I have a daughter who when she was 5 years old was diagnosed by a sweat test with cf. The sweat test we were told was absolutley without a doubt correct in it's diagnosis. We were told her 'numbers' were too high to be borderline or an error and so on. They of course were going to retest her as they always do a retest to be sure even though the dr said he was 99.9% sure she had it and it would be (his words) a miracle if she did not. We went home after beginning our education on cf and were to go back the next week for retesting which we couldn't do because she was dehydrated from a viral infection so we had to wait another week. So anyway for 2 weeks I cried and cried and cried more than I ever thought possible I was physically and emotionally drained and prayed and prayed and prayed and had many many others praying for her. In the 2 weeks I learned a lot about cf and her dr said he felt very strongly that within 5 or 10 years they would have a cure. Well we went back for the repeat test and the dr called and said come back again for a 3rd test because her test came back normal and he said that just wasn't possible. So back we went with a glimmer of hope and amazingly it was normal again and they ruled out cf. I learned a lot though in those 2 weeks about the disease and the children with the disease and the families and about myself. I often pray that they do find a cure for this so that no parent ever has to sit and hear the words we did from a dr. I will pray for your friends little boy that they do find a cure no child should have to suffer with this. I thank God every day for 3 healthy children knowing how close I could've been to having lost one of them. I will look at the website you mentioned and your friend who lost his fight will be in my prayers and also his family. God Bless!