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View Full Version : Occipital Neuralgia- Anyone been diagnosed with it?


 

 

 
goodwillstacy
04-23-2003, 11:32 PM
I have recently started seeing a new pain specialist. He is fantastic. One of the best doctors I have ever had. In an appt. the other day he told me many of his TMJ patients ALSO have occipital neuralgia. Anyone been diagnosed with this? If so, what have your treatments been?
I had a nerve test the other day that tested for damage. It came out pretty normal. I am waiting on the results of a cervical ultrasound from the radiologist. I am just wondering if all of this is unnecessary? I guess testing never hurt anyone.
I have had three injections so far. An occipital nerve block, a cervical facet joint injection, and another one (i forgot the name there are so many!). They hurt like hell but the pain in my shoulders and the electric pain shooting down my neck, shoulder, and into my arm has subsided a little.
Thoughts on this anyone?
Hope you're having a great night,
.stacy.

[This message has been edited by goodwillstacy (edited 04-26-2003).]

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goodwillstacy
04-26-2003, 02:14 AM
bump in case any of the new visitors know anything about this

Elaine
04-26-2003, 04:41 PM
Occipital Neuralgia is a painful irritation of the occipital nerve. This nerve has two branches, the Greater Occipital nerve that goes from the middle of your neck up towards the top of your head and the Lesser Occipital nerve that branchs lower and goes up behind your ear and toward your eye and temple. The theory about what causes this irritation is that it is either muscle spasm which can compress the nerve or a blood vessel which can also mechanically compress the nerve and cause pain. If the pain is directly behind your ear and towards your eye and your doctor suspects neuralgia it is likely the lesser occipital nerve that is causing pain. Treatments include anti-seziure drugs (Neurontin, Tegretol), physical therapy, injection of lidocaine or marcaine (sometimes combined with cortisone) combined with physical therapy, Botox injection, rhizotomy (cutting or burning of the nerve), surgical decompression of the nerve, and use of opoid medication. I would highly recommend against rhizotomy except as a last ditch effort.
Hope this helps,
Elaine

amateurdoc
04-27-2003, 03:09 PM
Hey, Stacy, been gone a while--been busy and too frustrated to visit. Checked back in to see how everyone was doing. My wife has also been diagnosed with occipital neuralgia--must be all the rage in Atlanta. Had an epidural (no help), a facet joint injection (no help) and a local anesthetic injection at the point of the neck where the occipital nerve leaves the spine. The latter reduced the burning pain in her neck and the back of her head, so he then (two weeks later) injected botox in three locations where the nerve leaves the skull, in an effort to block the nerve and stop the muscle spasms. This has reduced her posterior neck pain, but has done nothing for her jaw/temporal pain. The doc thinks the jaw pain is secondary to the neck pain. We think the neck pain was caused by a PT putting her in cervical traction, and that the jaw pain is caused by something in the area around the jaw/ear. The doc has never heard of Ernest Syndrome, or Shankland. And he doesn't seem to like the internet too much. Says don't believe everything you read. I told him all I know is she's still in pain. I do believe pain specialists (if you can find the right one) can help, as they seem ready to try almost anything. It just may take them a while. I ordered, and received, a back issue of Practical Pain Management magazine which has an article on ES. I'm going to bring it in next appointment for the doc to read, and if that doesn't get him to try the local in that area, I'll just roll it up and hit him over the head with it.





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