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cmorgan
11-21-2003, 06:47 PM
Hi my name is chris morgan

I had a pretty good life up untill OCT 5th 2003 It all came crashing down.
See I have been suffering from head aches and vertigo for about 12 years
I seen many doctors for the head aches within those 12 years .I did end
up finding out 1991-92 that I had a tmj problem in the jaw joint .So I thought
ok so Im not going to die from it Ill just learn how to deal with the problem.
Well It stoped me in my trax I was in las vegas on my birthday vacation and
It hit me the worse case of head and vertigo I ever had within the 12 years.
I thought I was going to die that day so I went up to my room and went to sleep
hopeing I could shake It off me but It never went away . I now have more problems
along with the head ache and vertigo I have dizziness, memory loss, blurred vision,
muscle twitching in the temple area, nausea,nervous system problems and all never
go's away.Im seeing a tmj specialist and a chiropractor and a massage specialist
for my problems. The chiropractor is the only one that helps but the pain comes
back after a few hours.I feel like I would be better off dead so I wouldnt have
to deal with this every day .Everyone always telling me youll be ok man hang in
there. Well I dont feel that way after reading all the info I could on the internet
and talked to some people haveing the same problems and reading story after story
about tmj problems some of them are living with the same problems as me some people
has had it as long as 30 years and tryed every thing.I look at life a lot different
now I love life but not like this .The only reason I wake up every day is because
my wife ,family and friends there all I have in this world .My wife is my best friend
I love her so much she's my hole world my everything I just want to be able to do
all the things we did before we have so much fun together I miss that so much I
couldnt even tell you in words .As of now im not working and I cant leave the house
I can only drive to the corner store .I have been stuck in the house for the last
45 days I just wish I could be me again and have fun and go places hang out with my
wife and friends again. Im sorry to go on like this but it hurts me so bad that I
lost my life I just dont see any hope of every getting any better . But Im hangin
in there with hope of recovering from this.To all the people suffering from pain
everyday Im so sorry you have to deal with that and I can understand If I could
help you I would ...
chris morgan

Sponsor
 



TMJgirl
11-21-2003, 09:09 PM
Dear Chris:
Believe me, you are not alone! I am a very healthy, fit 47 year old woman, with a life, that I once had, and a family that I thank the lord still have. I got socked with this TMJ stuff almost a year ago, and I have been thru living Hell. I have had every medical test known to man, some several times over. After 5 ENT's along the line, one told me if I ever heard of TMJ. I said yes, and he said that is what I have. My symptoms are as follows on a daily basis: VERTIGO!!!! CLOGGED EARS!!! ANXIETY!!! HEAD MUSCLE SPASMS!!! BRAIN FOG!!! need I say more???? I am exasperated also. I go to a wonder neuromuscular dentist who made a splint for me two months ago, and there is a dramatic change in my bite and my face is now symetrical, BUT..............the payoff for me at least is that the symptoms have gotten worse. I try to stay healthy, I go to a gym every single day and pump iron, and I go to a chiropractor twice a week. From the neck down I am wonder woman, but my head is a different story. Yesterday I went to yet another ENT far away from my home, desparately seeking someone to find fluid in my ear and nada!!! I made an appointment with a shrink to get medication, of which i had tried before, and it just exasperated the symptoms further. I am giving in and willing to try something because I hyperventalate constantly and it starts upon waking in the morning. All I have to do is stand up and it starts, the dizzy the clogged ears the brain fog, and I go off into a panic mode for the rest of the day. Tonight I noticed something really wierd when I was eatting my soy beans. I noticed that when I chew my jaw is moving back into my head more and the bite has changed remarkably. I dont know if this is a good think, but it seems the jaw is sinking further into my skull so to speak and I think the muscles are being exausted so they swell up. That is just my theory and I am seeing my doctor on Tuesday. I am wondering if you have a splint? You didnt say if you did, I dont think, cant remember to well these days, but if you do, maybe your jaw is moving in a new direction too! The way it was explained to me is that that joint lays 3mm from the inner ear and basically lays in the middle ear. If it is aggrevated in anyway, 30% of all nerves and blood vessels in the entire body pass thru the joint to the brain if you can believe that! That is what my NM dentist told me. Facsinating. Anyway, if the jaw is misaligned, then the nerves and muscles go into a spasm and hence the vertigo and clogged ears. Make sence? I hope this helped you, I know how you feel, I am also sick every day. I try to fake it around everyone, but sometimes, I feel like I have some wierd disease that no one has figured out yet. I feel detached from my body like a wierdo sensation and I freak out! Hold on buddy, we have to help each other, and maybe we can go on with our lives. Great that you have an understanding family. My husband is not to good with this, and only is nice to me when I fake being well. Otherwise he is lousy after 28 years of marriage. Oh well, such is life...........tata and take care of yourself.

kami-girl
11-21-2003, 11:32 PM
Hi Chris & TMJgirl,

Boy, do I know how you feel. I have suffered with brain fog type vertigo for over 30 years now. I know all about the fear, anxiety, low self esteem etc that goes along with it. Like you Chris, I was able to cope with it until 2 and a half years ago when I was hit with severe spinning vertigo. That is when my real problems started. I am now on splint therapy (5 mos) and like TMJgirl I havent't noticed much difference except facial and bite changes as well as less headaches but the dizziness etc is still here. I do believe the muscle spasm does cause alot of these problems. I have tried alot of treatments and so far I haven't found anything miraculous but my next step is trigger point massage therapy and hopefully that will help. My dentist says that it will take at least a month of treatment for every year that you have had tmj problems, so for me it looks like I need about 2 and a half years of therapy. He also said that when the facial muscles are being repositioned (splint), then the neck muscles must also be treated because they are affected too. Hang in there guys, if I can I know you can too. Here's hoping for better days ahead for all of us!

Grace

TiffanyAnn
11-21-2003, 11:55 PM
Hi Chris:
I'm so sorry to hear about the pain you have been in and that it has got you so depressed. I have been where you are, so depressed and in so much pain that I just wanted to die because I thought things would never get any better. I have had TMJ for about 24 years. It began in my teens right after getting my braces removed. At first the only problem I had was some clicking in my jaw but as years went on my symptoms progressed to where my jaw clicked every time I opened my mouth, my jaw locked, I had horrible killer headaches EVERYDAY until I just wanted to die. I had the dizziness, riniging in my ears, blurred vision. The list went on and on. A few months ago I began splint therapy with a orthodontist and I have made excellent progress. When I began splint thearpy my pain was a 10 on a scale of 0 to 10. But now my pain level is down to about a 2. I no longer have the daily killer headaches, my jaw rarely pops or clicks and it has not locked at all. The ringing in my ears has lowered to the place where I only have it sometimes and at a low ring rather than that high pitch ring I used to have. What I am trying to say to you is that there is treatment out there that will give you your life back. We will never be perfect, the way we were before we had TMJ but my life has improved so much. Finding the right person for treatment is more than half the battle. Since there are no guidelines for treatment and no set standards we are kind of at the mercy of these "professionals". We do our homework and learn as much as we can about our condition and treatment options so we can spot a phony. It's such a shame that we have to work harder and spend so much money because there are no standards for treatment of TMJ. But Chris, there have been several on this board who have found successful treatment for the TMJ and are now of out pain. Please don't give up hope. There is help out there and you can regain your life.
Tiffany

TMJgirl
11-22-2003, 10:28 AM
Hi Grace:
Me again....yes, this is truly a trying time in my life along with the rest of you. I hate getting up in the morning, I start to cry right away and my family runs away from me. I feel so alone. I get support from outsiders alot, ie: my NM dentist, chiropractor and personal trainer. My family doesnt seem to sympathize, they just want me to be like I was. I am frustrated with this so much, because I am not who I was. I was a vivacious person involved in my community and now I am a dizzy fool looking for a cure. My jaw got stuck today when I woke up and the ear immediatley clogged up. Then the panic, then the vertigo...and it is only 9AM. This is hell on earth. God help us...........

cmorgan
11-23-2003, 02:15 AM
Thanks you guys for all the replys it helps me with my day I hope you all get better hang in there .... chris

cmorgan
11-23-2003, 11:31 PM
Hi is anyone ever has the feeling that there life is kinda fading away .
Man this tmj thing can really trip you out it sucks .
chris

TMJgirl
11-24-2003, 09:27 AM
Chris:
It is 8:24 AM here in eastern Pennsylvania and I have already had major panic attacks from the TMJ syndrome that I wake up with every day. I am going absolutely nuts with this thing also. You are not alone. I feel like I am dying too. Like the end is near for me and Like I have some sicko disease they cant diagnose right. TMJ seems to easy, doesnt it. It just doesnt seem to make any sence with the ears and dizzys for me. I know that structurally it is logical but I live with this every day. I sometimes feel like I cant go on too, but I look around me and give it yet another day. Some times I think just who am I doing this for, who am I hanging in there for. My family runs away from me, husband not supportive, no friends anymore, just the gym I go to and bang out free weights. So what is the point? I know what you mean, chris. This sucks.........You are not alone. I feel your pain!

DianeTMJ
11-24-2003, 02:28 PM
Good morning Chris-
I am so sorry that you are going through so much with your TMJD. This message is one of hope and positive report on the successful treatment of TMJD. In March of 03 I was very much where you are at today. Today, I am symptom free, excluding the sleep apeana, which we are working on.

I had to pull myself up by my boot straps, I realized that unless I took control of this beast, it would only continue to darken my life. I was not going to allow that to happen.

I would like to encourage you to not let this thing beat you down anymore. Look at it for what it is worth and then come out fighting. Educate yourself about TMJD until it is coming out of your ears. Then start looking for someone to help you. The most important thing to remember when looking for treatment of your TMJD is to NOT give up your power to any dentist/Dr who will or might be treating you. You are the patient and have every right to ask any question or questions to them in regard to your treatment. They must have much experience under their belt in regard to treating TMJD and not just one treatment style. I would not allow any form of surgery on my joints, I would not allow any drugs to be prescribed to me, I wanted help, I wanted to be free of TMJD. Ask, Ask, Ask, if a dentist has a bigger then life attitude , be careful, their attitude may get in the way of successful treatment.

I want you to know there is hope out there, it just takes ALOT of digging, hit and misses, but it is out there.
DianeTMJ

CherylLynn24
11-25-2003, 03:17 AM
Chris,

I'm sorry that you're dealing with this. To answer your question about feeling that your life is fading away....Yes, it does feel like this, not for me, but for my young Son. I have a kid dealing with this that began while in braces. His problems began last December. He's had a constant headache since then, along with tinnitus, neck and back pain, along with other symptoms. He's tried too many drugs to name, physical therapy, massotherapy, and a chiropractor, just to name a few. He's on his 6th or 7th splint. (I've lost track) He also has a tens unit. Nothing has helped him. I've taken him to so many doctors/dentists that I've lost count. It makes me sad to see him so miserable and missing out on the fun 'young' years due to pain. I worry what the future holds for him if I don't find him adequate help soon. How much pain can a kid take before they turn too 'dark'??

If you haven't done so already, search for someone in your area that specializes in the treatment of TMJD. Judging from other members on this board, relief is found through the 'right' dentist making the 'right' splint. Unfortunately, we haven't found our 'right' person yet, but I'll never give up on my kid even though others have. Good Luck to you.
Cheryl

TMJgirl
11-25-2003, 08:30 AM
Cheryl:
I am a 47 year old woman dealing with this. I cant imagine a boy having this personal hell. Please dont give up on him. He really needs you now more then ever. I have a child angel in heaven and I would have done anything to have helped him. His was a case of doctor misdiagnosis. Keep going to different doctors until you find the answer. Just do not give up on him. I know you wont or you wouldnt be here! God Bless......

cmorgan
11-25-2003, 08:51 PM
I guess we just have to hang in there in hopes that someday we will all find
something or someone that can help us out there .Man I just turned 30 oct4
and it hasn't been any fun so far but Im going today to see my doctor so he can check my splint mybe a ajustment or something if he cant help me all
go see someone else . I cant stand sitting around my house wondering if
im ever going to feel normal again . hang in there people if I can find something out there that works you will be the first to know about it ...
chris

TMJgirl
11-25-2003, 09:28 PM
Hey Chris:
It is me, TMJgirl. My name is Demi, by the way. Yeah, I went to my NM dentist today, as a matter of fact. He did some TENSing on me and then took my splint overnight to readjust. Says the jaw is going to far back into my head when I chew. It is exasperating the symptoms and I know he is trying very hard to help me. He is a wonderful guy and I love and trust him. He is doing all he can do for me. Find someone you can trust and put your faith into him or her. The way he describes the changes is that it is a change. The ligaments, muscles and nerves are being moved around in my head, and the skull is changing. My jaw is more aligned now, but the clogged ears and vertigo still suck. This is scaring me too, because I wonder if it will ever end. From the outside of me, I look normal and healthy. From the inside I feel like I am imploding, for lack of a better word. The spasms are horrific and I feel like my head is all tight. He says it is anxiety. I am going to try prozac when I can get the nerve up to swallow the pill. Anyway, I will write and let you know what happens tomorrow when I go get it back, and he is going to put me on a computer with software called K6-1. It measures the spasms and muscles in the head with electrodes and he does it before TENSing and then after. It shows a dramatic difference, so it shows me in black and white, and in a fact, that the muscles are doing this to me. Have you had this? This is good for your dealing with it, to see it for yourself, in black and white, or color. Shows you that it is NOT in your head, it is real, and then you can deal with the structural damage as well as the anxiety. Hang in there, buddy. We will all make it thru. Talk at ya later.......

cmorgan
12-16-2003, 12:21 AM
Hi people
Its chris again just wanted to give you a little update on how Im doing.
Things have gottin alot better for me since my last post I was able
sit down with my tmj specialist Dr. Olmos and really talk about the problems
I been having with tmj. He has really been able to help me alot with the pain
and the headaches. When I first posted on here I was at my all time lowest
point with this problem now Im about 60% better Im not running around town
like I would like to do but I beleave I will be there again soon.Thanks to Dr. olmos with the tmj therapy and Dr.mersky my chiropractor he's been able to help me with all the back neck and shoulder problems I was having and to my massage therapist they have all been working together to get me better and it has really been working for me.To all the people out there that are having problems with tmj beleave me you must hang in there you will find something that will work for you it is out there .If anyone ever needs someone to talk to
about anything Im here for you .

thanks chris

windymoon
12-16-2003, 12:44 AM
Chris,
This past Oct I had a root canal and just a few days later I had horrible pain in my left jaw. Make A long story short I had a MRI and they found I had a bad misalignment. I haven't had much pain in a week now due to the fact my oral surgeon move my jaw back into place. They do it most of the time by injecting fuild behind the jaw and move it back. it's pretty much painless. FEEEEEEEEEELS so much better! I'm having a splint made since I clench my jaw which I sleep, and the muscles are weak. Please find a oral surgeon that is a specialist in TMJ. Mine is so great! I hug him for helping me! Your health insurance shall pay for it and in most states it's the law>TMJ is a medical condition not a dental. Good Luck!

tina1966
12-16-2003, 08:47 PM
[FONT=Arial]
Dear Chris,
My name is Tina and my life too came to a screeching halt in July of this
year. I am 37 and mother of two. I too was active with my children, school,
etc., For three months I was in total hell and just wanted to die from all
the pain i had. I saw 8 doctors before realizing that I had TMJ ..all doctors
I saw laughed at me when I mentioned TMJ. I have had every test done
under the sun. My message to you is his. HANG IN THERE!! I did and now
I am doing so much better, I am wearing a splint on my bottom teeth now
for about 5 months, my headaches are gone, spasms gone, I take xanax
and paxil to help me deal with this, because I have spontanepous pain
throughout my body, I am simply here to help you like others helped me.
You need to get a book called "Taking Contol of TMJ" by ROBERT O. UPPGAARD,
DDS, TMJ affects the entire body and this book is such a great help!!TRUST ME!
I also see a physical therapist who did wonders for me, I was so bad off, I could
not do one thing except for dress myself, I could not drive, hardly could walk,
do housework, etc. Now I am about 90% better. I can do everything once
again and am so thankful.. Just research, research research all you can!!
God also helped me get through this. Everybody i knew thought i was crazy!
Pleae have faith, pray and i Know you can get throught this. YOU are the one
who has to take control and charge of your health and well being. Please get
the book, itexplains TMJ so well and how it affectsthe ENTIRE body and what
to do to get over it...it helped save me! Take care and God Bless You!!
Tina

Navy1990
12-16-2003, 08:57 PM
[FONT=Arial]
Dear Chris,
My name is Tina and my life too came to a screeching halt in July of this
year. I am 37 and mother of two. I too was active with my children, school,
etc., For three months I was in total hell and just wanted to die from all
the pain i had. I saw 8 doctors before realizing that I had TMJ ..all doctors
I saw laughed at me when I mentioned TMJ. I have had every test done
under the sun. My message to you is his. HANG IN THERE!! I did and now
I am doing so much better, I am wearing a splint on my bottom teeth now
for about 5 months, my headaches are gone, spasms gone, I take xanax
and paxil to help me deal with this, because I have spontanepous pain
throughout my body, I am simply here to help you like others helped me.
You need to get a book called "Taking Contol of TMJ" by ROBERT O. UPPGAARD,
DDS, TMJ affects the entire body and this book is such a great help!!TRUST ME!
I also see a physical therapist who did wonders for me, I was so bad off, I could
not do one thing except for dress myself, I could not drive, hardly could walk,
do housework, etc. Now I am about 90% better. I can do everything once
again and am so thankful.. Just research, research research all you can!!
God also helped me get through this. Everybody i knew thought i was crazy!
Pleae have faith, pray and i Know you can get throught this. YOU are the one
who has to take control and charge of your health and well being. Please get
the book, itexplains TMJ so well and how it affectsthe ENTIRE body and what
to do to get over it...it helped save me! Take care and God Bless You!!
Tina

Hi Tina!

What a great post. I am so happy to hear you are doing better. I've been in my current splint over a month now and have seen some positive changes. Are your discs displaced? What type of splint are you in? I'm in a repositioning splint. Just curious as to how often you wear your splint and what advice you can give to those of us that just started splint therapy.

Take care!
Navy1990





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