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View Full Version : Is this endometriosis, or is it perhaps a hormone problem? Would love advice...


 

 

 
DragonLover24
04-02-2003, 11:26 AM
Ok well here's the issue. I seem to have a very much patternized sequence of events with regards to my menstrual cycle. I've noticed that the day before I ALWAYS start to feel tired and unwell. By the next day, that passes and my biggest problem is some pretty uncomfortable cramps (which is probably normal for most people). But the real issue is towards the END. Once I reach day 7, I can start to not only feel unwell but to experience increased digestive upsets. Now my stomach will burn and my bowels will easily get upset, no matter what I eat. I also get very FOUL gas which can be extremely embarassing, and I have to pass it like every five minutes, which gets annoying. (Some months this is better, some months worse...) These problems will go on for about a week, then I start to feel better again and my stomach/bowels will be much calmer.

These problems have been ongoing for along time, no amount of diet changes has helped any. (Though I have yet to see a doc for food allergies. ) Still, even if they were food allergies, why would it be so patternized? That wouldn't make sense. Does anyone know of any hormone conditions which maybe I should get checked for? I often don't feel well as a general rule, have tired and sore muscles, and varying degrees of energy, whether truly poor or sometimes very good. I'm so frustarted, arg! (Even more so since I don't have insurance and it's hard to see a doc.) Tests in the past (regular blood panels) have come up negative so just by that most doctors insist I have stress-related problems. Some insist on Paxil. I am not too fond of doctors. I am NOT depressed. I have a love of life, and a sincere desire to be as healthy as possible. Any advice is greatly appreciated! :)

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~A dragon is a woman's best friend.~

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kat721
04-02-2003, 12:28 PM
Endometriosis IS a hormone problem.
So is Diabetes or Hypoglycemia for that matter.
Insulin is the hormone produced by the Pancreas.
And, Insulin is one of the main contributing
factors, (either hypoinsulin or hyperinsulin,)
to a whole bunch of problems that women have
that may or may not be related.
Tell your tale to a Reproductive Endocrinologist and it's very very possible that before you are finished telling your story, the RE will have a plan of action for you.
Tell your story to the RE's nurse before making the appointment and the Nurse can tell you right off if your problmems could be addressed in their practice.
Since you do not have insurance it's going to be a bit of a problem because these doctors are definately expensive.
My suggestion is to either find a really good Family practitioner who understands the metabolic endocrinology reality of certain female problems
or to get into a Teaching Hospital program where the fees are sliding scale.
As for the intestinal troubles, you could spend a fortune on the Gastroeneterologist undergoing test after fancy test OR you could again, talk to the Reproductive Endocrinologist first, since a huge number
of women they treat have Irritable Bowel Syndrome attached to their female troubles. The RE could then make the medical decision about the necessity of the Gastroenterologist before you get sent to other specialties to find out what's going on.
I went through 3 Gynecologists, a Gastroenterologist and a colonoscopy, a Urologist and a whole bunch of outrageously expensive Urology tests with fancy devices,
Not to mention the amount of lab work...OY!!!!!
Only to have both the Gastroenterologist and the Urologist have to write letters to the last Gynecologist and tell her to go inside with a laproscope and take a look because they thought I had internal adhesion and the Gynecologist was ready to send me off to the psychiatrist for mystery pain control.
Yeh, yeh yeh, I know allllll about those stress related problems.
Like the day my colon stopped working from all that pelvic hormonal adhesion endocrine metabolic mess and I had to have emergency surgery.
Yes, on that day I told my Gynecologist that yep,
I'm stressed NOW!
As for needing a psychiatrist, I told my RE recently that I admit to now being bowel obsessed since I had 3 surgeries in less than a year for my bowels deciding not to work right.
So save yourself some grief and lots and lots of money and a gazillion prescriptions of one medication after another and possibly a trip to the psychiatrist where they try to pin you down with an eating disorder because you eventually either loose a ton of weight or eventually gain a ton of weight with these kinds of problems.
And look up PCOS Poly Cystic Ovary Syndrome on a search engine and get ready for some lengthy and fascination reading.
Remember, Poly Cystic Ovarian Syndrome is a syndrome. That means you don't have to fit the criteria to a T to have the problem. Same as IBS. those titles are just headings with criteria that help Doctors make assessment and treatment options more clear.
Many many women with PCOS don't even have cysts on their ovaries. Some might have already had their ovaries taken out and might still be suffering from the metabolic problems.
Anyway, doing some personal research on PCOS and learning and comparing to the conditions in your own body won't cost you a penny or hurt you one bit.
Running around from Doctor to doctor will wear you pocket book thin and frustrate you endlessly before you hit on the big answer.
As for Paxil, I hate that stuff. Made my mood foul.
However, since female, energy and gut problems, give you their own kind of stress, the Doctors who say the problems is stress are often a bit correct.
While some people really do have stress caused disorders, the woman who has a real endocrine/metabolic problem will have plenty plenty of organic triggers that give you body stress which eventually translates into emotional stress(frustration) and then taking an SSRI then becomes a valid part of the treatment plan.
Additionally, the use of SSRI's and other "depression" meds goes way beyond the stress factor.
Those meds have to do with the regulation of brain chemicals and those same brain chemicals that everyone related to mood also exist as necessary chemicals for the function of the gut. So quite often, for people with bowel and motility problems it's the SSRI and that group of meds that are prescribed to help regulate the chemicals in the body that are not working right. I like my current SSRI just fine. But for me it came down to a very specific dose that works with my particular body. So you have to explore that with the treating Doctor. Both chemical formula and dose.
kat

DragonLover24
04-02-2003, 10:44 PM
Wow...I never even HEARD of some of these conditions you mentioned Kat. I thank you for your information and am glad you agree with me about the doctors and their infamous Paxil problem. ::rolls eyes:: Believe me, I've already "thinned my pocketbook" seeing several doctors who have all tried to tell me I am just purely and simply stressed. What you are saying about metabolic/hormonal disorders makes a lot of sense, since my problems seem to worsen right when I am at my MOST hormonal! (Like every other woman at that wonderful time of the month...)
::sighs:: Would love to see an Endo doctor....but the last quote I got to see a really well known and recommended doc in my area was $300!! I just don't have that kind of money to spare...I only work part time and that's because of my health problems!! :( ARG! I am trying to get some full time hours back but I loathe the extra time I have to be at work whilst not feeling well. (Work IS stressful, I won't deny that, but work is stressful for almost EVERYONE...)
But at least because of your advice I have a direction to go in, and a disorder I can ask a doctor about. (I will go read about it, too.)

Thanks so much for you help!!

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~A dragon is a woman's best friend.~

kat721
04-03-2003, 12:51 PM
Thanks Jenn, One of the reasons I spend time answering on these boards is because I don't want other women to suffer long and lost like I did.
I have had a lot of big physical problems cascade into a very scary place.
As many women experience, the information does not seem to be readily available if you don't know where to look.
And why that is, I don't know.
All I can can think is that those Endocrinologists
don't have as good of a Public Relations department as the Breast Cancer folks.
It's beyond sad what women go through.
Dragon, 300.00 for an Endocrinologist is a bargain.
It's horribly horribly expensive.
Try investigating a teaching hospital or the city hospital which may have government contracts for
people who can't afford standard health care insurance.
The contract clinics are often quite good and you might even get a little better care if the hospital is progressive and teaching the newest and the latest.
Also try Religion affiliated Hospitals. They often have special clinics and funding based on a sliding scale and need with relation to harship.
There is help for people who are having a hard time financially, but just like everytihing else you have to wait in line, to jump through hoops and produce a stack of anoying paperwork out of your hat.
But it's your health.
What else can one do?
I suggest learning all you can to help you help yourself and your doctor(s) as you work on resolve.
It's important to know the right questions to ask when you are tryinng to get good and efficient medical care.
kat

Alyna25
09-03-2005, 08:32 PM
I went to a gasterentrologist, they diagnosed me with chrones disease after a biopsy of my colon. Did more research becasue I had no other chrones symptoms, a year later found out I really had endometris on my bowl and that was causeing the chrones symptoms, the doc was able to remove it laproscopy and I've been fine ever since! my advice to you is try and keep a diary of your symptoms and do all the research you can, I had to find out for my self I had endo on my bowls and tell my OBGYN to go in and look and when I was in recovery they were all amazed I found my problem on my own.
good luck.

rabbitbunnies
12-20-2005, 05:28 PM
Ok well here's the issue. I seem to have a very much patternized sequence of events with regards to my menstrual cycle. I've noticed that the day before I ALWAYS start to feel tired and unwell. By the next day, that passes and my biggest problem is some pretty uncomfortable cramps (which is probably normal for most people). But the real issue is towards the END. Once I reach day 7, I can start to not only feel unwell but to experience increased digestive upsets. Now my stomach will burn and my bowels will easily get upset, no matter what I eat. I also get very FOUL gas which can be extremely embarassing, and I have to pass it like every five minutes, which gets annoying. (Some months this is better, some months worse...) These problems will go on for about a week, then I start to feel better again and my stomach/bowels will be much calmer.

These problems have been ongoing for along time, no amount of diet changes has helped any. (Though I have yet to see a doc for food allergies. ) Still, even if they were food allergies, why would it be so patternized? That wouldn't make sense. Does anyone know of any hormone conditions which maybe I should get checked for? I often don't feel well as a general rule, have tired and sore muscles, and varying degrees of energy, whether truly poor or sometimes very good. I'm so frustarted, arg! (Even more so since I don't have insurance and it's hard to see a doc.) Tests in the past (regular blood panels) have come up negative so just by that most doctors insist I have stress-related problems. Some insist on Paxil. I am not too fond of doctors. I am NOT depressed. I have a love of life, and a sincere desire to be as healthy as possible. Any advice is greatly appreciated! :)

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~A dragon is a woman's best friend.~ :angel: Hi , Honey . this dosen't sound like u have that dsease . I did % yrs ago among other health promblems but i had endrometries . and only way they can find out if u have this or not is by doing a lap surgery please post to me and ill be glad to answer any of your ?

djl
01-06-2006, 03:26 PM
Hi
Sorry to here what you are going through.
It could be an Endo Issue as well as an IBS issue too.
Endo can trigger IBS symptoms with bowel problems and gas.
I had Adenomyosis (internal Endometriosis of the Uteris), PCOS and Severe Pelvic Congestion Syndrome.
I was dealing with biwel problems, gas, Actualy the bowel problems has pretty much cleared up since I had a hyst. I do still suffer with gas problems sometimes.
I know I had severe painful periods to the point I was stuck in bed for a few days I was so sick with it. I also had severe ovulation pains as well.
I would deffinately see a gastro doc and have your OB do a Laporoscopy to check for Endo and to see how your uteris is . Also it wouldnt hurt to have a Transvaginal done as well.(this is to see if there are any cysts on the ovaries) Yet like the other poster said you dont have to have cysts to be PCOS. I did have the cysts.
Keep us updated. Oh and also try to stay away from dairy and red meat. That can trigger discomfurt if it is Endo.





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