twiztid
04-23-2003, 08:14 PM
Not trying to be rude.. but this is my motivation.
When I am dizzy, or have a major headace. When my ears hurt, or I can't stand noises I used to be able to handle. When I am scared about "whatever" is happening to me, or I feel sorry for myself..
I think of people who have it worse. You can do this at this very board.
Check out the: Cancer: Leukemia or HIV sections. These are people who are fighting something so evil and painful...
It could be worse folks...
When I am dizzy, or have a major headace. When my ears hurt, or I can't stand noises I used to be able to handle. When I am scared about "whatever" is happening to me, or I feel sorry for myself..
I think of people who have it worse. You can do this at this very board.
Check out the: Cancer: Leukemia or HIV sections. These are people who are fighting something so evil and painful...
It could be worse folks...
Sponsor
jladams
04-23-2003, 08:25 PM
Very well put Twiztid, I've done that myself.
Elaine
04-23-2003, 11:43 PM
twizid,
When I am down on my knees throwing up from the latest flair up, I am thankful I can still get up off my knees. When I am laying in bed, crying from my recent back fusion, I am thankful I can still get out of bed.
When I am scared to death that I may not make it back from the walk I am on, I am thankful that I can still walk. You are right, I could be in a wheelchair.
By the way, some of us who have TMJD, the pain can be every bit as dibilitating as cancer. This is no picnic either. Not trying to be rude either, but I think we all know there are people who are worse off than us. How do you know that some of us may or may not have cancer, HIV, or Leukemia? What about "some" who have brain tumors and limited amount of time to live due to TMJD problems/implants etc. I think you made a bad statement "BUT" just my opinion.
Elaine
When I am down on my knees throwing up from the latest flair up, I am thankful I can still get up off my knees. When I am laying in bed, crying from my recent back fusion, I am thankful I can still get out of bed.
When I am scared to death that I may not make it back from the walk I am on, I am thankful that I can still walk. You are right, I could be in a wheelchair.
By the way, some of us who have TMJD, the pain can be every bit as dibilitating as cancer. This is no picnic either. Not trying to be rude either, but I think we all know there are people who are worse off than us. How do you know that some of us may or may not have cancer, HIV, or Leukemia? What about "some" who have brain tumors and limited amount of time to live due to TMJD problems/implants etc. I think you made a bad statement "BUT" just my opinion.
Elaine
twiztid
04-23-2003, 11:50 PM
Elaine, i respect your opinion.
TMJ can cause brain tumors?
TMJ can cause brain tumors?
Elaine
04-24-2003, 12:01 AM
(Donna's Post)
Yep, early 80's for me too. Nor was I told that they were recalled...however I had rejected both prior to the recall. In fact, because I changed surgeons, I didn't even know I had the foreign body reaction until the mid 90's. I did have osteomyelitis, though, for 10 years before it was finally cured and or cut out in one of the 30-odd operations. There a few of us still around and most of us have sever medical conditions such as yours that are most likely related to the Viteks. My favorite thing is growing bone tumors. I do quite regularly and quite well. I would prefer, however, to grow only the kind that can be removed or debrided, not this inoperable stuff that I have now on the skull floor. Not much fun. I hope you're able to take some kind of medication for your RA--I know it's a tough disease and I'm so very sorry you're forced to fight it. I wish you well and will add you to my prayers. Today, with the explosion of the Columbia so recent, I'm doing quite a bit of praying anyway. I weep for the families of those seven heros.
Be well,
Donna
Yep, early 80's for me too. Nor was I told that they were recalled...however I had rejected both prior to the recall. In fact, because I changed surgeons, I didn't even know I had the foreign body reaction until the mid 90's. I did have osteomyelitis, though, for 10 years before it was finally cured and or cut out in one of the 30-odd operations. There a few of us still around and most of us have sever medical conditions such as yours that are most likely related to the Viteks. My favorite thing is growing bone tumors. I do quite regularly and quite well. I would prefer, however, to grow only the kind that can be removed or debrided, not this inoperable stuff that I have now on the skull floor. Not much fun. I hope you're able to take some kind of medication for your RA--I know it's a tough disease and I'm so very sorry you're forced to fight it. I wish you well and will add you to my prayers. Today, with the explosion of the Columbia so recent, I'm doing quite a bit of praying anyway. I weep for the families of those seven heros.
Be well,
Donna
CherylLynn24
04-24-2003, 12:55 AM
twiztid,
In response to "you think you have it bad", I'm glad these things work for you, but you don't know what other health problems all of these people have, and what else their tmj problems have caused.
Cheryl
In response to "you think you have it bad", I'm glad these things work for you, but you don't know what other health problems all of these people have, and what else their tmj problems have caused.
Cheryl
autumn83175
04-24-2003, 03:20 AM
twiz...
While I think you were well intentioned. Your post upset me. I wanted to tell you earlier and refrained.
If most people haven't noticed, I haven't been here much this week. That is because on top of recovering from my surgery, my husband has now had a manic episode and disappeared. I spent the entire weekend not knowing where he was and if he was safe. In fact I found out Tuesday where he is, but he is not safe as far as I'm concerned. Anyone has read my posts on family, knows how close to him I am, so they can imagine how I'm feeling. When he does come home, I get to spend the rest of my life, making sure he takes medicine so he doesn't lose him mind. I get to spend the next two weeks sitting here waiting for him to come home so that hopefully I can get him help. Sleep what is that, haven't seen the back of my eyelids for longer than three hours in almost a month.
I have also gone to physical therapy for two weeks and have had no change in opening whatsoever. I am at 2 1/2. Yes, I am so sick of potatoes I could puke. Doesn't matter much since I have no appitite now anyway.
The only think I have to be thankful for this week is that my kids are healthy, but heartbroken that their dad is not around.
Cancer, been there, done that.
So while I know you were trying to be positive, maybe there could be a better approach next time. I am sorry to jump all over you, just stressed. Please don't take it too personally. Normally I am a very positive and compassionate person. I am just out of positivity this week. To answer your question - Yes, I think I have it bad...
Autumn
[This message has been edited by autumn83175 (edited 04-24-2003).]
[This message has been edited by autumn83175 (edited 04-24-2003).]
While I think you were well intentioned. Your post upset me. I wanted to tell you earlier and refrained.
If most people haven't noticed, I haven't been here much this week. That is because on top of recovering from my surgery, my husband has now had a manic episode and disappeared. I spent the entire weekend not knowing where he was and if he was safe. In fact I found out Tuesday where he is, but he is not safe as far as I'm concerned. Anyone has read my posts on family, knows how close to him I am, so they can imagine how I'm feeling. When he does come home, I get to spend the rest of my life, making sure he takes medicine so he doesn't lose him mind. I get to spend the next two weeks sitting here waiting for him to come home so that hopefully I can get him help. Sleep what is that, haven't seen the back of my eyelids for longer than three hours in almost a month.
I have also gone to physical therapy for two weeks and have had no change in opening whatsoever. I am at 2 1/2. Yes, I am so sick of potatoes I could puke. Doesn't matter much since I have no appitite now anyway.
The only think I have to be thankful for this week is that my kids are healthy, but heartbroken that their dad is not around.
Cancer, been there, done that.
So while I know you were trying to be positive, maybe there could be a better approach next time. I am sorry to jump all over you, just stressed. Please don't take it too personally. Normally I am a very positive and compassionate person. I am just out of positivity this week. To answer your question - Yes, I think I have it bad...
Autumn
[This message has been edited by autumn83175 (edited 04-24-2003).]
[This message has been edited by autumn83175 (edited 04-24-2003).]
CherylLynn24
04-24-2003, 04:50 AM
test
[This message has been edited by CherylLynn24 (edited 10-30-2003).]
[This message has been edited by CherylLynn24 (edited 10-30-2003).]
Cymy Sue
04-24-2003, 08:40 AM
Hi twiztid,
Your point is well taken, but this is the TMJ Disorders Forum. I believe everyone is aware, many worse diseases and disorders exist. Many Members do have other severe health problems, along with trying to deal with the many devastating problems of TMJD conditions. Some of the Members have very few, if any, options left.
For many of us, this is the only place we can express our fears, anger, frustrations, disappointments and "PAIN".
I think I am probably one of the older members of the group and have lived with this disease many years. My condition is worse than some, but not nearly as bad as many of the others. I believe that my experiences along the way, has given me a compassion for others suffering pain, that I would not have had otherwise.
I cannot say that I "know" the suffering of incurable cancer, rheumatoid arthritis, sickle cell anemia, AIDS, liver and kidney failure, etc. (The list of excrutiating painful diseases is endless) I can say that my heart breaks for people with these ailments and some of them have taken the lives of many family members and friends, especially cancer. I always feel the need to do "something" for them, when in reality, all we can do is "Be there" and I have, up until the last breath they took. I have held the hand of 5 close family members as they died, the youngest, 49 years old, of liver failure. A particularly horrible way to go. I have been in the room or right outside of so many others, I've lost count, the youngest being 10 & 14. This does not make me special, it just means I care. I'm sure there are many here who have done the same and more. (It means that I do not use my TMJD problems to isolate myself from the world and others who are, by far, worse off.)
From reading the posts made on this board, it appears to me, that all of these people are caring and sympathetic to all kinds of ailments and illnesses. Many are caring for people who are ill while trying to deal with their own pain. Many are dealing with their own pain, completely alone.
Some of us have elderly parents who require care, many have children to take care of, regardless of how much pain they are in.
Many people have suffered severe chronic pain for the majority of their lives from TMJ related problems and surgeries.
Many have died and are dying due to severe complications from this disease.
Very few people outside my immediate family know the particulars of the last 25 years of my life wih TMJD.
It appears this applies to most people here. There's not a lot of compassion and support "Out There" for a disease that is so totally misunderstood.
The members here, know more about my TMJD, than some of my family. I feel more comfortable talking to people who understand and hope they are comfortable talking to me.
So now that I've written a book, I just want to say that if sometimes it appears that we are "wrapped up" in our own problems and do not see the "Big Picture" of everything that is going on in the world, that is not the case, we do see and care.
This is our place to come for support and understanding, when there is no where else to go.
As always, my prayers for Donna & all,
Cymy Sue
[This message has been edited by Cymy Sue (edited 04-24-2003).]
Your point is well taken, but this is the TMJ Disorders Forum. I believe everyone is aware, many worse diseases and disorders exist. Many Members do have other severe health problems, along with trying to deal with the many devastating problems of TMJD conditions. Some of the Members have very few, if any, options left.
For many of us, this is the only place we can express our fears, anger, frustrations, disappointments and "PAIN".
I think I am probably one of the older members of the group and have lived with this disease many years. My condition is worse than some, but not nearly as bad as many of the others. I believe that my experiences along the way, has given me a compassion for others suffering pain, that I would not have had otherwise.
I cannot say that I "know" the suffering of incurable cancer, rheumatoid arthritis, sickle cell anemia, AIDS, liver and kidney failure, etc. (The list of excrutiating painful diseases is endless) I can say that my heart breaks for people with these ailments and some of them have taken the lives of many family members and friends, especially cancer. I always feel the need to do "something" for them, when in reality, all we can do is "Be there" and I have, up until the last breath they took. I have held the hand of 5 close family members as they died, the youngest, 49 years old, of liver failure. A particularly horrible way to go. I have been in the room or right outside of so many others, I've lost count, the youngest being 10 & 14. This does not make me special, it just means I care. I'm sure there are many here who have done the same and more. (It means that I do not use my TMJD problems to isolate myself from the world and others who are, by far, worse off.)
From reading the posts made on this board, it appears to me, that all of these people are caring and sympathetic to all kinds of ailments and illnesses. Many are caring for people who are ill while trying to deal with their own pain. Many are dealing with their own pain, completely alone.
Some of us have elderly parents who require care, many have children to take care of, regardless of how much pain they are in.
Many people have suffered severe chronic pain for the majority of their lives from TMJ related problems and surgeries.
Many have died and are dying due to severe complications from this disease.
Very few people outside my immediate family know the particulars of the last 25 years of my life wih TMJD.
It appears this applies to most people here. There's not a lot of compassion and support "Out There" for a disease that is so totally misunderstood.
The members here, know more about my TMJD, than some of my family. I feel more comfortable talking to people who understand and hope they are comfortable talking to me.
So now that I've written a book, I just want to say that if sometimes it appears that we are "wrapped up" in our own problems and do not see the "Big Picture" of everything that is going on in the world, that is not the case, we do see and care.
This is our place to come for support and understanding, when there is no where else to go.
As always, my prayers for Donna & all,
Cymy Sue
[This message has been edited by Cymy Sue (edited 04-24-2003).]
twiztid
04-24-2003, 08:59 AM
Wow.
I am sorry to anyone my post upset. That was not my intention.
I have a friend who found out on her birthday last December, that she has Non-Hodgkins Lymphoma. I was talking to another friend of mine who was giving me updates on her situation. It doesn't look good. Her swelling will not go down, and the Chemo doesn't look to be doing much (yet).
I guess I got caught up in the moment. I have accepted the fact that she is going to die. I am not.
And as much pain and confusion as I am in, I will go on... that was the point I tried to make.
Again, sorry to anyone I upset with my post. I am glad you at least understand that my intentions were good.
I have "other" medical problems as well... I should have been a bit more understanding that this board if read by people who have friends and family who may be suffering from other horrible ailments.
Again, my apolgies.
I am sorry to anyone my post upset. That was not my intention.
I have a friend who found out on her birthday last December, that she has Non-Hodgkins Lymphoma. I was talking to another friend of mine who was giving me updates on her situation. It doesn't look good. Her swelling will not go down, and the Chemo doesn't look to be doing much (yet).
I guess I got caught up in the moment. I have accepted the fact that she is going to die. I am not.
And as much pain and confusion as I am in, I will go on... that was the point I tried to make.
Again, sorry to anyone I upset with my post. I am glad you at least understand that my intentions were good.
I have "other" medical problems as well... I should have been a bit more understanding that this board if read by people who have friends and family who may be suffering from other horrible ailments.
Again, my apolgies.
autumn83175
04-24-2003, 09:51 AM
It's ok Twiz, we are still happy to glad to have you here. I hope this hasn't put you off. Though there are bad days here, there also lots of good ones. There is so much to learn here and so many good people on this board. I hope you have a good, pain free day.
Autumn :)
Autumn :)
CherylLynn24
04-24-2003, 12:47 PM
twiztid,
I'm sorry to go off on you like that. Yesterday was just an all-around bad day. Hope you're having a good day today.
Cheryl
I'm sorry to go off on you like that. Yesterday was just an all-around bad day. Hope you're having a good day today.
Cheryl
Cymy Sue
04-25-2003, 06:26 AM
Hi twiz,
I wanted to get back to you yesterday, but due to the weather, I couldn't get on-line. (satellite)
Your original post did "hit some nerves". I didn't realize it was an extremely emotional time for you with the possibility of losing a friend. I'm sorry.
My reply was emotional also. Most of us are "emotional" regarding the "demons we fight" everyday with TMJD.
However, I have in the last month lost a life-long friend, (a Minister) a man I have known since First Grade (45 yrs). He was murdered, along with two others, in a robbery attempt at a Funeral Home. I'm having a real hard time with this one.
Two weeks ago, a friend of several years, lost her teenage son in a freak accident. This one is hard, too.
I guess many things can influence the tone of our remarks and how we respond to each other.
Again, I'm terribly sorry about your friend.
Cymy Sue
I wanted to get back to you yesterday, but due to the weather, I couldn't get on-line. (satellite)
Your original post did "hit some nerves". I didn't realize it was an extremely emotional time for you with the possibility of losing a friend. I'm sorry.
My reply was emotional also. Most of us are "emotional" regarding the "demons we fight" everyday with TMJD.
However, I have in the last month lost a life-long friend, (a Minister) a man I have known since First Grade (45 yrs). He was murdered, along with two others, in a robbery attempt at a Funeral Home. I'm having a real hard time with this one.
Two weeks ago, a friend of several years, lost her teenage son in a freak accident. This one is hard, too.
I guess many things can influence the tone of our remarks and how we respond to each other.
Again, I'm terribly sorry about your friend.
Cymy Sue
CherylLynn24
04-25-2003, 12:16 PM
Cymy Sue,
I'm really sorry you've lost two dear friends. Hang in there, you're in my thoughts and prayers.
Take Care-Cheryl
I'm really sorry you've lost two dear friends. Hang in there, you're in my thoughts and prayers.
Take Care-Cheryl
Elaine
04-25-2003, 01:43 PM
Sue,
So many needless deaths, the world is going crazy. Do you remember the little boy in Kansas that got drug to death a few years back. The mother left the little boy in the car while she ran in the store? Some guy had just gotten out of jail/prison, can't remember which. Anyway he took off with the car and the little boy tried to get out of the car. He got stuck in his seat belt and was drug to death with his head hitting the road, at 80 miles an hour, while this idiot tried to outrun the cops. The little boy's name was Jake Robel if any of you remember that incident. He was my cousin's nephew. I am not sure if that "piece of work" has even been tried yet. If it were me, I would drag him to his death too. Excuse me, but I don't think there is any big decision here when it comes to a little eight year old boy.
I am sorry about your loss too. Life has a way of teaching us lessons, sometimes it is hard to see what the lesson is??? I am dumbfounded most of the time.
Take care,
Elaine
So many needless deaths, the world is going crazy. Do you remember the little boy in Kansas that got drug to death a few years back. The mother left the little boy in the car while she ran in the store? Some guy had just gotten out of jail/prison, can't remember which. Anyway he took off with the car and the little boy tried to get out of the car. He got stuck in his seat belt and was drug to death with his head hitting the road, at 80 miles an hour, while this idiot tried to outrun the cops. The little boy's name was Jake Robel if any of you remember that incident. He was my cousin's nephew. I am not sure if that "piece of work" has even been tried yet. If it were me, I would drag him to his death too. Excuse me, but I don't think there is any big decision here when it comes to a little eight year old boy.
I am sorry about your loss too. Life has a way of teaching us lessons, sometimes it is hard to see what the lesson is??? I am dumbfounded most of the time.
Take care,
Elaine