Lyne2
07-22-2003, 07:02 PM
I was just diagnosed with Celiac Disease or Sprue. [I would like information] At 38 I think Ihave a big lifestyle change! Any help is greatly appreciated!
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[This message has been edited by kitaki (edited 07-22-2003).]
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[This message has been edited by kitaki (edited 07-22-2003).]
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Sue90
07-23-2003, 12:47 AM
I have a wheat allergy but not Celiac. What I suggest is to do a lot or research on the subject. The Internet is a great place for that. There will be other things other than Wheat you will,should stay away from.
Good luck
Sue90
Good luck
Sue90
Frustrated1
07-24-2003, 06:08 PM
I like Sue90 have a wheat allergy. However I also am lactose intolerant. Celiac Spruce is an allergic reaction to the gluten. The condition attacks the intestinal lining and eats away at it. The best suggestion I can give you is to learn all about the different foods in which wheat is used. Once the allergic component is eliminated, the intestinal walls will repair itself.
Some of the common things that i have avoided are
Breads, Pasta, Cream of Wheat, Cookies, Muffins, Most Commercial Cereals.
Some of the things I now avoid due to wheat containing ingredients.
1) Proceessed Meats - Some of these contain a binder that has wheat as a component.
2) Pringles - Contains wheat gluten
3) Certain Spices like Ground cinnamon - Some spcies contain flour to prevent clumping
I think this is a very fundamental lifestyle change, but it allergic reactions can be significantly reduced if these foods are elimiinated.
Some of the common things that i have avoided are
Breads, Pasta, Cream of Wheat, Cookies, Muffins, Most Commercial Cereals.
Some of the things I now avoid due to wheat containing ingredients.
1) Proceessed Meats - Some of these contain a binder that has wheat as a component.
2) Pringles - Contains wheat gluten
3) Certain Spices like Ground cinnamon - Some spcies contain flour to prevent clumping
I think this is a very fundamental lifestyle change, but it allergic reactions can be significantly reduced if these foods are elimiinated.
Frustrated1
07-24-2003, 06:39 PM
You should be able to obtain a list of goods that you avoid.
Another thing I left out in my list is Oats.
Another thing I left out in my list is Oats.
Frustrated1
07-31-2003, 09:02 PM
For those with wheat and milk allergy. I found this list online which I thought would be of interest
http://www.notmilk.com/gotallergies.txt
If the link does not work, you may have to cut and paste it into your browser
http://www.notmilk.com/gotallergies.txt
If the link does not work, you may have to cut and paste it into your browser
googoo1
08-04-2003, 05:43 PM
Lynne,
I am so sorry that you have this disorder, but I'm very glad that you have a diagnosis and can start to eat in a way that will make you feel so much better. The good news is that there are a LOT of really wonderful products available now that will be healthy for you and actually taste good. My husband is gluten intolerant, not as severe an allergy as celiac sprue, but bad enough to avoid wheat, oats, rye and barley. We figured this out about ten years ago, and went through a lot of trial and error to find products that were good. A lot of gluten-free products are really terrible, so I hope this list will save you some time and experimentation. A lot of these products are available in health food stores like Whole Foods, Bread and Circus, and Wild Oats.
Best source of recipes to make at home:
Bette Hagman's Gluten Free Gourmet books.
Her books also have a lot of good information about living with celiac sprue, including what to avoid, how to order in restaurants, etc.
Best source of mail order mixes, condiments, pasta, information, etc. etc. etc...
The Gluten Free Pantry
Best rice pasta:
Pastariso, hands down.
They make an incredible Spinach Fettucine which is hard to find, but any of their pasta is great. Tinkyada pasta is also very good. (DO NOT BUY DeBoles rice pasta. Horrible stuff.)
(By the way, in general, rice pasta takes a lot longer to cook, so if you are making pasta for yourself and wheat pasta for someone else, put yours on first.)
Bread:
Bread is really the tricky part, because gluten is the stuff that makes it hold together. The very best we have found are actually dinner rolls from Gillian's Foods
Gluten free pantry makes an ok sandwich bread mix, I think their french bread mix is a little better. If you really want good sliced bread, you may want to get a bread machine and experiment with Bette Hagman's recipes. Xanthan gum (makes gluten-free breads chewier) is available at health food stores -- make sure to keep it in the fridge. For now, you may want to stick with the Gillian's rolls, they make very good sandwiches.
Pizza
You can have pizza! Gillian's foods also makes very good pizza dough, available frozen along with their rolls. My husband could not have pizza for seven years, so we were thrilled to find this stuff.
Pancakes
Gluten Free Pantry Pancake mix is the best (Arrowhead Mills is the worst -- very grainy.) My husband actually makes his own now with Gluten Free Pantry Pizza Dough mix and rice flour, and they come out nice and chewy and hearty.
I hope this helps; Good luck!
Links to commercial web sites is strictly forbidden in the Posting Guidelines. Posting of such links will result in banning.
[This message has been edited by googoo1 (edited 08-04-2003).]
[This message has been edited by kitaki (edited 08-06-2003).]
I am so sorry that you have this disorder, but I'm very glad that you have a diagnosis and can start to eat in a way that will make you feel so much better. The good news is that there are a LOT of really wonderful products available now that will be healthy for you and actually taste good. My husband is gluten intolerant, not as severe an allergy as celiac sprue, but bad enough to avoid wheat, oats, rye and barley. We figured this out about ten years ago, and went through a lot of trial and error to find products that were good. A lot of gluten-free products are really terrible, so I hope this list will save you some time and experimentation. A lot of these products are available in health food stores like Whole Foods, Bread and Circus, and Wild Oats.
Best source of recipes to make at home:
Bette Hagman's Gluten Free Gourmet books.
Her books also have a lot of good information about living with celiac sprue, including what to avoid, how to order in restaurants, etc.
Best source of mail order mixes, condiments, pasta, information, etc. etc. etc...
The Gluten Free Pantry
Best rice pasta:
Pastariso, hands down.
They make an incredible Spinach Fettucine which is hard to find, but any of their pasta is great. Tinkyada pasta is also very good. (DO NOT BUY DeBoles rice pasta. Horrible stuff.)
(By the way, in general, rice pasta takes a lot longer to cook, so if you are making pasta for yourself and wheat pasta for someone else, put yours on first.)
Bread:
Bread is really the tricky part, because gluten is the stuff that makes it hold together. The very best we have found are actually dinner rolls from Gillian's Foods
Gluten free pantry makes an ok sandwich bread mix, I think their french bread mix is a little better. If you really want good sliced bread, you may want to get a bread machine and experiment with Bette Hagman's recipes. Xanthan gum (makes gluten-free breads chewier) is available at health food stores -- make sure to keep it in the fridge. For now, you may want to stick with the Gillian's rolls, they make very good sandwiches.
Pizza
You can have pizza! Gillian's foods also makes very good pizza dough, available frozen along with their rolls. My husband could not have pizza for seven years, so we were thrilled to find this stuff.
Pancakes
Gluten Free Pantry Pancake mix is the best (Arrowhead Mills is the worst -- very grainy.) My husband actually makes his own now with Gluten Free Pantry Pizza Dough mix and rice flour, and they come out nice and chewy and hearty.
I hope this helps; Good luck!
Links to commercial web sites is strictly forbidden in the Posting Guidelines. Posting of such links will result in banning.
[This message has been edited by googoo1 (edited 08-04-2003).]
[This message has been edited by kitaki (edited 08-06-2003).]
Frustrated1
08-05-2003, 10:11 PM
I am so glad someone posted this.
I too have an aversion to wheat, oats and other grains and I have tried these products and his synopsis above is absolutely right on.
The next thing I think would be also helpful is learn what gluten is in all of its forms, because it has a variety of forms that are used in many commerical foods.
The other problem I have had is to find a rice bread, that does not weigh 5 - 10 pounds per loaf.
I too have an aversion to wheat, oats and other grains and I have tried these products and his synopsis above is absolutely right on.
The next thing I think would be also helpful is learn what gluten is in all of its forms, because it has a variety of forms that are used in many commerical foods.
The other problem I have had is to find a rice bread, that does not weigh 5 - 10 pounds per loaf.
Frustrated1
08-05-2003, 10:25 PM
To Googoo1:
I noticed that you also must avoid wheat even though you were not diagnosed with Celiac. I too must had a similar problem and the tests I received were inconclusive. Antigladin antibodies were positive and Antiendoysmal antibodies were negative.
How long did it take you to reduce your symptoms totally. If you eat some wheat or oats by mistake do you know it immediately? What happens in these cases.
I have tried the Arrowsmith products and have subsequently thrown them out. Luckily the city where I reside has a really good health food store where I can get many of the products you have listed.
I noticed that you also must avoid wheat even though you were not diagnosed with Celiac. I too must had a similar problem and the tests I received were inconclusive. Antigladin antibodies were positive and Antiendoysmal antibodies were negative.
How long did it take you to reduce your symptoms totally. If you eat some wheat or oats by mistake do you know it immediately? What happens in these cases.
I have tried the Arrowsmith products and have subsequently thrown them out. Luckily the city where I reside has a really good health food store where I can get many of the products you have listed.
googoo1
08-06-2003, 02:55 PM
Frustrated1,
It's actually my husband who has the sensitivity, and he has found that now he can have a little bit of wheat with no problem, if there are bread crumbs in a recipe or something like that, he just scrapes off most of them and he's ok.
What happens if he eats a lot of wheat? Well, when a celiac eats wheat, it has a serious effect on the digestive system and all manner of illness results, not the least of which is the fact that the person can't really absorb any nutrition from any foods. My husband just has an intolerance, which means that he doesn't digest wheat very well. Let's just say that if he were to eat a big pile of gluten, he'd be spending a lot of time in the bathroom... and sleeping on the couch that night!! ;)
It's actually my husband who has the sensitivity, and he has found that now he can have a little bit of wheat with no problem, if there are bread crumbs in a recipe or something like that, he just scrapes off most of them and he's ok.
What happens if he eats a lot of wheat? Well, when a celiac eats wheat, it has a serious effect on the digestive system and all manner of illness results, not the least of which is the fact that the person can't really absorb any nutrition from any foods. My husband just has an intolerance, which means that he doesn't digest wheat very well. Let's just say that if he were to eat a big pile of gluten, he'd be spending a lot of time in the bathroom... and sleeping on the couch that night!! ;)
Frustrated1
08-07-2003, 02:53 PM
Thanks for the reply!!! Googoo1
Thanks for the response. I can totally understand the sleeping on the couch syndrome. I have had to do it several times. Believe me. I am not sitting down at the table with a box of wheat gluten and a fork, That is too scary for words. I think I fear that more than anything else. I just find that even a small amount within my system can initiate some of the more longer lasting symptoms. Headache, joint ache, a fatigue without a severe BM, its more like a general sense of unwellness, where I know something is not correct if you know what I mean.
Thanks for the response
Thanks for the response. I can totally understand the sleeping on the couch syndrome. I have had to do it several times. Believe me. I am not sitting down at the table with a box of wheat gluten and a fork, That is too scary for words. I think I fear that more than anything else. I just find that even a small amount within my system can initiate some of the more longer lasting symptoms. Headache, joint ache, a fatigue without a severe BM, its more like a general sense of unwellness, where I know something is not correct if you know what I mean.
Thanks for the response