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ChristinaD
12-04-2002, 11:25 AM
This is gross but common.
They are small yellowish hard pieces of matter that smell awful and sometimes look like cauliflower. Usually just cough them up or they dislodge themselves.
Anyone else have these and what do you do about them besides removing your tonsils. They also make your thoat sore.
I just wondered if anyone else knew had to avoid them.

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Jerseygirl
12-04-2002, 11:45 AM
I heard lots of things about these - I've been getting them since I was a child, my daughter gets them too - from what I read and all, it's little pockets in your tonsils that get food lodged in them (it's the same color and smell as the stuff the dentists get off your teeth.) I never heard of them making the throat sore though. I get them if I eat a hard roll or bagel! It's not necessary to have tonsils removed because of them.

Trooper
12-04-2002, 03:22 PM
Funny that this topic turned up... my brother just had his tonsils removed on Monday of this week because of the pockets and the problems that it was causing. So, actually, it might be necessary to remove your tonsils. My brother has had pockets in his tonsils for a couple of years now (they kept getting bigger). It caused all problems, including a very sore/burning throat. The food would get in there, start to 'decompose', turn hard, cause bad breath, irritation, infections, etc. When I spoke to his doctor (I had to take him to the hospital), she said that they absolutely needed to come out because they were so bad. He is older, so his recovery is going to be a little longer, but it needed to be done. His case got pretty bad over time. I suggest getting a good ENT and have them monitor the size/problems of your pockets.

ChristinaD
12-04-2002, 03:54 PM
Thanks guys for the response!
Interesting, I have always had them, just small ones and rarely like once every couple months or so.
Now, at 27, I hadn't had them for a long time and all of a sudden I am getting them everyday and it is leaving a bad taste in my mouth along with a sore throat. Maybe my "pockets" are getting bigger.
Thank for the advice!!!

Christina

Mila21ca
12-07-2002, 12:58 AM
I have experienced this as well, for as long as I can remember. I don't know if they are actually on my tonsils, but definitly on my throat. Anyway, I once asked a doctor about them and he told me that is was simply a "hard saliva build-up". I know what you mean be it hurting your throat. I find that it hurts my throat if I try to take it off and it's not ready. Anyway, I also haven't experienced this in a while and recently it has begun again! Weird!
Anyway, I wouldn't be too worried about it; if it's the same as what I have, it has nothing to do with tonsil pockets.

Jerseygirl
12-07-2002, 10:03 AM
More on this topic under "General Health" posted by wattagirl called, "throat thingies-lol"

wattagirl
12-07-2002, 10:18 PM
did you like my topic name-lol-i didn't know what to call them-anyway mine come and go but i would love to end the problem-i asked a doc about my tonsils one time and he said they were rotting out on their own and i shouldn't worry about them-gross huh-he also said because of my age-31-it would be hard to recover-wish i had had them taken out

Jerseygirl
12-08-2002, 09:27 AM
I love that name! :D That's just about what I'd call 'em too! They seem so common, yet there are so many conflicting stories as to what they are! Well, I've been getting them for over 35 years, I still have my tonsils and I hardly ever get sick.... so I never thought too much of them.

MarlinSmith
12-11-2002, 12:36 AM
My tonsils were full of holes and white smelly chunky crud. I put up with it for years. For one thing, the regular MD's that I went to didn't understand the problem. I went to a specialist and he said that they were chronically infected and had to come out. The surgery wasn't any fun, but it should have been done sooner. I had them out when I was 23, a couple days after I graduated from college. Not much of a graduation gift, but it had to be done.

ChristinaD
12-11-2002, 11:17 AM
Do you'all see the chunks in there? I can't see them but I sometimes feel them when I swallow and sometimes have a weird taste until they come out so I know they are in there. Will it go away on its own? It has been about a month now and I don't want my breath to smell or anything!

MarlinSmith
12-13-2002, 12:28 AM
Oh, yes! Get yourself a flashlight and something to do some digging with and have some fun! I used the file on a toenail clipper since you could straighten the three parts out and the angle and length was about right. In my case, there were holes all over the place and you could dig the white junk out of them. Sorry for the graphic details, but you asked for it!

PS-I'm glad that those days are gone!

ChristinaD
12-13-2002, 09:15 AM
I have looked at them and stuck a Q-tip in the biggest hole that I think is causing the problems but nothing comes out only a weird smell?!?! I can't see any chunks! Could they just be really far into my tonsils?

MarlinSmith
12-13-2002, 08:28 PM
I'd say that the chunks are still hidden inside your tonsils. Keep checking back there and I bet that they will rear their ugly heads sooner or later. They seem to appear in their own due course. They'd often just end up in my mouth. They smell and taste terrible!

Look for a speck of white. (White indicates an infection.) Usually, that's just the head of a bigger nugget. I don't know how big your mouth is (HA!) but I was able to see things pretty well back there.

I was told that I had chronically infected tonsils, as opposed to tonsilitis. Before going to a specialist, an MD told me "you definately don't want to have your tonsils taken out" and that the white stuff "was just some food like a piece of potato." Wrong on both counts! The specialist said that my tonsils were too far gone and had to be taken out. I agreed. It wasn't any fun, but it was for the best.

I'm pretty big into alternative health but if your tonsils are as bad as mine were, I'm not sure what the solution would be other than surgery. If they stay in, I'm afraid that they will only cause you lingering problems. Often, I was functional but didn't feel well and it went on for years! I should have had them taken out when I was a little kid but that was in an era when doctors were reluctant to take them out.

wattagirl
12-13-2002, 11:14 PM
marlin-i went to a doc over throat problems-i asked him about the white things and never got an answer-that was several years ago-he told me that my tonsils were rotting out-can you believe that-i asked him if i should have them removed and he said nature was taking it's course-i wonder now after reading your post if i should see a specialist and ask about having mine removed-

MarlinSmith
12-16-2002, 04:18 AM
I'd say that would depend on how much trouble they seem to be causing you. I know one person who seems to be getting by with the problem. She doesn't want surgery. In my case, they were bad enough that the decision to take them out was a good one.

ChristinaD
12-16-2002, 10:04 AM
Thanks Marlin for the input. I can see a little white on my tonsils just like two little specs but it does not go away. I have one main hole on my left tonsil and I know that that is where those litte buggers are hiding!! I usually don't see them unless they end up in my mouth too. When I do "dislodge" them, they smell like the bad taste I sometimes get in my mouth. It is a little better when I gargle salt water but I am going to the doctor this week. It is to disgusting! I am afraid to get my tonsils out since they say it is painful as an adult.
I'll let you know what the doc says!!
Christina

Merrida
12-17-2002, 11:21 AM
Ahh! So THAT is what they are! I've always wondered. I thought I was the only person to get these. I wondered if they were being coughed up from my lungs. It never occured to me that they could be from my tonsils.

I knew by the odor it was decay, so I was afraid it meant decay of lung tissue, not decay of food lodged in a pocket in my tonsils.

Well it sure makes a lot of sense, after reading the posts!

Jazzmyne
12-20-2002, 04:29 PM
I'm glad I stumbled upon this website. I've been suffering with these little nasties for a couple of years now. Unfortunately they seem to be getting worse, or maybe because I'm more aware of them and am actively seeking them, I'm seeing them more. As I am a vocalist, I'm terrified about getting surgery, so I've been looking for alternate ways of dealing with them. I've learned that I can use a Q-tip to gently squeeze the tonsil to pop them out. (I say gently because I accidently was too rough once and caused one to start bleeding a little) So far, most of the sites of seen encourage people with these tonsiloliths (technical name) to try and deal with them before surgery, if you can. Some of the things suggested to help were... 1. gargling with warm salt water after meals 2. Getting a water pik (which i will be getting soon as it must work better than the Q-tips) 3. A round of antibiotics might help 4. A new laser procedure which is said to shrink the pits on your tonsils, so food and bacteria can no longer get trapped in them to cause the tonsil stones. If you know of any other helpful things please let me know, and good luck to all of you dealing with these little buggers!

Tigernpooh2001
01-02-2003, 01:59 PM
I just had my tonsil removed 3 weeks ago. I went to the ENT Dr. in Oct. because I had these whitish nasty smelling abcesses that were coming off for a year. They kept getting bigger and bigger. She suggested I either deal with it for the rest of my life or have my tonsils removed also to mention the fact my tonsils where the size of golf balls. I chose to have them out. I am still not 100% recovered but believe it is well worth it. I suggest you go see an ENT Dr. and se what he/she has to say.

ChristinaD
01-02-2003, 02:09 PM
Tiger,
What do you mean you aren't recovered yet? Are you still in pain or what? I want my tonsils out due to these little buggers but have heard that getting them out as an adult can be horrid!

Tigernpooh2001
01-02-2003, 03:28 PM
I had my 2 week check up last Friday and my ENT Dr. said I still have scabs that haven't come off. Some people take longer. Over the weekend I developed a Sinus infection which has infected the area where my tonsils were removed a little bit. They told me today that I need to finish my Anitbiotic I recieved for my sinus infection and it should clear up.

Adults do have a harder time with a tonsillectomy. They say a good 2 to 3 weeks for recovery. I was in severe pain for the first 6 days. I couldn't eat at all or really drink anything. But again I am a wimp. It all depends on the person.
Good luck with your decision.

silvershado1
01-21-2003, 06:27 AM
Well I have had this problem since 1995. I went to my doc and he commented that I had large tonsils, but at that stage there was no crap in them. But I found out years later in 98 that I had chronic tonsillitis and I had it every month even after a dose of antibiotics. I don't have a problem with it right now and have not had a problem since my last lot of antibiotics. Which was around Christmas. But even now if I press my Tongue against my tonsils I get that yucky taste. Here in Australia we have a 5 year wait to get your tonsils out through public hospitals, to go private its over $1000.00 and a 3 month wait. I don';t have the time or the money so I am putting up with it and making sure I don't run myself down or get sick, for a bad attack to come.

Merrida
01-21-2003, 12:07 PM
A five year wait? For regular insurance coverage?

Dang,....I guess you have to be really healthy to live in Oz! Wowza!

ChristinaD
01-21-2003, 04:13 PM
That is what I was thinking. Wow, five years is a long time. I didn't know that was the case over there.

silvershado1
01-21-2003, 05:17 PM
Most of us don't have insurance for health. Our health system is free, Unless you want to go private.

maude&bandit
01-25-2003, 05:40 PM
Wow--am I glad found this posting. I have been having these things on my tonsils too and didn't know what they were. I thought I was the only one also. I get them out too and you guys are right--they stink. I will ask my DR. now about them. I thought I was weird or something. lol

Merrida
01-25-2003, 08:14 PM
I still can't figure out HOW they get there. And either they're more common but people don't talk about them, or we're really in the minority to have them.

They smell just like dental decay.

When I first started "hucking" them up, the smell reminded me of decay, and I translated that into diseased or dying tissue, and then I thought about how I first felt it in my throat (not my "mouth" area), and then I thought about how I had to "huck" 'em up or "cough" 'em up, and then THAT got me thinking these things were actually coming from my LUNGS!

Needless to say, THAT had me quite worried that I was doing the proverbial "coughing up a lung!" People have talked about coughing up bits of their lungs, so I made that association and figured I had some diseased tissue coming up.

I'm so glad to have found this site and learned about what they were. At least I don't feel as freaked out by them!

------------------
Life isn't what happens to you -- it's how you react to it!

Thoughts don't make us who we are -- Actions do.

ChristinaD
03-28-2003, 12:11 PM
BUMP

Dramaqueen
03-30-2003, 01:18 AM
I just had my tonsils out on the 27th. I only had those things once but am so glad my tonsils are gone now. Everyone says surgery is very painful etc but if you keep up the pain meds, plenty of fluids and lots of bed rest-it's not too bad.

Stacie212
03-31-2003, 04:58 AM
Hey guys!!
I am so glad I found this website. i have been having these nasty white things for about a year now. I get this weird feeling in my throat and that's when I know these "tonsil stones" have formed. I get them out with my nails. and sometimes I keep having to press on the tonsil because more and more white stuff keeps coming out. I asked a doctor about it once and he just said it was food stuck up there.

Does anyone know what causes these tonsil stones? My mother tells me my father used to have these too. Is it possible its hereditary? I remember when I was younger getting this weird sensation in my throat once in a while. But only last year I discovered a white hard spot on my tonsil.Do antibiotics help at all? I have always had large tonsils and I'm guessing that has something to do with this.

And yeah these things are the worst smelling things ever!!!

-Stacie

Lindarella
04-01-2003, 01:16 AM
IN a sense they can be hereditary as most people who have them have a condition called cryptic tonsils. It's a fancy name for tonsils with deep holes and groves. There isn't anything that can be done about short of getting them out.

Audrey-B
04-01-2003, 08:00 AM
After reading all the replies, i just had to add mine. When i was little i suffered from tonsilitis constantly and the doctor told my parents that i'd grow out of it. So at 29 i found myself having my tonsils removed as i was getting sick all the time once again. The specialist said i could either live on antibiotics for the rest of my life or have them removed....and YES i too used to constantly get those "things" growing in the holes of my tonsils which would either come out of their own accord or if i got one of those cotton buds (for cleaning ears) and gently pressed the side of my tonsil, the object would pop out and yes, i agree, it's gross. I had mine out in 1995 and i only had a 2 month wait to have the procedure done in a public hospital. It's not the nicest of operations, but 100% worth it.

NorieB
04-27-2003, 01:43 AM
Hey there,
Finding this messageboard is like realising finally that i'm not going crazy and i'm not the only one suffering these horrible symptoms. I am a 32yr old mother of two, and have been trying to solve this problem on my own for about 9 years.
After seeing two ENT's and getting told that i will just 'have to live with these lumps' (which neither of them had heard of before) i became very disheartened and reluctant to push it any further with the Doctor's and instead i have spent heaps of money on alternative treatments (to no avail)- thinking, instead that my whole problem stems from allergies. I even had my amalgam fillings replaced (which didn't help either).
After getting on-line not long ago i have found a stack of info on these tonsiloliths and today found this page also. My symptoms also include chronic itchiness inside the ear and at the back of the throat when one of these little balls are trying to get out. This is really what drives me crazy as it usually happens through the night and keeps me from sleeping - thus having to resort to antihistimines occasionally so i can sleep. I'm wondering if anyone else has the itching? Also do you suffer 'post-nasal drip' and do you think it is helped by having the tonsils out.
My voice is becoming croaky lately as well and i'm wondering if this is anything to do with it or if it's just that i'm talking too much.
This is my first time on a message board and i would dearly appreciate some replies.





[This message has been edited by NorieB (edited 04-27-2003).]

quincy
04-27-2003, 03:06 AM
Hi all.....just had to tell my tonsil habits to people who are in the "know". Finally, an opportunity to unload to someone other than my husband.

Hi, I'm quincy....and I am a tonsil squeezer! http://www.healthboards.com/ubb/rolleyes.gif

My habit started in 1983. I was diagnosed with asthma and had chronic colds, bronchitis, and my tonsils tried to help to the best of its ability..but it was too much for them. Finally, they became overloaded with too much crapola.

One day, I checked out what felt like something scratching in my throat (with a small flashlight) and as I stretched my mouth open this white stuff starting coming out of my right tonsil. I took two q-tips and squeezed from the outer edge (not the open edge) and tons of stuff came out. I kept getting new q-tips, got more stuff and kept pushing around the outside (slightly changing position higher and lower) of the area to push out the stuff until I couldn't get any more stuff.

The next day, the swollen glands below my ear went down, my sore throat started to clear and I was hooked on cleaning out those buggers every day from then on.

I've taken to doing both, and actually, before they turn to stones...it must be a kind of mucus in there because sometimes that's what comes out.

I talked to my ENT about it when I first started doing that and begged to have my tonsils out. No go, and I've resented him for that ever since.

So, after brushing my teeth and tongue in the morning, my tonsils get cleaned out too. A good rinse afterward, and I never have to worry about them being dislodged or getting chewed in with my gum....YUCK,BLEH!!

I am however interested in the waterpic! I often thought about inventing a vaccuum for them, but cleaning out the vaccuum afterward would be too much.

Thank you my fellow tonsil stone sufferers for giving me the opportunity to tell my story.

quincy

ChristinaD
04-28-2003, 03:04 PM
What a pain this is!!!!!!
I just got off an antibiotic for a sinus and ear infection thing. Ever since I posted this message, I have had problems with this "cold" coming back (and post nasal drip). My doctor says he will send me to a ENT doctor if I wish. So, if this goes on one more time, I am off to tell the ENT to cut those bad boys out!!! I refuse to have to deal with these forever! I cannot stand constantly checking my tonsils and squeezing on them making them bleed because of this rediculous problem.

Quincy,
If you constantly get these, then why don't you demand getting your tonsils out or see a new doctor?

These things are so foul that they make me ill!!!!
I am just terrified because they say it is mightly painful getting the old tonsils out as an adult!

I hope you all find a good cure for these and thanks for the stories!!! (even though they quite rancid!!)

Christina

not2bad
04-28-2003, 11:26 PM
Hi All! Suprised to find this subject...I guess they DO cover everything here! Want to hear my story?...hush! you're gonna hear it anyway LOL!

When I was young (I'm over the proverbial hill now) about 12, I was always getting sick with colds and sore throats and, too had those 'tonsil stones' (as someone so eloquently put it), but the main thing was I was in seventh grade and only weighed 89 lbs and was only 4'11" tall. I was taken to the doctor and he said the reason I wasn't growing or gaining weight was due to my tonsils...so I had them out. I remember being in hospital and having the worst sore throat ever and the only thing I could take was ginger ale (still love it!). Being a child and hurting so much, I can imagine what it would be like as an adult. But kids heal fast and so it went. I suddenly started to gain weight and was thrilled to reach the triple digit figure for weight and I grew two inches! I no longer have tonsils or adnoids (they use to remove those at the same time, but I can't say why) and fortunately, don't have to deal with those little devils anymore either. My youngest daughter has them, too, but doctors refused to remove her tonsils.

My theory is this (after hearing from so many doctors and realizing they all seem to have little knowledge as to what causes them or even why we have tonsils, since we can survive without them...like the gall bladder and appendix), I believe the tonsil is like lymph nodes in the body, only one that is visible. I believe they are clearing houses for impurities and the substance that is extruded from them is the bacteria and impurities that float around in our systems. I also believe these 'pockets' are actually 'outlets' for this bacteria and when you have an infection in the throat area or possibly even the ear area, the bacteria will build up and be excreted from the tonsils, thus causing a 'flare up'of 'stones'. Otherwise, how do you explain the fluid that comes from these pockets if it isn't being excreted from within the tonsil itself? I've never believed the 'food stuck' theory. To me, its like saying pimples come from the outside and go under your skin that's why they have pus in them. Wrong! I'll stress, though, not being a doctor, this in my theory.
At least it sounds more logical to me than some of the ridiculous things doctors come up with!

Anyway, when you have a flare up of these things, it might be a signal that there is infection going on somewhere in your body. Try keeping your mouth clean as possible...don't forget brushing that tongue as far back as possible and gargle. Have dental check-ups. And, above all, be very careful poking around back there and if you have to, make sure your fingers (or tool) is sterile as possible!

For all we know everyone's tonsils are the same, but some people just don't get any problems related to them. Sorry I can't be of more help, but I've been there, so you all have my sympathy and understanding...for what its worth. 'NITE ALL!

ChristinaD
04-29-2003, 11:58 AM
That sounds like a good theory to me.
I really don't understand the whole thing myself because if it were food, then why don't the "stones" look like food at all. I know that if they are in there long enough, then it turns to bacteria and all and won't look like the food we ate. But still, I can go from not having any in my tonsils to all of a sudden having a crapload of stuff in there. None of it which looks to be 'fresh' food. So if it all of a sudden appears then why is it 'decayed' already????? So, that theory sounds possible to me. Mmmmmmmmmmm, I wonder.

cassandra2000
04-29-2003, 01:47 PM
Hi, I am new but felt I must reply to my fellow australian with the ichy ears and throat with lump problem. I too have ichy ears, I feel like sticking a long thin tool into my ear to scratch. I also suffer with the white or yellow tonsil balls, and a chronic sore throat, and a lump on one side of my inner throat.

I saw a ENT who could not see the lump, he said, he basically patted me on the head and ushered me out, saying everything was normal. Beware the bulk billing specialist.

The deep itch in the ear and itchy throat are very bad and also keep me up and agitated. I have a anaethsatizing spray for my throat, way out of date, but I don't care. I need it too sleep. I also have chronic white ulceration on my throat which fluctuates as to its severity. I would appreciate any insite also as to this itchiness. I also get occassional tinitus, no idea if that is linked. And my hearing fluctuates. Again, no idea if that is connected.

Well, goodnite, I go to attempt sleep with sore throat and ear.....


------------------
I see the future but no one will ever believe me, that is my curse.
Cassandra

quincy
05-01-2003, 12:21 AM
Hi all, you crack me up!!!

not2bad's theory was basically what the doctor told me when I begged him to let me have my tonsils out years ago. The stuff that's coating them inside is mucus and sloughs off and gets mixed up with the food or other impurites that are in the saliva..etc. Mucous in the tonsils protects the body from the bad stuff that goes in through the mouth, the same as the nose does.

But, when the tonsils are overloaded from constant viruses, bacteria (usually strep), they can't clear up and work efficiently for the body anymore...so, they are taken out. There's nothing like having two balls at the back of the throat with concentrated bacteria being constantly swallowed. Yum!

I suppose the name of the stones could be "tonsil poop" or "tonsil snot", but those names are already taken by other orifices...maybe there is a clinical name for them? Ah, another quest!!

cassandra2000 - I have itchy ears and use hydrocortisone (prescribed) on a q-tip (those things can be used for other things than squeezing tonsils). They're mostly itchy at night and I just dip one side into the cream, and twirl away. I use the other side for the other ear. Of course....I am realllly careful! BUT it feeels sooooo goooood!! Ahhh!

I found the brand name Q-Tips SUCK!! I use the brand from SuperStore. They're more flexible, and the cotton tips are wound tightly. The Q-tips hurt, also!


Hope you all yave a great day! TBC, I hope.

quincy

NorieB
05-01-2003, 08:21 AM
What are Q-tips? Are they what we in Oz call 'cotton buds'? (little stick with twirls of cotton on each end)
I can't beleive how many people have this problem. Here i was thinking it was all in my head - which is basically what an ENT specialist once told me.
This condition is not being taken seriously at all, and i can't help but wonder that now people are actually starting to talk about it that it might not be as uncommon as we all thought. Pretty disheartening though when you explain to a Doctor at length about horrible smelly things coming out of your mouth and they look at you like a freak. This condition has been really taxing on my life for a long time now and it's not getting any better. My voice is getting really hoarse lately and i beleive that it's from the constant swallowing of this mucousy stuff (infection) down the throat. As my hobby is to sing in a folk club and play guitar i'm getting quite scared that this is it for my voice and i'm convinced it's all to do with this condition.
The smelly balls are called 'tonsiloliths' and i too have been told that it is food, which we all know is not quite right.
Finding your stories has given me the much needed determination to go back to the Doctor and show him a printout of this messageboard and demand to have my tonsils removed. Anything would be better than living with this forever so the pain of a tonsillectamy isn't too offputting.
Thanks for your honesty.
Lenore

Lindarella
05-01-2003, 04:12 PM
Norie, most often they're caused by post-nasal drip that isn't controlled well. Bacteria builds up more often when you have this condition and produces stones in some people. It sounds very much like that could be your problem as you're saying you have excess mucous and a horse voice, both or which are signs of post-nasal drip. It may be wise to try a few different nasal sprays before getting your tonsils out.

Your tonsils are there because they fight off infection. Most often they're taken out due to numerous throat infections that can't be controlled with medications.

The stones are not caused by food. They're much like plaque on teeth actually. They can build up very fast, just like if you didn't brush your teeth for a few days.

Good luck :wave:

kitty1975us
05-30-2003, 07:59 PM
I am so glad to hear I am not the only one with this problem. I was told by many doctors that I was imagining the crap in my tonsils, that I was crazy, and even had doctors say that they had no idea what I was talking about and that noone had ever told them of this before. I am so glad I am not the only one who gets this yellowish crap that smells and tastes like rotten oysters/clams. I hate to hear other people have this problem...but glad to hear I am not in this alone. My tonsils are always hard, and I get crap out on a daily basis. It sucks. I am always afraid that I have bad breath and that I am offending others around me. I have worked in the health-care field for 10 years, and up until this year I had not heard of anyone else with this problem. One day I was telling my embarrassing story to a girl and work and to my great suprise she finished my sentence and told me she had the problem too. She was lucky enough to have a doctor who listenend her and took her tonsils out. She has felt better physically and emotionally since that date. Unfortunately no doc's will give me the option. I'd have them taken out in a heartbeat. I know the risks, and I would still do it. I'd give just about anything to get rid of these crappy tonsils. I have lupus...I don't see how these darn tonsils can be helping me any...seems like I'd be better off with them gone...the docs seem to not agree. Well, thanks for letting me vent!

moocow35
06-01-2003, 12:50 PM
I have also had the same problem for years. My regular doctor was clueless, I insisted on a throat culture, and even the tech doing the culture was clueless. I then went to an ENT, who knew right away what the problem was. He gave me a prescription for antibiotics, and told me to keep the area clean. He out and out said that I should NOT have my tonsils removed because of my age. It would be an absolute last resort. I have now for years been using a water pik, and add either cepacol or some kind of antibacterial mouthwash to the water. I do this daily, and the only time those nasty smelly things show up are if I don't use the water pik for a couple of days. I always know when they are there, in addition to the bad breath, I feel generally sick, sore neck glands, ears, and throat. Traveling with the water pik is a pain, but it is the only thing that will stop all the symptoms.

quincy
06-01-2003, 08:32 PM
Hi moocow35,

Could you explain "exactly" the process you use with the waterpic. Also, when your ENT said to keep them clean....what was his suggestion? I do the squeezing method which I've "perfected"...but I'm interested in your method.

Thanks muchly,
quincy

nikki303
06-02-2003, 04:31 PM
I stumbled across this site about a month ago and couldn't believe my eyes. There were other people out there just like me. I immediately made an appointment with my primary care doctor. She then referred me to an ENT. I was very relieved that the ENT didn't think I was crazy, and he recommended that I have my tonsils removed. Well, I had the procedure this past Friday. I am a 28 year old healthy female and I don't know if it was all worth it or not yet. I still am in pain. The liquid med (pain killer) that the doc gave me made me vomit non-stop. I almost wound up back in the hospital due to dehydration. Fortunately, after stopping the medication,the vomiting also stopped. So, now I am only taking Extra Strength Tylenol. It helps alot, but I definately know when I am ready for my next dose. I'm sure I will live, and be very happy with my decision to have them removed when I am all healed and I don't have to deal with these "little nasties",(as a previous writer referred to them), anymore!

Undecided_one
06-03-2003, 07:00 PM
I get those. my family call them tonsil pussies. kinda gross eh?

greatgirl
06-03-2003, 08:14 PM
:p :p :p :p :p

greatgirl
06-03-2003, 08:16 PM
OOps, double post,lol

[This message has been edited by greatgirl (edited 06-03-2003).]

moocow35
06-03-2003, 11:06 PM
Hi Quincy,

I fill the reservior cup of the water pic with warmish water, and add about 1/4 of the cup with either cepacol or listerine. I have mastered getting the tip of the water pik, (without gagging) at the lowest setting, way back into the opening of my tonsils and irrigate the hole. I also pull the area open with the tip of the water pik to make sure all the area gets flushed. It takes practice, but believe me, it is worth it not to have the bad breath, and the ill feeling of swollen glands and ear pain. I have been doing this for a good 3 years now. It has become part of my morning routine, brush the teeth, and water pik the tonsils LOL. I think the ENT meant keep the area clean, just by what I am doing. He is the one that suggested this. Makes my Dentist happy also, cause I also do in between my teeth every morning. It works wonders for me, and being in my mid 40's, my ENT was really serious about having the tonsils out would have a very bad effect on me. He basically refused to do it. I used to use a Q tip, and that was painful and made my tonsils bleed. This actually feels good, maybe cause I know my breath doesn't have that awful stench. No more breath mints constantly.

Let me know if you have any other questions.

ºOº

Angelus
06-08-2003, 10:16 PM
I have this same problem... I'm 16, I've had it for about 2 years or so now. I thought I was the only one who had it (as did many of you evidently) Well, any way, I want to do something about it, but I can't just go to the doctor. I'm a little embarrased to explain this to my mom (since it's not known widespread I would have to say something like "Oh by the way mom? I have this white crap that forms in my tonsils, they're called tonsil stones, I want to go to the doctor about it") So what should I do?

I can't just go to the doctor on my own. So how should I explain it to my mom? Your help is appreciated, thanks.

Marie79
06-13-2003, 04:24 AM
I had my tonsils removed a year and a half ago. It was one of the best things I ever did for myself!

My tonsils were swollen up so huge that they were actually touching each other in the back of my throat. I had lost tons of weight due to the difficulty in just swallowing food. I Constantly had bad breath (horrible in the mornings!), and had difficulty breathing when laying down and trying to sleep at night.

I will not lie, the surgery was EXTREMELY painful. I couldn't talk above a whisper for a week, I couldn't eat or drink barely anything (lost even more weight). The pain meds made me throw up all night the first night, and when you get your tonsils out, the Last thing you want to be doing is throwing up! It was so painful that I went off the pain meds, and then the REAL pain from the surgery set in. Ouch!!

But I will tell you, it was all worth it! I no longer have huge touching tonsils, I can swallow my food, I can breathe better now (!), I no longer have the white dots that I could pick off with tweezers, and best of all, I never have bad breath anymore!!! It was so painful, but worth it.

Marie79
06-13-2003, 04:25 AM
I had my tonsils removed a year and a half ago. It was one of the best things I ever did for myself!

My tonsils were swollen up so huge that they were actually touching each other in the back of my throat. I had lost tons of weight due to the difficulty in just swallowing food. I Constantly had bad breath (horrible in the mornings!), and had difficulty breathing when laying down and trying to sleep at night.

I will not lie, the surgery was EXTREMELY painful. I couldn't talk above a whisper for a week, I couldn't eat or drink barely anything (lost even more weight). The pain meds made me throw up all night the first night, and when you get your tonsils out, the Last thing you want to be doing is throwing up! It was so painful that I went off the pain meds, and then the REAL pain from the surgery set in. Ouch!!

But I will tell you, it was all worth it! I no longer have huge touching tonsils, I can swallow my food, I can breathe better now (!), I no longer have the white dots that I could pick off with tweezers, and best of all, I never have bad breath anymore!!! It was so painful, but worth it.

JennieBlue
06-14-2003, 02:56 AM
Hello.
I am sorry to hear that you do not feel comfortable telling your mother about your condition.

I suggest that you try some of the steps others have mentioned on this board and then discuss your problem with your mom.

Start off by telling her how long you've experienced the problems, how having this problem makes you feel, what you've done to fix the problem and how you've taken the time to research the problem.

Hopefully she understands your concern and gets you in to see an Ear, Nose and Throat specialist (ENT).
As for myself, I too have this problem. I went to see an ENT about two years ago and he numbed my nose and throat by placing an instrument in my nose that squirted out a highly pressurized local anesthetic (it didn't really hurt, but it felt very weird). Then he used a little scope/camera to see what he could find. The doctor said he couldn't find anything. I knew they were there. But, he basically told me I didn’t have a problem.

It took a lot of guts to go see that doctor and when I found out there was nothing he could do I was upset and frustrated because I was able to recognize that I had a problem.

Anyhow, I still have the problem. I do not want my tonsils removed...although that has been suggested; I haven't taken it into consideration. OUCH!
Like others, I am able to cough them up. One of my tricks is to use a little water tube that sprays water out at a direct/sharp angle (I got it when I had my wisdom teeth removed- ask your dentist for one). Sometimes it works, sometimes it doesn't.

I notice that I have more problems with the tonsiloliths when I eat certain foods, especially bread and ground pepper or other coarse spices. I notice that when I am able to remove a tonsilolith and I've recently eaten something with ground pepper, the middle of the tonsilolith will be solid and look like ground pepper (or whatever spice).

I agree with other people that this problem is probably related to post nasal drip. I have tried many products to rid myself of that problem. I haven't had any luck. Ever since I began to experience postnasal drip I've had tonsiloliths.

I hope that they go away.

I found a website that contains a product to help with tonsiloliths. Since I cannot post the product name or website, I suggest that you go to yahoo.com and look up information on it.

I haven't tried the products, but am thinking of trying the nasal drops (because they are supposed to target tonsiloliths).

Good luck. Please don't feel embarrassed to tell your mother about medical problems- compared to other problems you may come into contact with in the future-THIS is MINOR!

GOOD LUCK!




[This message has been edited by JennieBlue (edited 06-14-2003).]

Marie79
06-14-2003, 03:34 AM
JennieBlue,

I too saw two different doctors who told me I didn't have a problem with my tonsils (and they were so large they were touching each other in the back of my throat!).

I KNEW that I had a problem and tonsils that big couldn't be just nothing. I went and saw a third doctor who, when I opened my mouth, said "Holy S---!" She then immediately apologized for her comment, explaining that doctors are not supposed to have that type of reaction in front of patients! I told her I was glad to hear that somebody finally agreed that I had a problem!

That third doctor referred me to an ENT (a fourth doctor by that point) who was very nice and felt I had wasted enough time (6 mos by that point) and scheduled my tonsillectomy on the spot. Having the surgery was so worth it, I don't have any of these problems any more!

JennieBlue
06-14-2003, 01:56 PM
Hey Marie,
I'm also from northern CA. Doctors have suggested that I have my tonsils removed, but I really don't want to.

At this point, I am still at a standstill. I am thinking of trying the threabreath products and see where it takes me.

I hate having this problem. I have had the same significant other for about 5 years now and about 1-2 years into our relationship I started to have this problem. It has been extremely embarassing and I feel awful. It's hard for me to even bring myself to kiss! *SIGH*. Threabreath here I come.

Marie79
06-14-2003, 10:32 PM
Jennie,

Are your tonsils enlarged at all? Or do you only have problems with the tonsiloliths and bad breath?

The same thing happened to me with my ex-boyfriend. He was the one that told me I had bad breath and that was why he didn't want to kiss me anymore! I was so humiliated.

I know the fear of the pain is scaring you away from the tonsillectomy. But if you don't get it done, you will likely have this embarassing problem for the rest of your life. Do you always want to feel self-conscious? After 2 weeks, the pain was almost gone for me.

A-Girl
06-27-2003, 10:28 AM
First, if that Thera product works, please let all of us know. I am 26, and recently developed Tonsil Stones. I just got them in April. At first, I thought they were coughed up from my lungs, but later I discovered that I was wrong. I have no idea how I developed them. I went to see TWO ENT doctors. One doctor told me that I should just live with them because surgery is so painful. The other doctor told me, I will have to live with them, because insurance companies consider this a cosmetic surgery and would not pay for the tonsillectomy (I guess Health Companies may be the Doctor after all - since they decided my fate is to suffer with Tonsil Stones). Although the ENT agrees that they are a nuisance. If I experience infections then it would be grounds for removal of the tonsils, according to the ENT. I never get any throat infections, only sore throats. I want my tonsils removed. I use the Water Pik, Q-Tips, self-gagging method, coughing, etc, and NOTHING works. I can barely see mine and when I do, it is only because I am making a weird face and then they hide again. It is horrible. I cannot think of living out the rest of my life with this. At times, (to say the least)... Most of the time, I get a low-grade sore throat because they are so irritating. I even got a sinus cold and literally felt them in my throat, but could not get them out. I still feel them this very second and every time I swallow. I am envious of all of you that can "pop" them out. I would live with that, but I cannot live with Tonsil Stones, because mine do not pop out. When one finally does (after two weeks), I think there is a line of them waiting to come out, in addition. Again, I ocassionally get a glimpse of them on both tonsils. I have no idea why or how this happened. If anyone is successful by other means of surgery, I will definately pursue it. I am deathly afraid of a Tonsillectomy. The pain that people write about is horrific. I can deal with a bad sore throat and not eating, but I cannot imagine, razor-like feeling in the back of my throat. I have very small tonsils, but the ENT said, that does not matter. Plus I am allergic to Codeine. Does anyone else out there have any solid advice. I want to find out more about Laser Surgery and just scraping the surface of the tonsil so that there are no more pockets. I think Flonase caused this to me.

Enfys
06-28-2003, 11:46 PM
Well... imagine my surprise at finding this message board while looking up "quincy" through Google. What I thought was an unusual condition and what my doctor told me (as some other's doctors have) must have been food impacted in my tonsil, turns out to be much more common than I would have ever thought. I had a "tonsil stone" or whatever you like to call it on my right tonsil this morning... I say "had" because just since I started reading these posts, I've apparently coughed it out... just took another look and it's gone now. It had been there for the last three days and I'd been keeping an eye on it to see just how big it would get. When my fiance caught me looking at my throat in the mirror and asked what I was doing, it was difficult to explain about these "things" I've been having come out of my tonsils for years now so I did a search to try to show him I'm not nuts.

My sister and I have had these nasty-smelling little buggers for years and years (I'm 46, she's 43) and when they first started we both thought, as some of you did, we were coughing them up from somewhere deeper inside... maybe from down in our throat. Neither one of us could imagine what they could be but since we both had them, we figured it couldn't be all that serious.

A few years ago, however, I had a VERY sore throat... it had been sore for about 2 days so I took a look to see what was going on and, as the one woman's doctor put it, "Holy S***!!!"... what was that THING sticking out of my left tonsil? It was my first glimpse at a tonsil stone/tonsolith/whatever. Over the course of the next two days it got bigger and bigger. I let my sis take a look at it and her response was to jump back (literally!) and ask "what the H*** is THAT?". LOL... my thought exactly. Being my usual optimistic self, I immediately made an appointment for the next day with my regular MD so he could tell me I had throat cancer. Wouldn't you know it... during the night part of it came out (I have NO idea what happened to it... swallowed, perhaps... ick!). No biggie, I thought... there's still enough left poking out of my tonsil to show my doctor I have cancer (yep, I'm an optomist, alright!). During the morning before my appointment, a coughing fit comes over me... wham, bam, what's left of the stone flies out of my tonsil and into my hand (can we say "ugh"?). I run to the bathroom and take a look... nothing left but a big GAPING hole in my tonsil. Ok, fine... still good evidence that I had a tumor in my tonsil, right? Wrong! By the time I got to the doctor's office later that day, the hole had nearly closed up. "It must have been impacted food", he says, after giving me that "she's clearly out of her mind" look. I just looked back at him and said nothing. Maybe it wasn't a tumor after all, but I KNOW it's not impacted food! Food? I still have my doubts on that theory but finally I'd discovered just exactly where those hard little thingies I'd been coughing "up" for years were coming from. I still have problems with them. I also have many of the problem lots of you folks have described... a hard time breathing through my nose (hence, I'm a mouth breather), chronic postnasal drip/drainage/whatever, throat sore more often than not, tonsils constantly swollen and inflamed.

I've gone on and on here, haven't I? LOL... sorry, just wanted to tell my story and say I've read every single post in here and as soon as I get married (at which time I'll have medical insurance), I plan to get myself to an ENT and have something done about this... I don't know what, but something WILL be done. I'm sick of the constant sore throat, drip, swollen tonsils, etc. In the meantime, I'm going to look into getting a Waterpic... it seems from some of the posts, that trying to keep my tonsils cleaned out will be a big help. Thanks to everyone for your input and good luck... maybe we can all get some help of some kind eventually.

[This message has been edited by Enfys (edited 06-28-2003).]

Grrrrrrrr
07-04-2003, 05:45 AM
Wow, I'm amazed at how popular this message board is.
I too have been fighting the endless battle with these nasty 'tonsil stones'. My removal method of choice has been sqeezing them out with my fingers and lots of gargling with listerine. (Luckily my hands are small enough to reach back there.) However, that Waterpic sounds like a really good idea. I think I'll go buy one this weekend and add it to my daily tonsil-picking ritual.

Anyhoo, my question for you all is this... Does anyone have any idea if other people can smell these rancid things on our breath?? If I knew somebody else could catch even the slightest whiff of these nasty things, I don't think I'd leave my house! My boyfriend told me that most of the time he can't smell them, but he could just be being polite. I'm curious if anyone else has gotten any confirmation from a trusted friend!

Thanx for the all the stories!

~Tara

[This message has been edited by Grrrrrrrr (edited 07-04-2003).]

platinum3kt
07-09-2003, 12:18 PM
Just wanted to respond to the previous message, I'm sure if someone is close enough to you they would be able to smell your breathe. Which is why I always chew gum or keep some powereful meant in my purse. Lately, the tonsil stones have gotten worse. Just yesterday, they not only showed up in the pockets of my throat, but they were also behind the Uvula (you know the thing that dangles in the back of your mouth). This morning my throat is aching, I'm not sure if its becuz there are more or becuz I was picking at my tonsils. I definitely plan to use the waterpik. I also so advertising for some mouthwash and oxygen tablets that are supposed to decrease nasal drip and bacteria causing the tonsil stones. Its amazing that this topic has been going on for almost a year!!!

mwilliamryan
07-09-2003, 03:49 PM
Hi everyone, I've never been on this site before, but I was doing a search for "tonsil stones" on google and came across this board. So glad I did. Knowing other people are suffering through this same crap makes me feel better already. I had a huge tonsil stone when I was an adolescent and was able to show it to a doctor. The doc knocked it out and I can't remember what he said. I think I was just relieved it was gone. I didn't have them (or notice them) again until I was in my early 20s. Seems to have been right around the time I started having post-nasal drip. Since that time, I've had all sorts of sinus, ear and throat problems. I always thought the problem was somehow connected to my ears because of the itchiness that some other people have mentioned. I seem to get one really bad sinus infection per year, (I am recovering from this year's right now.) After all the reading I have been doing, I think the bacteria building up in my tonsils may be contributing to my susceptibility to the sinus infections. Anyway, I too have made a habit of trying to press these buggers out before they get too big or annoying. However, I'm never sure if I'm getting the whole thing or just runts from something more ominous. I do get some relief by doing this, but more are always on the way. I can always tell if I have one building up because of the low-grade sore throat that other people have mentioned. These stones combined with post nasal drip have made life somewhat miserable, as I'm sure you all know. I am now dedicated to finding a way to have better tonsil health. I have ordered some therabreath ClO2 nasal drops and tablets. Don't know if this will work or if it is false hope, but as you know the promise of getting rid of these things will make you do just about anything. I'm also going out today to buy a water pik and try cleansing my divots that way. As for having your tonsils removed, I have a question: Is the only reason that this procedure is not recommended for adults because of the ensuing pain? Or are there other risks or things that can go wrong? Just wondering because I haven't read any messages from people who had their tonsils removed that said they wished they hadn't.

nikki303
07-09-2003, 06:45 PM
I wrote a little over a month ago on this message board about having my tonsils removed. I had a bit of a tough time at first, and about 8 days after my surgery my throat began to bleed. It bled on and off over days 8 and 9 post-op and by day 10 (The day I was supposed to return to work), the bleeding wouldn't stop. I was rushed to the ER and the doc used silver nitrate on my throat which is similar to cauterizing. The bleeding stopped and never returned. At my post-op dr. appt., he told me that the severe bleeding that I experienced only happens to 2 percent of the people. It has now been almost 6 weeks since my surgery and I feel great!
Before, I was constantly look in and digging at my throat. Now I hardly even look in there.
There was pain involved, especially being an adult, but I am so glad I had it done. It was well worth it!

[This message has been edited by nikki303 (edited 07-09-2003).]

Mook
07-10-2003, 08:40 AM
Heh, I found this forum by typing "hard yellow throat" into Google on a whim, lol. I't's quite surprising to find that this is such a common thing and so unrecognised in the medical profession.
Unlike most here I dont disslike my 'stinkballs' all that much. Sure they cause the occasional swelling and smell like pungent death but I think I'd miss those cute little nuggets of vile if they ever dissappeared perminantly. After all, what better way to liven up a dull party than to violently hock up a quivering, 3lb khaki specimen on the nearest coffee table. :bouncing:
Hmmm... perhaps not, but dont you think having your tonsils removed is going a bit far? Surely there must be some small surgical procedure to stop the post-nasal-thingy, thereby halting the production of tonsil stones.
Apart from the old finger squeezing method, I find that trying to suck the throat or tonsils into your mouth removes them relatively easily, I havent had any new ones for well over a year after using this method so maybe the method could help some others to clear them.
Somewhere on the net, I saw mentioned a tonsil stone "the size of a large grape". The doctor, in reply, consistently mentioned the chance of tonsil cancer in relation to the size of the stone. Anyone getting very large stones should perhaps take the mention of this into account.
Btw, I once kept a large stone aside for some reason. When I looked at it an hour later, it had turned into a small brown crystal! http://www.healthboards.com/ubb/confused.gif


------------------
Save the stinkball!!

mwilliamryan
07-10-2003, 08:35 PM
Well, I don't believe this! I went out and bought a WaterPik today. I got home ripped it out of the box, mixed some Listerine with warm water and gave it a whirl. First of all, this is way harder than I thought it would be. If you have any kind of gag reflex you're going to have problems. I had the thing on the lowest setting and its spraying out of my mouth and every which way, all over the mirror, my shirt, the floor. I couldn't really see where I was aiming so it's all kind of by feel and just when I get back to where I think my tonsil is, I gag. This is definitely going to take some practice, I'm thinking.

See, my problem has always been that my left tonsil is always a little hard and sore even if I don't have any stones and I've always figured that something has been blocked up in there. (It gets stones way more often than the right tonsil.) But I never wanted to press on the thing too hard for fear of injuring myself. But you know I'm kind of in this frenzy like I feel like I'm onto something. So I take out the tongue-cleaning tip for the WaterPik and try using that because it kind of deflects the spray a bit. Low and behold, I'm able to get that back on my tonsil opening for a bit, I have a few gags and then I have the MOTHER of all gags and the most putrid brownish-black slime comes pouring out of my mouth. No kidding. Sorry if I'm grossing you out, but I've never been so disgusted and so ecstatic at the very same time in my entire life. This crap has to be the remnants of some kind of infection that's been hanging on up there for sometime now. Unfortunately, the slime slides down the drain before I can really examine it. If I'd known that was going to happen, I would have had the drain shut so I could donate it to science. Oh well. I don't know if I got all that was up there, but it's definitely a start. For the first time that I can remember, I can swallow and not feel pressure or weirdness in my left ear. This has got to be one of the happiest days of my life. I think cleaning and disinfecting these areas just might be the ticket. I'm going to stick with it until it's second nature. Luck to all!

moocow35
07-10-2003, 09:59 PM
I have been using the water pik daily for years. Yes, it does take practice, but after a while you can just stick the tip of the water pik into the opening, and stretch the opening so to get into all the little areas. Believe me, when I get lazy (usually on the weekends) and don't use the water pik, I start to get that same old "sick" feeling. Ear pain, throat pain, gland pain, and I always find a little stone in there. I'm glad you are happy with it. Stick with it, it really makes this situation completely manageable.

Good Luck!

texann
07-11-2003, 03:47 PM
YAHOOOOO! I'm not alone! Today for the first time, I signed on to this site to research another topic. Quite to my surprise I found this message board, talking about something I thought I was the only person in the world who had.

I saw my first tonsilolith when I was a teenager and thought it was a piece of food. The next time I saw one was many years later. I was preparing to go to the doctor to have it checked out, but noticed after I ate lunch it was gone. I talked to the doctor about it with pretty much the same results as most of you have had. He didn’t really seem to know what it was. He said (as he put it) milking them out probably wouldn’t hurt anything. I have been doing that ever since. I find it embarrassing and I have never told anyone including my husband about it.

As a child I had chronic tonsil problems, but never had them removed. Most of my adult life I have suffered with sinus infections and post-nasal drip from allergies.

I feel totally liberated after reading all of your messages. I’m going to check out the water-pik method and the other products mentioned. Thank God for an answer!

Airwave
07-12-2003, 03:07 AM
Hi I am so glad I stumbled onto this board. I have suffered with a tonsil stone on my right tonsil not knowing what it was. When I open my mouth you cn se his white pulse ball that has been in my mouth for the last ten months. I keep reading that some of you have had yours to fall off I have not. I hve sharp pain in the back of my throat, popping n my ears, itching ears and ear pain. Sometimes I have difficulty in swallowing
and consant clearin of the throat. I wouldlike o ask has any one had long periods of laryngitis and weak vocal cords. Also a very hoarse voice. Because I have acid reflux my ENT thinks this is the cause of my voice being weak. Does anyone else find this to be happening because of the tonsil stones. However at age 39 I have decided tohave my tonsils taken out because of the constant throat infections and soreness.Will tell you about the outcome of the surgery soon.

candycandy
07-12-2003, 01:14 PM
I'm currently suffering from the worst sore throat of my life, and tonsils that are riddled with junk. As annoying as this is, I'm relieved that they neither smell nor make me itch. Well, they might smell, but I haven't noticed, and I've honestly never put one up to my nose.
After reading almost all these messages (man, there are a lot of us, aren't there?) I want to make an appointment NOW but it's 6am and I don't think Kaiser is open. What is an ENT anyway? I'll probably go to sleep and the answer will hit me, then I'll feel dumb. But just in case it doesn't, someone please tell me what it is! I wonder if Kaiser provides that sort of thing... I had a cyst on my wrist and a Kaiser representative told me that in the past, people would slam them with a book to burst them.
Anyway, getting back to the tonsil-junk...
When I was 8, I was hospitalized for a week because I couldn't swallow and had a hard time breathing. I couldn't eat, and had IVs stuck in me and moved around from hand to arm to other hand and so on because my veins got weak. When it was over, a doctor came in and asked me if I wanted my tonsils taken out. My parents weren't in the room to help me decide, so of course I said "no." I don't know, did he expect me to say "Ooh, yes! Please take a scalpel and cut the inside of my throat!"? I was only 8. I've regretted that ever since. Now I have recurring throat-balls.
I'm totally irked because I'm 30 and I've already had enough surgery (wisdom teeth, c-section, etc) and I want these stupid tonsils OUT!!!
Coughing and hacking doesn't seem to jog them loose. For me, it's sort of a gagging thing that actually makes me gag sometimes. I've never used a cotton swab, but I have used bamboo shish-kebab skewers and fingernails.
UGH I can feel them right now by rubbing my tongue up and down back there...

candycandy
07-12-2003, 01:20 PM
HAH! Ear Nose and Throat... I knew it'd hit me!!! An ENT visited me in the hospital, but all he did was give me something that cleared my nose and when I drank milk, it trickled down onto my bed tray and I didn't know where it was coming from.

candycandy
07-13-2003, 06:01 AM
I got one of these plastic syringe thingies from my oral surgeon when my wisdoms were pulled (Someone mentioned it earlier, I think it was JennieBlue). It's from a brand called Monoject (at least that's what it says on the thing), and it pretty much looks like something you'd get an injection with, but instead of a needle, there's a pointy plastic tip. Which is probably more of a hassle than a water pik.
But it was FREE. :)

drknow
07-13-2003, 01:01 PM
Did ChristinaD ever get her tonsils out? This topic is like a novel!!! (p.s. had my tonsils out at 10 yrs. old and then it was painful but worth it!~.)

mwilliamryan
07-13-2003, 01:42 PM
Question for moocow35:

What brand and model water pick do you have? I have the Waterpik brand Personal Oral Cleaning System. Even on the lowest setting, it seems too powerful. If it hits right on my tonsil, it can be painful. Do you know of a kinder, gentler pick? Or have any technique suggestions? I wonder if they make higher-flow tips for less jet velocity?

moocow35
07-13-2003, 03:30 PM
I have the Conair Interplak waterpik. It only comes with one type of attachment, and on low it doesn't bother me. Maybe I am just used to it? My technique is put the curved end of the attachment way back into the opening of the tonsil. I pull the opening apart gently with the tip to try to get any small cracks where the stones could be hiding, or any trapped food.

Good Luck!

marcen
07-13-2003, 06:23 PM
Well I first read this topic about 2 months ago and was pretty shocked...I had never heard of such a thing and I am studying medicine! Then, lo and behold, about 3 weeks ago I had an awful taste in my mouth. I had had a sore throat for about a week or so and suddenly this bad taste that wouldn't go away. I don't know if it made my breath bad or not, but everytime I swallowed the taste was awful. Then I rememebered reading about this and so as soon as I got home I looked. At first I didn't see anything and then later I checked again and saw a tiny speck on one tonsil...I immediately set out to destroy it and out came a huge tonsil stone!!!! To this day I am so disgusted...well my sore throat was a bit better. I got all these mouth washes including a peroxyl one that was supposed to help and I was so afraid of having bad breath. Unfortunately, a few days later I found another small stone in the other tonsil. I also noticed that my throat was still sore everyday and that the coating on my tongue was thicker than is normal...went to the doctor for a swab...nothing showed up. By this time, I knew I had a form of thrush in my mouth that was causing the sore throat and the stones ( I study western medicine but have an interest in alternative). I went to the healthfood store and bought a bottle of grapefruit seed extract (GSE) that I normally use for washing fruit or for my pets but can also be taken internally or used as a mouthwash, dental rinse, etc. Basically it is a broad spectrum germacide that must be diluted as it is so strong. Well, by the end of the second day my sore throat was gone (after having it for about 2 weeks or so), the coating on my tongue was just light again and my tonsils continue to be fine (I take a look everyday). It even says on the bottle to add it to a waterpik dispenser. For me, the waterpik is so expensive but I will buy one if this doesn't continue to work. However, I have had so much success with the GSE that I wanted to recommend it to all of you. I think this is an infection that got out of hand for me and I won't be battling stones forever, as my tonsils look nice and healthy otherwise. GSE can be used for many things but it certainly has helped me greatly with this!

mwilliamryan
07-13-2003, 10:32 PM
Julia:

Could you elaborate on how you are taking the GSE? Are you diluting and drinking? If so, in what proportions and how often? Are you also rinsing with it? Thanks.

orion
07-14-2003, 01:13 AM
I've had those white spots on my right tonsil for over 10 years. They came and went. I have never noticed that they immediately respond to antibotics or antifungal medications. I have read that they are related to food getting caught in pockets in your tonsil. But I no longer believe that is true.

I have watch my spots develop very carefully and it is now clear that these spots begin under the skin of my tonsil and slowly work there way out like a blood blister does on your finger. I think these tonsil stones are actually dead cells that have calcified because your tonsil has been fighting an infection. When they break onto the surface some food particles stick to them, but I think that is just incidental. If you break them open they are soft and sometimes smelly just like the stuff you sometimes get out of a rather large zit that is healing over.

In both cases I think they are the debri of a fight your body had with an infection. I had a 10 year battle with tonsil infections that finally stopped when it was discovered I had low thyroid and my immune system was screwed up. Since that time, my tonsil has been slowly shrinking in size and as it does so I get many of these white spots coming out of the tonsil. When the spot drops off, it often leaves a hole that goes some considerable distance into my tonsil. That hole slowly closes and disappears.

So if you have those white spots I think it represents an infection that you had or currently have. If your tonsil is even the least bit swollen then you need to first have your thyroid checked to make sure you have a normal immune system and then to on some long term antibiotic like doxycyline for a month or more to kill and eliminate what ever infection is causes your problem.

In my case I had to take 3 different antibiotics (penicillin, zithromax and cephalexin) one after the other followed by 3 months of Sulfatrim and an antifungal to kill the yeast that started from all those antibiotics. But my infection is clearly gone now and as my tonsil steadily shrinks it is showing more and more of those white spots. Which I think is a good thing because it is the residue of past infections.

Hope it helps.

candycandy
07-14-2003, 03:07 AM
hmm... maybe i shouldn't rush into a tonsillectomy just yet. i know i don't want to be water-pikking for the rest of my life, but i wonder if the grapefruit seed extract or antibiotics will work. i think i'll give it a shot.

marcen
07-14-2003, 08:47 AM
I agree that these stones represent infection, the tonsils being lymphodal tissue. However, I do not believe that long-term antibiotics is the way to go, as it will only serve to weaken your immune system further. A natural product such as GSE is a powerful germacide and at the same time, an incredible immune booster. Everyone has crypts to some degree (the tonsil holes) but they are larger in some people and are also stretched by the stones. Also, a good indication of whether or not the environment in your mouth is suitable for stones is the coating on your tongue...if it is thick and whitish-yellow, you are more likely to have stones.

To answer the previous poster, I dilute about 6-8 drops of the GSE in 2 oz of water and swish and gargle 3 times a day, as well as dilute 6 drops in 3 oz and take internally 2-3 times a day. Then when the infection is gone you can lower it to 2 times a day if you want simply as a prevention and good health aid. It is a great breath freshner because it kills the bacteria rather than masking the odour.

HSJay76
07-15-2003, 06:53 PM
"Hello. My name is Jason. I'm a tonsilolith sufferer."

Wow. I never imagined so many people had this! I've had tonsil stones since I was 13 or 14. I am now 27. I always thought it was something that I had to 'deal with' as my family doctor told me the same story that may of you got -- "It's just food..." I refused to beleive this, but decided to try and cope with it.

For over ten years I've been picking them out spitting them out and sometimes, in the absolute worst situations, having to SWALLOW them. (your cue to gag) I simply could not put up with it anymore, so I went to see an ENT about a year ago. He told me it was...you guessed it... f.o.o.d. and that my tonsils were healthy, that I shouldnt be concerned.

I found this site last week and immediately printed out the entire contents (for 'backup' or PROOF). I made another appointment with a different ENT; a somewhat younger and more hip doctor. She immediately recognized the fact that I had TONSILOLITHS (amen?) She diagnosed me with chronic tonsilitis and said that the tonsils need to be removed. I agreed. I get them removed in 3 weeks. I know that recovery will be more difficult because I am older, but it's either that or pick, gargle, swab, spit, pick, every day until death. I opted for removal thank you.

Oh, by the way. I gave my wife a flashlight and showed them to her. Her eyes got huge and she dropped the light. Now she gets freaked out when I kiss her. Perhaps I should have waited until a few days before surgery to show her. Oh well.

I hope the rest of you fair well your tonsil stones, aka tonsiloliths, aka vomit varmints, aka puke fluff, aka tonsil rocks, aka "WHATTHEHECKISTHAT!"

I'll post more during and after surgery recovery.

Later
JJ

orion
07-15-2003, 09:16 PM
I wouldn't to the surgery thing before trying multiple or long term antibiotics. Not only are they cheaper they are way safer as well. Your tonsils are useful despite what the doctors say.

Mich4
07-15-2003, 11:28 PM
I have been to an ENT many times since last June. I have had neck xrays, ct and a scope through my nose to my vocal cords (3x's). My throat has been sore for one year now only on my right side. I have picked some white stuff out of the right tonsil before. I don't see stuff in it all the time though. Of course I am very worried about all this. Do these tonsil stones make your throat sore. Sometimes the sore throat will go away for a week or so, but always returns. I am not hoarse or anything, just right sided soreness and my neck is sore on that side. The stuff in my tonsils that I picked out were small, whitish yellow clumps. They weren't big, but there were about 5 of them in there. The ENT thinks my tonsils look healthy. I have been afraid of throat cancer, but most people say it has been a year now and I would be alot worse by now. I am 33, a mild smoker (5-6 a day) and trying to quit.
Anyone with any thoughts please respond.
Thank you,
Michelle

marcen
07-15-2003, 11:37 PM
Hi Michelle,
yes the stones do cause your throat to be sore. My throat was sore non-stop for over two weeks and I also had a lump in my throat. Tests turned up negative for everything, but I could see that the coating on my tongue was thicker than normal. Those things you scraped off were indeed tonsil stones. Sometimes they will come off by themselves, and sometimes they build up into larger stones. If I were you I would definitely try the grapefruit seed extract. I have been using it now for a week and have had no reoccurance of stones and my sore throat is gone, as is the lump in my throat. Just add about 6-10 drops to a small amount of water 3 times a day to start and gargle with it, as well as drink it. I am sure you will notice a big improvement. If you do a search for grapefruit seed extract you will find a lot of info on this product!

orion
07-16-2003, 01:01 AM
Ok so I did look up the extract, but in MEDLINE. There are several medical journal research articles about the extract. Here is what they said:

"Pharmazie. 1999 Jun;54(6):452-6. Aspects of the antimicrobial efficacy of grapefruit seed extract and its relation to preservative substances contained.
Institute of Pharmacy, Ernst Moritz Arndt University, Greifswald, Germany." said that the antimicrobial efficacy as well as the content of preservative agents of six commercially available grapefruit seed extracts were examined. Five of the six extracts showed a high growth inhibiting activity against test germs. However they concluded after extensive tests that the nearly universal antimicrobial activity being attributed to grapefruit seed extract is merely due to the synthetic preservative agents contained within. And that natural products in the extract itself with antimicrobial activity are not present.

As well, an extract spray was used to try to kill bacteria around chickens and in "J Food Prot. 1998 Mar;61(3):272-5. Spraying chicken skin with selected chemicals to reduce attached Salmonella typhimurium.
Department of Biological & Agricultural Engineering, University of Arkansas, Fayetteville 72701, USA." they concluded that there were no significant differences in Salmonella reduction caused by the extract.

And in "Arch Latinoam Nutr. 2002 Mar;52(1):74-6.
In vitro germicide action of disinfectant products used in the food industry,. Facultad de Ciencias Quimicas y Farmaceuticas, Universidad de Chile, Santiago de Chile." they tested the extract and several other products for their germicide effect. The extract wasn't even close to other products used everyday in the food industry.

So it seems any effect you are seeing has nothng to do with grapefruit seeds but everything to do with artificial preservatives put in the extract in order to prevent it from going rotten. Not the best thing to be pouring in your throat I don't think.

Mich4
07-16-2003, 08:40 AM
Has anyone had a sore throat for a year? I am worried about the length of time I have had it for.

By the way, thanks for the replies. I appreciate any info I can get.

Thanks again, Michelle

marcen
07-16-2003, 08:59 AM
Interesting research but there are many other papers available on the internet that support the effectiveness of the extract...also the brand I buy contains no preservatives, just citricidal (the active ingredient) and a vegetable oil (nutribiotic is the brand). Do you realize that the stones are composed of the same bacteria that coats the tongue? People who take longterm antibiotics upset their natural balance of bacteria and end up with yeast infections (which includes oral infections, not just vaginal). This would only serve to worsen the problem of tonsil stones in the longrun. Antibiotics are certainly not a healthy alternative for you.

Mich4
07-16-2003, 10:10 AM
Has anyone had a sore throat unilaterally for a year? Would the ENT have seen something more sinister?

Thanks, Michelle

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07-17-2003, 12:35 AM
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Airwave
07-17-2003, 05:06 PM
Yes, I hve had a sore throat for more than a year. I have complained to doctors for a long time about constant hoarseness, sore throats and weak vocals. I have been scared thinking that maybe I had cancer. I have been diagnoised with tonsil stones and will have the surgery in abou three weeks to remove them. From what I have read on this message board this seems to be the best solution to a lot of you. I hope that this will end the constant sore throat along with other problems.

Mich4
07-17-2003, 05:09 PM
Thank you for your reply. Is your sore throat in one spot or all around. MIne is only right sided. Do you think the ENT with all the tests I've had, ct scan, xray, scope through the nose to the vocal cords, etc, would have found cancer in the throat or the tongue area?
Thanks,
Michelle

googoo1
07-18-2003, 11:48 AM
Can't believe this thread -- so glad to find out I'm not alone! I'm making an appt with an ENT today!

Michelle, I have had the same fears -- I think we all have at some point, because it seems very abnormal to feel constant lumps in your throat! Obviously, no one here can know whether you have a serious problem, but it would seem to me that that's a LOT of testing to have done and still miss something. My throat is not sore, but my tonsil stone problem is definitely on one side (left) and I can usually feel something in the back of my throat there. I thought I had gotten everything out and still felt it, so I too was scared of cancer, but then this morning my husband looked with a flashlight and saw more lumps in a different place. So now I'm working on those, but I am still going to ask to have these things out -- enough is enough! The lumps that are bothering me now are way down at the bottom of the tonsil, and I can't seem to get to them because the base of my tongue is in the way. Anyone else have this problem? Any suggestions? I am using the waterpik method (I also have the Interplak, but might upgrade...) and it definitely helps. Give it a try, keep in touch with your doctor, and try not to get too freaked out.

dancerJNE
07-18-2003, 05:00 PM
Hi
I too think that I have tonsil stones becaue my tonsils are swollen and have little white things in them. My question is do any of you have any other symptoms of other lymph nodes swelling? I do, I periodically get a rash under my armpit and the back of my neck has developed a tiny bump. I was not sure if I have tonsils stones or some kind of lymph node cancer. I have an appointment with a doc this week but I was just wanting to ease my mind and see if any of you with tonsil stones have any of these symptoms
Thanks!

thoughtcage
07-21-2003, 01:24 PM
hello everyone! i was thinking about getting my tonsils cut out cos the tonsil stones are super annoying. i'm glad i found this website with other folks who are talking about it. i kinda want to be buried with all of my body parts ;) and also i'm worried about needing the tonsils in the future. what if i get em out and suddenly i need em to stave off an infection or something? plus i'm really scared of pain medication since i get really ill from it.

i've had tonsil stones since forever but lately they've gotten worse, and i am sick of picking them out, and my gag reflex seems to be getting better and better...(sigh) i also have lots of post nasal drip, but i can't very well live my life in a bubble. i do know that i am allergic to many things. i am vegan and try to eat nonwheat, nongluten things. also i have been cutten back on the corn and soy since they are common allergen foods.

sometimes the entire world feels toxic to my body! okay so i'm exaggerating a little, but i'm so tired of trying to pinpoint the causes of my post nasal drip. anyway, i am going on. but i am glad that there are folks out there who have had tonsillectomies and those who are keepin the tonsils where they are and water-pik-ing. i'm just not sure i can 1) afford a water-pik, and 2) pik every day.

but i am very very very hesitant about getting a tonsillectomy. however, the tonsil stones are getting worse and annoying and i have chronic halitosis and i am only getting older, which means the surgery will be more painful the longer i wait.

so i would greatly appreciate any help and feedback. first, 1) does it matter if my tonsils are gone?
2) does water pik-ing actually work?
3) are you sure that the GSE stuff works? cos i have that stuff in facial cream and it's not so great ;)
4) do people have any tips in getting rid of post nasal drip short of gargling every day, blowing your nose every day, and wearing a mask all the time (i am allergic to so many things...but i guess it doesn't help that my house is carpeted and i have two dogs)? i had allergy shots but they weren't doing it for me.

okay, this post is getting out of hand. thank you so much for any feedback! i hope everyone is in good health!

------------------
"I am very curious. Tell me everything about yourself starting with your birth. Where were you born? Who gave you your name? Do you remember what happened to you in another life?...How were you caught in this cage?"

sweetpea99
07-21-2003, 06:06 PM
HI all IM new to this bord but when I saw this I had to reply, My husband has this problume with the stones too he has been to many doc about this and we finly got a answer that from what I have read non of you know, the stones that are comeing out are NORMAL!! everyone gets them your tonsals dont need to be removed unless you have lymphnood problums, what it is is the stones are a typ of lub that is secreated by your ears, when it does its job it hardins to a small ball and is then ejected out through your tonsials in to your mouth so your body can decompose of it (swollow it) now think had have you ever had that felling like something was in your throt but you didnt eat anything then you drink someting and its gone take a good guess to what it is!!!!! well with my hubby his ears make more then it needs cause he has swimers ear (he gets ear infections easy due to water getting in his ear) we were told that people that have had bad ear infections as kids or adults that get them easy, people with swimers ear, or even people with sinus problums ( the sinus porbles lead to ear probs cause as you sleep when you sleep on your back you nose can drain in to your ears causeing it to stay there so your ears make more of this stuff)and sometimes bad alergies can do it too. Well if you have any of these its probly why you have the stones your body is just doing its job, the one thing that we were told though is DO NOT EXSPRESS THEM OUT!!! now the only reason Im saying this is if you do it just make your ears make more and its not a good thing to do (my husband did this eeeeewwwwwwwww thats why I know this)
Also the doc told us usealy they will not remove your tonisals because of this its not that serious but if its really bad they can remove a part of your tonisal that will stop it from being so bad.
also some diff way we were told to help it is if you have ear infections alot you should have your sinus checked if not maybe haveing them removed is a good idea, if you have swimers ear after a shower, bath or time in the pool or in water after your done take alcohol and pour a cap full in your ears let it sit for about 5 sec then tip your head over and let it drain out then you can litely swab your ear to get the exsess out, the alcohol drys up the water fast, also if you clean your ears out every day dont ear wax is important you should only do it every other day at the most, and if you have sinus problums or bad alargies try some over the counter meds (benadril for exampale) and take it at nite it should loosin up any stuffyness you have and make it easyer to breath at nite. OK well there are my two cents LOL. O and sorry for all the miss spelling Im such a bad speller and dont have word check LOL Thanks have a good day all!!

tlrobin5773
07-22-2003, 12:28 AM
This is copied from a site I went to about these things. My husband has them once in a while. We are going to try a different approach. Your body isn't meant to be dissected.


Once in a while I get these small white round dots that appear on my tonsils and sometimes I even cough them up. They have an extremely strong odor. What are they and is this related to my breath and taste disorder?
Those little round globules are known as Tonsilloliths and they are most definitely related to Halitosis and sour taste. They are created by sulfur gases produced by these bacteria (which are located across from the tonsils in the throat area). The sulfur gas mixes with the mucous and thick saliva in the back of your throat and after a period of time, condense into these concentrated, odorous globs. They are only present when one has tonsils, but not in all cases. (I have had many patients who have actually had their tonsils removed due to misinformation from physicians about this problem. Of course, these patients still had bad breath after having the tonsillectomy, because BAD BREATH DOES NOT START IN THE TONSILS! (only on the back of the tongue). However, it can branch off into the tonsils, secondarily.

Mich41
07-22-2003, 02:20 PM
I am having a hard time believing my sore throat on the right hand side is caused by my tonsil. It has been sore on and off since last July. Most days it the discomfort is there. I can swallow and talk, but it is always there. I had a ct scan of my neck last october (the pain was at it's worst then), it came back clear, had a neck ultrasound (2 small cysts 3mm on my thyroid, (no need to worry they said, the ENT performed 3 scopes down my throat (just through the nose to the vocal cords), didn't see anything, bloodwork several times, normal. I'm sure there are other tests I'm missing, but can't remember. Would they have seen cancer if it were there. The ent has told me to stop worrying, but when you feel something everyday it is hard. I have found 5 little stones in my tonsil, that was about a month ago, but haven't seen anything since. Could that be what it is? My ear on that side bothers me sometimes (not always), just the back part of my throat on that side.

Help anyone! My ent is a well respected doctor in a teaching hospital.

Thanks, Mich41, (33 years old, mild smoker trying to quit)

maryett
07-22-2003, 09:02 PM
I'm a sufferer too. Yuck this stuff is a gross-out! I get the tonsil stones and scrape them out of the pockets I can see but the horrible mothball-poo taste when I swallow still remains. I also feel there are other balls building up in a different place? Sometimes I'll be brushing my teeth and a green ball will pop into my mouth from like the very bottom and back of my mouth. Maybe it's still from the tonsils.

I've been doing a bit of research about this and from what I've read TLRobin is right, the globs are caused from sulfur dioxide, which is a gas which is a by-product of the food particles the bacteria on your tongue are eating. When you swallow the gas builds up over time in the pockets in your tonsils into the solid forms.

The sore throat is caused by post-nasal drip which also causes the globs because the nasal drip drips onto the back of your tongue (which is the source of the whole problem).

I've also read that conventional mouthwashes can do more harm than good because, ironically, most of them contain alcohol which just dries out your mouth and makes the condition worse.

Also you have to avoid things that make your breath stink like dairy products, coffee and alcohol. I know my mouth certainly feels stinky after eating cheese or drinking milk or coffee and it also feels yuck after having sugary, highly processed foods like biscuits, cakes, sweets and soft-drink.

And when I used to smoke a pack a day I once had the biggest tonsilolith I've ever had suddenly fall into my mouth, it was like a centimetre wide! So I'm sure smoking doesn't help.

I have also read that even if you do get your tonsils removed you can still get these tonsilolith thingies.

Doctors and dentists etc don't know jack about it because to them it's a minor issue, but thank the lord for these companies that are actually taking the time to do research on this stuff.

I am currently using a similar product range to Therabreath, it's called "Breeze" and you begin in the morning with a toothpaste which you have to use for two minutes, followed by a Triclosan (anti-bacterial) mouthwash for 30 secs then a throat spray which is meant to prevent tonsiloliths from developing. Then at night you brush with a special mouth gel and use the spray again and then you smear some gel on your tongue and leave it there overnight. There is a website for this company and you can buy online. Do a search on the internet and try "fresh breath". The company is in Australia.

I haven't been using it religiously because I work from home and usually go around like a sloth most days, but when I do it definitely leaves my mouth feeling fresh, even in the morning I feel I have far less (or even none) morning breath. I still get the tonsil build-up but as I say I haven't been using it properly (and I'm still eating dairy foods).

googoo1
07-23-2003, 01:02 PM
Here's a better description of jala neti, or nasal irrigation -- http://www.tarayoga.net/neti/types.html

There's also a .pdf booklet available via a link on this page, with lots of good information about how and why this works. Apparently, there are other ways of doing this, including with milk (huh?) ghee (which is clarified butter -- double huh?) and urine! (EEK! Yucky! Don't do that.) This site advises using ONLY salt water, thank goodness.

SpikeyMikey
07-23-2003, 03:53 PM
Well, like many others on this thread, I feel great knowing that I'm not a freak for getting these too--I've had doctors poo-poo the issue and dismiss it as food, etc., like many of you as well.

I'll have to check out the Therabreath treatment, but until then, a removal tool that has worked real well for me is a long, thin baby spoon. As the spoon's tip is narrow, it can reach into the holes easily, and because it's curved, it doesn't scrape harshly or poke at my throat. I'd tried the nail clipper, the toothbrush handle, and even a chop-stick, but the baby spoon is a winner.

maryett
07-23-2003, 08:12 PM
Yeah I use either a spoon or blunt knife.

DrSpliff
07-24-2003, 03:01 AM
Argg, these things are horrible, I only discovered I was getting them last year, but have had holes in my tonsils since a period of frequent tonsilitis lasting about 4-5 years (I got it 7 times in one year once). The holes are really large, big enough for pears or pepper corns to get stuck in...

I haven't yet seen a doctor specificly about my tonsils, but im sure he'll just say some BS story about how it's bits of food getting stuck in there etc. But I really think my tonsils need to be removed, they've been giant ever since I can remember, and theres allways the feeling of two golf balls stuck down my throat... Not to mention my breath constantly smells, sure I could gargol 8 times a day, but thats just too much to ask.

Any ideas about persuading the doc to get my tonsils removed... im only 16 so the recovery shouldn't be too bad. They are way too big, causing a constant dull pain, maybe I have some form of constant mild tonsilitis?

hyacnth
07-24-2003, 03:16 AM
Man, oh man, did I think I was the only freak out there! I've been battling these hellacious things for 10 years! I can't tell you how reassuring it is that it is as common as it seems. Tried the waterpik, and it's too rough. So, if you have any access to such a thing, the disposable instruments that doctors use to remove ear wax build-up (there's like a set of tools...loop-ended probes, scoops about 3mm wide, etc.) are the bomb at removing the little devils. I just disinfect them after each use. My hubby is a doctor, and I have another doctor friend, and neither have heard of this before. Years ago the ENT I went to knew immediately what they were, and prescribed Clindamycin for whatever anaerobic organisms may have been brewing at that time. Like, did an infection cause the crud, or did the crud cause an infection? I sure can sympathize with everyone who wants to get a tonsillectomy....it would make me feel so much more confident when talking to people knowing I don't have putrefying yuck hanging around!

LoriGymnast
07-24-2003, 08:57 PM
Originally posted by HSJay76:
"Hello. My name is Jason. I'm a tonsilolith sufferer."

Wow. I never imagined so many people had this! I've had tonsil stones since I was 13 or 14. I am now 27. I always thought it was something that I had to 'deal with' as my family doctor told me the same story that may of you got -- "It's just food..." I refused to beleive this, but decided to try and cope with it.

For over ten years I've been picking them out spitting them out and sometimes, in the absolute worst situations, having to SWALLOW them. (your cue to gag) I simply could not put up with it anymore, so I went to see an ENT about a year ago. He told me it was...you guessed it... f.o.o.d. and that my tonsils were healthy, that I shouldnt be concerned.

I found this site last week and immediately printed out the entire contents (for 'backup' or PROOF). I made another appointment with a different ENT; a somewhat younger and more hip doctor. She immediately recognized the fact that I had TONSILOLITHS (amen?) She diagnosed me with chronic tonsilitis and said that the tonsils need to be removed. I agreed. I get them removed in 3 weeks. I know that recovery will be more difficult because I am older, but it's either that or pick, gargle, swab, spit, pick, every day until death. I opted for removal thank you.

Oh, by the way. I gave my wife a flashlight and showed them to her. Her eyes got huge and she dropped the light. Now she gets freaked out when I kiss her. Perhaps I should have waited until a few days before surgery to show her. Oh well.

I hope the rest of you fair well your tonsil stones, aka tonsiloliths, aka vomit varmints, aka puke fluff, aka tonsil rocks, aka "WHATTHEHECKISTHAT!"

I'll post more during and after surgery recovery.

Later
JJ

LoriGymnast
07-24-2003, 09:06 PM
Hi I really want to know how your doing since having your surgery. I am 41 years old and have had these tonsil stones since I was 26. They only seem to be getting worse. I am afraid to have them surgically removed at this stage in life. Will you please post everything about the surgery and the after effects no matter how bad they might be. Just please be honest, I want the truth to decide if I should be brave and have them taken out. Looking forward to hearing from you, hope your doing well. Originally posted by HSJay76:
"Hello. My name is Jason. I'm a tonsilolith sufferer."

Wow. I never imagined so many people had this! I've had tonsil stones since I was 13 or 14. I am now 27. I always thought it was something that I had to 'deal with' as my family doctor told me the same story that may of you got -- "It's just food..." I refused to beleive this, but decided to try and cope with it.

For over ten years I've been picking them out spitting them out and sometimes, in the absolute worst situations, having to SWALLOW them. (your cue to gag) I simply could not put up with it anymore, so I went to see an ENT about a year ago. He told me it was...you guessed it... f.o.o.d. and that my tonsils were healthy, that I shouldnt be concerned.

I found this site last week and immediately printed out the entire contents (for 'backup' or PROOF). I made another appointment with a different ENT; a somewhat younger and more hip doctor. She immediately recognized the fact that I had TONSILOLITHS (amen?) She diagnosed me with chronic tonsilitis and said that the tonsils need to be removed. I agreed. I get them removed in 3 weeks. I know that recovery will be more difficult because I am older, but it's either that or pick, gargle, swab, spit, pick, every day until death. I opted for removal thank you.

Oh, by the way. I gave my wife a flashlight and showed them to her. Her eyes got huge and she dropped the light. Now she gets freaked out when I kiss her. Perhaps I should have waited until a few days before surgery to show her. Oh well.

I hope the rest of you fair well your tonsil stones, aka tonsiloliths, aka vomit varmints, aka puke fluff, aka tonsil rocks, aka "WHATTHEHECKISTHAT!"

I'll post more during and after surgery recovery.

Later
JJ

fred47_2001
07-24-2003, 09:16 PM
my tonsil stone story. For years I have had a problem with an occasional tonsil stone but in the last 8 or 9 months an explosion in numbers along with a persistant soar throat and ear aches. Finally went to two ents who both down played the stones {said tonsils looked fine } but diagnosed acid reflux as the source of my discomfort. I have my doubts. my own observations seem to show a correlation in the number and side thier on as to the degree and location of the pain. am currently on nexium. one ent linked acid reflux to post nasal drip, I am again skeptical, but waiting 3 or 4 weeks to see any improvement with the drug therapy. any way one ent suggested and is willing to do the radio frequency coblation to elimenate the crypts in my tonsils { no more stones } I will most likely go with it if i dont improve as I cant stand the constant irretation caused by these damn things

SpikeyMikey
07-25-2003, 09:54 AM
Originally posted by DrSpliff:
I haven't yet seen a doctor specificly about my tonsils, but im sure he'll just say some BS story about how it's bits of food getting stuck in there etc. But I really think my tonsils need to be removed, they've been giant ever since I can remember, and theres allways the feeling of two golf balls stuck down my throat... Not to mention my breath constantly smells, sure I could gargol 8 times a day, but thats just too much to ask.

Any ideas about persuading the doc to get my tonsils removed... im only 16 so the recovery shouldn't be too bad. They are way too big, causing a constant dull pain, maybe I have some form of constant mild tonsilitis?

Your condition would convince me to recommend removal if I were the doc! I say you go in for a diagnosis, and describe it the way you just did here...

Cascabel
07-25-2003, 03:38 PM
I am so glad I found this site! I have been dealing with what I call "tonsil boogers" for a good 6 months now. I'm 23 now, but one site I found said if you had frequent tonsilitis as a child, you will be more likely to develop tonsil stones. That described me perfectly.
When I look at my tonsils, I don't see anything, but I can reach my tongue back and feel them. Usually they dislodge pretty easily, but other times, they get stuck for days. I try to gargle with warm water after brushing my teeth. That usually helps, but I still get them. I was too scared to go to the doctor, and figured that since it didn't hurt and I'm in good health otherwise, it must just be food or something. Glad to know that they are basically innocuous and that I'm not the only one!

bbstandard
07-26-2003, 03:39 PM
Well, I just had to chime in and say I'm a fellow Tonsilolith sufferer as well. I love the internet. Before it we never would have found out other people have these things. I've had them since I was a kid... the first time I ever noticed one was when I went swimming in a pool and dove down in the deep end. When I came back up I had something in my mouth. I spit it out into my hand and it was a gross looking, off-white, smelly glob. I guess that the pressure increase from being under water forced them out of my tonsils. Then as a teen I started picking them out when I'd feel something in my throat. I've found the best thing to use to get them out is a paperclip held on the end of a pencil with a rubber band. I notice that I get them more in the warmer months. I have chronic post nasal drip and think it has something to do with that. I always worry that my breath stinks, but no one ever told me that it does.

maggie06
07-26-2003, 10:00 PM
I can't believe tonsil stones are so common! I am 39 and have had them off and on since I was a teen. They've gotten worse in the past 2-3 years and I also have frequent right-side only sore throats.

I'm on my 3rd round of antibiotics in 9 weeks. I saw an ENT last week for the first time. He is my age and recommended tonsillectomy because of chronic tonsillitis. The doc said that he is always concerned when only 1 tonsil is affected (sore, enlarged, swollen glands in the neck) and the best thing would be surgery even at my age!

He did warn me that after surgery my throat will be VERY painful for at least 2 weeks. I have a low tolerance for pain and the most effective pain meds make me sick, so I really want to avoid it if at all possible.

He was not concerned about the tonsil stone and in fact, he tried to scrape it off, so I think all of you pickers and squeezers have the right idea! After reading your posts, I went out and bought a waterpik and some antibacterial mouthwash that's alcohol free. I'm going to try this and see if it helps.

I am interested in feedback from anyone around my age who has had a tonsillectomy. How bad was it? How did you deal with the pain?

bbstandard
07-27-2003, 12:21 AM
Originally posted by hyacnth:
So, if you have any access to such a thing, the disposable instruments that doctors use to remove ear wax build-up (there's like a set of tools...loop-ended probes, scoops about 3mm wide, etc.) are the bomb at removing the little devils. I just disinfect them after each use.

I haven't seen those, but I did have something that sounds similar that dermatologists use to remove blackheads. It was great at getting the tonsiloliths out ... it was a long skinny metal thing with a small loop on one end ... I would gently poke the loop into the tonsil crevice, around the tonsilolith, and pull it right out. Unfortunately, I lost it and haven't been able to find another one. So now I use my "paperclip held on the end of a pen with a rubber band" invention that works pretty good too. The thing is that whatever you use has to be long and skinny and have some sort of way to grab the lump. My husband thinks I'm nuts when I'm going through my routine, but hey, anything to not have the smelly lump in my throat. So, hyacnth, where would one go about getting one of these ear wax removers? From a doctor?

bbstandard
07-27-2003, 12:39 AM
Originally posted by googoo1:
a neti pot sort of looks like a little Aladdin's lamp -you fill it with warm salt water and (I know this sounds weird, but bear with me...) you bend over the sink, insert the spout into one nostril and pour the water through until it comes out the other nostril. Yes, they are connected! Then you do the other side, and blow your nose gently to get the last of the salt water out, and your sinuses feel wonderfully clean.

At first, it feels very strange, and even a little scary: there's an instinctive "drowning" reaction to getting water in your sinuses. But, truly, once you get used to it, it feels wonderful, and really cuts down on the post nasal drip. It also helps tremendously if you tend to get sinus infections, and it cuts the time of colds down a lot.

I agree about the neti pot... it is a little scary at first, but once you get used to it it's great. It's really a weird sensation and hard to get past the instinctive feeling that you shouldn't let your sinuses fill with water, but man oh man, does it help with sinus congestion. It's like giving your sinuses a bath. I have used it with colds too, makes it much easier to breathe.

I hadn't thought of the possibility of it helping the tonsil stones, but I guess it could. I don't usually use mine every day though, so I guess I'd have to if I wanted to see if the stones were reduced. The weird thing about my tonsil stones is that I don't get them all the time, just sometimes, and more often in the warmer months. Sometimes I'll have them constantly for a while, and they are a real nuisance, and then I'll go for quite some time without one. Wonder why that is?!

Mich4
07-27-2003, 10:44 AM
I posted a while ago and put this on the cancer board. Please tell me what you think. I have picked out little stones from my tonsils in the past but most of the time I can't see them. Tell me what you think please.

I have been to many doctors, ents etc over the past year. I have had a sore throat since last June only on the right side. The ent assures me I don't have throat cancer. I asked him to biopsy, he said "what do you want me to biopsy"? I have had a neck ct, neck ultrasound (2 cysts 3mm each, normal, 3 scopes (through the nose to the vocal cords) and bloodwork. He did say I have a cyptic tonsil. I just find it hard to believe. I think it is cancer, can't get it out of my head.
It has been a year now. Would I know if it were throat or tongue cancer? Is it possible that it is was slow growing and the doctor didn't see it. The last time I saw him was the end of June (this past june). He didn't do any tests, just looked in. Said it all looked fine. See, my tonsils don't even look inflamed.
I'm sorry to bother any of you, you are all very strong. If you can help me in any way, please do. I can't really get a second opinion as we only have the one clinic. I do like this ent, he is very caring and the hospital is a teaching hospital, so I know he is respected.
Thanks again Michelle

ghebert
07-27-2003, 10:29 PM
I decided to look up on the internet for this tonight. I didn't thought so many people were having this too. I have also noticed that the only thing besides surgery to erradicate the problem is using TheraBreath... but as someone said, all the sites are pointing to the same site, so I wonder if it's a scam, or if it really works.

I will get an appointment with my doctor tomorrow. But I was wondering if the removal of my tonsils would be a lot less painful, and the recovery quicker, since I am only 21?

TonsilStonesSuk
07-27-2003, 11:39 PM
I would recommend anyone newly reading this thread to be sure to read the whole thing. It took me nearly an hour but with the info that was gained, it was well worth it.

I've had these things for years. It's actually a pretty good feeling when you 'pop' or 'squirt' one of 'em out. My tool of choice is one of those very popular, disposable Papermate pens. You know, the white pen with the black top where the ballpoint sits. What I do is remove the ball point section (that whole black part twists off easily) so that just the white shell of the pen is left. Where the black part used to be is now a nice little hole which I use to cover the stone(s),push and sometimes scrape. It works pretty well. If a smaller instrument is needed I'll sometimes use the ink tube part of the pen that was pulled out and jab that in there, cleaning before use of course. Bic makes a similar pen but the opening is larger. I used to gag quite easily in the beginning, but with practice you begin to get used to probing around back there and your gag reflex tones down some.

I think one should have an array of different tools to use depending on the positioning and size of the stone. The paperclip tool is a good idea. I might have to try that one out sometime.

After jabbing these things out for so long, I am totally convinced they are being created INSIDE the tonsil and are working their way out, just as someone mentioned before. It's funny how you can see absolutely nothing there, but probe around for a little while in your problem spots and BINGO a little rock pops out or some white crap spooges out.

I am about a week into the Therabreath treatment. It's still a little too early to tell if it's working or not. I'm using the nasal drops, OxyGen tabs, Oral rinse and tooth gel. I've still had a stone or two since I've started but these things form over time and they could have been forming from before I started using the stuff. Or, the products could just take a while to really kick in. Or maybe even a combination of the two. All I know is that this stuff is not cheap and it'll be a new recurring bill every month if it really works. Even if the stuff doesn't work with eliminating the tonsil stones, but does a good job getting rid of my bad breath I'll continue to use it.

hyacnth
07-28-2003, 01:17 PM
to hbstandard: My hubby is a "doc in a box" at an urgent care clinic...this is where I got those instruments. He has a problem with earwax, and had brought home a set. When I found them, I absconded with them (before he used them, of course)! If you all are like me, you are probably always scanning your environment for things to do this nasty little job. They are plastic, disposable, and came in a little clear plastic sleeve. I would recommend asking any family or general practitioner or even pediatrician (my child's doc had them, too) if they would spare a set, or even sell a set to you, if they keep them around the office. They usually work best on crypts that are sort of "reamed out" and easy to access. I do have a few that are quite small and stubborn to clean.

To the person with the paper clip...OUCH! Doesn't that hurt? Those paperclips have sharp edges...but kudos to you for ingenuity. My sad state is that I used two ear swabs to clear out a stuck one, and the trauma I caused to the side of my tonsil has now ulcerated, very much like a canker sore, or aphthous ulcer. OOOWWW! It really hurts to eat, swallow, talk, etc. So be careful out there! I like the idea of using a laser doo-hickey to obliterate the crypts...seems like a much easier procedure and recovery time. Anyone know anything about it? Do tell!

I would love to find a resolution for this for everyone out there suffering. It's like our own private little Hell...no one wants to share this affliction with anyone, much too embarassing. Maybe we should organize and get a celebrity spokesperson to squish their tonsils on television like Katie Couric on Today Show, getting a colonoscopy to de-stigmatize colon cancer. Like Judy Tenuta says, "It could happen!!"

summer44
07-28-2003, 05:31 PM
Sometimes when I swallow then breathe out through my nose the air that comes out of my nose picks up the stench from the tonsil stones. I know this b/c my wife asks my if I farted (she says what smells like rotting garbage)....I hate these freakin' things soooooooo much....

TonsilStonesSuk
07-28-2003, 06:45 PM
hyacnth: I don't think the paperclip method involves opening up a paperclip and jabbing the end of it in your throat. I think what they are trying to say is to take a paperclip (unfolded, in it's original form) and to tape or rubber band it to the end of a pen, pencil or long instrument. Then use the rounded edge of the paperclip to kind of slightly push against the side of a cript and in one or several swipes "rub" out the stone.

It sounds like it could work because you're in a sense scooping it out of there. And the rounded edge allows you to push against your tonsils hopefully without causing any trauma back there.

Heck, you could even get fancy by setting up two opposing paperclips on the same pencil and have them act to push the stone out from both edges. Or fancier, fancier yet and setup 4 paperclips to box in the stone and push. But then if that's the case you might as well use my 'open cap' pen method. But the advantage that the paperclip lends is that you can still see what's going on back there while scooping. Unlike my pen method.

LoriGymnast
07-28-2003, 08:52 PM
I'm beginning to think that I'm not going to be able to continue on in this way. My ENT Dr. said it is a quality of life issue. But the quality is getting worse, because my left tonsil has had the stone stuck up there for weeks now. And it is just getting bigger, I can't get it to come out. This situation has definately gotton worse over the years. I first noticed it at 26 and now being 41 there is a huge difference. Especially here as of late it seems as though there is no break, I constantly have it in the left tonsil. Only occasionaly in the right one. I totally believe it has to do with post nasal drip that flows down the back of the throat and not out my nose. I read once about a Dr. in Houston Texas who uses lasers to close of the crypts in the tonsils. But I think my left one might be to far gone already and that the whole tonsil would have to be removed. I am sooooo afraid of getting them out at this age. My Dr. told me that once your over 16 years old it's much harder on you than when your a child. I also read it's much more dangerous too. Can anyone who is an adult and just had tonsils taken out try to convince me otherwise. I want to be truly rid of this most sickening problem.

nikki303
07-29-2003, 02:43 PM
To: LoriGymnast

I just had my tonsils out on May 30. I am 28 years old. I will admit, the first few days were not a walk in the park, however the end results are wonderful!! It is so nice now not to be looking in and digging at my throat constantly. The pain that I was in went away with extra strength tylonol. (The Rx the doc gave me made me vomit.) It is not as if you will be suffering forever from pain. I slept alot, which made the time that I was in pain go by much faster. By the 9th day post-op I was done with the tylonol. I had them removed on a Friday and I went back to work 12 days later on a Wednesday. I feel great now. No more sore throats- nothing. You really should consider having it done. It doesn't seem as if you can go on much longer the way it is.

bocian
07-30-2003, 07:33 PM
i keep getting the same problem with my right tonsil but never my left, and my right tonsil always seems a bit bigger than my left even without any spots on it, also i noticed that when i get the spots i feel as though the right side of my throat or lymph node feels as if its swollen, and i keep getting the urge to clear my throat , even though there isnt much discomfort the urge is there, but i dont know if this isnt more psychological than anything else. I also feel some discomfort in my nasal cavity, where as i can suck it in and spit it out usually as white mucus/phlegm but i cant blow it out. My tongue also has a whitish/yellowish coating on the back, when i brush it off it comes back within a few days.

brynndawn
07-31-2003, 08:27 PM
how inthe heck do you get to them when you have a small flashlight in one hand and a qtip inthe other all the while trying to smash down your tongue so you can find them?!? It is impossible! I feel them back there and I def. know I have them because I have been dealing with this for years- sneezing them up or coughing them up I just need to know how you get to them with the qtip!

bbstandard
08-02-2003, 01:54 AM
Originally posted by hyacnth:

[B]to hbstandard: My hubby is a "doc in a box" at an urgent care clinic...this is where I got those instruments.

To the person with the paper clip...OUCH! Doesn't that hurt? Those paperclips have sharp edges...but kudos to you for ingenuity. B]

Heh heh, I'm one and the same... I'm hbstandard and the paperclip person. :) I don't poke myself with the paperclip end... as someone else pointed out, I put a whole paperclip in it's original, usable form on the end of a pen and hold it on there with a rubberband. Then I poke the end of the paperclip into the crypt and scoop out the stone. But I have very large crypts, so the paperclip fits in there fine. It doesn't hurt in the least. It works well b/c the paperclip sorta grabs the stone since it's in a loop shape. I'll see about getting some of your ear wax thingies though. Thanks for the tip.

GOOKYyUcK
08-02-2003, 02:35 AM
WoW...I hav'nt met anyone ever with this same problem well we all seem to be survivors OF THE GOOKY YUCK!!well guys i am one of the few who has to suffer from this problem ONLY FOR 11 more days..im getting my tonsils out becuz of this in 11 days i am scared to death and i dont want to...i know 3 people who had theres out at my age 15 almost 16 and they told me how they had to go back to the hospital becuase of excessive bleeding...im scared im gonna DIE IN THERE :'( but i had these stinky things for awhile and i always chew gum around my boyfriend...he wants me to make out with him but im scared to death to let him i dont want him to taste my GOOKY YUCK!! and i rele want to, too...everyone else my age has but im scared of my breath lol...well i guess itll all be over in 13 days...wat are the risks that i might bleed to death?? :(ne wayz later days i have some SQUEEZING TO DO!!

bbstandard
08-02-2003, 01:56 PM
Originally posted by brynndawn:
how inthe heck do you get to them when you have a small flashlight in one hand and a qtip inthe other all the while trying to smash down your tongue so you can find them?!? It is impossible! I feel them back there and I def. know I have them because I have been dealing with this for years- sneezing them up or coughing them up I just need to know how you get to them with the qtip!

I don't use a flashlight... I go in the bathroom and turn on all the lights and look in the mirror and hold my tongue down with my finger and see if there are any stones... if so, then I get out my trusty removal device and hold my tongue down with one hand and hold the device with the other. Sometimes I don't have to hold my tongue down if I can get at the right angle... don't forget to say "ahhhhhh," that helps move the tongue out of the way too.

candycandy
08-05-2003, 12:43 AM
i went to the link left by asteroth about laser ablation. very interesting. i was also afraid of getting my tonsils out being that i'm not 16 anymore. i think i'll just wait a few years until they've got that laser technique more refined to where it's painless and low-risk. i mean, look how far we've come... don't you love how technology is always advancing?!

Nick at Nite
08-05-2003, 05:00 AM
Hello, tonsil suffers, I have had a feeling in my throat for 2 years now. I have been to 9 ENT docs,
they say nothing there all looks good, with the exception of the hole in the left tonsil which is the side where i feel like there is something stuck in the back of my throat. My question is i have read all the post can you have this feeling without infection.
I have the white balls that eject from the tonsil holes. aftewards i feel a litte releif but not complete, I read the one on the paperclip and becuase of that post I may be able to sleep tonight. This feeling just does not go away if it does its only for a few days but has been ongoing for 2 years now no, infection, ct normal, xray normal, scope, okay. I really want to know if others have this feeling of a lump in just one side, at times it feels better if I am chewing or eating something, but afterwards comes rightback. sorry for being redundant, It just drives me crazy.....

[This message has been edited by Nick at Nite (edited 08-05-2003).]

[This message has been edited by Nick at Nite (edited 08-05-2003).]

LoriGymnast
08-05-2003, 01:32 PM
To: Nick at Nite

I can totally relate to what your going through. It's my left tonsil that drives me crazy also. I've had this going on for 15 years and at 41 years old, I don't want to have my tonsils taken out either. Your right about the paperclip being a good suggestion, it has helped me this week. It seems as though these last 6 months have been the worst, with one tonsil stone right after the other. It seems like there is no break in between. Yes, I have that same hole in my left tonsil too, it's a decent size hole. And just above it is where there seems to be forming another stone right above it. It feels like a bump back there at all times. The right tonsil only gets stones once in a great while, and they seem to come out on their own much easier. No bump above the right tonsil, it's weird how you seem to have my exact symptoms. None of this means you have any infection or else you would be running a temperature or having sore throat pain. My ENT says it's a quality of life issue, and if it doesn't bother you to much you just live with it. Or it bugs you so much that you just get the tonsils taken out. So for all these years I've dealt with it, but I must say here lately it's bothering me so much that I'm half way thinking about getting them taken out. I hope this helps you. Have a great week~LoriGymanst

Mich41
08-05-2003, 03:29 PM
Originally posted by Nick at Nite:
Hello, tonsil suffers, I have had a feeling in my throat for 2 years now. I have been to 9 ENT docs,
they say nothing there all looks good, with the exception of the hole in the left tonsil which is the side where i feel like there is something stuck in the back of my throat. My question is i have read all the post can you have this feeling without infection.
I have the white balls that eject from the tonsil holes. aftewards i feel a litte releif but not complete, I read the one on the paperclip and becuase of that post I may be able to sleep tonight. This feeling just does not go away if it does its only for a few days but has been ongoing for 2 years now no, infection, ct normal, xray normal, scope, okay. I really want to know if others have this feeling of a lump in just one side, at times it feels better if I am chewing or eating something, but afterwards comes rightback. sorry for being redundant, It just drives me crazy.....

[This message has been edited by Nick at Nite (edited 08-05-2003).]

[This message has been edited by Nick at Nite (edited 08-05-2003).]
Hi Nick at Nite

I am 33 and like you have been to the ENT about 10 times over the last year. I am so sure that I have throat cancer that I am literally going crazy. I have picked a few of these tonsil stones out of my right tonsil lately. I also have the lump feeling in the right side of my throat. I am a smoker, but by no means a heavy one. I know that doesn't really matter, but my ENT said there just wasn't anyway it was throat cancer.
I had a CT scan of my head and neck, both were normal. I had 2 small cysts on my thyroid(3mm) no concern at all from the docs, a normal neck x-ray, normal bloodwork, a scope through the nose to the throat 3 x's (the last one was about 6 months ago and I did have pain then).
My problem is this. I pick out these little yellow pieces that feel like they should be the size of bowling balls and they are barely bigger than the head of a pin. Why is my right tonsil in pain?
Does this seem right to anyone? The ENT did say that my tonsil looked cryptic. He doesn't want them out though. He said too much risk for someone with no infection.

If it were throat cancer would I know by now? It's been a year now.

Thanks,
Mich41

googoo1
08-05-2003, 06:25 PM
To Mich,

See, the problem is that no one on this board is going to say "no, you definitely do not have cancer." That would just be foolish: there's no way we can know. I can say that it sounds like you're doing all the right things and if you trust your ENT you need to find a way not to be scared about this. If you can't feel comfortable with the one opinion, get a second opintion, by all means.

I can also say that I have exactly the same sensation: I feel like I've got a boulder in there, and I flush out a tiny little thing. I think, that can't be all, but it generally is. I find that the more I think about my throat (look, poke, swallow all the time to check it, cough, look again, you know the deal) the more uncomfortable it is, and if I just do the basic cleanliness routines and try to forget it, it actually feels better, probably because I'm not messing with it all the time.

I think we've all been nervous about throat cancer, of course, but if you are getting a clean bill of health from everyone, then I think you need to figure out what to do to be able to believe that and let go of this anxiety. Walking around believing you have cancer cannot be fun.

Mich4
08-05-2003, 07:45 PM
You are sooo right! And I thank you for your words. I know that you or anyone on this board can't tell me that I don't have throat cancer. Sometimes it feels good to let it all out.

Thank you for your time and your words.
Mich4

Originally posted by googoo1:
To Mich,

See, the problem is that no one on this board is going to say "no, you definitely do not have cancer." That would just be foolish: there's no way we can know. I can say that it sounds like you're doing all the right things and if you trust your ENT you need to find a way not to be scared about this. If you can't feel comfortable with the one opinion, get a second opintion, by all means.

I can also say that I have exactly the same sensation: I feel like I've got a boulder in there, and I flush out a tiny little thing. I think, that can't be all, but it generally is. I find that the more I think about my throat (look, poke, swallow all the time to check it, cough, look again, you know the deal) the more uncomfortable it is, and if I just do the basic cleanliness routines and try to forget it, it actually feels better, probably because I'm not messing with it all the time.

I think we've all been nervous about throat cancer, of course, but if you are getting a clean bill of health from everyone, then I think you need to figure out what to do to be able to believe that and let go of this anxiety. Walking around believing you have cancer cannot be fun.

plm10467
08-05-2003, 10:54 PM
I am just happy that others are going through the same things I am. I have had these thing in the back of my through for a few years coming and going and sometimes leaving holes behind, and it does stinkt a hole and came back a day later. Not to mention it took forever to get it out. My husband thinks I am crazy but i feels great to have others go through the same things. I have never had anyone mention bad breath to me but it does leave a taste.

princeta
08-07-2003, 04:51 AM
I do too suffer from this problem but i dont actually see them. They used to come out by themselves but now they dont come out. When i stick my finger behind my tonsils then smell it, even though there are not any of the stones still smells like ****. And also when i blow air really hard, like you are gargling on to a mirror then smell it, it actually smells like ****. Does this happen to anyone else?

sohappy2know
08-08-2003, 06:15 AM
Oh, my gooodness. I'm so happy To know that i'm not the only one with this gross problem. Know as tonsil stones. I have had this problem for years now and was always told that it was a sinus problem. These things make my throat sore all the time. I find myself coughing and picking in my mouth daily. These things really make my ears ache and i can feel them in my throat. They are very painful at times. Pain meds help but only a while. The relief i get is when they are picked out or i move throat musles to get them up my self. For the longest time thought i had cancer of throat. Because i could feel the lumps when the things where there. I found this site very helpful and now i can talk to an ENT for further help. Hopely i will find relief soon these gross smelly thing that seems to be getting worse. My tonsil are very large now and guess this mean they are beging taken over with these things. I'm very scared of the thought of sugery. But from what i read on here that seems to be the only releif. I don't suffer from bad breathe like some of you have mentioned and thank goodness. That would drive me crazy. Thanks guys for the helpful stories.

missye
08-10-2003, 07:36 AM
My father had non-hodgkin's lymphoma and he had the rash under the armpit (it would come and go), that is one of the symptoms. He also would have some swollen lymphnodes. Do not wait to see a doctor and always get a second opinion. I, on the other hand, only have tonsil stones, and i have a (unrelated? self draining cyst in a private area), i'm wondering if it's all lymphatic related now. He never mentioned having tonsil stones, but he probably wouldn't notice if he had them.

Originally posted by dancerJNE:
Hi
I too think that I have tonsil stones becaue my tonsils are swollen and have little white things in them. My question is do any of you have any other symptoms of other lymph nodes swelling? I do, I periodically get a rash under my armpit and the back of my neck has developed a tiny bump. I was not sure if I have tonsils stones or some kind of lymph node cancer. I have an appointment with a doc this week but I was just wanting to ease my mind and see if any of you with tonsil stones have any of these symptoms
Thanks!

missye
08-10-2003, 07:46 AM
Originally posted by dancerJNE:
Hi
I too think that I have tonsil stones becaue my tonsils are swollen and have little white things in them. My question is do any of you have any other symptoms of other lymph nodes swelling? I do, I periodically get a rash under my armpit and the back of my neck has developed a tiny bump. I was not sure if I have tonsils stones or some kind of lymph node cancer. I have an appointment with a doc this week but I was just wanting to ease my mind and see if any of you with tonsil stones have any of these symptoms
Thanks!

SEE A DOCTOR NOW! THOSE ARE CANCER SYMPTOMS. of non-hodgkins lymphoma

sohappy2know
08-11-2003, 12:57 AM
Could anyone tell me where i could a waterpik? Thanks...

CalGal2003
08-11-2003, 02:39 AM
It sounds like you have what they call Creptic tonsils. My husband had this and went to the Dr,
He cleaned them out as much as he could and had him gargle with warm salt water, yes his breath was affected and he thought it was strep. I have them now to a mild degree and I will use the same regimin. Cleaning them out is not an easy thing to do unless your Gag reflex is totally gone. You really need to relax when it is being done. Our Drsaid it is caused when food particles get caught in holes in the tonsils. Hence the name Creptic Tonsils

[This message has been edited by CalGal2003 (edited 08-11-2003).]

earstoo
08-12-2003, 02:38 PM
I've got em too. 34 years old. Known about them for around a year. All symptoms seem similar. However, what got me to the ENT was that I have a strong pressure in my ear that is causing a lot of hearing loss. sounds like a buildup of these things - anyone else ever have ear problems like this from these stones? I can open it up if I move my head in a funny way, but it is really a pain in the butt. Feels like the inner ear canal is being pushed together.

googoo1
08-13-2003, 11:04 AM
test

googoo1
08-13-2003, 11:34 AM
Aha! I'm back. Thank you, Moderator.

So, apparently, the posting policy that says "Messages that advertise, solicit, or promote products/services, whether or not you personally benefit, are considered free advertising and will not be tolerated." actually means "Do not post any links or you will be thrown off the boards for a week." Might have been simpler just to say that, probably save them a lot of work, but whatever. So, no more links from me, you'll all just have to go to Google and do your own darn search. (Am I allowed to say Google?)

Anyway: I'm having my tonsils out. I know, this is pretty drastic, and there are varying opinions about it on this board, but I went to see the ENT and he was SO kind to me, I nearly cried. He really took all of my problems very seriously, didn't poke fun at me at all, which I was afraid of. When I told him all the things I do every day to keep my tonsils and breath clean, he looked so sympathetic. He asked to smell my breath (horrors! I haven't breathed on anyone in years!) and said that it smelled perfectly normal to him, but believed me about all the people who have stepped away, offered me mints, even told me flat out that I needed to brush my teeth (which isn't the problem, as we all know...)

He had a medical student there with him, and he was using me as an example to her, explaining how she should always take problems like this very seriously because, he said, you can see the profound effect that this can have on a person's psyche.

Then we talked about the tonsils. I told him all the other symptoms I was having (consistent low-grade sore throat, swollen tonsils, swollen lymph nodes, ear pain and itching on one side) and he said that if the problem were only my breath, he would not suggest surgery, but the swollen tonsils and lymph nodes were telling him that something was wrong and that I was probably frequently supporting a low-grade infection, which is not good. He asked how I would feel about having my tonsils out, and I said that I was nervous about it but would like to do it. He agreed, and said that he wished that I had had them out many years ago so that I would not have had to deal with all these problems all this time.

I asked about pain, and he looked at me, amused, and said "we do have drugs, you know. There is very little sadism in this profession!" (but I've heard it's pretty awful...)

He was so sweet, I just wanted to kiss him. I'm flat out scared of the surgery, though, so I'd love to hear from anyone else who has had this done, how it was, whether you feel that it was worth it.

Sorry for writing a book -- see what happens when you get banned!

Googoo1

KittyMom
08-13-2003, 06:54 PM
You can't recover from this quickly if you are older?

mwolffy
08-13-2003, 10:55 PM
I first started noticing the tonsil stones in my throat about a year ago. I just thought it was an infected throat. Went to the doctor and she pointed out it was a large stone and just told me to gargle.

I went home and pressed on the skin around it and more and more came out. It was about the size of a large grape.

After I became aware of these stinky things I began pressing on hard spots on the skin around my tonsils and found that large ones would dislodge themselves a few minutes later...And Yes, I became a tonsil digger.

I went to the ENT and she didnt seem too concerned, as my tonsils appeared very small, but agreed to take out my tonsils. I had the itchy ears and sore throats from this also.

Well, I got my tonsils out yesterday and if you keep up with the pain meds, its really not that bad even for my age (29). I'm glad I got them taken out. Once the doctor got in there to remove them, she found that they were the largest tonsils she had ever seen, they were so recessed that they appeared very small. The pits where the tonsils were was filled with tonsil stones. The ENT now thinks that they should have been removed a long time ago.

The ENT also said that these stones are not food. When examined under microscope, consist mostly of white blood cells and bacteria. When the tonsils are cryptic, they have nowhere to go and form into hard balls. Small stones are normal and are usually swallowed without the person noticing, but if you have very large ones it should probably be treated by a doctor.

googoo1
08-14-2003, 07:12 PM
Apparently the procedure is more difficult on adults. Here's a live journal from a guy who is keeping notes about his own experiences, very objective. The secret seems to be drinking and eating as much as possible to keep you strength up and keep things moving through your throat.

googoo1
08-15-2003, 12:41 PM
Sorry, I forgot, I can't post links -- um... it is an online service called Live Journal, and the person's username is moodvertigo. You do not have to pay any money to read his journal and it will be very helpful to anyone thinking about tonsillectomy for this problem.

Please don't ban me.

MargaritaP
08-15-2003, 04:00 PM
Well I am going through the same problem, i am 22 years old and have bad breath i don't know what to do. when ever i put a Q-tip in my tonsil it really stinks. I get all the white stuff out but it still does not help, I believe i got tonsil odor. And i also have post nasal drip it's driving me crazy, can someone please help.

princeta
08-15-2003, 11:36 PM
Originally posted by MargaritaP:
Well I am going through the same problem, i am 22 years old and have bad breath i don't know what to do. when ever i put a Q-tip in my tonsil it really stinks. I get all the white stuff out but it still does not help, I believe i got tonsil odor. And i also have post nasal drip it's driving me crazy, can someone please help.

hey i have the same problem as u, but i dont think i have post nasal drip. I do have chronic bad breath. Right now i am using this product called Tri-oral and it kind of solves the bad breath problem and but i dont think it has eliminated it. U can email at Tiflyer2@yahoo.com and we can talk about it more.

alyba
08-15-2003, 11:52 PM
Let's be frank. Tonsiloliths smell like dog poop. We sufferers have dog poop growing in our throats.

I'm a squeezer. I go to work on my left tonsil--the only culprit--every few nights after the kids are in bed. I use the other end of my toothbrush 'cause it's blunt, it's handy, and the toothbrush is nice and long enough to reach way back into my throat. I dip it in hydrogen peroxide first so as not to add any additional infection.

I always update my husband if I'm able to harvest a good crop of dog poop balls. He never has paid much attention to me, until I went into peels of laughter earlier tonight after reading some of the posts on this thread. Luckily, unlike some of you, I have never had one pop out into the wad of gum I'm chewing.

I did run upstairs and try the water pik idea. We usually use the water pik to irrigate my son's sinuses--a very handy application! But I tried it on my tonsils and got out several more nuggets, even after a very successful harvest earlier tonight. I believe I had a half tablespoon of tonsiloliths in there tonight, no exaggerating! That waterpik idea is a great one.

For those of you with post nasal drip, you might try irrigating your sinuses. It work terrifically. You do need to order a special attachment online for your water pik, but it's well worth it. Clears us sinus infections in a jiffy.

alyba
08-16-2003, 01:56 AM
I just did a bit of internet research and would like to share a few findings not noted elsewhere on this thread.
Tonsilliths are cause by "bacterial and epithelial debris" that accumulate in tonsil crypts. That means that they are made out of the tissue that forms the crypt--skin and mucus! That's just normal stuff found everywhere in your mouth; but in a crypt, sometimes the skin cells that are shed and mucus that is excreted can't get out and instead forms a little ball. Bacteria then mix with the skin and mucus cells and that what makes them smelly. Notice that they are definitely NOT simply particles of food that have lodged in your tonsils! They are formed inside the tonsil.

Here's something important and I think new to this thread: Some tonsilliths calcify. That means that "phosphate and carbonate of lime and magnesia" from your saliva (some people have more of these minerals in their saliva than other people do) mix with the ball of skin cells and bacteria. This makes the tonsillith get hard. They can even be seen on an ex-ray.

Some of us can push our tonsilliths out of the crypts. Others may have calcified tonsilliths that cannot be pushed out. Though they are medically harmless, they can get annoying and maybe kinda big. Several internet articles discuss curretage or surgery to remove the tonsillith itself, but not the tonsil! Maybe that is the answer for some of you that can feel a large mass in your tonsil but can't get it out. One internet article mentioned a tonsillith that was 7 cm long! Certainly not the norm!

Also, looks like tonsilloliths can form in the eustachian tube of the ear as well as on the back of your tongue--not always in your tonsils! That may be where they are coming from in some of you who can't see them forming in your tonsils.

It appears that 2-3% of the population gets tonsilloliths.

Also, as one article said, "because people often squeeze the stones between their fingers and become horrified by the smell, tonsilloliths may lead to halitophobia." It seems that just because you have tonsilloliths, that doesn't mean your breath smells the same way the tonsilloliths do! Notice that they really smell horrible only after you squish them.

So I think many of you should take heart. Be wary of "halitophobia." You probably don't have breath that smells nearly as bad as a squished up tonsillolith.

Finally, "laser cryptolysis" is the name of the procedure that seals tonsil crypts so that tonsillolith can't form in them. I didn't research far enough to be able to either recommend or warn against the procedure. Anyone ever have a laser cryptolysis?

MargaritaP
08-16-2003, 09:08 PM
can someone tell me what a ENT doctor is and is there one in Boston,MA. I been doing research but can't find one, my doctor said that it was just food stuck back there not to worry about it.

hatethenoodles
08-17-2003, 12:48 AM
First off, i have to say that i love this website. Its nice to know that ur not a freak and other people have this same problem. By the way, my username is "hate the noodles" because thats what i used to call these little stinky cream coloured critters up until a few days ago (found out they were called "tonsil stones").

Soo, finally onto my story. I've had these "tonsil stones" on and off for a very long time, never knowing what the heck they were, usually only seeing them after i sneezed. Just a few months ago, i felt something lodged in my throat, so i went looking around in there and peeking out of the right side of my mouth was one of these little critters (i finally found their breeding ground) and since then its been a digging fest. I usually use q-tips or my finger. Well be-ware, i poked at the right side a little too much trying to get one of these suckers and now i have a white blistery thing that is very painful. It hurts to eat or drink and i think there is one hiding/stuck behind this blister because when i'm trying to sleep i can feel it moving when i move. The doctor prescribed my Zithromax (a med for strep throat) just to see if that will solve this problem (which i don't think it will), if not its off the Ear/Nose/Throat doc to possibly get ride of it.

To all of those who have had their tonsils removed because of these tonsil stones: I read that sometimes it doesn't always solve this problem, is this true? Have you ever seen any since?

Thanks for reading. Sorry for the novel.

Still hating these noodles!!

GOOKYyUcK
08-17-2003, 06:21 PM
hi guys i posted a message awhile ago about these yucky things and since then i had my tonsils removed BOY O BOY no more tonsil stones so far lol everyone i talked t o about it told me how bad it hurt and how u can get excessive bleeding well im almost 16 and i was fine the first thing i said wheni woke up was CAN I GET A POPSICLE...ok so i have a lil bit of a sore throat no biggie and i am a really big baby about pain too...didnt cry once..although i lost 8.5 pounds from now eating much i should be back on track with my eating schedule soon and to all of u who have tonsil stonesthe best thing is getting them removed and the procedure is not as bad as it sounds its a breeze believe me the pain isnt even that bad trust me its coming from me "the cry baby" lol well to all of youwho refuse to get them removed HAPPY PICKING DAYS!! :) im out lovve me -no more gookyyuck-

Nick at Nite
08-18-2003, 03:27 PM
This is my last stop i have seen a number of ENT's and cannot get an answer i have a few question and thought maybe some of you out there could help.

this problem has been ongoing for 2 years with only a few days releif.

1. i have seen these tonsil stones in there and have removed them but just does not totally help the feeling of something stuck there is still threre is this possible after remocing the stones that the feeling is still there.

2. i have used a papaerclip waterpik injected novacaine, there is a lage hole in the left tonsil ( )
the papare clip goes al the way throug it and still no releif.

3. when i am chewing on food or eating i notice the feel less but afertwards it right back. is this a sign also.

4. i have had one ent doc say that it could have been from a prior herpatic viral infection and has left perament vocal cord damage but all the oters say she crazy.

5. when my nose is stuffed up like a cold symptom on that left side a have no pain in the tonsil could this still be tonsil stones. and the pain is just masked.

6. i have tons of flashlight and mirros with me all the time digging and pusing and pulling is this a makor sign or am i missing it again.

7. the doc say take them out and if it goes away this would be my answer. so i calle dthe one where my health insurance is with and he has changed his mind saying that he is reluccent to take them out but would do for me. this is the same doc taht said take them out to see if that is what it is,

8. what is going on in our medical field one opion after anoter i have seen 25 doctors in the last 2 years and have had 100 test and no one can help me with nada. that why i am here i look to my fellow computers. after all we started this system for things just like this.. not for doctors to bill us for their own reasons.

any and all replys welcome.

[This message has been edited by Nick at Nite (edited 08-20-2003).]

justice23
08-22-2003, 12:46 AM
Nick at Nite. You are in luck. All of us who read this board have this problem. These things are absolutely disgusting and we all feel your pain. Unfortunately there is not a cure for these things but you can fight them, ultimately you can stop having them by of course removing your tonsils. I feel however that they are caused by an underlying problem and I am 99% sure they are mainly caused by sinus drainage or lack thereof. Do you have any allerigies or weird feeling in the back of your throat? This is usually called Post nasal drip. PND is a pain and I believe it is the root cause of my tonsil stones. I am trying to fight them by irrigating my sinuses and using therabreath products. I have seen a significant decrease in them since starting my protocol. You might want to do this before having your tonsils removed.

-justice

bocian
08-25-2003, 09:36 PM
hi i must say this is truly a great board, anyways i have had thes little buggers for about a year now, a couple of weeks ago i took the end of my toothbrush and pressed my right tonsil, only this time i got it really good and these stones just stared shooting out, before when i tried to remove them i would only be able to get one or two, and the discomfort( we all know what i mean) would only "kind of" go away but this time the discomfort has almost totally gone away and i havent seen them come back. Hopefully they never do!

q-tip2
08-26-2003, 09:27 AM
I've also have had this problem for many years now, but it was only few years ago that i discovered that they were tonsil stones. I was convinced that I had some sort of cyst or polyp growing in my throat.

I think the thing that makes it so hard to find for me is that there is such a disconnect between where you 'feel' them, and where they actually are. So even after i discovered them, i kept flushing the back of my throat with a waterpik (with a salt water solution)... and although there was plenty of stones there, i never felt relief. (that nagging feeling that something's stuck in your throat)

Then, i FINALLY found that there was another crypt right where the tongue meets the base of the throat. And since it was under the tongue, it would never dislodge itself. But it was reachable with my waterpik.

So any of you out there who find the stones, but don't feel complete relief after you squeeze them out, if might not be that there's more, just deeper in, it might actually be in another hole altogether, nowhere near your tonsils. For me it was in the crevice between the tongue and throat.

Moral of the story?
Not necessarily tonsils...
Use a waterpik with a warm saltwater solution


But you know what the strange thing is? Its only my left one that bothers me too! My right one occasionally gets it, but i never 'feel' it there.

strange...

Tallone82
08-27-2003, 03:01 PM
Originally posted by MarlinSmith:
The surgery wasn't any fun, but it should have been done sooner.]


I just want to know was the pain that bad afterwards?


[This message has been edited by Tallone82 (edited 08-27-2003).]

simplcyman
08-27-2003, 07:20 PM
I had my tonsils removed 10 days ago, and today is the first day I've felt any true relief. The surgery wasn't bad. Of course you're sedated with some really good medicine as you’re being wheeled into the room, and then you’re totally knocked out. But upon waking up, I discovered a very painful sore throat, worse than strep. There hasn't been much bleeding at all, but it has been rather painful. I'm 28 years old, and even though I've read some previous older folks say they didn't suffer too much, I can't lie and say it was the same for me. Please don’t get me wrong; I still think it's 100% worth it and I would do it again in a heartbeat. Those things are nasty, and my tonsils were causing me problems. I was finding them every day or so, and I was having to suck the "stones" out of the back of my throat because I gag too much to stick something back there. I just figured I'd weigh in and let y'all know that there's a chance it will hurt. You just have to drink and eat a lot. For me, I've had to eat really soft stuff like mac and cheese, fettuccine alfredo, applesauce, jello, homemade chocolate milkshakes and pudding. But tonight I'm going to attempt to scarf down a cheeseburger. Frankly, I've been staring at the television this whole time, and it seems like all they show are fast food ads. That's been torture!!
Anyway, I don't know if mine is the worst case scenario. I would highly recommend this surgery to anyone, although it might hurt for a few days and you might not be able to work or talk a whole lot. Just get a Magna Doodle, have a caring person around to play nurse, take your hydrocodone meds, drink plenty of non-carbonated stuff, and you'll be fine.

summer44
08-27-2003, 07:45 PM
A quick survey:

I have noticed that only one of my nostrals is clear at any given time. Meaning that I can breathe easily through one nostral while the other one seems stuffed up abit. They switch back and forth...one will be clear and other one will then feel stuffed up....just wondering if anyone else has this problem as maybe it relates to the tonsil stone things

Kalis
08-28-2003, 01:27 PM
Yes, I too suffer from tonsil stones. I ways very surprised to find this board, it's wonderful!! For the past two weeks my left tonsil has been swollen, no fever, no headache, everything was great but for the swelling. I have suffered from tonsil stones for several years, and my tonsil has never been swollen. Has anyone else had this happen?

I'm taking antibiotics and ran out and bought a waterpik today - it was wonderful!!! Added mouthwash and got out several tonsil stones from the swollen tonsil. Do you guys think that this is what is causing the swelling? My doctor is of the food particle club and doesn't seem to get it.

[This message has been edited by Kalis (edited 08-28-2003).]

spangle50
08-28-2003, 06:09 PM
It is really great and really sad to find this place and learn that there are so many of us. I have had stones for a few years now. My method was the Q-Tip until I bought a water pick about a year ago. One of my tonsils is always very big. After reading your thoughts on tonsil removal, I decided to go to an ENT and see if they would allow this for me. I have heard that many of you have been turned down for the surgery because of your age. I turn 23 next month so I went with my fingers crossed.

Ahhh, he said I could have my tonsils out. He said that the holes would never shut and since the swollen tonsil was obstructing my breathing, he would be happy to rid me of this horrible lifestyle. I also have to do a sleep test and an allergy test before the surgery. It seems that my tonsil check revealed that I might have sleep apnea, a deviated septum, and terrible chemical allergies.

I will try to keep you all updated on when my surgery is scheduled and how I do with the pain. If you have had your tonsils out before please let me know what was good to eat or any thing that you did or learned that made recovery easier. I am pretty nervous but very excited. I love reading your stories so please keep posting.

Melissa


[This message has been edited by spangle50 (edited 08-28-2003).]

lrex
08-29-2003, 05:04 AM
My tonsils will be gone within a week.A few words on tonsil stones: I have had them for a long, long time. Several years ago, I tried to look up information on "tonsiloliths" and found very little useful information. A few words on therabreath: I was really ANNOYED by the fact that therabreath was coming up on every single search for tonsiloliths on yahoo/google, etc. I felt like they were trying to exploit tonsil stone sufferers. But, I will say that the product actually works. I am not trying to "endorse" it like I suspect some people posting here have done. To be honest, it is expensive and tastes like water. BUT...it really does eliminate morning breath and bad taste, etc.. I was amazed. HOWEVER, I am still having my tonsils taken out. This is due to the fact that if the tonsils are gone, then the stones are gone. I don't believe the therabreath party line about how "bad breath starts at the back of the tongue" and removing tonsils will not help. Whatever!Waterpik info: I have been doing that for years and it really works well. I take a large handmirror and a strong bright light on a tripod. I aim the light into my mouth and with the mirror, I stick the end of the waterpik into the tonsil crypt on a low setting. The first time I did it, a lot of stuff came out and it was disgusting.I usually spit the water out into a glass so I can see exactly how much is there. I am really tired of doing that, to be honest. I have gone through about 5 waterpik machines and they are expensive. (They tend to stop working after a few months...then you conveniently have to BUY another one)ALSO, an alternative method which I have been using lately is with a Tweezerman stainless steel EXTRACTOR tool, available at a beauty supply shop or online. It is a little stick with a metal loop on either end. It is small and fits perfectly into a tonsil crypt. Plus, you can sanitize it.You can use this to pick out the stones and it is smaller than a q-tip, which I feel might actually push the stones further in rather than extract them. I hope this information helps.

Veritas
08-29-2003, 05:24 AM
Ahh, this board is wonderfully therapeutic.

Here's what I've tried thus far - hope it gives a new idea/viewpoint. (just reread it - sorry I sound so frustrated! I'll work on that.)

From the age of 16, I've had the agonizing affliction of these nasty thingies. I mentioned them to my dad, who told me that he had them too, and that his doctor just advised him to gargle with salt water.

Ack! Now there's a fun long-term, lifetime treatment. :-P Though it does help.

So now at age 31, I've talked to doctors specifically about that ick in my throat four times. The first time the health services nurse (was doing a summer internship for a big company) heard out my story and treated me extremely sympathetically. UNTIL I opened wide to show her my tonsils. Believe it or not, she proceeded to angrily ream me out for whining - how could I have any problems with such small tonsils?! (I'm still trying to think of some snappy withering response, but just console myself that someday I'll just get over the humiliation. Don't let yourself feel humiliated!)

And in grad school, I asked a doc in Student Health what it was, and what I could do. He gave it a name: "crevacious tonsils" - and said to ...gargle with salt water! (ack!) Made Dad look good for having had the right answer. But I still don't like gargling with salt water. (btw, GOOGLE actually showed _no matches_ when I searched for "crevacious tonsils" - seemed strange)

I've always pushed and prodded my tonsils with my index fingernails, mostly when in the shower. Works pretty well, especially when I need to get in behind them to push from a different direction to try to force the crud out. Got over the gag reflex fairly early, though sometimes I get too aggressive/desparate and end up coughing and gagging. My poor husband - I try to hide it from him 'cause it REALLY grosses him out (though he's really sweet and understanding!).

So in the last four years, I've really gotten to the point of just wanting my tonsils GONE GONE GONE. But then, I've always believed in better living through technology, more or less. Just had my eyes lasik'd (LOVE it!!!), and am just finishing up my second go-round of Norplant (LOVED it!! Pestilence upon the falsely litigious that forced the product to be yanked.) And whenever they start beta-testing implantable memory chips, I'll be there checking into it.

It's so comforting to hear of everyone having similar troubles along with the tonsiliths... death breath, sore throats, swollen glands, itchy spots on the back of the throat and deep in the ears where you can't itch it and it keeps you awake all night with the coughing... torture!

Waterpik? maybe my tonsils are too small or recessed, but I couldn't seem to dislodge anything with it - not for lack of trying. And messy... I guess I'm not very coordinated with the thing - I end up spraying the water EVERYWHERE. I'm glad that it seems to work well for a lot of people, though.

Listerine helps, though I'm now wondering if it temporarily helps melt away some of the post-nasal drip (yep, got that too).

My third doc visit was to my primary care physician at Kaiser. He thought that not much could be done for me (recommended BOTH salt-water gargles AND waterpikking - ack!), but agreed to refer me to a Kaiser ENT.

Fourth visit: the Kaiser ENT. The verdict: salt-water gargles and waterpikking! Ack!!! I requested a referral to get my tonsils out.. he deferred. I begged. He said no way. (I believe this opinion varies wildly from physician to physician.) He explained that a)it's considered a cosmetic surgery in my case, and b)there is a minute chance of uncontrollable bleeding. Even though I told him a)I'm more than willing to pay for it (I think he estimated $3-4000 - anybody know the real costs?), and b)I'm definitely willing to take the small physical risk (which sounded far less than driving on the freeway, when I pressed him for statistics), he still refused to refer me to a physician within Kaiser. *sigh*

And I haven't yet researched a new non-Kaiser ENT, since I was starting to think that it might be hopeless. Hopeless, that is, UNTIL I came across this message board... thank you, thank you, thank you!!!

I'll call around soon and see what the options might be - wish me luck!

****oo much attention has been paid to making education attractive by smoothing the path as compared with inducing strenuous voluntary effort.
--Abbott Lowell

neen01
08-29-2003, 03:47 PM
i have to agree, thanks to the internet to quickly discover what it was i had. only the past year or so i noticed it and over the last month have been really bothered by it. I am glad to learn all of this so i can start thinking of a solution early on instead of years and years later
i had a question that i think is unrelated but i figured i would ask...since this seems to be a throat problem and a couple people have mentioned things with their ears as a result i was wondering if anyone thought this could be at all related to or make worse motion sickness...it just seems that over time i have gotten less tolerant of boats, cars, and amusement rides...wondering if it could be related since it is close to the ear/inner ear....
well pretty sure its a separate problem but nevertheless had to throw it out there to see...i also have the itchy throat/ear thing in the past along with coughing up these things and only after reading the posts realize that i may have had ones that i could not see before and that this may have been going on for a while
ok well thanks for all your help and info

Mich4
08-31-2003, 10:48 PM
I made my tonsil bleed tonight I think from poking in there to get a little stone out. Has anyone else done this? I do have nails so I could have scraped it, but I am scared that it's cancer. My ent says cancer would cause my tonsil to enlarge, but mine is shrinking and has holes all through it. It has been over a year now that i have been having pain and discomfort on the right side of my throat. Never my left.
I do get little stones out every few days. They are so small. The size of a pinhead, maybe a little larger. I keep thinking they should be huge or they wouldn't be causing me discomfort. Are anyone elses quite small. My left tonsil never has them and is never sore.
Thanks for any input.
Mich4

Mich4
08-31-2003, 10:49 PM
I made my tonsil bleed tonight I think from poking in there to get a little stone out. Has anyone else done this? I do have nails so I could have scraped it, but I am scared that it's cancer. My ent says cancer would cause my tonsil to enlarge, but mine is shrinking and has holes all through it. It has been over a year now that i have been having pain and discomfort on the right side of my throat. Never my left.
I do get little stones out every few days. They are so small. The size of a pinhead, maybe a little larger. I keep thinking they should be huge or they wouldn't be causing me discomfort. Are anyone elses quite small. My left tonsil never has them and is never sore.
Thanks for any input.
Mich4

Kat123456
09-01-2003, 03:43 AM
recently developed a whoppin case of tonsil stones as a result of terrible pregnancy symptoms : acid indigestion, post nasal drip, swollen membranes, etc. These stones are driving me insane...I will get my tonsils removed after the baby is born....if I continue to get these stones with the absence of these ENT pregnancy symptoms. Thank you for your comments on this message board -- it has helped to educate me on this topic! Very curious about a comment made a while back about skin rashes in conjunction with tonsil stones...does anyone have any thoughts about a possible correlation between the two?

hatethenoodles
09-01-2003, 11:57 AM
Don't worry Mich4, I too have poked my tonsils soo much that they have bled (it's from the nails). I ended up getting a painful blistery thing on my tonsils because of the picky and poking. Now every time I try to get them out, I bleed and get those blisters. I even noticed a few white bumbs around that area (right tonsil) that don't want to leave.

I do have an appointment with an ENT in a few weeks, I will beg him to take out my tonsils if he refuses. I am sick of having these stinky little critters and more so now because it hurts to poke them out.

Thanks again to all who write to this forum, it's nice to know that your not alone on this one.

Tonsil-less in WI
09-01-2003, 01:00 PM
ChristinaD,
I also have dealt with this since I was a child and it is horrible. I had my tonsils out on 07/21/03, which is a whole other story, but in order to deal with the tonsils stones and not remove your tonsils, a Water Pik works well. I actually was advised by my dentist to do this, however, it is a temporary fix, eventually it is better to do a permanent fix, in my opinion of course, because the tonsil stones I dealt with eventually always became infection if I could not get them out... so it is up to you.
Good luck!

------------------
Cindy

shaker
09-01-2003, 05:07 PM
another excited newbie joining in here.

24years, moderate smoker and to my knowledge completely healthy but then I rarely go to see a doctor and I was so far mostly on the lucky side of things if it comes to my health.

however the bad breath thing really annoys me. I am in the music industry and am forced to communicate with people - mostly in loud environments such as clubs. I constantly chew gums and worry about my breath and the tonsil stones or whatever you wanna call them drive me mad!!!

reading the posts is somewhat assuring of my problem and seing that people use similar tactics to get rid of em is funny and depressing all the same.

however I wonder why nobody has started to ask our fellow tonsile haters what we have in common other than the actual problem.

what I mean is try to find certain patterns (like smoking for example) that could eventually point towards the problem orgin. I don't believe it's an enormous malfunction as nearly everyone has them but what makes them come more often and more severe.

it would need a whole research on something like that I know but seing that there's a ton of posts of different people it could help trying to find some sort of pattern of behavour that worsens the problem.

so here's a start:

age: 24
sex: male
average drinker,
- always sleep on back (I think this might be an important issue!)
- eat: milk, meat, bread, cheese.. anything really
- ear problems: some (lots of music hence stress for the ear) but no severe hearing issues
- mouth hygiene: at least 3 times a day teeth brushing, lots of chewing gums, drink lots
- teath fully ok, never any problems at all
- post nasal drip: if that's all the slime coming down from my nose into my mouse then yes

that's a start I think, I really have a suspicion that some behaviour patterns worsent he problem. and maybe (if that's allowed to ask) fill the above questions in for everyone to see in the forum.




[This message has been edited by shaker (edited 09-02-2003).]

Mich4
09-02-2003, 10:23 PM
Sorry, just a vent. This sore throat has now been over a year. Only on the left side. It kills somedays. It's always there, but some days are not too bad. I pick out these little tiny stones almost daily, do the little ones hurt like this?? Anyone else with little tiny stones?
On another note, has anyone ever looked in their throat in great detail. The left side of mine looks funny. The tonsil seem smaller (the one with the stones) on the left side, but the glands seem a little swollen.

Thanks for listening,

samuelJ
09-03-2003, 07:06 PM
I've got these things too. Tonsil stones. I've been getting them for about six months. At first I was coughing them up every now and then, and I was thinking to myself, "What the hell?" Well, anyway, after smelling one of them, (you know you gotta examine everything that comes off of your body, with all of the five senses!) I realized that these things could be adversly affecting my breath. After this, I became EXTREMELY self-conscious about my breath. I can hardly communicate with anyone in person anymore. I can't concentrate when I talk to anyone; all I can think about is how bad my breath is. I can't make new friends, and can barely talk to the old ones. It's ruining my social life. :(

I find that the best way to remove them is with a toothpick, but not a sharp one. I prefer the multi-colored 100 pack that comes in a plastic cylindrical container. Green. I use the green ones. They're more neutral than red or yellow. What I do is insert one end of the toothpick into the TOP pocket where they are hiding, about 2mm inside. After that, I angle the green toothpick downward, trying to have the tip of the toothpick at the back of the stone, to push it out. They come out whole this way. I get a hardly-fathomable, deep feeling of relief and satisfaction when I remove objects like this whole. It's almost euphoric. This way, they don't get squished (that's when they smell very bad), and they don't polute your mouth with that wretched stink of decay that makes you want to spend the next 30 minutes of your life with your head in the toilet bowl wishing you were dead while your partially digested food/gastric acid combination is reintroduced to the world, one sphincter contraction at a time.

[This message has been edited by samuelJ (edited 09-03-2003).]

larger2day
09-03-2003, 07:45 PM
I'm getting a tonsillectomy this Friday because of several sore throats and infections and ****. Well I'll post about the recovery. I'm 18/m so for any of you who are also getting a tonsillectomy but are not sure, let me be the guinea pig and tell you how it feels, feel free to ask me anything larger2day@hotmail.com

sap
09-05-2003, 02:09 AM
i've gotten pretty good at getting these things out using my tongue. though recently, there's this flap of skin that's covering my right tonsil that prevents me from doing so. the whole thing is swollen and red and it hurts a lot.. even if i like yawn or open my mouth all the way. my left tonsil though? perfectly fine. anyone else have that?

mega_me
09-07-2003, 08:59 PM
I am soooo glad I just found this website! Thank you all! I have had this problem since I was about 16 (after I had mono) and I am now almost 28. I have noticed that the holes in my tonsils have gotten worse, and wonder if I need to have them removed simply for that reason. My daughter had hers removed when she was 3, and it was horrible on her. I don't want to go thru that!! But lately I've noticed that I've been excessively tired, headaches and clenching my teeth too...could this all be related? I have gotten good at removing these little things with a toothpick or some other long object, and when I did the other day, it was HUGE! I wouldn't call it little at all!
Oh, and also, my boyfriend always complained about my breath because I smoke, and I would brush & use Listerine, etc...and he would still complain. I think I have figured out that this could be the problem. Sometimes I worry that my tonsil is ROTTING because of the holes.
Thanks again!
Meg

Leeann7474
09-08-2003, 01:37 PM
Hello, This was an interesting read. I just read through all 5 pages. I think the reason this is not a popular subject is because people are imbarrassed about it. It is not something people like to tell their friends about. However, after getting over my pride :) I actually started telling people about these tonsil stones and come to find out, there are a lot of people that actually DO have them, people that I was actually surprised would have them.
Anyway, I am 33 and have had them since I was a child. The older I get, the worse they get. I have tried everything imaginable. I even tried the therabreath oxygen rinses and nose drops, i did the salt water gargles, antibiotics, the waterpick, digging them out, I still have them to this day! By the way, the oxygen rinses get very expensive, they alleviate it temporarily though, you will have to buy this stuff the rest of your life. My problem is, I always get really bad sore throats after I get one of these things. And after I am able to dislodge it, the sore throat will go away. I have had chronic sore throats from this my whole life and i miss a lot of work, use to miss a lot of school. it is bad enough to bring my quality of life way down. even depressing. After many attemps to remedy myself, I was very against surgery, but I just went and saw an ENT doctor and was telling him about my chronic sore throats, I even get fever and body aches, the first thing he asked me was, "Do you get hard little white specs on your tonsils?" And I said, wow! You know about them? He went on to explain what they were, about the mucous and bacteria and all. He said in my case he recommends getting my tonsils out. He said medicine will not cure it. It will only temporarily relieve the symptoms and they always come back. I think the people who are in my shoes and have come to a breaking point where they are desperate, are the ones who end up getting their tonsils out. I have noticed that every person who went with that, never regretted it. Everyone I talk to says they are glad they got their tonsils out. Everyone else that trys other things are still stuck doing all these gargles and stuff, probably for the rest of their life. I find it too expensive to use herbs and web site rinses. It is tedious to spend all this time on such an annoying problem, when people with normal tonsils don't have to worry about all this. I am looking into getting the surgery next month. I am concerned because I am 33 yrs old. But I would rather deal with a couple of weeks of pain, than to have a poor quality of life the rest of my life.

here are my answers to the little poll:
age: 33
sex: female
non-drinker, non smoker
- only sleep on my sides
- eat: whole grains, vegetables, fruit, meat(no dairy)
- ear problems: some itching
- mouth hygiene: brush twice a day, no gum chewing, drink lots of water
- teeth ok
- post nasal drip: yes - it is inherited for me

I will continue to post with follow ups about getting the surgery. So far, my decision is weighing heavily on getting the tonsils out.

If anyone else that is older got their tonsils out and are having satisfactory or unsatisfactory results, please post!!!

googoo1
09-08-2003, 06:13 PM
age: 33
sex: female
drink: social drinker (wine or beer, nothing harder)
smoke: non smoker (yuk!)
sleep: mainly on sides, but back and front as well -- I guess I roll around a lot!
eat: The usual, not much red meat, but not enough veggies. Lots of fruit. Love sushi. I do eat dairy. I do not drink coffee.
ear problems: some itching
mouth hygiene: absolutely obsessive. Brush at least three times a day, in addition to tongue scraping, flossing, sinus irrigation, and gargling. Anything to get rid of that yucky taste!
condition of teeth: remarkably good (see "obsessive" above) My hygenist loves me.
post nasal drip: yes, but the sinus irrigation helps.


I am getting my tonsils out next month. I am scared of the recovery, but thrilled to be rid of these nasty things. I know, I know, they're a part of my body, they're there for a reason, but as far as I have seen in my adult life they've been nothin' but trouble. I will post my experiences of the surgery and recovery, and look forward to reading everyone else's. There's also a thread on tonsillectomy on this board, so we should all probably check in there, too.

googoo1
09-08-2003, 06:14 PM
age: 33
sex: female
drink: social drinker (wine or beer, nothing harder)
smoke: non smoker (yuk!)
sleep: mainly on sides, but back and front as well -- I guess I roll around a lot!
eat: The usual, not much red meat, but not enough veggies. Lots of fruit. Love sushi. I do eat dairy. I do not drink coffee.
ear problems: some itching
mouth hygiene: absolutely obsessive. Brush at least three times a day, in addition to tongue scraping, flossing, sinus irrigation, and gargling. Anything to get rid of that yucky taste!
condition of teeth: remarkably good (see "obsessive" above) My hygenist loves me.
post nasal drip: yes, but the sinus irrigation helps.


I am getting my tonsils out next month. I am scared of the recovery, but thrilled to be rid of these nasty things. I know, I know, they're a part of my body, they're there for a reason, but as far as I have seen in my adult life they've been nothin' but trouble. I will post my experiences of the surgery and recovery, and look forward to reading everyone else's. There's also a thread on tonsillectomy on this board, so we should all probably check in there, too.

googoo1
09-08-2003, 06:15 PM
age: 33
sex: female
drink: social drinker (wine or beer, nothing harder)
smoke: non smoker (yuk!)
sleep: mainly on sides, but back and front as well -- I guess I roll around a lot!
eat: The usual, not much red meat, but not enough veggies. Lots of fruit. Love sushi. I do eat dairy. I do not drink coffee.
ear problems: some itching
mouth hygiene: absolutely obsessive. Brush at least three times a day, in addition to tongue scraping, flossing, sinus irrigation, and gargling. Anything to get rid of that yucky taste!
condition of teeth: remarkably good (see "obsessive" above) My hygenist loves me.
post nasal drip: yes, but the sinus irrigation helps.


I am getting my tonsils out next month. I am scared of the recovery, but thrilled to be rid of these nasty things. I know, I know, they're a part of my body, they're there for a reason, but as far as I have seen in my adult life they've been nothin' but trouble. I will post my experiences of the surgery and recovery, and look forward to reading everyone else's. There's also a thread on tonsillectomy on this board, so we should all probably check in there, too.

amazinderek
09-09-2003, 02:24 AM
Here's a story about how my tonsil stones came about.

One day, I went to MacDonald's and bought some fries. As I was eating them, one of those sharp fries (the ones with the skinny end that cooks longer and becomes really crispy and pointy) jammed into my tonsil and got stuck in there. At the time, though, I had *NO IDEA* where this fry was! One week goes by, and I still have this fry stuck in my head somewhere! Two weeks, still there somewhere!

I started getting scared. If my head gets infected, there's nothing they can chop off to save my life... I'm toast! Trying to figure out where this fry was, I guessed that it was in the back of my nasal cavity. In vain, I started digging around with my fingers *IN MY NASAL CAVITY FROM THE INSIDE*!! Pure pain but no fry.

Getting really desperate, I figured it was time for some drastic measures... I had to kill the infection at all costs. Taking a mouthful of Listerine, I slowly turned myself upsidedown and then snorted the mouthful back through my nasal cavity and out my nose. THAT WAS PAIN AT A LEVEL IN WHICH I HAD NEVER EXPERIENCED!!! ... but still no fry.

A week later, I laid down to go to bed and found something in the back of my mouth. It was the fry!!! It was huge and I still didn't know where the heck it was hiding all these weeks! But, ever since that episode, I have had these tonsil stones and they're driving me nuts.

After much research, I have begun to gargle salt water all the time now (please, do not recommend Listerine as I have a mortal fear of it now). Also, whenever I brush my teeth I give the back of my throat and my tonsils a good scrubbing - that usually pops out a few of those stones. I have not done this for long enough to know if I'll find success, but I really hope so!

Derek

Aliveandkickin
09-09-2003, 04:21 AM
I'm 32, male - I've gotten the tonsil stone shuffle down to an art form.

1. Use the blunt (handle) end of a thin tooth brush to gently press the sides of the tonsil, squeezing the stones out. Before this, soak the tooth brush end in Listerine to kill the germs, and gargle Listerine after the shuffle. Before I started soaking the tooth brush in Listerine the shuffle always made my throat sore. Now it never gets sore.

2. Use a small flashlight!

First time I got these I was about 15 - I had about 12 of them come out all at once!

When I was 16 I got a stone in my saliva duct under my tongue - like a tonsil stone but harder like a real stone pebble. It got stuck behind one of the two little holes under my tongue for about a week and at times blocked the saliva until my saliva gland swelled painfully. I kept trying to force it out with my tongue/finger until broke through the skin and created another hole right behind the original small duct hole, except the new hole was much bigger! Instead of a pinhole its like the size of a toothpick hole. This created problems with too much saliva in my mouth all the time - always having to swallow. The hole is still there.

bestxmama
09-11-2003, 02:37 AM
I reached this site in desparation. After years of suffering white tonsil spots and strange looking crevasses in my tonsils, Tonight, I came, I saw I squeezed.

I must have got like 10 or 12 of the stones out. They kept coming and coming and I thought i was some kind of alien.

Now I know there are probably better tools that a q-tip.

I have had a doctor mention in a routine visit that my tonsils were very big and scarred. I got tonisilitis all the time as a kid. Once they threatened to remove my tonsils, but i got better just before we had to make the decision.

I get the post-nasal stuff, but i don't know if the tonsil stones or the dripping comes first. Chicken or the egg dilemma there.

As for adding another colorful term to this message board, I call that noxious odor "the dead squirrel taste." Please note that this terminology has never been formally tested!

Sean F
09-11-2003, 01:25 PM
Hi, just doing some research on the tonsils stones and came across this board, so of course I felt compelled to share. Really just wondering if there is an "offical" name for this stuff. I've been getting them for years, mostly in my left tonsil, which has some big pits. When I first noticed it in college, I had the usual surprised/disgusted reaction - the smell is quite foul. I would then proceed to pick/pop/dig out with a Q-tip what didn't come out on its own. I have mentioned it to different general practice Dr's over the years and was told all kinds of different things. I eventually saw an ENT for sinus-related trouble and asked him about the tonsil stuff. He said it was infection-related material from the tonsils basically doing their job of destroying bacteria and stuff in the body and there was no need to be alarmed about it, just clean them out. The only symptom I will have that I'm aware of is a sore throat. He said the best thing to do is to use a water-pik or something similar and flush them out periodically. When you do this you need to make sure to start out with the control on the lowest setting, the water jet can quickly cut the soft tonsil tissue and make them bleed if you turn it up too strong. I just take the end of the pik and stick it up close to the tonsil pit and it flushes the gunk right out. Just make sure to stand over the sink! This has worked a lot better for me than the pick/pop/dig method. Last week I had gotten a sore throat but had forgotten to check the pits, so when it finally dawned on me the other day, sure enough, it was loaded. Washed the stuff out, gargled with some Listerene, and sore throat is gone. With me the stuff just seems to build up over a few months time.

As a side note, I would recommend the irrigator that comes on the Oral-B instead of the Water-Pik. I had an O-B one which worked great, then the battery got to where it wouldn't recharge so I trashed it. Then I had sinus surgery and had to buy a special irrigator wand which would only fit on a Water-Pik. It is great for flushing out the maxillary sinuses, but the O-B worked better on the tonsils for me. Seems like I could use a stronger stream of water without cutting the tonsil tissue like the WP will do. But don't worry, if you make them bleed a little it will scab up and heal in a few days. Once you get "adept" at "tonsil-flushing", you can wash the stuff out quickly without hardly having to look. You need to try to keep your tonsils if you can. Hope this helps someone. We ought to start a club if there isn't one - should make for some interesting newsletter articles - HAHAHA (yuck!)
Sean

Sean F
09-11-2003, 01:26 PM
Hi, just doing some research on the tonsils stones and came across this board, so of course I felt compelled to share. Really just wondering if there is an "offical" name for this stuff. I've been getting them for years, mostly in my left tonsil, which has some big pits. When I first noticed it in college, I had the usual surprised/disgusted reaction - the smell is quite foul. I would then proceed to pick/pop/dig out with a Q-tip what didn't come out on its own. I have mentioned it to different general practice Dr's over the years and was told all kinds of different things. I eventually saw an ENT for sinus-related trouble and asked him about the tonsil stuff. He said it was infection-related material from the tonsils basically doing their job of destroying bacteria and stuff in the body and there was no need to be alarmed about it, just clean them out. The only symptom I will have that I'm aware of is a sore throat. He said the best thing to do is to use a water-pik or something similar and flush them out periodically. When you do this you need to make sure to start out with the control on the lowest setting, the water jet can quickly cut the soft tonsil tissue and make them bleed if you turn it up too strong. I just take the end of the pik and stick it up close to the tonsil pit and it flushes the gunk right out. Just make sure to stand over the sink! This has worked a lot better for me than the pick/pop/dig method. Last week I had gotten a sore throat but had forgotten to check the pits, so when it finally dawned on me the other day, sure enough, it was loaded. Washed the stuff out, gargled with some Listerene, and sore throat is gone. With me the stuff just seems to build up over a few months time.

As a side note, I would recommend the irrigator that comes on the Oral-B instead of the Water-Pik. I had an O-B one which worked great, then the battery got to where it wouldn't recharge so I trashed it. Then I had sinus surgery and had to buy a special irrigator wand which would only fit on a Water-Pik. It is great for flushing out the maxillary sinuses, but the O-B worked better on the tonsils for me. Seems like I could use a stronger stream of water without cutting the tonsil tissue like the WP will do. But don't worry, if you make them bleed a little it will scab up and heal in a few days. Once you get "adept" at "tonsil-flushing", you can wash the stuff out quickly without hardly having to look. You need to try to keep your tonsils if you can. Hope this helps someone. We ought to start a club if there isn't one - should make for some interesting newsletter articles - HAHAHA (yuck!)
Sean

Susannah
09-11-2003, 02:29 PM
First of all, to the last poster: the official name of them is tonsiloliths. I'm surprised to hear about all of the people saying they've gone to the doctor and the doctor didn't know what they were. I've been to an ENT, and my husband's been to another, and immediately both told us they were tonsiloliths and they're related to an infection in the tonsil, and unless we were getting them all the time, not to worry about them. We stopped worrying, since we only get them occassionally (one every 2 to 3 months).

However, while I was reading this board, something occurrred to me that I hadn't thought about before. I never really associated this until now. My husband and I have both been using Desert Essence brand tea tree oil toothpaste and mouthwash now for about 6 months. And, you know what, neither one of us has had a tonsilolith during that time.

Oh, and my best method for getting them out is just suction with my mouth, until I can see the white poking through, them I squeeze with the blunt end of a toothbrush. I used to use tweezers to squeeze, or the pointy end of a metal fingernail file, but those were both too harsh and sometimes made my tonsil bleed. My husband and I thought about getting a water pick (my husband's ENT had suggested it), but we didn't spend the money, since we don't get them that often.

Susannah

bestxmama
09-12-2003, 12:07 AM
Update: I went ahead and got a water pick, but had a lot of trouble maneuvering the thing. If anything, the shape of the pick helps to dig out the buggers. The water just squirts all over the place.


Does anyone know if cleaning may produce more stones? I just figured out what this stuff was yesterday and it seems to have no end. Everytime I think i've gotten it all out, i give a little nudge and there is more.

Also, anyone heard about the laser procedure to shrink the holes? It's relatively new, I think.

sohappy2know
09-15-2003, 01:33 AM
I have had these things too long and now they are coming out next month.I would like hear from any of you who have had yours removed recently. Just want to know what to look for as far as pain goes. I'm 22 and have had this problem for years now. Anyway if anyone would like to share there stories e-mail at blondy65@netzero.net. Thanxs

cece766
09-16-2003, 06:46 PM
I am so glad I found this forum. I have had these things for about 2 years and they are driving me crazy. They are also reeking havoc on my marriage. I don't want my husband to kiss me because of the smell. I work for PartyLite and do in-home parties. I'm constantly chewing gum because I don't want to offend anyone.

I went to an ENT finally. He was amazed that I knew what these things were called. He said they are caused usually from sore throats, strep and other throat infections when you're a kid. Which I had a lot of including mono. Basically he said the only sure cure is to take out your tonsils. Other things work a little bit or not at all. He also told me something scary ( Don't everyone freak out!) He removed a lady's tonsils because of this problem and found that instead of the tonsiliths exiting into her mouth, they were creating a cavity behind her tonsil and accumulating there. I think that is an extreme case, but I wanted to share it.

Needless to say I am scheduled for surgery Oct 2. I'm really nervous (mostly because I'm 37), but happy to get this over with. At least my kids will be happy I can't yell at them that week.

[This message has been edited by cece766 (edited 09-16-2003).]

Brigetta
09-17-2003, 12:43 AM
Man!!! I've been going crazy with this strange, hard sensation on the left side of my throat. (Yes, like so many of you, it's the left tonsil that has a hole and causes me so much trouble.)

I went to a doctor and was told it was TMJ. But the other day I saw this white stuff inside the crypt, which was hard and wouldn't be dislodged. Now I'm wondering if this hard, nagging sensation isn't tonsil stones.

Jeesh. I can't believe so many people are going through this. And here I felt like a crazy woman.

Leeann7474
09-17-2003, 10:42 AM
Originally posted by cece766:
Needless to say I am scheduled for surgery Oct 2. I'm really nervous (mostly because I'm 37), but happy to get this over with. At least my kids will be happy I can't yell at them that week.

[This message has been edited by cece766 (edited 09-16-2003).]

So your surgery is Oct 2? I was planning on getting mine out the beginning of Oct also, but we have a family reunion on the 10th and I don't want to be in recovery phase during this time, as I hear it takes about 2 weeks to heal from it. I am 33 and going to get mine out in Oct also. It would be great if you could post back here with the results of your surgery, because I know a lot of us are considering this too. Thanks a bunch!

Lemming
09-17-2003, 07:52 PM
I just started getting them last week. Is there any over the counter products that work to keep them from comming back?

Tonsilithic Proportions
09-17-2003, 09:12 PM
I'm glad I found this site, as I had begun to think I was the only one in the world with this problem. I'm glad to share my experience with you.

I'm 29 years old now, and started getting these about 6 years ago after having sinus surgery. The doctor created additional drainage canals for the mucous to get from the sinuses into the throat (lovely, I know). It was probably a month after having the surgical gauze removed from my sinuses that I got my first one.

I usually notice them after eating rice or some bread products, and always thought they were just particles of food that got stuck in the throat and started rotting there as a result. I notice I get them more often after drinking beer, which probably jives with Therabreath's claims about sulfur playing a part (just do a Google search on 'tonsilolith', Dr. Katz must own the word).

When I get mine, they produce an extremely uncomfortable feeling in my tonsil area. I can usually pop them out with a yawn or a sneeze, or by flexing the muscles in that area of my throat/neck. I don't really like the idea of sticking my finger or anything else in my throat, as I've had (used to have) recurrent sore throat and that can't be healthy.

My right tonsil looks huge to me, but my ENT says it is fine and normal, although heavily cratered. For a while I was afraid I had throat cancer or something because of all the sore throats and especially my sore right tonsil. My sore throats are now gone, thanks to my mom's old-fashioned advice. She lives in the hills of Appalachia and picked some wild "yellow root" (goldenseal) and sent it to me. I boiled it in water to create my own antibacterial mouthwash (in this case, please spit don't swallow). It tastes very bitter, but it will clear up a sore throat, tonsil, or canker sore in no time at all. I put also put some in a little spray bottle which I keep in my car and use it whenever I feel my throat acting up. My throat and tonsils, which were sore for practically two years straight hasn't been sore even once in the year since.

I use a tea-tree oil mouthwash from Jason's (only available in a natural health store I imagine) each day which seems to help keep the tonsil stones away. Someone above mentioned using tea-tree toothpaste, too. I don't know if it's the rinsing action or the ingredients, but at least it's leagues better than those alcohol-based mouth rinses. I find that if I press down hard on the back of my tongue after brushing that it will loosen these things and they will sometimes come out right away on their own thereafter.

As far as bad breath, I've always pretty much thought I do, but people keep telling me I don't. When I lick the back of my hand and wait ten seconds to smell like the Therabreath guy says, though, I think it stinks. To me, these things always smell and leave a taste like some kind of mealy acorn, which is funny that someone called it "squirrel breath" or something above. I've thought about getting my tonsils removed, but it's pretty risky at 30 I hear, plus maybe these things are the products of a properly-working tonsil?

Someone else mentioned having underarm rashes, which I used to on one side for a long time. I stopped using anti-perspirants and now only use deodorant, which cleared those up right away. Ironically, I don't seem to sweat at all with deodorant, but sweated like a hog with anti-perspirants. Besides, most anti-perspirants contain aluminum, which can't be good to shove into your lymph nodes area right there. I haven't had an underarm rash for the last two or three years now.

Joe

hatethenoodles
09-17-2003, 09:35 PM
Hello fellow tonsil stone pickers. I went to an ENT today and he gave me the go ahead on removing my tonsils. He didn't say it was absolutely needed, but was the last of my three options. He said option #1 was to live with it, #2 cleaning them out on a regular basis (which I can not do any more since I over poked my right tonsil) and #3 was to remove them.

For all those who have had them removed, I need your advise. I've heard that it is extremely painful for the first few days. I'm having second thoughts though because i haven't had those nasty critters for almost a month now, but I know they will creep their way back in sometime. Any suggestions would be greatly appreciated. Thanks.

MrsLee
09-17-2003, 09:47 PM
Brigetta-- I can't believe they told you it was TMJ!?

I have TMJ and tonsil stones and I never made any connection between the two. I wonder if there could be a connection or if your doctor is just an idiot.

Does anyone else with tonsil stones have TMJ??

cece766
09-18-2003, 11:39 AM
I also have TMJ. That is really weird. Is anyone's voice going? Over the last few weeks my voice is getting horser and horser. I'm talking now like Brenda Vaccaro. My husband thinks it's sexy. But I think it has to be related to the tonsils.

cece766
09-18-2003, 11:43 AM
Originally posted by Leeann7474:
So your surgery is Oct 2? I was planning on getting mine out the beginning of Oct also, but we have a family reunion on the 10th and I don't want to be in recovery phase during this time, as I hear it takes about 2 weeks to heal from it. I am 33 and going to get mine out in Oct also. It would be great if you could post back here with the results of your surgery, because I know a lot of us are considering this too. Thanks a bunch!

LeeAnn,
I'll let you know how it goes. Also, I started taking echinacea & ester-C caps to boost my immune system before surgery. Hopefully that will help.

MrsLee
09-18-2003, 02:51 PM
Cece---I loose my voice pretty easily, and usually get a sore throat when I have a tonsil stone. Right now I have a cold, a huge tonsil stone, a hoarse voice and a sore throat! I don't know what is causing what though...
I hope your surgery goes well, and I would love to know how it went, as I am considering it myself. Take care!

icestorm12083@yahoo.com
09-18-2003, 03:08 PM
I am 20 years old and just started having tonsil stones this summer...thank goodness for the Internet, or I would never have found out what they are! I have had very minimal ENT problems up until now, so this sorta came out of nowhere. I also do not experience any of the throat soreness or other discomfort that ya'll are referring to (knock on wood), although I have had an enlarged tonsil on one side since I was little. Ok, enough of the gross details...in doing some research on the problem, I found some sources that suggest that a diet high in protein makes mouth bacteria go nuts and causes bad breath. Coincidentally, I started a high protein diet this summer as well (not as extreme as Atkins, though). Has anyone else found that these things start after going on Atkins or a similar high protein diet? I would love to be able fix this problem with just some Listerine, less meat, and more bread :) Thanks for any comments.

MrsLee
09-18-2003, 04:26 PM
I am 21 and have been getting these things as long as I remember. I don't think meat has anything to do with them. When I was a teenager I did not eat hardly any meat and I still got them. Now I eat meat regularly and still get them. Listerine does nothing, except make my throat hurt sometimes. But I use it anyway because I am so paranoid that my breath smells. Sorry to be the bearer of bad news, but hey, maybe it will work for you since everyone's body is different...good luck!

monet00840
09-21-2003, 01:08 AM
I am so happy I'm not the only one. I'm not paranoid. I have read many comments and questions, however, I haven't noticed anyone discuss alternative methods other than removal of tonsils. I have researched this problem (tonsil stones) and a option was oxygenated toothpaste. Has anyone tried this, if so what is your opinion? Waste of time?

orion
09-21-2003, 03:52 AM
Originally posted by hatethenoodles:
I went to an ENT today and he gave me the go ahead on removing my tonsils. He didn't say it was absolutely needed, but was the last of my three options. He said option #1 was to live with it, #2 cleaning them out on a regular basis (which I can not do any more since I over poked my right tonsil) and #3 was to remove them.


Firstly, that ENT is an idiot. To approve surgery before all other avenues are exhausted is just irresponsible. These stones are caused by infections in and around the tonsil area including ears, nose and throat. The stones are the remants of the fight between your body and the infection. Removing the tonsils won't fix the infection unless it's only in the tonsil itself. It will just displace the infection to someplace you can't see it. You can't get a cure by poking at your tonsils or using mouth wash. The problem is simply being focused inside the tonsil because that's what tonsils are for, but the source may well be outside it.

Many people have mentioned infections or mono that started the stones showing up and that is most likely the case. Most of these are long standing infections that were never dealt with properly, and have become chronic, and aren't going to go away without a fight.

Before you go having surgery or poking your tonsils full of holes it's time to get serious about the fight. Stop irritating your tonsils by touching and poking them. Depending on how serious the infection is (and it's serious if you have had it for years), you may well need several courses of different antibiotics, including septra, zithromax, possibly cephalexin. The key is to get rid of the infection. Septra can be taken for months fairly safely as can doxycycline. You need to keep hitting these infections til they are cured. A simple 7 day, there you have it, won't work because the infections have become deeply entrenched.

Everyone is so afraid of taking antibiotics these days but sometimes you have to deal with an infection properly. Antibiotics are safe for most people and the won't cause "superbugs" if taken correctly (until all the infection is gone the first time).


[This message has been edited by orion (edited 09-21-2003).]

LoriGymnast
09-21-2003, 03:48 PM
These last 2 weeks have been really bad with these yucky tonsil stones. I believe the reason is because I have had a bad cold or it could be allergies and my post nasal drip is extremely bad right now. Normally I only see it in my left tonsil, but I can see it in the right one too. They are in the stuck position and I can't get them out. Does anyone else notice it being worse right now? Fall is approaching and allergies are generally worse this time of year.

MrsLee
09-21-2003, 05:02 PM
My tonsil stones are worse right now. I think it's because I have a cold and because of my allergies.

Also, I disagree that antibiotics will get rid of these. I have had them my entire life, as long as I can remember. I never knew what they were until I found this board, but I can remember always having them. I have been on just about any kind of antibiotic you can name. I am constantly being diagnosed with sinus infections and put on antibiotics. Frankly, I am sick of taking them. I am sick of the stomach upsets, diarrhea, bad taste in my mouth and yeast infections. I put my body through hell, only to get the same infection all over again.

I certainly agree that the tonsil stones are a sign of an infection somewhere. They are most likely a symptom, not the problem itself. I don't think the cure is as simple as taking an antibiotic though. There has to be an explanation and a cure for these. But no doctors have seemed to care enough to find it. It's much easier to prescribe an antibiotic and send you on your way. Or even to tell you you need a surgery.

It would be interesting if we were to all compare our medical histories. I think we would find many ailments in common, and maybe we would be able to discover the source of the problem ourselves, rather than rely on doctors.
Anyways, I'm rambling...take care all....

Want 2 B Well
09-21-2003, 08:59 PM
Very great thread I must say. I now know what to call those "thingies". I haven't had them for a long time. But I did go look in my throat and it is gross. White streaks and tiny swollen white spots. My tongue is always gross too.

I just want to ask one thing....HOW in the heck are you guys getting so close to your throat to pull out those stones? I gag if I even get near the back of my tongue.

MrsLee have you been tested for allergies? I am not 100% well but I am better after getting weekly shots.

MrsLee
09-21-2003, 10:17 PM
I have not been tested for allergies (though I know I am allergic to something). My doctor says it is not necessary, and just prescribes me allergy medicine, however I think it's time to get a new doctor....

I don't know how anyone picks those things out either. I gag if I get anything anywhere near my tonsil. Anyone have any tips how to get around the gag reflex to pick those thingies out?? I'm just itching to pick my tonsils, but I will throw up!

mommyofatoz
09-22-2003, 01:53 AM
I also have this problem everyone has been describing. I have been picking these little boogers out for a couple of years. I don't have bad breath because of them, they just get so big that I can feel them. I only have them on my left tonsil, but I have two to four spots that repeatedly reveal themselves. Sometimes there won't be anything there for months and at other times, I get them back to back. I just brought this to my doctors attention last week and he, of coarse, told me it was food, but like everyone on the board, I wasn't buying it. I told him I picked them out and he told me not to. He didn't want me to lacerate my throat so he wouldn't have to get back there to put in stitches because it was very difficult to sew stitches in the throat. He told me if I stopped picking them out, they would come out on their own and I would just swallow them...exactly what I didn't want to do. He then proceded to tell me they would eventually stop coming if I left them alone. I tried to stop picking at them, but they kept getting bigger and bigger and I finally gave into my urges and picked them out anyway. I was then on a mission to find out how to control, if not get rid of these things. That is when I discovered this message board. I was so glad to find that other people feel my pain and to read all the ideas and advice.
I usually just pick them out with my fingernails, but the other day was able to pop one out and that was a lot gentler. I gargle every time I brush my teeth and sometimes more. I have noticed they are more frequent when I drink less water so I have tried to keep up my water intake. I have just discovered that I have allergies, mainly itchy eyes, but I have also had dry sinuses so I started using drug-free nasal spray. Since I have started on that, they seem to be slowing down. I mentioned to my husband the water-pik idea and he thought that was a good one so I might be going out to get one soon. I'd rather not have my tonsils removed if I can just prevent these things from coming. Other ideas will definately be appreciated!

Westy75
09-22-2003, 05:00 AM
This all sounds quite familiar. I had problems with Tonsil stones when I was younger. The last time I coughed up a piece was a couple of years ago, but I can still feel stuff at the back of my throat quite often and often when I swallow hard I can taste the stuff. I've suffered from sore throats for the last couple of years, and I've had a mild one for about a month now. DOes this sound like the same kind of thing that you guys have got?
I start to worry when I've got a sore throat as I'm a bit paranoid and keep thinking I've got something worse. However I've been to the doctor and he said it was just a virus, he did a throat swab which came out normal.
After finding this board it seems like the debris at the back of my throat (even though I can't see it) could be causing my frequent prolonged sore throats. Any advice much appreciated.

Thanks!

Westy

michelle18
09-22-2003, 02:02 PM
This is very enlightening. I have been having this problem for 15 years now. I've had the same reactions from doctors (having no clue) as well. The only time I got a reaction out of them was when I got tonsillitis really bad and not only did I have the little rocks in my tonsils, but they were also covered in puss. I would love to get them taken out. I'm usually on antibiotics three times a year for them and the last time, I had to double the doses to get them to get better. Plus, now I am pregnant and the disgusting taste in my mouth make morning sickness the worst. I keep trying to dig them out as soon as possible. I'm going to try the waterpik thing - it's a good idea. I usually use a dental tool.
I would love to hear from anyone else who is over 30 and has had the tonsilectomy.

MrsLee
09-23-2003, 12:28 AM
Has anyone ever gotten one of them stuck in your nose or sinuses. I had a monster sized tonsil stone the other day that disappeared overnight (I never swallow them, they always end up in my mouth). Now everything tastes funny and smells funny to me and I can tell my breath really smells. I can tell something's not right. I think it's lost somewhere in my sinuses. Is this possible??? what can I do??

Timby
09-24-2003, 01:51 AM
I'm a 19-year-old college student, and I first noticed these things about a year ago, but they only surfaced occasionally. I didn't have a problem from about March until two weeks ago, but they came back with a vengeance once I moved into my dorm, which leads me to think that they're allergy-related.

Unfortunately, I'm pretty far away from home, and Dubuque is not a bastion of medical care. Are there any OTC methods that I can utilize to reduce this problem (preferably methods that don't involve a hundred-dollar WaterPik)?

-TWB

missmelody
09-26-2003, 12:26 PM
Okay question...
I am going for my first ENT visit on Sept. 30th b/c my tonsils are driving me crazy, too. I have the crypts as well with the nasty, white tonsil stones that I have to dig out because they stink and irritate me. However, my main question for everyone is...
Have you had problems with coughing? I experience these terrible "coughing attacks". If I eat anything dry (i.e, a cookie, cracker, hard, crusty bread) and it touches either of my tonsils, I start coughing uncontrollably to the point that I vomit. These attacks are so violent that I pop the blood vessels in my eyes! I won't even go out to eat, and if I do, I order soft food out of fear of having one of these coughing spells!
I have been to my regular doctor who said it was possibly asthma (?) and put me on all kinds of asthma meds (that didn't help), then I went to a pulmonologist who did find scar tissue in my lungs (from all the coughing?)and said it could be a mix of asthma and acid reflux, so now I'm on meds for that and it's not helping. So, finally, I have taken it upon myself to make an appt. with an ENT to get my tonsils checked out. I had strep a bunch in college, but haven't had it since. I am 28 now. I am just curious if anyone else has experienced this crazy coughing. HELP-am I a total freak?

Astf
09-26-2003, 05:59 PM
I have just read all six pages... (whew and ew) ... and I am a fellow tonsilith sufferer as well. I've never had a problem with them before. I knew that occasionally, a ball (skittle sized at largest) of what I always thought was decayed food, would come up out of my throat. I would either spit or swallow and that was it. Unlike some of you, I didn't get really freaked out about them, I just thought they were normal, and still do.

I don't have major allergies (I'm allergic to cats, bees, and medication). I don't think I have post-nasal drip, because I breathe pretty easily. I do have moderately bad breath, but I think thats because I consume massive amounts of sugar daily and chew sugary gums. My teeth are pretty good considering. I had a lot of cavities as a kid and am now sporting 6 fillings. I did suffer from strep throat a lot when I was little, but my doctor never suggested I have my tonsils out (I think she thought the practice was archaic). Now I never get strep, and have no throat/ear/nose problems, except for the occasional stuffy nose or itchy inner ear.

So, because I'm pretty *normal* in all those respects, and don't have any problems now, I don't think the tonsoliths are a sign of infection. I tend to agree with whoever said they were caused by regular mouth bacteria gasses, dead skin cells, & calcified saliva congealing or collecting in the cavities of the mouth, the main one being your tonsils since food/brushes/your tongue have access to everywhere else.

I also somewhat agree with the food theory, because it seems to me that whenever I eat foods that break up easily (e.g. cereal), I get more of them. I think that food like that either promotes the more rapid growth of bacteria, (maybe by having little particles that hang around your mouth longer) or that the food actually gets stuck in your tonsils and breeds more bacteria.

I think that everyone gets these tonsoliths, and I bet if you asked some people they would know what you're talking about (unless they're in denial). I also think that in most cases they're normal, but if they're exceptionally large or causing you pain, you should go ahead and get your tonsils removed. You can ask your doctor, but I dont think that tonsils perform any special functions that are absolutely necessary to your body.

I don't know if it's necessary to clean them out either. Mine seem to fall out on their own. Sometimes I can feel them in my throat, but they never cause me actual discomfort. As for bad breath... I do think that if they pop out in your mouth they can give you bad breath. I always brush my tongue well whenever that happens. But I don't think removing them is detrimnental either, so long as you don't hurt yourself in the process. :)

Tonsilithic Proportions
09-29-2003, 01:59 PM
missmelody, astf:

I'm with you. If I eat hard crust bread, crackers, etc. -- even soft bread sometimes -- it is almost without fail that I'll feel a piece of it get lodged behind a tonsil, and sure enough I'll have a tonsil stone two or three days later. My friend and I were having lunch the other day and that happened as I was eating some sweetbread with olive oil, and I had a coughing fit that went on for ten minutes. I had to excuse myself to go to the bathroom I was coughing so much and kept gagging trying to dislodge this piece of food. Anyway, for me at least, I think it's related to small food particles getting lodged and then putrifying.

Rikimaru
09-30-2003, 11:56 AM
I've had these for quite a while, but never paid them much mind. There's almost always something in the air I'm allergic to.. pollen in spring, mold in winter. This stuff is very similar to what I had to wash out of the holes left while my gums healed after having my wisdom teeth removed. I always figured it was a combination of food, mucus, etc. Anyway, they haven't been much of a pain for me.

I DID want to post, however, because I figured you'd all get a laugh out of this. When I was really little, I used to cough these up, and, because of the "cauliflower" look, I thought I was coughing out bits of my brain.

justice23
09-30-2003, 02:11 PM
OK Let's come up with a sort of tonsil stone daily regimine here for people who do not want to remove their tonsils, it's unbelievable how many people have this problem.

1. Scrape tounge (daily)
2. Chlorine Dioxide Mouthwash (Any brand 2x a day at least)
3. Hydro-Floss or WaterPik (at least every other night)
4. Nasal irrigation (at least 2x a week)

Please add anything I missed. The above regimine works for me when I don't get lazy. I have trouble remembering to shave every morning sometimes much less do this, but at least I'm trying.

-kevin

missmelody
09-30-2003, 10:48 PM
Y'all aren't going to believe this!!!
I went to the ENT today to have everything checked out-the coughing, the tonsil stones, etc. Well, it turns out that my tonsils are on the large side and cryptic, but fine. She said that I could continue to irrigate and remove the stones myself, but if that became too bothersome, then it was up to me to have my tonsils out. Luckily, she is a great ENT and said that this was my decision since I don't TECHNICALLY have any infections anymore.
HOWEVER, my coughing attacks are due to my larynx. It is double the size that it should be because I have severe acid reflux! I have been on Nexium once a day, but she is doubling my meds now and completely changing my diet. This is totally insane. I thought the whole time that my tonsils were causing me to cough every time I ate. So, if any of you are experiencing this, I think I may start a new message board about it to see if others may have suggestions about foods and lifestyle changes,etc.
I'll still be visiting here, though, to see how everyone's doing with their tonsils and to see about any new "tonsil stone removing" techniques!=)
Thanks for your input and good luck to all of you having your tonsils removed-I'll be praying for your speedy recoveries!!!

orion
09-30-2003, 11:25 PM
Originally posted by Astf:
So, because I'm pretty *normal* in all those respects, and don't have any problems now, I don't think the tonsoliths are a sign of infection.

If your tonsils are normal and you don't have any infections then your tonsils shouldn't be enlarged. When you look to the right or left of the back of your throat you should see pretty much smooth mucus membrane. If that is the case then where do your stones form? If you have no indentations or places for food particles to attach, how do they sit for weeks?

Since tonsil stones have been imaged INSIDE of and removed surgically from enlarged tonsils how could food manage to get in a sealed tonsil in the first place? While I agree particles can lodge in your throat for a short time, it is very unlikely that such food could lodge for weeks or months.

The evidence is very clear that tonsil stones come from inside a tonsil and move ******ds. They don't form on the outside and just sit there.

BennieOp
09-30-2003, 11:47 PM
I too have these cryptic stones, but just within the past two weeks I have noticed "stuff" in my tonsils. Last year I moved to Indiana from California to go to school, and I got sick all the time with sore throats and sinus infections during the fall and winter. Then I was fine. I am now going to school in Hawaii and I am not getting sinus problems but I am getting an awful case of "stones." I am going to an ENT this week, and if by chance they suggest I get my tonsils out (probably not), how long could I expect for recovery. I am 22 and a singer and need to know how much time it takes to recover before I could be in "full voice," be cause I have several engagments coming up in the spring. If anyone has any experiences, or can help with insite, let me know.

Thanks

hatethenoodles
10-01-2003, 12:07 AM
Originally posted by orion:
Firstly, that ENT is an idiot. To approve surgery before all other avenues are exhausted is just irresponsible. These stones are caused by infections in and around the tonsil area including ears, nose and throat. The stones are the remants of the fight between your body and the infection. Removing the tonsils won't fix the infection unless it's only in the tonsil itself. It will just displace the infection to someplace you can't see it. You can't get a cure by poking at your tonsils or using mouth wash. The problem is simply being focused inside the tonsil because that's what tonsils are for, but the source may well be outside it.

Many people have mentioned infections or mono that started the stones showing up and that is most likely the case. Most of these are long standing infections that were never dealt with properly, and have become chronic, and aren't going to go away without a fight.

Before you go having surgery or poking your tonsils full of holes it's time to get serious about the fight. Stop irritating your tonsils by touching and poking them. Depending on how serious the infection is (and it's serious if you have had it for years), you may well need several courses of different antibiotics, including septra, zithromax, possibly cephalexin. The key is to get rid of the infection. Septra can be taken for months fairly safely as can doxycycline. You need to keep hitting these infections til they are cured. A simple 7 day, there you have it, won't work because the infections have become deeply entrenched.

Everyone is so afraid of taking antibiotics these days but sometimes you have to deal with an infection properly. Antibiotics are safe for most people and the won't cause "superbugs" if taken correctly (until all the infection is gone the first time).


[This message has been edited by orion (edited 09-21-2003).]

Thanks for your input. However, I have tried different meds in the last few months to get rid of these tonsil stones................it didn't work. Antibiotics, prescribed mouth rinses, you name it.

cao047
10-05-2003, 12:45 PM
I have had these tonsil stones since April 2003. I NEVER had them before. The odd thing is that I got them while taking a Prescribed Allergy product that you squirt into your nose. I truly believe that is what caused them to form. I went to two doctors, one literally scared me to death saying the pain is unbearable for someone 26 years old. The other doctor did not even care. He said that my insurance company thinks it would be cosmetic surgery, therefore they would not pay. It was a 3 minute office visit. He said I have to live with them. Well, sorry DOC, but I would pay out of pocket and finance it. I cannot live with these stones. I give so many of you credit for dealing with them for years. I cannot see my stones, unless I probe in my tonsil crypts. My tonsils are small. I am pregnant right now and it makes my nausea WORSE! I even throw up only from the taste that they leave in my mouth. Luckily, I am done with morning sickness, as I can try to pop them out with a Q-Tip. I am getting better at it. It hurts sometimes. I am miserable b/c of them. I ate dinner with a friend last night who had hers removed when she was 26 and she said it was painful, but it was only real bad because she could not eat the way she used to. She only needed the pain meds for a few days. Then she just dealt with the pain for two weeks. After my pregnancy, I am going to have them removed no matter what the cost. I am afraid of pain, and scared of sedation and bleeding to death, but I will ask the new doctor if anyone died in his care while removing tonsils and if he performed the surgery on other adults! I am doubtful that these things will ever go away. My stomach drops when I see how many hide inside such tiny crypts. Just when I think I cleaned my tonsils, they come right back. I do not suffer from bad breath, luckily!

[This message has been edited by cao047 (edited 10-05-2003).]

sohappy2know
10-06-2003, 03:20 AM
Guess what? I'm getting my tonsils out!!! Yes these babies are coming out!!!! It was so easy getting my doctor to agree do the sugery. I simply said i want them out and he said ok. He started the paper work for the sugery and a month later here we go. On 10-23 they are coming out. As I type this they are all swollen and I can fill those stones caught in my throat. I will have to hack them up or I won't sleep tonight. I also have ear pain. Is this common with u guys? I really found this healthboard helpful to me.I thought I was crazy or I had some kind of cancer,until I found out what the little balls where called. Anyway i will still continue to vist the site and see whats new.I will be back post surgery to let u know how it goes.

cece766
10-06-2003, 04:32 PM
Well guys I did it. My tonsils came out on Thursday. The doctor said it was one of the worst he has seen in a long time. The tonsils came out along with all this pus and gunk. I'm doing okay. The pain meds are great but they make me sleepy. So I'm getting a lot of rest. I can talk but I'm trying not to overdo it. My insurance is paying for the surgery. I went over it with my doctor ahead of time. He said as long as you have a history of strep or sore throats it should be fine. I called the insurance company ahead also and they said the same thing.

The only thing that is annoying is the not being able to eat. I drink a lot of gatorade (orange is good) and Carnation breakfast drinks. IT WAS WORTH IT!!!! Just ignore the people on the tonsilectomy page. They had me so worried about dying, I almost didn't go through it. I even made sure I hugged my children and husband extra long that morning. Anyway it's not that bad.

MrsLee
10-06-2003, 11:27 PM
I am very interested in hearing all of your tonsil removal stories, because I am considering it myself. Some of the stories on here are pretty scary, so it's nice too hear it's going well. PLease update us on the later stages. I wish you good luck and continued success on your recovery!

romelaw
10-08-2003, 01:44 AM
I had the same thing. But the white things were very big probably 1 inch in diameter at times. I would squeeze my tonsil with a q-tip to get them out. I had strep throat often and when doctors would look in my mouth they would often ask me how I could swallow because my tonsils were so big. Finally, when I was 18 years old and I was in college, I had strep throat 3 times in one semester. The doctor told me to have my tonsils taken out. the surgeon joked about entering my tonsils in the guiness book of world records!. I have to say I almost immediately felt an overall feeling of wellness. My voice also become higher after their removal (good for me b/c I am female) I am now 47 and have had very little problems w/ strep throat over the years. I say take the suckers out you will be happy you did.

midas
10-08-2003, 05:41 AM
drink lots of water from time to time and take a rest for a while. it will be helpful.

lisamarie22
10-08-2003, 08:05 PM
I am so thrilled and relieved to have found this board! I really thought I was some kind of freak with these stinky little things in my throat. (I never mentioned them to my doctor or dentist, expecting the same response many of you have gotten.) They seem to flare up without any regularity, but I do agree that they have something to do with post-nasal drip... Thank you all for sharing your stories and remedies. I would love to have my tonsils removed, but I am 34 and probably not a severe enough case to warrant the risk (besides the fact that I am baby when it comes to surgery).

I have been squeezing the buggers with q-tips for a few years now and have definately done a bit of damage to my tonsils. I am going to try the irrigation methods that others have described here instead.

Thank you again for sharing your experiences!

anso
10-09-2003, 07:20 PM
WOWSERS!!!

I wish I had known about this bulletin years ago!!!!!

I'm 30 years old and had this problem since I was 13 or 14.......

I wanted to let you all know that I'm going in for a laser procedure TODAY!!! which my ENT says will smooth out the surface of my tonsils helping rid of those nasty crevices....

I'll definitely keep you all posted on how this turns out...

Nice to know I'm not alone...

Tonsil Hater
10-10-2003, 03:59 AM
They're Gone!!
I'm in a lot of pain today, having had my tonsils removed 12 hours ago. Totally worth it. I have had these evil, sick little stones since I was a child and I had to go to several different doctors before they'd refer me to a ENT. The first one told me to "live with it", that my tonsils were healthy, even if they did catch food when I would eat and those stones would choke me in my sleep. I was so ticked off, but I went to a different ENT and he heard my problem and booked my surgery right there and then.
I am so happy they are gone. If these things are a problem for you, no amount of Water Pik-ing or Q-tip squeezing or tweezer locating will stop these things. Go out tomorrow find a doctor and get them removed. Keep looking! I waited for 8 years to get these removed and it is the best thing I have ever done.
If anyone has questions about the surgery, post them and I'll do my best to help you.

NotatallHappy
10-10-2003, 09:15 AM
Hi--post again in a couple of days and let me know you are doing. I have heard that the pain gets worse after a few days. Can you talk? How long did the surgery take? Are you bleeding a lot?? I have mine out 10-22 because of a cyst on one of the tonsils. They say it's either a benign cyst (90%) or lymphoma (10%). I am pretty nervous, I just had a hysterectomy 9 weeks ago and am finally well again.
Firewife

Originally posted by Tonsil Hater:
They're Gone!!
I'm in a lot of pain today, having had my tonsils removed 12 hours ago. Totally worth it. I have had these evil, sick little stones since I was a child and I had to go to several different doctors before they'd refer me to a ENT. The first one told me to "live with it", that my tonsils were healthy, even if they did catch food when I would eat and those stones would choke me in my sleep. I was so ticked off, but I went to a different ENT and he heard my problem and booked my surgery right there and then.
I am so happy they are gone. If these things are a problem for you, no amount of Water Pik-ing or Q-tip squeezing or tweezer locating will stop these things. Go out tomorrow find a doctor and get them removed. Keep looking! I waited for 8 years to get these removed and it is the best thing I have ever done.
If anyone has questions about the surgery, post them and I'll do my best to help you.

cece766
10-10-2003, 01:16 PM
Well, I'm on day 8. Wednesday was a bad day for me. I went for my 1 week checkup and found out I had thrush. Which is why I think it was so bad. My doctor had given me this stuff called Magic Mouthwash. I didn't use it and I got thrush. Now I'm using religiously. The thrush is almost gone and I'm feeling way better. I asked my doctor why so many people (adults) say it's harder and more painful when your older. He said children recover quicker, but that most doctors don't put their patients on steriods. The steriods keep the swelling down. He used to be an ENT at Childrens' Hosp. in Phili. He said they used to do 70 tonsilectomies a day and he learned that the patients on steriods did much better and had less pain. He only had me on Prednisone for 3 days, but it worked. So take my advice insist on steriods and Magic Mouthwash.

cece766
10-12-2003, 10:18 PM
I could whisper that day and by now at day 10 I'm back talking normally. I didn't bleed at all. Thesurgery took about 20 minutes and I was in recovery for about 2 hours. I went in at 8:30 am and was home by 1:00pm. I was really nervous also but it went by so fast. And I feel pretty normal now. GOOD LUCK!!!!
Originally posted by NotHappy:
Hi--post again in a couple of days and let me know you are doing. I have heard that the pain gets worse after a few days. Can you talk? How long did the surgery take? Are you bleeding a lot?? I have mine out 10-22 because of a cyst on one of the tonsils. They say it's either a benign cyst (90%) or lymphoma (10%). I am pretty nervous, I just had a hysterectomy 9 weeks ago and am finally well again.
Firewife

Mickey864
10-13-2003, 02:46 AM
NASTY GET THAT CHECKED

halitophobe
10-14-2003, 06:37 PM
Hi all, just wanted to share my thoughts/experiences:

I suffered from bad breath for years because I had a couple of big gaps between my rear lower teeth I simply didn't know about - these used to fill up with gunk/food etc and get very smelly. A decent dental hygienist eventually sorted me out, but not before I had concluded that the problem was being caused by our friends the tonsil stones.

The ENT man concluded that the halitosis was being caused by nasal polyps - had these removed - very uncomfortable indeed - I thought I was going to die.

As I was so paranoid by now about bad breath, my doc prescribed me permanent antibiotics to keep my tonsils 'stone free' (hey, I wonder if Jimi Hendix had his tonsils removed?). Ths worked a treat - not one stone - however, after about 9 months on these I began to suffer from oral thrush and, you guessed it, bad breath! D'oh! I reckon I was beginning to go a bit loopy from the antibiotics too - feeling very stressed/nervous/paranoid. Possible vitamin B deficiency.

So, I came off the antibiotics and started to take a daily probiotic supplement and yoghurt to replace all the 'friendly' bacteria that the antibiotics had destroyed. This cleared up the oral thrush, but the stones are back. (blimey, another rock reference - will the Stones ever go away?).

Took the courage to share the problem with my wife again (she had previously not helped when I first told her about the stones by being disgusted about them - made me feel very alone/upset/weird). This time she was more supportive (I explained how distressed I was feeling) and she has been smelling my breath regularly since then, and not noticing any bad smell at all, even through particularly bad periods of stones / post nasal drip. I think the stones only start to smell when squashed or exposed to air (when in situ I guess they're surrounded by tonsil & mucous).

However, I can't get away from the feeling that there's simply something wrong with my tonsils (e.g. wrong shape, big crevices) and that bacteria is hanging around and causing mild infections (I don't suffer from bad sore throats, just the odd bit of discomfort).

So, I think I'm going to get the darn things removed. The ENT surgeon said he'd take them out if I insisted, I'm sure insurance will pay if my doc uses the right words in the diagnosis. I'll let you know how I get on.

P.S. I'm 39, male, generally fit and healthy (I run a lot and play footy regularly), healthy diet. Tonsil stones are small (no bigger than quarter inch) and they come in bouts of about 4-5 every 2-3 weeks, especially through Autumn. I floss and tongue scrape daily (if I don't scrape my tongue it gets furry (and hence I'm paranoid that it would be smelly).

[This message has been edited by halitophobe (edited 10-14-2003).]

hatethenoodles
10-14-2003, 08:44 PM
Hey Tonsil Hater and all of those who have had their tonsil removed. I have a couple of questions about the surgery. I am getting mine removed in about a month. My ENT told me that the worst day is the 2nd, it feels like the worst sore throat you have ever had, is this true and how bad is it? Also, he told me that there is a 1% chance of bleeding a week after the surgery, has anyone experienced this sort of side effect?

Any help would be appreciated

NotatallHappy
10-15-2003, 09:57 AM
TO HATETHENOODLES:

I am alsmo scheduled to have my tonsils out soon-a week from today to be exact. My Dr. told me the same things, day 2-3 is the worse, except he told me 3% of people have a bleeding problem. However, he also said this is the case with ALL surgeries. He said it did not matter your age, race, sex, problem, size of tonsils or surgeon--just the luck of the draw. Good luck to you! I am anxious too! 35 yrs. old-female.
Firewife

cece766
10-16-2003, 09:40 AM
Hi Guys!!! Well it's day 12. I'm feeling pretty good. I can talk regularly. I think if I hadn't gotten thrush I could probably be eating regular food by now. The thrush is almost gone and I think that is what's causing the pain. The doctor told me that the thrush was worse on the left side and that's the only side that hurts. The right side feels totally normally and doesn't even hurt. I was taking the liquid pain meds hydrocodone and had no problems at all. In fact it's still helping me get through the night. I stopped taking it during the day. I would still recommend taking all meds as prescribed. Just get lots of rest and cold food. My doctor also recommended Gatorade. That and Propel are good drinks. Don't forget to tell your doctor about the steriods. Extremely important!! Day 2 wasn't that bad. My doctor said at my 1 week checkup that was because of the steriods. Good luck!! Let me know how it goes.

[This message has been edited by cece766 (edited 10-16-2003).]

billy boyz
10-17-2003, 06:13 PM
Food stuck in tonsils is in my view complete rubbish
I get these things they started about 2 years ago for no reason one day they were there, the doctor I saw said .food stuck in tonsils. I think I upset him buy saying I didn`t believe him how do you suddenly start to get food stuck. I`m seeing a ENT specialist on the 5th of Nov for the second time I have to say the thought of having my tonsils out scares the s*** out of me but its something I will have to consider I also get PND which I think is a major point in tonsil stones I also seem to only get them a night which I dont understand, to the extent that I have nothing at say 1200 am but by about 3.00 somthing can often be there strange any suggestions unfortunately I`m in the UK and I dont think our health service is as modern as in the States I`m more cocerned about being knocked out more than the pain afterwards just dont like the thought of it as I`ve never had an op before I`ve also read something about lasers which I would`nt mind trying

caesar
10-17-2003, 06:41 PM
I could not find "tonsil stones" in Websters Unabridged Dictionary nor in Taber's Medical Dictionary. This topic has had an incredible number of replies.

MrsLee
10-19-2003, 12:16 PM
I think "tonsil stones" is kind of a nickname. I think the medical term is "tonsiloliths" or something. But I doubt that's even in the dictionary.

I had a nightmare the other day about tonsil stones. I looked in the mirror and saw hundreds of them coming out my tonsils....I kept spitting them out and more kept growing. It was so disgusting. I woke up sweating, heart racing, it was pretty scary....

anyways, just thought I'd share my disturbing story!

acb
10-19-2003, 05:31 PM
I recently had an appt. with an ent for sinus trouble. I have had these smelly stones for about 20 years. I asked the ent about them and he said they are harmless as long as your tonsils don't get infected from them. I flush my tonsils with salt water and a syringe about 3 times a week. Mouth wash can make them worse because of the sugar content. Salt water works great. The ent did tell me I could have my tonsils removed to get rid of them, but he didn't recommend it unless they were infected. He said that removing tonsils in an adult is very painful with a longer recovery.

They are ucky though!

acb
10-19-2003, 05:37 PM
Hey,

My ent said they are harmless as long as the crypts in your tonsils don't get infected. He recommended flushing tonsils with salt water and a syringe 3 times a week. It helps a lot. Don't use mouth wash for them, because the sugar can make them worse. He told me that he has had patients that had their tonsils removed because of them, but the surgery is painful for adults. I guess I'll just live with them like i have for the past 20 years.

They are so ucky!

nam0428
10-20-2003, 04:23 PM
I have recently found this site and I am very glad I have. I have had throat and ear infections since I was a baby. The doctors never wanted to take my tonsils out. About two years ago at the age of 24 I was having a lot of sinus headaches, ear aches, and swallon tonsils. I had also had strep 4 times in three months. A doctor sent me to a specialists saying that my tonsils were enlarged and he felt that they needed to come out. The ent told me that it was sinutitus, gave me a nasal spray and told me I would need to learn to live with it. For the past year my tonsils have been enlarged more than usual. I noticed white stuff if the pits on by tonsils, not just on top of my tonsils like it normally was. I would have extremely painful sore throats. After a while I started cleaning these pits out trying to figure out if it was throat infections or what. The white spots were hard and painful. I just assumed that it was my sinuses draining into my throat and I would have to deal with it. I had gotten to be so painful in the last few months that I thought I would go to the the ent again. Whether or not he thought I was nuts again - it didn't matter I needed to know if something could be done. The ent I went to the first time did not accept my insurance so I made an appt with another ent. I told him my problems and my history. After examining me he said I had chronic tonsillitis and the cryptic tonsillitis. I said that the only thing that could be done was to remove my tonsils and I should seriously consider it. The ent also told me that having my tonsils removed will help with my sinus problems, fluid in my ears (ear pain and itching), bad breath, and overall health. I went home and did research on the internet and the research I did backed up what he had told me and what should have happened a long time ago with my symptons. I am scheduled to have a tonsillectomy on Nov 6 and I am 27 years old. I read the comments of people who chose to go ahead and have the procedure and I am much more confident that this is the right thing for me. I look forward to posting how I get through the procedure and seeing what has happened with others.

Sorry it is so long just giving you a summary. My best advice is to get more than one opinion. Talk to people who have been through this - they usually can tell you things better than the doctors who have never been through the stuff; and follow your gut instinct on what is right for you.

Pinkb_m
10-21-2003, 09:06 PM
hey all
i'd just like to say that like many of you i thought i was the only one with this problem, so thanks to the brave person who started this post.
i remember coughing up the stones when i was younger, but since i got my wisdom teeth out in dec (10 months ago) i think its gotten worse though i'v only really noticed the stones in say the last few months.
i'v got an idea thet maybe its stress related, as everyother problem i'v got that is continual is.

anyway i went to my dr yesterday and she poked at the spot and got some stuf out of it and she asked me if i wanted her to send it away for analysis and i said yeah sure. so i'm going back in about 2 weeks, the results should be in b4 that though, and i'll let u know what they are.
i didnt find this site till lastnight, acuually my bf didi'm glad he did.
i havnt read all the posts yet, so i hope everyone is doing well.

amandabrow
10-22-2003, 12:31 AM
Ok. Here's my story. I am 19 years old. I have always been very healthy. Never had allergies. Never had sinus problems. Never had problems with my tonsils. Never had bad breath (as far as I know). I hardly even get a cold. I haven't been to the doctor since I was 13.
About 6 months ago I got the nasty taste in my throat. That first time it went away on it's own and I didn't think about it agian until I got it agian about a month later. That time I coughed up what I now know is a tonsil stone. It freaked me out, but the bad taste was gone and that was all I cared about. Next time I tasted it I just gagged myself until it came up, and it came up pretty easy. It's been pretty much the same thing about once a month since then. But this time I have been tasting it for about a week and I can't get it out. It bothered me so much that I stayed up until 6am on a school night doing research online trying to figure out what it was and I found this site.
I don't understand how you people say you pick them out. I can't even find my tonsils. Can someone help me please? I want it out! I have been searching so hard I made myself throw up.
When I didn't know what these were I was really worried and I was going to go to the doctor, do you think I still should? I do feel like I have more mucus than I ever have had before, maybe I have developed some allergy or sinus problem. If these are caused by post nasal drip, will sinus medication help?
-Amanda

[This message has been edited by amandabrow (edited 10-21-2003).]

MrsLee
10-22-2003, 12:19 PM
Hello fellow tonsil stone sufferers--I have some good news I'd like to share with you all. I just bought some liquid grapefruit seed extract (GSE) and I think it is helping my tonsil stones!

I have been dying to make this post since the first day I tried it, but I do not want to give anyone a false sense of hope. I have only been using it for three days, but I feel it's working.

Four days ago, I hacked up 4 stones and had that awful taste in my mouth. I got my GSE in the mail and first tried it 3 days ago. I put 10 drops in a glass of iced tea and drank it, then put 3 drops into some water and gargled and swished it around in my mouth. It tastes terrible, very bitter, and it was hard to keep myself from gagging. But I have not felt or seen any tonsil stones since the very first day I used it, and I have not had that awful taste in my mouth.

I am truly amazed that this stuff is working. I was considering getting my tonsils removed and was trying this as a last resort. I truly hope this continues to work. Like I said, I do not want to give you false hope, but I could not wait any longer to post this message. Please order yourself some grapefruit seed extract and try this! You can do a search and find the company that sells it. It was almost $30, but I am finding it's well worth the cost. I know this sounds like an advertisement, but I am seriously so excited about this stuff! I'm sure you all know how annoying these stones can be, which is why I am SO excited.

Well I just wanted to share this with all of you, I'll keep you updated on whether or not it continues to work.

nam0428
10-22-2003, 12:26 PM
Amandabr****would suggest you at least go to the doctor and have them looked at to make sure there are no other problems going on. I have been having tonsilitus and didn't even know it. I was convinced it was my sinuses; but its not. But if your sinuses are draining sinus medicine will help but want get rid of it.

freestylechula19
10-23-2003, 05:44 PM
omg i had this problem for 6 months and omg is it the woprst ever...It feels liek im choking lol...i get the flash light out too..lol..but i am not letting it get to me ..I dont want it to consume my life ..I am so glad to know i aint the only one.....I had one today and i spent like 30 mins getting it out and it feels like its still there

MrsLee
10-24-2003, 11:30 AM
OK so I have been using the liquid GSE for 5 days now and I still have not hacked up or felt a tonsil stone. I cannot believe this stuff actually works, I am so excited.

mom2jason
10-24-2003, 09:46 PM
I have been suffering with these awful tonsil stones for a few years now. Every time I go to the Dr. they think I am crazy. I am a gagger and they are not able to do a culture when I go in. I have tried gaggling with peroxide and water, salt and water and it makes me nuts. I alsways feel like there is something stuck in my throat and can see them. I was desperate and bought some products from Therabreath on line and have been using it for about 1 week now and I really think it is starting to help. My tonsils are "cleaning" themselves out so to speak. almost always the stones are in my left tonsil only and smell awful...yuck big time. The left side of my neck is still sore but not as much ...the smell is going away too...try it...

halitophobe
10-25-2003, 07:50 AM
Well done MrsLee. The GSE seems to be working for me too (only 2 days in though). I'll report progress too.

Pinkb_m
10-28-2003, 07:01 AM
i tryed to make this post earlier but couldnt for some reasion.

anyway i wanted to say that unlike a lot of u it seems, i'm not especially prone to getting sore throats and colds a lot. i dont know if that is suposed to make a difference, and i'm not sure if i have post nasal drip which a lot of u seem to keep bringing up, what is it???

i to am gona try the GSE it sounds hopefull i ordered it in to my local health food store.

over the last few days i'v been picking at the stones and squeezing them out and now i'v got a pretty sore throat, iv started trying to use the seringe i got when i got my wisdom teeth out but i keep gaging, if theres a particular technique could u plese let me know

thanks ppl, this posting really has helped

LoriGymnast
10-28-2003, 12:23 PM
I don't get sore throats, only occasionally when I'm having a bad cold. My tonsils don't get infected. But I do have the post nasil drip. The way you can know if you have post nasal drip, is if you are clearing your throat quite often. Also, I can see the clear mucous sometimes, but not all the time. For the most part I live on Claritin 10mg. it helps some with the post nasil drip. I am of the belief that the post nasil drip has a lot to do with the problem of the tonsil stones and the fact that my tonsils are cryptic. By that I mean the tonsils have those holes in them. My left tonsil has a deep hole almost like a cavity in it. I have a feeling the right tonsil will eventually do the same thing. There is never any infection, pain or any other problems, just these yucky stones that can drive a person crazy. I try not to let it get to me, and my family says that my breath smells fine. I'd love to know how many of us tonsil stone sufferers have the post nasil drip, I'll bet the majority do. Whoever reads this and if you have tonsil stones, post or reply and let us know if you have post nasil drip too. Thanks





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