pl9071w
03-17-2003, 01:37 PM
hi,
i'm new here and i'm here because of my little boy who is 4 yrs old. he has a chromosome disorder called isodicentric 15 (www.idic15.org), with this disorder he has seizures, severe low muscle tone and severe global developmental delays. now i have him on for supplments tmg 125mg, carnosine 1200mg, coromega 1 packet, multi vitamin, and at night he takes 155mg calcium w/mag and 50mg b6. But I read a brief article that people who took the 65% omega 3 polyunsaturated fatty acid plus vit E they had a seizure reduction. Question is has anyone heard of this? does anyone know of anything else I should be giving him to control and seizures I need for him to get strong. he is unable to walk, talk, sit, by himself. thanks for your help
i'm new here and i'm here because of my little boy who is 4 yrs old. he has a chromosome disorder called isodicentric 15 (www.idic15.org), with this disorder he has seizures, severe low muscle tone and severe global developmental delays. now i have him on for supplments tmg 125mg, carnosine 1200mg, coromega 1 packet, multi vitamin, and at night he takes 155mg calcium w/mag and 50mg b6. But I read a brief article that people who took the 65% omega 3 polyunsaturated fatty acid plus vit E they had a seizure reduction. Question is has anyone heard of this? does anyone know of anything else I should be giving him to control and seizures I need for him to get strong. he is unable to walk, talk, sit, by himself. thanks for your help
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N2golf
03-17-2003, 06:47 PM
What does your doctor say to do? You could also ask a pharmacist about the vitamins that are in question.
Wish I could help more.
Wish I could help more.
ramsemonius
03-24-2003, 09:46 PM
I checked out the website.
First, before I share some ideas, we must consider the nature of the problem. Unfortunately, the cause of the problem is embedded deeply into the core "programming" of the body, so I would not get your hopes up about any miracle cures :(. However, there might be some things to help. You might try supplements that are known to address the hypothalmic-pituitary-adrenal axis (HPA), such as Panax ginseng root, Eleutherococcus senticosus root, Rhodiola root or Leuzea root (Rhamponticum carthomoides). These agents are generally quite safe, and have been shown to improve things like psychomotor performance (related to coordination/reaction time), memory, and physical strength and endurance. These agents may help maximize your childs ability to cope both physically and mentally in the modern world.
Omega-3 fatty acids are also quite safe and are essential for all body tissues. I've seen cases of so-called "ADD" improve with fish oil concentrate supplementation over time.
I'm curious, why do you have him on carnosine?
First, before I share some ideas, we must consider the nature of the problem. Unfortunately, the cause of the problem is embedded deeply into the core "programming" of the body, so I would not get your hopes up about any miracle cures :(. However, there might be some things to help. You might try supplements that are known to address the hypothalmic-pituitary-adrenal axis (HPA), such as Panax ginseng root, Eleutherococcus senticosus root, Rhodiola root or Leuzea root (Rhamponticum carthomoides). These agents are generally quite safe, and have been shown to improve things like psychomotor performance (related to coordination/reaction time), memory, and physical strength and endurance. These agents may help maximize your childs ability to cope both physically and mentally in the modern world.
Omega-3 fatty acids are also quite safe and are essential for all body tissues. I've seen cases of so-called "ADD" improve with fish oil concentrate supplementation over time.
I'm curious, why do you have him on carnosine?