMJ board, I have only seen one success. I too, have heard the theory that people have gotten on with their life and just don't post but I don't believe it.
I am a firm believer that anytime the joint is messed with that scar tissue is a given, no matter what the doctors try to lead you to believe. Once you agree to any invasive treatment, there is no going back. Before you know it, open joint will be suggested. By then you will be so miserable you will agree to anything. I would buy some time if I were you. You can always go forward but you can never go back!!!
Take care,
Elaine
autumn83175
01-23-2003, 12:56 AM
Isew4work,
I had arthroscopy in Jan 2000 followed by three months of physical therapy. For some reason I seem to be the exception in that I really didn't find the healing all that difficult. Obviously there are much more here who had more pain. I was already a pretty severe case when I got the arthroscopy and had worn a splint for a year with no luck. I was home the same day I had it done. I was back at work within a few days. I actually gained alot of opening from the surgery. And best of all, I got to eat alot of the stuff I missed for two years. Unfortunately, three years later I have lost the gain but I definitely felt much better for 2 years. My case is so severe they really didn't think arthroscopy would fix it, just relieve it for awhile, so it did serve its purpose. If you are not too bad, I would hold off as long as possible. Just make sure you see proof of exactly how good or bad you are before you make your decision. I really had nothing to lose. Some of the things here are kind of scary. I would always consider the big picture, do lots of research and then make a decision. Maybe even ask the doctor if he/she has past patients who have had the procedure that would speak to you. Elaine is very right though, you can always go forward but never back. Goodluck in whatever you decide.
I had arthroscopy in Jan 2000 followed by three months of physical therapy. For some reason I seem to be the exception in that I really didn't find the healing all that difficult. Obviously there are much more here who had more pain. I was already a pretty severe case when I got the arthroscopy and had worn a splint for a year with no luck. I was home the same day I had it done. I was back at work within a few days. I actually gained alot of opening from the surgery. And best of all, I got to eat alot of the stuff I missed for two years. Unfortunately, three years later I have lost the gain but I definitely felt much better for 2 years. My case is so severe they really didn't think arthroscopy would fix it, just relieve it for awhile, so it did serve its purpose. If you are not too bad, I would hold off as long as possible. Just make sure you see proof of exactly how good or bad you are before you make your decision. I really had nothing to lose. Some of the things here are kind of scary. I would always consider the big picture, do lots of research and then make a decision. Maybe even ask the doctor if he/she has past patients who have had the procedure that would speak to you. Elaine is very right though, you can always go forward but never back. Goodluck in whatever you decide.
cfreund
01-25-2003, 11:20 AM
I was scheduled for arthroscopic surgery this past summer and cancelled it after reading this message board (thank GOD for that). In fact, they told me they were going to start out with an arthroscopic, but would probably need to move to an open-joint procedure to remove a "mass" in my joint. I found a good doctor and we have been trying splint therapy now for almost 6 months and it actually seems to be helping. I am in less pain, my jaw in more aligned and am starting to be able to eat some more normal foods. I am SO happy I did not go through with that procedure, because I don't think it would have helped with my real problems. Just my experience...
Carole
Carole
GenDen
01-25-2003, 01:30 PM
It is a misconception to think that if you have worn a splint and it doesn't work that splint therapy won't fix your TMJ dysfunction. It is likely that the wrong splint was used or the splint was not fit or adjusted properly. All TMJ specialists and dentists are not equal in treating TMJ dysfunction.
goodwillstacy
01-30-2003, 06:34 PM
Mary,
I have an arthrocentesis scheduled for Tuesday. I read your post and was wondering if you could tell me a little bit more about it? You said that your recovery was worse than you had expected?
I'm a little nervous as this is my first surgery on my jaw and I don't know what to expect as far as pain, recovery time, etc.
Thanks!
.stacy.
I have an arthrocentesis scheduled for Tuesday. I read your post and was wondering if you could tell me a little bit more about it? You said that your recovery was worse than you had expected?
I'm a little nervous as this is my first surgery on my jaw and I don't know what to expect as far as pain, recovery time, etc.
Thanks!
.stacy.
Isew4work
01-30-2003, 08:30 PM
Dear STacy,
Hi. My experience was that the arthrocentesis did not do a whole lot for my jaw. It kind of made my left side lock up more than it used to. But the procedure itself was not that bad. The day of the surgery I felt really pretty good because it was still numb. Then the second day I woke up feeling pretty rough. My jaw ached and I could not open it more than a half inch. It gradually got a little better each day and I got back to my normal opening in about 2 weeks. It took about 4 days of feeling very achy, it felt like a bad headache in my jaw. I was trying hard to not take the pain medicine because I still needed to function for my kids. But if you can take the pain medicine, or even motrin it will help alot. I really have a low pain tolorance though, so it might not be that bad for you. The best things to help me were ice and then once physical therapy started a week later, it made a great difference. Good luck to you, please let me know how it goes.
[removed].net
Mary Z
[Please read and follow the board posting guidelines.
Do not post your email address on the message boards.]
[This message has been edited by moderator2 (edited 02-04-2003).]
Hi. My experience was that the arthrocentesis did not do a whole lot for my jaw. It kind of made my left side lock up more than it used to. But the procedure itself was not that bad. The day of the surgery I felt really pretty good because it was still numb. Then the second day I woke up feeling pretty rough. My jaw ached and I could not open it more than a half inch. It gradually got a little better each day and I got back to my normal opening in about 2 weeks. It took about 4 days of feeling very achy, it felt like a bad headache in my jaw. I was trying hard to not take the pain medicine because I still needed to function for my kids. But if you can take the pain medicine, or even motrin it will help alot. I really have a low pain tolorance though, so it might not be that bad for you. The best things to help me were ice and then once physical therapy started a week later, it made a great difference. Good luck to you, please let me know how it goes.
[removed].net
Mary Z
[Please read and follow the board posting guidelines.
Do not post your email address on the message boards.]
[This message has been edited by moderator2 (edited 02-04-2003).]
goodwillstacy
02-04-2003, 01:39 PM
Well, I had the surgery this morning.
I'm pretty surprised I can even function, let alone type this. I slept for a while but now the numbness is wearing off. I've taken one pill right after the surgery but am reluctant to take another because he gave me 20, and I don't know if that'll be enough.
He told my husband that I should take motrin too.
So now I am drinking chocolate milk (ensure makes me gag!) and hopefully I can sleep a little while longer so I'm not in pain.
We'll see how I feel tomorrow!
hope you guys are all doing well,
.stacy.
I'm pretty surprised I can even function, let alone type this. I slept for a while but now the numbness is wearing off. I've taken one pill right after the surgery but am reluctant to take another because he gave me 20, and I don't know if that'll be enough.
He told my husband that I should take motrin too.
So now I am drinking chocolate milk (ensure makes me gag!) and hopefully I can sleep a little while longer so I'm not in pain.
We'll see how I feel tomorrow!
hope you guys are all doing well,
.stacy.
goodwillstacy
02-07-2003, 09:08 AM
I've got a question..
How soon after an arthrocentesis should I start seeing results?
All I've got is pain and locking so far.
.stacy.
How soon after an arthrocentesis should I start seeing results?
All I've got is pain and locking so far.
.stacy.
Isew4work
02-07-2003, 10:08 PM
Dear STacy,
All I had was pain and locking too. Don't give up hope. When is your first physical therapy appointment? I woke up the morning after my first pt like a new person. I really hope your surgeon sent you to a physical therapist for ultrasound massage treatments. How long has it been for you? IT took me about a week to start feeling better I think. Good luck,
Mary
All I had was pain and locking too. Don't give up hope. When is your first physical therapy appointment? I woke up the morning after my first pt like a new person. I really hope your surgeon sent you to a physical therapist for ultrasound massage treatments. How long has it been for you? IT took me about a week to start feeling better I think. Good luck,
Mary
goodwillstacy
02-08-2003, 11:28 PM
Hi Mary,
I'm trying not to give up hope. My Husband is keeping me positive.. I haven't scheduled my physical therapy yet since I'm hurting so much. I've had ultrasound before, and TENS. I've been thinking about getting a TENS thing for home... I liked how that treatment felt, the pulsating on my neck muscles felt great.
My doc also prescribed me a cream that he had compounded for him, has some anesthetic in it and they use it for the ultrasound. I would have to rub it all over my body to get relief. :)
I had the arthrocentesis Tuesday... We'll see !
Thanks for all your help, I really appreciate it.
.stacy.
I'm trying not to give up hope. My Husband is keeping me positive.. I haven't scheduled my physical therapy yet since I'm hurting so much. I've had ultrasound before, and TENS. I've been thinking about getting a TENS thing for home... I liked how that treatment felt, the pulsating on my neck muscles felt great.
My doc also prescribed me a cream that he had compounded for him, has some anesthetic in it and they use it for the ultrasound. I would have to rub it all over my body to get relief. :)
I had the arthrocentesis Tuesday... We'll see !
Thanks for all your help, I really appreciate it.
.stacy.
goodwillstacy
02-13-2003, 09:36 AM
So, I've decided the arthrocentesis didn't help. I had surgery last Tuesday. I'd think that, by now, I would be feeling better. My opening, is about enough to stick two fingers in.
I have my post-op tomorrow. He'll give me the choice of a)getting the other side done b)waiting it out longer or c)considering arthroscopic surgery.
I guess I have some thinking to do.
I'm sick too, my immune system must have been in the dumps after my surgery. I've had a fever of 102-103 the past couple days, cough, and a really bad headache.
I feel a little better this morning though so that's good.
Hope you are doing well Mary. Is everyone getting better? Is the flu gone?
Keep us posted ~
.stacy.
I have my post-op tomorrow. He'll give me the choice of a)getting the other side done b)waiting it out longer or c)considering arthroscopic surgery.
I guess I have some thinking to do.
I'm sick too, my immune system must have been in the dumps after my surgery. I've had a fever of 102-103 the past couple days, cough, and a really bad headache.
I feel a little better this morning though so that's good.
Hope you are doing well Mary. Is everyone getting better? Is the flu gone?
Keep us posted ~
.stacy.
Autumn Angel
02-13-2003, 02:53 PM
Isew4work....I am having my arthroscopy next week the 18 of feb I will come back and let you know if it helps me any. I have also gotten my phsical therapy plan for after the surgery.
It involves opening and closing my mouth for 5 mins every hour I am awake and after that I will have tongue depressers taped together in a stack ( I dont know how many to start with) But after the 5 mins of opening and closing I have to put the tongue depressers in and bite down and them for 15 seconds and add one stick every other day. He told me its going to be quite painful but I have to stick to it for it to work.
IF anyone else has had this done and I know there are a few of you can let me know in terms of post surgical swelling and discomfort what I can expect. I already have bought my food processer and he told me to expect to lose 8 to 10lbs the first week and possible hearing loss and temporary numbness in my forehead. Any help would be appreciated. Thank you all.
------------------
Cheers...Autumn
Female...42
TMJD...12 years
Anxiety/Panic Attacks (cured I hope)
Total Abdominal Hysterectomy due to endometrial bleeding after miscarriage (2002)
Hernia Repair(1998)
Apendectomy (infected) 1988
21 year old daughter born with Mullerian Aplasia
18 year old daughter bulimia survivor.
If I can help ANYONE with anything from a papercut to a life threatening illness, I will do my best just to be a friend. " A friend is someone who knows all your faults and loves you anyway".
It involves opening and closing my mouth for 5 mins every hour I am awake and after that I will have tongue depressers taped together in a stack ( I dont know how many to start with) But after the 5 mins of opening and closing I have to put the tongue depressers in and bite down and them for 15 seconds and add one stick every other day. He told me its going to be quite painful but I have to stick to it for it to work.
IF anyone else has had this done and I know there are a few of you can let me know in terms of post surgical swelling and discomfort what I can expect. I already have bought my food processer and he told me to expect to lose 8 to 10lbs the first week and possible hearing loss and temporary numbness in my forehead. Any help would be appreciated. Thank you all.
------------------
Cheers...Autumn
Female...42
TMJD...12 years
Anxiety/Panic Attacks (cured I hope)
Total Abdominal Hysterectomy due to endometrial bleeding after miscarriage (2002)
Hernia Repair(1998)
Apendectomy (infected) 1988
21 year old daughter born with Mullerian Aplasia
18 year old daughter bulimia survivor.
If I can help ANYONE with anything from a papercut to a life threatening illness, I will do my best just to be a friend. " A friend is someone who knows all your faults and loves you anyway".
MichaelW
02-13-2003, 06:53 PM
I have had 2 arthroscopys and never had a problem with raising eyebrows or anything like that. I went home later in the day and resumed normal food pretty much straight after. No swelling or real pain. just 2 small puncture holes which have totally disappeared.
Good luck hope all goes well.
Michael
Originally posted by Autumn Angel:
Isew4work....I am having my arthroscopy next week the 18 of feb I will come back and let you know if it helps me any. I have also gotten my phsical therapy plan for after the surgery.
It involves opening and closing my mouth for 5 mins every hour I am awake and after that I will have tongue depressers taped together in a stack ( I dont know how many to start with) But after the 5 mins of opening and closing I have to put the tongue depressers in and bite down and them for 15 seconds and add one stick every other day. He told me its going to be quite painful but I have to stick to it for it to work.
IF anyone else has had this done and I know there are a few of you can let me know in terms of post surgical swelling and discomfort what I can expect. I already have bought my food processer and he told me to expect to lose 8 to 10lbs the first week and possible hearing loss and temporary numbness in my forehead. Any help would be appreciated. Thank you all.
Good luck hope all goes well.
Michael
Originally posted by Autumn Angel:
Isew4work....I am having my arthroscopy next week the 18 of feb I will come back and let you know if it helps me any. I have also gotten my phsical therapy plan for after the surgery.
It involves opening and closing my mouth for 5 mins every hour I am awake and after that I will have tongue depressers taped together in a stack ( I dont know how many to start with) But after the 5 mins of opening and closing I have to put the tongue depressers in and bite down and them for 15 seconds and add one stick every other day. He told me its going to be quite painful but I have to stick to it for it to work.
IF anyone else has had this done and I know there are a few of you can let me know in terms of post surgical swelling and discomfort what I can expect. I already have bought my food processer and he told me to expect to lose 8 to 10lbs the first week and possible hearing loss and temporary numbness in my forehead. Any help would be appreciated. Thank you all.
Isew4work
02-13-2003, 09:55 PM
Dear Autumn and Michael,
Thanks for the posts today. Michael, its great to hear a success story on the arthroscopy. Would you mind telling me what your symptoms were before the procedure? Autumn, I wish you the best of luck. Please keep me posted. I am still on the fence about my having surgery or not. I am pretty sure that I am going to exhaust each and every other option available to me first. To tell you the truth, I just don't think I am suffering very much. My jaw clicks and grinds so uncomfortably and it locks up on me in the middle of chewing which is very scary, but in general I feel good every day. Wouldn't you agree with Sue and all the others that that is just not enough to let them invade that joint again? Thanks for all your help guyes!! And I hope Stacy is feeling better bynow too.
Mary
Thanks for the posts today. Michael, its great to hear a success story on the arthroscopy. Would you mind telling me what your symptoms were before the procedure? Autumn, I wish you the best of luck. Please keep me posted. I am still on the fence about my having surgery or not. I am pretty sure that I am going to exhaust each and every other option available to me first. To tell you the truth, I just don't think I am suffering very much. My jaw clicks and grinds so uncomfortably and it locks up on me in the middle of chewing which is very scary, but in general I feel good every day. Wouldn't you agree with Sue and all the others that that is just not enough to let them invade that joint again? Thanks for all your help guyes!! And I hope Stacy is feeling better bynow too.
Mary
MichaelW
02-13-2003, 11:12 PM
I have had problems with my right TMJ since about 1988 (then 19yo). Had alot of cracking, pain and eventual locking when yawning. I tried splint therapy and physio all that sort of thing. When this didn't help saw a OMFS and had an xray then a arthrogram (where they inject dye into the joints to see what is happening when opening and closing).
Pain continued to ruin my life so decided to have the arthroscopy as both an investigative and corrective procedure.
Pain relief was 100%, my life was back...Still had some clicking and catching but that you can live with not pain. This went well for about 18mths when one night I yawned and heard the joint make a noise. This was the start of 2.5 years of more pain. Pain was getting worse all the time. Woke up in pain. Went to bed in pain. Just ruined any normal lifestyle. OMFS didn't want to do anything but if I wanted another procedure it would again be exploratory and where possible corrective. I had good opening and movement so he was hesitant to proceed.
Gave up in Dec 1997 and had another procedure. Turns out the meniscus had attached itself to the top of the fossa and my mandible was actually moving underneath the meniscus rather than with it. The OMFS was surprised I had such good movement before this.
Pain relief was less instantaneous as after 1st procedure and took a good 2 months to come good. Generally 90% relief most of the time with a flareup in October 200 that caused great pain for 6mths or so...Seemed to settle down again and is manageable. I still use the splint frequently (generally one day on one day off works well for me). See the OMFS yearly and hopefully things continue.
Unfortunately people who frequent these boards (from my experience and from a logical viewpoint) and post alot of information and experiences tend to be those that have had problems. If someone has problems before a procedure then have none why would they necessarily come in and talk about it? They dont too often.
Whilst I am fully aware of those who have problems and the general consensus that surgery on the joint is bad (and I agree in some circumstances) If your fully informed, and obtain multiple opinions and see no other alternative, then a person's decision is made.
I have no regrets about having the 2 procedures and would have another if necessary down the track - based on my experience and outcomes.
I do hope things go well regardless of what you chose.
Michael
Pain continued to ruin my life so decided to have the arthroscopy as both an investigative and corrective procedure.
Pain relief was 100%, my life was back...Still had some clicking and catching but that you can live with not pain. This went well for about 18mths when one night I yawned and heard the joint make a noise. This was the start of 2.5 years of more pain. Pain was getting worse all the time. Woke up in pain. Went to bed in pain. Just ruined any normal lifestyle. OMFS didn't want to do anything but if I wanted another procedure it would again be exploratory and where possible corrective. I had good opening and movement so he was hesitant to proceed.
Gave up in Dec 1997 and had another procedure. Turns out the meniscus had attached itself to the top of the fossa and my mandible was actually moving underneath the meniscus rather than with it. The OMFS was surprised I had such good movement before this.
Pain relief was less instantaneous as after 1st procedure and took a good 2 months to come good. Generally 90% relief most of the time with a flareup in October 200 that caused great pain for 6mths or so...Seemed to settle down again and is manageable. I still use the splint frequently (generally one day on one day off works well for me). See the OMFS yearly and hopefully things continue.
Unfortunately people who frequent these boards (from my experience and from a logical viewpoint) and post alot of information and experiences tend to be those that have had problems. If someone has problems before a procedure then have none why would they necessarily come in and talk about it? They dont too often.
Whilst I am fully aware of those who have problems and the general consensus that surgery on the joint is bad (and I agree in some circumstances) If your fully informed, and obtain multiple opinions and see no other alternative, then a person's decision is made.
I have no regrets about having the 2 procedures and would have another if necessary down the track - based on my experience and outcomes.
I do hope things go well regardless of what you chose.
Michael
Autumn Angel
02-14-2003, 01:08 AM
Thank you Michael you have put my mind at ease. I know it didnt work for quite a few here but I am hoping it does for me.
Autumn Angel
02-14-2003, 01:14 AM
Isew4work...only you can answer that question and it depends on what other treatments you have tried. For me this is a last resort after being in pain 12 years and having failed splint therapy and an excessively long condyle ( birth defect). I was on NSAIDS for 10 years and physio as well and the NSAIDS ate up my tummy which I now take Losec for. My bite is so out of whack I chew my face at times while eating I have had so many cuts on one side or the other from biting my cheek instead of what I was chewing it isnt funny. I have to squish a sub or big mac just to eat it. I know there are alot here worse off than me but I want a better quality of life than I have now less headaches hopefully less blurred vision, less ear fullness and facial numbness. I just hope it works. Take Care.
------------------
Cheers...Autumn
Female...42
TMJD...12 years
Anxiety/Panic Attacks (cured I hope)
Total Abdominal Hysterectomy due to endometrial bleeding after miscarriage (2002)
Hernia Repair(1998)
Apendectomy (infected) 1988
21 year old daughter born with Mullerian Aplasia
18 year old daughter bulimia survivor.
If I can help ANYONE with anything from a papercut to a life threatening illness, I will do my best just to be a friend. " A friend is someone who knows all your faults and loves you anyway".
------------------
Cheers...Autumn
Female...42
TMJD...12 years
Anxiety/Panic Attacks (cured I hope)
Total Abdominal Hysterectomy due to endometrial bleeding after miscarriage (2002)
Hernia Repair(1998)
Apendectomy (infected) 1988
21 year old daughter born with Mullerian Aplasia
18 year old daughter bulimia survivor.
If I can help ANYONE with anything from a papercut to a life threatening illness, I will do my best just to be a friend. " A friend is someone who knows all your faults and loves you anyway".
Isew4work
02-16-2003, 11:29 PM
Hi again,
Its still me, still deliberating over what I will do about surgery or not. I think not is the answer. I did receive my mri report in the mail yesteray. It said that my disks were both displaced(anterial and lateral) and showed signs of degeneration. The odd part to me is that it said my right side was worse, but it is my left side that is freezing up. (only since arthocentesis in November, never much before) but now its to where I can only open my mouth about 2 fingers width about 50% of the time. It also said on my mri report that there is reduction on my condyles.
I have seen a well known and reccommended specialist in my area for tmj and wear a night guard for 2.5 years. He sent me to a well reccommended oral surgeon who wants to do arhroscopic surgery now. Where do I go to next, for another opinion? Or should I just live the way it is right now?? My face does not ache regularly during the day or anything, just after a long day I get a tired achy jaw headace. I get very sharp pains in my right ear if I try to eat anything chewy. I do not have many of the other symptoms I read about on the symptoms board.
Cymy Sue, Elaine and all of you, if you could do it over again, if you were me would you just live with what I am describing for as long as you could? Thanks,
"doubting herself again"
Mary
Its still me, still deliberating over what I will do about surgery or not. I think not is the answer. I did receive my mri report in the mail yesteray. It said that my disks were both displaced(anterial and lateral) and showed signs of degeneration. The odd part to me is that it said my right side was worse, but it is my left side that is freezing up. (only since arthocentesis in November, never much before) but now its to where I can only open my mouth about 2 fingers width about 50% of the time. It also said on my mri report that there is reduction on my condyles.
I have seen a well known and reccommended specialist in my area for tmj and wear a night guard for 2.5 years. He sent me to a well reccommended oral surgeon who wants to do arhroscopic surgery now. Where do I go to next, for another opinion? Or should I just live the way it is right now?? My face does not ache regularly during the day or anything, just after a long day I get a tired achy jaw headace. I get very sharp pains in my right ear if I try to eat anything chewy. I do not have many of the other symptoms I read about on the symptoms board.
Cymy Sue, Elaine and all of you, if you could do it over again, if you were me would you just live with what I am describing for as long as you could? Thanks,
"doubting herself again"
Mary
Autumn Angel
02-17-2003, 12:17 AM
My arthroscopy on Wednesday is to place my disk back in the right spot then he will flush the joint and inject a steroid he said. I will let you know how it goes. I really wish I didnt have to do this but nothing has worked for me in 12 years. I hope you find something that works for you without surgery. Have a pain free night.
------------------
Cheers...Autumn
Female...42
TMJD...12 years
Anxiety/Panic Attacks (cured I hope)
Total Abdominal Hysterectomy due to endometrial bleeding after miscarriage (2002)
Hernia Repair(1998)
Apendectomy (infected) 1988
21 year old daughter born with Mullerian Aplasia
18 year old daughter bulimia survivor.
If I can help ANYONE with anything from a papercut to a life threatening illness, I will do my best just to be a friend. " A friend is someone who knows all your faults and loves you anyway".
------------------
Cheers...Autumn
Female...42
TMJD...12 years
Anxiety/Panic Attacks (cured I hope)
Total Abdominal Hysterectomy due to endometrial bleeding after miscarriage (2002)
Hernia Repair(1998)
Apendectomy (infected) 1988
21 year old daughter born with Mullerian Aplasia
18 year old daughter bulimia survivor.
If I can help ANYONE with anything from a papercut to a life threatening illness, I will do my best just to be a friend. " A friend is someone who knows all your faults and loves you anyway".
Elaine
02-17-2003, 01:09 AM
Mary,
If you have mild symptoms, I would leave it alone. You have already had one surgery that is leading to another. It is not going to stop there...Stay away from the popcorn and all that crunchy food. You have to baby your jaw like it is broken. My opening is less than two fingers and I have had three surgeries. Surgery of any kind develops scar tissue, some people develop scar tissue worse than others. I only have problems on one side but my bite is so out of whack since having surgery. My jaw deviates to the right on opening, crackles like gravel. People can live without discs but I don't think they can live with these implants. I am in such a mess now, no insurance to even get the implant out.
My first surgery was to put the disc back in place. Two years later, another surgery for scar tissue, I had lost my opening. Five years later, they removed my disc, totally tied up in scar tissue. Implanted me with the Christensen Fossa. Relief for awhile, now I am in the pit of hell with loose screws and no insurance.Opening is 10mm, have lost 30 pounds, can't eat solid food. Headaches I wouldn't wish on my
X-husband.(Now that is bad :(
Definitely, IF I had it to do over again, I would have done nothing.
Take care,
Elaine
PS.If it is not unbearable, do nothing!!!
If you have mild symptoms, I would leave it alone. You have already had one surgery that is leading to another. It is not going to stop there...Stay away from the popcorn and all that crunchy food. You have to baby your jaw like it is broken. My opening is less than two fingers and I have had three surgeries. Surgery of any kind develops scar tissue, some people develop scar tissue worse than others. I only have problems on one side but my bite is so out of whack since having surgery. My jaw deviates to the right on opening, crackles like gravel. People can live without discs but I don't think they can live with these implants. I am in such a mess now, no insurance to even get the implant out.
My first surgery was to put the disc back in place. Two years later, another surgery for scar tissue, I had lost my opening. Five years later, they removed my disc, totally tied up in scar tissue. Implanted me with the Christensen Fossa. Relief for awhile, now I am in the pit of hell with loose screws and no insurance.Opening is 10mm, have lost 30 pounds, can't eat solid food. Headaches I wouldn't wish on my
X-husband.(Now that is bad :(
Definitely, IF I had it to do over again, I would have done nothing.
Take care,
Elaine
PS.If it is not unbearable, do nothing!!!
Cymy Sue
02-17-2003, 07:02 AM
Mary,
The only surgery that I believe was absolutely necessary was to have my disc out. In 92 they took them out and said they were just little shreds hanging out of my joints, (to the sides) right under the skin in front of my ears. They put in replacement material (ear cartilage), and after about 2 years, the replacements started to do the same thing. I managed to make it until 97 and they took out the replacements, which they described the same way.
(They should only be removed if they are totally destroyed or deteriorated)
In 92 & 97, I was in "suicidal-type" pain. I had no choice.
I have been without disc since 97 and it takes a long time to heal. It becomes a tolerable condition.
Everything prior to the disc removal made my condition worse. (Including braces).
Now, almost 6 years since the disc removal and with the splint I'm using, I am seeing an improvement in most of my TMJD symtoms. (I believe splint therapy designed to let the muscles reposition and relax can help a lot of people.)
I totally agree with Elaine. If you can live with it, do not pursue surgery or any other irreversible procedure or treatment. Once your face is "HACKED ON" you will "NEVER" be the same again, regardless of what you're told by Professionals. Please listen to these "VOICES" of experience.
Cymy Sue
[This message has been edited by Cymy Sue (edited 04-08-2003).]
The only surgery that I believe was absolutely necessary was to have my disc out. In 92 they took them out and said they were just little shreds hanging out of my joints, (to the sides) right under the skin in front of my ears. They put in replacement material (ear cartilage), and after about 2 years, the replacements started to do the same thing. I managed to make it until 97 and they took out the replacements, which they described the same way.
(They should only be removed if they are totally destroyed or deteriorated)
In 92 & 97, I was in "suicidal-type" pain. I had no choice.
I have been without disc since 97 and it takes a long time to heal. It becomes a tolerable condition.
Everything prior to the disc removal made my condition worse. (Including braces).
Now, almost 6 years since the disc removal and with the splint I'm using, I am seeing an improvement in most of my TMJD symtoms. (I believe splint therapy designed to let the muscles reposition and relax can help a lot of people.)
I totally agree with Elaine. If you can live with it, do not pursue surgery or any other irreversible procedure or treatment. Once your face is "HACKED ON" you will "NEVER" be the same again, regardless of what you're told by Professionals. Please listen to these "VOICES" of experience.
Cymy Sue
[This message has been edited by Cymy Sue (edited 04-08-2003).]