thisstarr
03-26-2003, 02:29 AM
Hi Everyone, :wave:
Those of you that know me, know I have had so much trouble finding any relief and finding a dam doctor to listen to me!
I thought once I finally got the insurance that is would be alot easier to find someone I can go to that could help me!
I went and saw an Oral Surgeon last week and all he wanted to do is give me surgery, I havent even had the MRI yet and he is rushing me to get in OR. He said a lot of things that upset me,I ask him about other treatments first, and he said " see my jacket, he pointed to it and it say surgeon, this is what I do" I cant help you in less you want surgery! The only good thing out of the appointment was I got a request for an MRI.
Since I have a HMO I had to take it to my doctor,(I didnt have one assign to me, long story, had to cuss out member servies just to get a doctor assign to me now & see the nero, I was on a waiting list that was going to take months) I got the request from my doctor but it could take months :(
I went and saw the nerorlgest(sp) yesterday and he also upset me, he said the only thing left for me to try to help my headaches it BOTOX injections, has anyone every try this before? I cant stand these headaches, I am finally on medication, but still in pain. I am just glad I have something to help.
I really hate being young, doctors dont want to listen to me or believe me when I explain how I am feeling, and how bad my pain is. I have heard this so many times,over & over again, your to young to be on all these medications, you need to stop everyone and your pain will go away, thats a bunch of bull! That why I was so additted to over the counter junk forever, I wasnt taking it for the hell of it.
I am in pain and theses doctors think because I am young, it is stress or I am depressed! Yes I am stress, yes I am depresed, because I am in horrible pain and knowone will listen or take the time to care!
I really dont understand why knowone wants to help me, doctors are suppose to help us not hurt us, I am so fed up and sad and angery. Sorry you guys I really needed to vent, your guys are the only people that understand!
Take care,
Starr
[This was edited to remove cuss words or words that are suggestive of profanity. Please, try to use substitute words - we are asking everyone to clean up the language up a bit. Thanks for your cooperation - Well-come Moderator.]
[This message has been edited by Well-come (edited 03-26-2003).]
Those of you that know me, know I have had so much trouble finding any relief and finding a dam doctor to listen to me!
I thought once I finally got the insurance that is would be alot easier to find someone I can go to that could help me!
I went and saw an Oral Surgeon last week and all he wanted to do is give me surgery, I havent even had the MRI yet and he is rushing me to get in OR. He said a lot of things that upset me,I ask him about other treatments first, and he said " see my jacket, he pointed to it and it say surgeon, this is what I do" I cant help you in less you want surgery! The only good thing out of the appointment was I got a request for an MRI.
Since I have a HMO I had to take it to my doctor,(I didnt have one assign to me, long story, had to cuss out member servies just to get a doctor assign to me now & see the nero, I was on a waiting list that was going to take months) I got the request from my doctor but it could take months :(
I went and saw the nerorlgest(sp) yesterday and he also upset me, he said the only thing left for me to try to help my headaches it BOTOX injections, has anyone every try this before? I cant stand these headaches, I am finally on medication, but still in pain. I am just glad I have something to help.
I really hate being young, doctors dont want to listen to me or believe me when I explain how I am feeling, and how bad my pain is. I have heard this so many times,over & over again, your to young to be on all these medications, you need to stop everyone and your pain will go away, thats a bunch of bull! That why I was so additted to over the counter junk forever, I wasnt taking it for the hell of it.
I am in pain and theses doctors think because I am young, it is stress or I am depressed! Yes I am stress, yes I am depresed, because I am in horrible pain and knowone will listen or take the time to care!
I really dont understand why knowone wants to help me, doctors are suppose to help us not hurt us, I am so fed up and sad and angery. Sorry you guys I really needed to vent, your guys are the only people that understand!
Take care,
Starr
[This was edited to remove cuss words or words that are suggestive of profanity. Please, try to use substitute words - we are asking everyone to clean up the language up a bit. Thanks for your cooperation - Well-come Moderator.]
[This message has been edited by Well-come (edited 03-26-2003).]
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Cymy Sue
03-26-2003, 07:05 AM
Hi Starr,
I'm so terribly sorry you're having so much trouble with Doctors. I had hoped when you got insurance, you would find help. You will, you just have to keep trying. I know how discouraging & frustrating this is for you. You know a lot of us have been down this same road and a lot of times, Doctors are our worst enemies.
I wish you lived close to someone on the board who has finally found one of the "GOOD GUYS". There are some good Dentist & Doctors out there who are learning to treat TMJD and who do understand the pain & problems.
It appears now, that a lot of Dentists understand the problem better and are learning to treat most of the problems, usually with splints. PT and Massage Therapy, along with medication until you can get some relief, will work. It does take time and money.
Most of us feel like we've already spent an eternity looking for help and money we don't have, but never give up hope.
Help could be around the next corner or as in my case, my very own Dentist.
When I was at the lowest that I had been in years, I started asking everybody I knew, every Doctor I went to, for other problems (even my GYN), and after reading the posts on this board, I went to my Dentist and ask if he could do anything. He said "yes", he thought he could. I had no idea what he had been doing in reseaching and treating TMJD.
Please stay hopeful, don't let the "Bad Guys" get to you. They are more frustrated than you are and don't have the ...., what it takes to tell you they don't know how to help, so they tell you, it's all in your head, it's stress, it's anxiety, and so on.
What you have is very real. It's one of the hardest chronic problems to deal with. It's one of the most misunderstood ailments by the Medical Community and by people who don't have it.
Please keep trying, you will find someone to listen & help,
Cymy Sue
I'm so terribly sorry you're having so much trouble with Doctors. I had hoped when you got insurance, you would find help. You will, you just have to keep trying. I know how discouraging & frustrating this is for you. You know a lot of us have been down this same road and a lot of times, Doctors are our worst enemies.
I wish you lived close to someone on the board who has finally found one of the "GOOD GUYS". There are some good Dentist & Doctors out there who are learning to treat TMJD and who do understand the pain & problems.
It appears now, that a lot of Dentists understand the problem better and are learning to treat most of the problems, usually with splints. PT and Massage Therapy, along with medication until you can get some relief, will work. It does take time and money.
Most of us feel like we've already spent an eternity looking for help and money we don't have, but never give up hope.
Help could be around the next corner or as in my case, my very own Dentist.
When I was at the lowest that I had been in years, I started asking everybody I knew, every Doctor I went to, for other problems (even my GYN), and after reading the posts on this board, I went to my Dentist and ask if he could do anything. He said "yes", he thought he could. I had no idea what he had been doing in reseaching and treating TMJD.
Please stay hopeful, don't let the "Bad Guys" get to you. They are more frustrated than you are and don't have the ...., what it takes to tell you they don't know how to help, so they tell you, it's all in your head, it's stress, it's anxiety, and so on.
What you have is very real. It's one of the hardest chronic problems to deal with. It's one of the most misunderstood ailments by the Medical Community and by people who don't have it.
Please keep trying, you will find someone to listen & help,
Cymy Sue
mbr22
03-26-2003, 03:47 PM
C'mon Starr, hang in there. You can borrow my 20 lb cat for the next time you see your dentist, and sick the cat on him!
stay "up",
mbr
stay "up",
mbr
OHJELJ
03-26-2003, 04:12 PM
Hey Starr,
This is probably a stupid question, but my doc had a book with OFS in it and I found one in Upland, CA...the practice is called Gilbert, Hicke and Holton. Don't know if they're good or bad, just saw that they were listed as a practice that treats TMJ....
Just thought I'd pass the info along.... :round:
Good luck and try to smile a little....
Jennifer
This is probably a stupid question, but my doc had a book with OFS in it and I found one in Upland, CA...the practice is called Gilbert, Hicke and Holton. Don't know if they're good or bad, just saw that they were listed as a practice that treats TMJ....
Just thought I'd pass the info along.... :round:
Good luck and try to smile a little....
Jennifer
Cymy Sue
03-26-2003, 08:07 PM
Hi mbr,
I have a 20 pounder, too. He's not fat, he's just big.
He does tricks for me when I'm feeling really bad. He's so funny, sometimes it actually helps.
Cymy Sue
I have a 20 pounder, too. He's not fat, he's just big.
He does tricks for me when I'm feeling really bad. He's so funny, sometimes it actually helps.
Cymy Sue
mbr22
03-26-2003, 09:46 PM
Hi Sue - our 20 pounder is a fat tabby, but she is active, always running around. My friend has a cat named Norton that weighs 25 pounds, not an ounce of fat on her, but she is like 3 feet long and has huge paws! Fortunately, she is the nicest cat in the world (to people).
Your 20 pounder must look big!
take care,
mbr
Your 20 pounder must look big!
take care,
mbr
TiffanyAnn
03-26-2003, 11:22 PM
Hi Starr:
I'm so sorry to hear that you have run into more hassles with doctors. It's true that when we are young doctors do say "you are too young to be on all these medications" but the fact is IF they ever helped us instead of just pushing drugs our way maybe we wouldn't be on so many meds. And the fact is that age has little to do with our problems. Each of us have problem, life throws us curves and problems. I once saw on a movie where this doctor who had NO HEART or compassion at all got cancer and he experienced the great health care system first hand. He didn't get any special treatment, had to sit for long periods of time waiting for treatment, felt terrible and nobody cared. So, when he got cured he made all interns check into the hospital and get all the treatment. Enemas, IVs, those lousy gowns...the whole nine yards. So, I guess maybe they need to recieve a little pain themselves so they know what we are going through. We can only pray that all of them suffer before they die so they know what they have dished us all these years. The are blood suckers!
Tiffany
I'm so sorry to hear that you have run into more hassles with doctors. It's true that when we are young doctors do say "you are too young to be on all these medications" but the fact is IF they ever helped us instead of just pushing drugs our way maybe we wouldn't be on so many meds. And the fact is that age has little to do with our problems. Each of us have problem, life throws us curves and problems. I once saw on a movie where this doctor who had NO HEART or compassion at all got cancer and he experienced the great health care system first hand. He didn't get any special treatment, had to sit for long periods of time waiting for treatment, felt terrible and nobody cared. So, when he got cured he made all interns check into the hospital and get all the treatment. Enemas, IVs, those lousy gowns...the whole nine yards. So, I guess maybe they need to recieve a little pain themselves so they know what we are going through. We can only pray that all of them suffer before they die so they know what they have dished us all these years. The are blood suckers!
Tiffany
rhody
03-27-2003, 12:41 AM
Starr,
So sorry to hear about your troubles. You remind me of when I couldn't find any help from doctors. Before I linked my fibromyalgia symptoms, gum disease and loose teeth to my dental amalgams, I explored "natural cure". It kept my sanity, until I linked it to my mercury-silver dental amalgams later in life (many many years later).
Have you tried going "natural"? I experimented by eating the most perfect way I could, avoiding all junk foods and drinks. Then, when the pain and misery was worse, I dove into herbal therapy. The herbs worked but the improvement was so very slow. I kept good notes to monitor the progress - switched to many different herbal combinations. I read many herbal books to learn how to prepare them properly.
I know that my condition was much different then yours. But, I thought that I would suggest it, in case that it will help. I know what you mean about doctors. I went completely outside traditional care to be cured. I know a lot of times, doctors still don't believe me. I think some of them are completely in the dark ages....
I remember those days, making my herbal brew. The smell permeated the air. I remember how scary it was, doing things completely outside doctor's care. My anger for their stupid drugs and the pain that they caused, kept me going forward. And you know what? I beat them. It took me over two decades. But I beat them. I can't prove it, so maybe they still win, in their minds. But I won, at least for me. Oh, how I wish people would take this more seriously. What doctor understand anything about herbs and healing the body in a natural way? It seems that it's all expensive drugs and surgery.
Have you had a lot of surgery? It seems that once they start cutting, they make it worse. At least, that is what a lot of people write here. Some apparently have found success with surgery, but it seems that most don't (from what I read). I'm not that knowledgeable about TMJ, but I just feel so sorry that you have to suffer that way.
My headaches used to come, for some reason, on Mondays after the weekend. I don't know why - they wouldn't come on Mondays all the time, but it just seemed that at the start of the week, I'd get these blasted headaches. When my tooth broke, and exposed the dental amalgam, the headaches got so bad that painkillers wouldn't take the pain away. I know you've heard my story before....
I hope you feel better. By the way, I wouldn't suggest doing things the way that I did, going outside doctor's care. Maybe a naturopath could help. I was just so frustrated, that I just wanted out.
So sorry to hear about your troubles. You remind me of when I couldn't find any help from doctors. Before I linked my fibromyalgia symptoms, gum disease and loose teeth to my dental amalgams, I explored "natural cure". It kept my sanity, until I linked it to my mercury-silver dental amalgams later in life (many many years later).
Have you tried going "natural"? I experimented by eating the most perfect way I could, avoiding all junk foods and drinks. Then, when the pain and misery was worse, I dove into herbal therapy. The herbs worked but the improvement was so very slow. I kept good notes to monitor the progress - switched to many different herbal combinations. I read many herbal books to learn how to prepare them properly.
I know that my condition was much different then yours. But, I thought that I would suggest it, in case that it will help. I know what you mean about doctors. I went completely outside traditional care to be cured. I know a lot of times, doctors still don't believe me. I think some of them are completely in the dark ages....
I remember those days, making my herbal brew. The smell permeated the air. I remember how scary it was, doing things completely outside doctor's care. My anger for their stupid drugs and the pain that they caused, kept me going forward. And you know what? I beat them. It took me over two decades. But I beat them. I can't prove it, so maybe they still win, in their minds. But I won, at least for me. Oh, how I wish people would take this more seriously. What doctor understand anything about herbs and healing the body in a natural way? It seems that it's all expensive drugs and surgery.
Have you had a lot of surgery? It seems that once they start cutting, they make it worse. At least, that is what a lot of people write here. Some apparently have found success with surgery, but it seems that most don't (from what I read). I'm not that knowledgeable about TMJ, but I just feel so sorry that you have to suffer that way.
My headaches used to come, for some reason, on Mondays after the weekend. I don't know why - they wouldn't come on Mondays all the time, but it just seemed that at the start of the week, I'd get these blasted headaches. When my tooth broke, and exposed the dental amalgam, the headaches got so bad that painkillers wouldn't take the pain away. I know you've heard my story before....
I hope you feel better. By the way, I wouldn't suggest doing things the way that I did, going outside doctor's care. Maybe a naturopath could help. I was just so frustrated, that I just wanted out.
goodwillstacy
03-27-2003, 04:19 PM
Hi Starr,
OHHHHHH darn those egotistical surgeons. I had one tell me the exact same thing. "I am a surgeon, I don't treat pain, I fix things." I felt like cracking him in the jaw and asking him how it feels.
Have you had the MRI yet? When you do, let us know what it says. I'm very interested in everyone's diagonsis from those things.
The neurologist saying that botox is the only way to help you is....(I'm trying not to use profanity here!) not right. He treats headaches right? Well there are many medications to help those... It seems to me that botox isn't covered by insurance and that is why he seems to think it would be the right treatment for you.
Now as for being young Starr, I totally understand that. I'm 21, and it seems like doctors think I'm too young to be in pain. My pain specialist seems scared of me, doesn't want to put me on medications because I'm too young for that. One thing is true....pain does not only happen to older people. It doesn't matter who you are, where you're from, how old you are, what gender, or anything. PAIN IS PAIN! And yours is real.
Please hang in there, keep posting and letting us know how things are going. I understand how you feel.
.stacy.
(oh, and you can borrow my cat too, she's a beautiful long haired calico with 6 toes on each foot- paddle paws heheehe. She'll cuddle with you all day long. And if you don't like cats, we've got 4 dogs to choose from also!)
OHHHHHH darn those egotistical surgeons. I had one tell me the exact same thing. "I am a surgeon, I don't treat pain, I fix things." I felt like cracking him in the jaw and asking him how it feels.
Have you had the MRI yet? When you do, let us know what it says. I'm very interested in everyone's diagonsis from those things.
The neurologist saying that botox is the only way to help you is....(I'm trying not to use profanity here!) not right. He treats headaches right? Well there are many medications to help those... It seems to me that botox isn't covered by insurance and that is why he seems to think it would be the right treatment for you.
Now as for being young Starr, I totally understand that. I'm 21, and it seems like doctors think I'm too young to be in pain. My pain specialist seems scared of me, doesn't want to put me on medications because I'm too young for that. One thing is true....pain does not only happen to older people. It doesn't matter who you are, where you're from, how old you are, what gender, or anything. PAIN IS PAIN! And yours is real.
Please hang in there, keep posting and letting us know how things are going. I understand how you feel.
.stacy.
(oh, and you can borrow my cat too, she's a beautiful long haired calico with 6 toes on each foot- paddle paws heheehe. She'll cuddle with you all day long. And if you don't like cats, we've got 4 dogs to choose from also!)
thisstarr
03-28-2003, 04:38 AM
Hi Everyone, :wave:
Thank you so much for all of you responding to me,it is so nice to have friends that care and understand me. I know we are all just "computer friends" but thats good enough for me! :D
SUE: Thanks so much for being here for me. It is so hard for me not to just give up! I am so frustrated at these doctors, I just cant seem to get them to listen to me one bit!
I know it is not all in my head like they want me to think, I just dont understand why they think young people dont have pain. What do I have to do, go buy a grey haired wig & some glasses and walk aroung with a cane for them to believe me! I just dont know where to go from here, my HMO doesnt have pain mangment, so I am so confused what to do next! The OS I saw wants me to have surgery, I dont want to have it unless It is a must!
My pain is so bad Sue, and the med's I am taking are not working, I am so sick of drinking smoothies, I am so hungery and havnet been able to eat food for a while and when I told my doctor and the nero they act like they didnt care one bit! Thanks for being here I appreciate it so much! Hugs:love:
MBR: Can I please have you cat! My snakes are not doing the job for me!..lol..
Did you ever try the botox shots for your headaches? The Nero I saw last week said That was my only hope, so I have an appointment on the 15th of April. I was just wondering how it went for you! Thanks for the support I really need it! :angel:
OHJELJ/jennifer: Thank you so much for the name of the dentist, my husband actullay got he's wistom teeth out by one of there dentist. I didnt know he treats TMJ, so I am going to give them a call tomorrow and see if they can help me! Thanks so much sweetie I appreciate it so much!
TIFFANY: I just dont understand why they treat us like this! Where is it stated that young people dont get chronic pain, I would really like to know, why they think this way. I am just so horribly fed up with all these wackos I have seen, I really wish I had a tazer gun so I coulds zap the hell out of them
everytime they made me mad. :D
If any of the stupid doctors/dentist we saw went one week with our pain, they would want to grab a gun and shoot themself in the head becasue they cant take it! I am hoping I can find a good doctor to help me but since I have Kaiser,(that I hate!) it is an HMO and you can only go to there doctors and hospitals, so I am limited to there nutty doctors.
It really takes alot out of us,we are so young we shouldnt feel like we are 80 and about to have a freaken heart attack!I just get so sad thinking I may be like this for the rest of my life,I dont know how much longer I can deal with this, sometimes my head hurts so bad I want to bang my head againest the wall, if only that was the cure. Thanks for your support!
RHODY: I am willing to try anything to get out of pain. I cant seem to find help the right way so I need to find another way to get better or I will go crazy! http://www.healthboards.com/ubb/dizzy.gif
You ask if I have had surgery,I never have and I hope I never will. So many others have had such problems with there surgeries, I feel so bad for them, some are worse then they were before the surgeries. I cant even imageion(sp)how bad the pain is. I would want to shoot myself if the pain was that bad, I cant even handle my pain. I am so proud of them for staying strong and fighting this battle, I couldnt do it.
About eating healthy, I have for most of my life, but I havent been able to eat,so I have been making my own smoothies to drink, and eating apple sauce, Wow! what a diet.... http://www.healthboards.com/ubb/rolleyes.gif
My jaw pain is so bad, This is the worst it has been. It hurt to even talk, it feel so stiff, and so painful. I tried eating last night and tears were rolling down my face!
I hope I can eat real food again, I havent for a while, I cant take it anymore! I will be on a liquid diet forever :(
What type of Herbel stuff were you taking to help you with the pain you were in? I am so happy you overcame your battle of pain, I bet you feel good and proud of yourself for doing it, I am very happy,I hope I can win this battle, there has been so many curves in my way it has been a very bumppy ride.
Do you suffer anymore from pain? Thanks for being
supportive and caring, I really think the mercery in my mouth is a big part of what is making my pain 10x worse. I cant even open my mouth wide enough to have a dentist take them out, so I dont know what I can do about getting it out of me. Thanks again for your support
STACY: Boy, we think alike, I wanted to kick him for acting the way he did, I just dont get it, these stupid dentist are suppost to help us with our TMJ, if these dentist new what we went though everyday, they would be alittle more caring and understanding. I wish there was doctors that were Medical doctors that could give us pain relief and help with the dental part too! The thing is they just dont understand and it is not fair because we are the ones who suffer.
I am on a stupid waiting list for my MRI so god knows how long it will take to get it done. The OS only requested one side to be done, I want both! When I ask my doctor, he said the stupid OS I saw only requested one side so he cant change it(thats a bunch of bull) Whenever I do get it, I will let you guys know so you can tell me what to do next!
Thanks everyone,
Take care,
Starr
[This message has been edited by Well-come (edited 03-28-2003).]
Thank you so much for all of you responding to me,it is so nice to have friends that care and understand me. I know we are all just "computer friends" but thats good enough for me! :D
SUE: Thanks so much for being here for me. It is so hard for me not to just give up! I am so frustrated at these doctors, I just cant seem to get them to listen to me one bit!
I know it is not all in my head like they want me to think, I just dont understand why they think young people dont have pain. What do I have to do, go buy a grey haired wig & some glasses and walk aroung with a cane for them to believe me! I just dont know where to go from here, my HMO doesnt have pain mangment, so I am so confused what to do next! The OS I saw wants me to have surgery, I dont want to have it unless It is a must!
My pain is so bad Sue, and the med's I am taking are not working, I am so sick of drinking smoothies, I am so hungery and havnet been able to eat food for a while and when I told my doctor and the nero they act like they didnt care one bit! Thanks for being here I appreciate it so much! Hugs:love:
MBR: Can I please have you cat! My snakes are not doing the job for me!..lol..
Did you ever try the botox shots for your headaches? The Nero I saw last week said That was my only hope, so I have an appointment on the 15th of April. I was just wondering how it went for you! Thanks for the support I really need it! :angel:
OHJELJ/jennifer: Thank you so much for the name of the dentist, my husband actullay got he's wistom teeth out by one of there dentist. I didnt know he treats TMJ, so I am going to give them a call tomorrow and see if they can help me! Thanks so much sweetie I appreciate it so much!
TIFFANY: I just dont understand why they treat us like this! Where is it stated that young people dont get chronic pain, I would really like to know, why they think this way. I am just so horribly fed up with all these wackos I have seen, I really wish I had a tazer gun so I coulds zap the hell out of them
everytime they made me mad. :D
If any of the stupid doctors/dentist we saw went one week with our pain, they would want to grab a gun and shoot themself in the head becasue they cant take it! I am hoping I can find a good doctor to help me but since I have Kaiser,(that I hate!) it is an HMO and you can only go to there doctors and hospitals, so I am limited to there nutty doctors.
It really takes alot out of us,we are so young we shouldnt feel like we are 80 and about to have a freaken heart attack!I just get so sad thinking I may be like this for the rest of my life,I dont know how much longer I can deal with this, sometimes my head hurts so bad I want to bang my head againest the wall, if only that was the cure. Thanks for your support!
RHODY: I am willing to try anything to get out of pain. I cant seem to find help the right way so I need to find another way to get better or I will go crazy! http://www.healthboards.com/ubb/dizzy.gif
You ask if I have had surgery,I never have and I hope I never will. So many others have had such problems with there surgeries, I feel so bad for them, some are worse then they were before the surgeries. I cant even imageion(sp)how bad the pain is. I would want to shoot myself if the pain was that bad, I cant even handle my pain. I am so proud of them for staying strong and fighting this battle, I couldnt do it.
About eating healthy, I have for most of my life, but I havent been able to eat,so I have been making my own smoothies to drink, and eating apple sauce, Wow! what a diet.... http://www.healthboards.com/ubb/rolleyes.gif
My jaw pain is so bad, This is the worst it has been. It hurt to even talk, it feel so stiff, and so painful. I tried eating last night and tears were rolling down my face!
I hope I can eat real food again, I havent for a while, I cant take it anymore! I will be on a liquid diet forever :(
What type of Herbel stuff were you taking to help you with the pain you were in? I am so happy you overcame your battle of pain, I bet you feel good and proud of yourself for doing it, I am very happy,I hope I can win this battle, there has been so many curves in my way it has been a very bumppy ride.
Do you suffer anymore from pain? Thanks for being
supportive and caring, I really think the mercery in my mouth is a big part of what is making my pain 10x worse. I cant even open my mouth wide enough to have a dentist take them out, so I dont know what I can do about getting it out of me. Thanks again for your support
STACY: Boy, we think alike, I wanted to kick him for acting the way he did, I just dont get it, these stupid dentist are suppost to help us with our TMJ, if these dentist new what we went though everyday, they would be alittle more caring and understanding. I wish there was doctors that were Medical doctors that could give us pain relief and help with the dental part too! The thing is they just dont understand and it is not fair because we are the ones who suffer.
I am on a stupid waiting list for my MRI so god knows how long it will take to get it done. The OS only requested one side to be done, I want both! When I ask my doctor, he said the stupid OS I saw only requested one side so he cant change it(thats a bunch of bull) Whenever I do get it, I will let you guys know so you can tell me what to do next!
Thanks everyone,
Take care,
Starr
[This message has been edited by Well-come (edited 03-28-2003).]
blueeyes23
03-28-2003, 05:05 AM
Starr,
I know it is hard honey, you will find someone to help you! hopefully soon! I wish you the best!
Blueeyes
I know it is hard honey, you will find someone to help you! hopefully soon! I wish you the best!
Blueeyes
mbr22
03-28-2003, 08:51 AM
Hi Starr - I'll put the cat on a plane for you (however, she might kill the pilots and down the plane beofre it gets to Cali!).
Does the pain around your eyes ever make you think it is a sinus headache, even when you know it probably isn't? That is the only way I can really describe it to doctors. All sinus scans have been negative though, and I don't have the green/yellow sinus discharge anyway (I know, gross!), so I know it isn't sinuses, but what the h is it? My opthalmologist says it isn't my eyes either, so what then?
The other hardest part to describe to doctors is the non-pain symptom of foggy head, pressured/blocked ears, off-balance dizzy type feeling. I don't think they ever understand that component of my symptoms. Sorry for the side rambling, just really frustrated today after seeing a million docs and spending what seems like a million dollars for nothing!
Also, had the botox injections 2 weeks - nothing! No help, nada. I was really, really hoping for some pain relief there. Well, there goes another $400 bucks down the tube. I now know why all doctors are so rich - they keep taking all our money for nothing!
Rhody - I have all gold fillings. I hope there isn't a correlation between head pain and gold fillings? I can't afford to get them all replaced with composites.
take care all!
mbr
[This message has been edited by mbr22 (edited 03-28-2003).]
Does the pain around your eyes ever make you think it is a sinus headache, even when you know it probably isn't? That is the only way I can really describe it to doctors. All sinus scans have been negative though, and I don't have the green/yellow sinus discharge anyway (I know, gross!), so I know it isn't sinuses, but what the h is it? My opthalmologist says it isn't my eyes either, so what then?
The other hardest part to describe to doctors is the non-pain symptom of foggy head, pressured/blocked ears, off-balance dizzy type feeling. I don't think they ever understand that component of my symptoms. Sorry for the side rambling, just really frustrated today after seeing a million docs and spending what seems like a million dollars for nothing!
Also, had the botox injections 2 weeks - nothing! No help, nada. I was really, really hoping for some pain relief there. Well, there goes another $400 bucks down the tube. I now know why all doctors are so rich - they keep taking all our money for nothing!
Rhody - I have all gold fillings. I hope there isn't a correlation between head pain and gold fillings? I can't afford to get them all replaced with composites.
take care all!
mbr
[This message has been edited by mbr22 (edited 03-28-2003).]
rhody
03-28-2003, 08:51 PM
mbr22,
From what I read, gold fillings by themselves do not normally create problems. They will only create problems if you have both gold fillings and mercury-silver fillings together. The reason is (from what I remember) is that the mercury is drawn out easier with the combination of metals. I can't remember the term used to describe such chemical reactions - I'm sure it's on the internet.
Everyone is different, so it's best to research everything, if there is no known present cure. I've even heard of some people being extremely sensitive to the smallest amounts nickel (even tiny bits of nickel in stainless steel) - although very rare. You and others should be able to find this on the internet too. My individual case did not involve the jaws - just the teeth and gums and headaches - plus other fibromyalgia symptoms.
From what I read, gold fillings by themselves do not normally create problems. They will only create problems if you have both gold fillings and mercury-silver fillings together. The reason is (from what I remember) is that the mercury is drawn out easier with the combination of metals. I can't remember the term used to describe such chemical reactions - I'm sure it's on the internet.
Everyone is different, so it's best to research everything, if there is no known present cure. I've even heard of some people being extremely sensitive to the smallest amounts nickel (even tiny bits of nickel in stainless steel) - although very rare. You and others should be able to find this on the internet too. My individual case did not involve the jaws - just the teeth and gums and headaches - plus other fibromyalgia symptoms.
rhody
03-28-2003, 09:44 PM
Starr,
Some of the herbs that I initially took were Comfrey Root and Marshmallow root since I had urinary problems as well - which is common for people who have complications from mercury poisoning. Comfrey root is supposed to be one of those herbs that might cause problems (I can't remember what they are now), so I discontinued that herb early on. Other herbs I tried were Queen-of-the-Meadow, Ginger, and Ginseng. There were many others too, like Slippery Elm.
I read a lot about herbs and basically experimented - taking these herbs on a trial basis. I would buy these herbs in a healthfood store, and make my own herbal teas. My combination of herbs would range from about six to ten different types. I took notes, since I did this without doctor's care. As long as I improved, I continued.
My extensive herbal therapy all started this way:
When I was extremely sick, I was at the end of my rope. I took pill after pill of these herbal pills, not caring whether I lived or died. The amazing thing happened - I felt better. I was excited about this.
I asked my doctor about this - but when I asked him about anti-inflammatory herbs, he just said "no", and out the door he went, with the swirl of his coat. It seems that when you mention herbs, and it scares them. They run from it - I think they're scared about something they don't know.
The herbal healing is extremely slow and involves changing the diet to a healthy one - by avoiding all junk food and drinks etc. I took about a ounce or two of herbs and mixed them with water, and cooked them for about one or two hours and left them on the counter over-night. I would make enough for two or three days - and put the tea in the refigerator to preserve it in the morning. I would take two cups of this herbal solution everyday. When I upped the amount to three cups a day, I started getting a rash, so I cut the amount back to two. Herbs are supposed to be good for removing toxins.
Herbal treatment follows the "law of natural cure", in which a person can feel a little worse at first, and then improve slowly. This happened to me. I recite this from memory - as this was over ten years ago. I believe that after about 4 to 6 weeks, I started feeling better - after first feeling a little worse. Slow changes occurred for the next six months - after that it was mostly for maintenance and stabilization of my condition. When I had my amalgams removed about nine years ago, I continued my herbal treatment for years afterwards. I'm so well now that I haven't had any herbs for about the last six months (except for fresh cilantro).
If you're still interested about herbs, please let me know. I must have about twenty different books about the subject. Herbs fascinated me, from the perspective of being something that could help people, to also the fact that it is not used by the medical establishment (in general). If if helps, why aren't doctors using it? Some people think it all has to do with money, since herbs are just plants that can be grown in the backyard - and drug companies can't make money from it with their patents. Healing herbs - the entire subject - is so complicated - that it takes a lot of reading.
Some of the herbs that I initially took were Comfrey Root and Marshmallow root since I had urinary problems as well - which is common for people who have complications from mercury poisoning. Comfrey root is supposed to be one of those herbs that might cause problems (I can't remember what they are now), so I discontinued that herb early on. Other herbs I tried were Queen-of-the-Meadow, Ginger, and Ginseng. There were many others too, like Slippery Elm.
I read a lot about herbs and basically experimented - taking these herbs on a trial basis. I would buy these herbs in a healthfood store, and make my own herbal teas. My combination of herbs would range from about six to ten different types. I took notes, since I did this without doctor's care. As long as I improved, I continued.
My extensive herbal therapy all started this way:
When I was extremely sick, I was at the end of my rope. I took pill after pill of these herbal pills, not caring whether I lived or died. The amazing thing happened - I felt better. I was excited about this.
I asked my doctor about this - but when I asked him about anti-inflammatory herbs, he just said "no", and out the door he went, with the swirl of his coat. It seems that when you mention herbs, and it scares them. They run from it - I think they're scared about something they don't know.
The herbal healing is extremely slow and involves changing the diet to a healthy one - by avoiding all junk food and drinks etc. I took about a ounce or two of herbs and mixed them with water, and cooked them for about one or two hours and left them on the counter over-night. I would make enough for two or three days - and put the tea in the refigerator to preserve it in the morning. I would take two cups of this herbal solution everyday. When I upped the amount to three cups a day, I started getting a rash, so I cut the amount back to two. Herbs are supposed to be good for removing toxins.
Herbal treatment follows the "law of natural cure", in which a person can feel a little worse at first, and then improve slowly. This happened to me. I recite this from memory - as this was over ten years ago. I believe that after about 4 to 6 weeks, I started feeling better - after first feeling a little worse. Slow changes occurred for the next six months - after that it was mostly for maintenance and stabilization of my condition. When I had my amalgams removed about nine years ago, I continued my herbal treatment for years afterwards. I'm so well now that I haven't had any herbs for about the last six months (except for fresh cilantro).
If you're still interested about herbs, please let me know. I must have about twenty different books about the subject. Herbs fascinated me, from the perspective of being something that could help people, to also the fact that it is not used by the medical establishment (in general). If if helps, why aren't doctors using it? Some people think it all has to do with money, since herbs are just plants that can be grown in the backyard - and drug companies can't make money from it with their patents. Healing herbs - the entire subject - is so complicated - that it takes a lot of reading.