mommajessibelle
11-16-2003, 03:09 AM
I have had recurring "headaches" since the age of six. The characteristics are always the same:
First, a "popping" sound on the right side of my head, at the base of my skull about 3 inches or so straight back from my ear toward the center of my neck.
Then the feeling of millions of hot needles (like a limb falling asleep x 1000)
Next, the entire right half of my head from back to hairline becomes hot to the touch outside, and feels like it's on fire inside, excrutiatingly painful; the rest has only been relayed to me by those who have witnessed one of these episodes, as I have not even a vague recollection after the heat begins.
At this point, my eyes begin to flutter, usually I fall to the floor and start to writhe and convulse my right hand extended and shaking. My mother, father, a couple of friends and significant others have witnessed this phase lasting anywhere from 3 minutes to 12 minutes ( the most recent ). Believe it or not, I'm not done...
The "wind down" as my boyfriend called it is arching my back, and speaking "another language" - his comparison, as he had a hard time finding the words to describe it. My father has confirmed that it does and always has sounded as though I'm either jumbling my own English in a bout of confusion or I took Latin and never told him. His own comfort statement.
I sweat alot, to where my hair is soaked on the right, and I get fetal, sobbing and muttering my mystery language then exhale in a fashion resembling a person's death rattle, or last breath, not inhaling again for 3-7 second period, then gasping loudly for air only to exhale in super slow motion, repeating this finale 4 or 5 times before sleeping for no less than 20 minutes up to 6-7 hours following.
As I said, I do not remember, even with prompting, anything after the hot prickly feeling starts. I have seen several doctors, had CatScans, MRI's, and numerous tests since the first one at the age of six. I am now 32 years old and have gone as long as 2 years without an episode, once. On average in those 26 years, 2-3 months seems to be the length of time between episodes, but sometimes (3 or 4 periods of one year or so) they are as frequent as every week and a half to three weeks.
Anyone who has a clue or the old 2 out of 3 matches aint bad, I'd love any insight you may be able to give.
Thank You --
First, a "popping" sound on the right side of my head, at the base of my skull about 3 inches or so straight back from my ear toward the center of my neck.
Then the feeling of millions of hot needles (like a limb falling asleep x 1000)
Next, the entire right half of my head from back to hairline becomes hot to the touch outside, and feels like it's on fire inside, excrutiatingly painful; the rest has only been relayed to me by those who have witnessed one of these episodes, as I have not even a vague recollection after the heat begins.
At this point, my eyes begin to flutter, usually I fall to the floor and start to writhe and convulse my right hand extended and shaking. My mother, father, a couple of friends and significant others have witnessed this phase lasting anywhere from 3 minutes to 12 minutes ( the most recent ). Believe it or not, I'm not done...
The "wind down" as my boyfriend called it is arching my back, and speaking "another language" - his comparison, as he had a hard time finding the words to describe it. My father has confirmed that it does and always has sounded as though I'm either jumbling my own English in a bout of confusion or I took Latin and never told him. His own comfort statement.
I sweat alot, to where my hair is soaked on the right, and I get fetal, sobbing and muttering my mystery language then exhale in a fashion resembling a person's death rattle, or last breath, not inhaling again for 3-7 second period, then gasping loudly for air only to exhale in super slow motion, repeating this finale 4 or 5 times before sleeping for no less than 20 minutes up to 6-7 hours following.
As I said, I do not remember, even with prompting, anything after the hot prickly feeling starts. I have seen several doctors, had CatScans, MRI's, and numerous tests since the first one at the age of six. I am now 32 years old and have gone as long as 2 years without an episode, once. On average in those 26 years, 2-3 months seems to be the length of time between episodes, but sometimes (3 or 4 periods of one year or so) they are as frequent as every week and a half to three weeks.
Anyone who has a clue or the old 2 out of 3 matches aint bad, I'd love any insight you may be able to give.
Thank You --
Sponsor
latterdaylady
11-16-2003, 08:46 AM
Are you a diabetic?
mommajessibelle
11-17-2003, 01:02 AM
Are you a diabetic?
no im not diabetic the drs did check though
no im not diabetic the drs did check though
mommajessibelle
11-20-2003, 09:48 AM
any one with any ideas on this?
CrazyBeautiful
11-24-2003, 12:23 PM
Are you not epileptic? Sounds like seizures that I've seen...
mommajessibelle
11-24-2003, 01:19 PM
ok this a little confusing my name is jessie and yes i do have epilepsy but im not the one that wrote this post it was my neighbor and she doesnt have epilepsy i have witnessed these little episodes that she has and they are not seizures
CrazyBeautiful
11-25-2003, 11:37 AM
ok this a little confusing my name is jessie and yes i do have epilepsy but im not the one that wrote this post it was my neighbor and she doesnt have epilepsy i have witnessed these little episodes that she has and they are not seizures
Hmmm...that's real interesting. There is only one other thing that I can think of, but it sounds insane, and I wouldn't want to offend anyone by saying it. Let me just ask this: Has she ever seen a priest?
Hmmm...that's real interesting. There is only one other thing that I can think of, but it sounds insane, and I wouldn't want to offend anyone by saying it. Let me just ask this: Has she ever seen a priest?
mommajessibelle
11-25-2003, 02:07 PM
Hmmm...that's real interesting. There is only one other thing that I can think of, but it sounds insane, and I wouldn't want to offend anyone by saying it. Let me just ask this: Has she ever seen a priest?
Hi, this is Darcie, the one with the headaches. Actually, that doesnt sound crazy at all. Everytime my boyfriend has witnessed one of these episodes, when I come out of it he is sitting there praying, it scares the bejesus out of him.
The thought of needing to see a priest scares me though, not seeing a priest, but needing to, ya know?
Hi, this is Darcie, the one with the headaches. Actually, that doesnt sound crazy at all. Everytime my boyfriend has witnessed one of these episodes, when I come out of it he is sitting there praying, it scares the bejesus out of him.
The thought of needing to see a priest scares me though, not seeing a priest, but needing to, ya know?

