MrsLee
10-14-2003, 05:19 PM
Does anyone have any information about vasomotor rhinitis? Apparently it is like having allergies, only you're not allergic to anything, just irritated by things around you, which causes swelling in the sinuses and other symptoms. I know this board is for those WITH allergies, but maybe some of you could have this condition instead or may know something about it?
I have a constantly stuffy, itchy nose, dry, irritated eyes, drainage down the back of my throat, crackling, full-feeling ears (leading to dizziness), and constant headaches. For years doctors have told me I have allergies and prescribed allergy medicines for me.
I got tired of taking them (as they do not work very well) and demanded to be tested for allergies. As I had always suspected, I am not allergic to anything (that they tested me for anyways). The Dr. just told me I have vasomotor rhinitis.
So I guess without having the actual skin test, there is no way to know if you have true allergies or not. I am actually a little disappointed that I don't have allergies, just because that means there is no way for me to find out what is making me feel sick. The doctor told me not to worry, that he has this condition too, and that it is a real disease. But I can't help question myself--maybe this is all in my head? How can I feel this bad and only have some obscure condition? Oh well, I am babbling....this is just a little depressing to have some disease I have never heard of that will never go away. But certainly, life could be MUCH worse than it is....
SO, anyways,if anyone has any information about vasomotor rhinitis, will you please please please share it with me?? Thank you!
I have a constantly stuffy, itchy nose, dry, irritated eyes, drainage down the back of my throat, crackling, full-feeling ears (leading to dizziness), and constant headaches. For years doctors have told me I have allergies and prescribed allergy medicines for me.
I got tired of taking them (as they do not work very well) and demanded to be tested for allergies. As I had always suspected, I am not allergic to anything (that they tested me for anyways). The Dr. just told me I have vasomotor rhinitis.
So I guess without having the actual skin test, there is no way to know if you have true allergies or not. I am actually a little disappointed that I don't have allergies, just because that means there is no way for me to find out what is making me feel sick. The doctor told me not to worry, that he has this condition too, and that it is a real disease. But I can't help question myself--maybe this is all in my head? How can I feel this bad and only have some obscure condition? Oh well, I am babbling....this is just a little depressing to have some disease I have never heard of that will never go away. But certainly, life could be MUCH worse than it is....
SO, anyways,if anyone has any information about vasomotor rhinitis, will you please please please share it with me?? Thank you!
Sponsor
n7ynk
10-14-2003, 10:23 PM
I have never heard of vasomotor rhinitis, it sounds interesting. I can only relate to the irritability you described. I have eliminated my irritability I use to get with a totally new approach called nasal irrigation. Turns it off like a light switch.
I have been allergy drug free for almost 6 months! I irrigate twice sometimes three times a day. I use nasaline, a 60cc syringe with a special tip for irrigating. Around $20.
I first boil filtered tap water to kill all the bacteria present. After it cools, I mix 2 cups of warm (I use a mcirowave to get it warm again) filtered water with 1/2 tsp of noniodized sea salt with 1/4 tsp of baking soda. I irrigate three times each side and that uses all of the 2 cups of water.
My allergist recommended it to me and it has changed my life. I wish you well
I have been allergy drug free for almost 6 months! I irrigate twice sometimes three times a day. I use nasaline, a 60cc syringe with a special tip for irrigating. Around $20.
I first boil filtered tap water to kill all the bacteria present. After it cools, I mix 2 cups of warm (I use a mcirowave to get it warm again) filtered water with 1/2 tsp of noniodized sea salt with 1/4 tsp of baking soda. I irrigate three times each side and that uses all of the 2 cups of water.
My allergist recommended it to me and it has changed my life. I wish you well
STAGRE
10-24-2003, 12:16 PM
I just saw your post about vasomotor rhinitis. This is a long post. That is what I have. I was first tested for allergies in 1997. The tests showed I was allergic to molds, mildews, dust mites, and dogs. I think the tests were off. It also showed I was not allergic to stinging insects and I have medical proof that I am. I took shots (4 per week) but they made me worse. Quit after a year. I have taken every allergy drug known. I was retested last year and none of the tests came back positive for allergens. These were all skin tests. About 100 or so in all. The doc told me that it was vasomotor. On good days I have no problems but on BAD days it is "nasty" I can't do ANYTHING because of my nose pouring like a faucet and sneezing. I counted over 100 sneezes one day. I went to an ENT at the urging of my family doctor. CT shows bad deviated septum and the ENT said that my turbinates looked awful. I am going in for surgery on the septum and turbinates in November. The ENT said it should help a lot with the allergies, headaches, congestion and whatever else. No guarantees but should help. I have heard good and bad about the turbinates but at this point I am willing to give it a try. I have ruptured a cervical disk(had ACDF) from so much sneezing. I think I am physically drained from these unknown allergies!!!
lhacker
10-24-2003, 07:47 PM
Have you considered Volitile Organic Sensativities. resembles allergies, but, most allergy medacines don't help. If your immune system gets overloaded, abused, traumatized by one of these chemicals, you become sensative to even more. Many have no odor. I had a bad time for 9 months from hidden potpouri from AROMATIQUE. Allergist found no allergies, none of the medacines prescribed helped. But when we found and removed the bag of smells, my exploding headaches went away. These problems occured anywhere in the house, although I always felt worse in the living room. Even though the headaches went away, the congestion remained. Only indoors. As a result, I had to cancell the newspaper, found and removed mothballs in a sealed box stored in the garage. Found that Snuggles dryer softners were preventing my sleeping ( (my wife has always had a bad nighttime cough and it went away also.) I have taken some heavy doses of Ascorbic Acid - vitamin C and now take 500mg with every meal. This is supposed to desensatize the ImmoglobinG (in common allergies Immoglobin E is the histamine trigger) and after a month I am getting better - ie: less suseptable to chemicals/odors. Find I may go two or three days without a relapse.
sneezyhedd
10-25-2003, 04:01 AM
PLEASE refer me to any info you have on this, how to broach the topic with my needle-wielding, drug-pushing allergist, and any thing you can tell me about this would be SO MUCH appreciated. I am desperate to kick this stuff to the curb for good! Any good docs in the LA area by chance? THANK YOU!
Originally posted by n7ynk:
I have never heard of vasomotor rhinitis, it sounds interesting. I can only relate to the irritability you described. I have eliminated my irritability I use to get with a totally new approach called nasal irrigation. Turns it off like a light switch.
I have been allergy drug free for almost 6 months! I irrigate twice sometimes three times a day. I use nasaline, a 60cc syringe with a special tip for irrigating. Around $20.
I first boil filtered tap water to kill all the bacteria present. After it cools, I mix 2 cups of warm (I use a mcirowave to get it warm again) filtered water with 1/2 tsp of noniodized sea salt with 1/4 tsp of baking soda. I irrigate three times each side and that uses all of the 2 cups of water.
My allergist recommended it to me and it has changed my life. I wish you well
Originally posted by n7ynk:
I have never heard of vasomotor rhinitis, it sounds interesting. I can only relate to the irritability you described. I have eliminated my irritability I use to get with a totally new approach called nasal irrigation. Turns it off like a light switch.
I have been allergy drug free for almost 6 months! I irrigate twice sometimes three times a day. I use nasaline, a 60cc syringe with a special tip for irrigating. Around $20.
I first boil filtered tap water to kill all the bacteria present. After it cools, I mix 2 cups of warm (I use a mcirowave to get it warm again) filtered water with 1/2 tsp of noniodized sea salt with 1/4 tsp of baking soda. I irrigate three times each side and that uses all of the 2 cups of water.
My allergist recommended it to me and it has changed my life. I wish you well
n7ynk
10-28-2003, 06:03 AM
http://www.healthboards.com/ubb/dance.gif The process is great. I use nasaline a 60CC syringe that comes with a silicon tip that fits around your nose & prevents water from leaking out this one side. Around $23. Since then, I have replaced the syringes from animal health stores, I now use a 140CC syringe (5-$8)& irrigate my nose just once on each side.
I buy Real Salt, a sea salt that has no preservatives or processing. Other salts are bleached, refined, and filled with silicates (to prevent caking), dextrose (sugar), and other chemicals.
Right now I filter my tap water using a Brita attached to your faucet, then I boil it & let it cool. I leave the tea kettle on the stove all day & use it to irrigate with. I use 2 cups of water & warm it in the microwave. It needs to be close to your body temperature to be comfortable, not too cold or too hot.
I premix my salt & baking soda in those pill boxes that the lids open & close.
I mix 1/2 teaspoon of sea salt to 1/4 teaspoon of baking soda.
I mix the salt/baking soda in the prepared water & use the syringe to irrigate.
I take no medication for my allergies since May 03. I still sneeze in the morning when I 1st get up, so my allergies are controlled day to day but with amazing results.
Irrigating has stopped all my food allergies (dairy, chicken, & coffee). I can eat anything I want with no reactions as long as I irrigate twice a day.
A persistant skin rash I have had for years is gone. As soon as I irrigated, the skin stopped itching everyday.
My irritability with certain food reactions have stopped.
I can go to work all day & feel great. My nose is clear, I can breathe great. I have more energy than I have had in years. I cannot recommend irrigating enough to people. All my friends who try it, have had benefits, mostly great. It sounds awful, but is actually wonderful.
Another tip, keeping your mouth closed during irrigating is supppose to stop you from getting water into your ear canal.
Try this as it has great potential to change your life. I am the luckiest guy to find a natural way to live life again.
I buy Real Salt, a sea salt that has no preservatives or processing. Other salts are bleached, refined, and filled with silicates (to prevent caking), dextrose (sugar), and other chemicals.
Right now I filter my tap water using a Brita attached to your faucet, then I boil it & let it cool. I leave the tea kettle on the stove all day & use it to irrigate with. I use 2 cups of water & warm it in the microwave. It needs to be close to your body temperature to be comfortable, not too cold or too hot.
I premix my salt & baking soda in those pill boxes that the lids open & close.
I mix 1/2 teaspoon of sea salt to 1/4 teaspoon of baking soda.
I mix the salt/baking soda in the prepared water & use the syringe to irrigate.
I take no medication for my allergies since May 03. I still sneeze in the morning when I 1st get up, so my allergies are controlled day to day but with amazing results.
Irrigating has stopped all my food allergies (dairy, chicken, & coffee). I can eat anything I want with no reactions as long as I irrigate twice a day.
A persistant skin rash I have had for years is gone. As soon as I irrigated, the skin stopped itching everyday.
My irritability with certain food reactions have stopped.
I can go to work all day & feel great. My nose is clear, I can breathe great. I have more energy than I have had in years. I cannot recommend irrigating enough to people. All my friends who try it, have had benefits, mostly great. It sounds awful, but is actually wonderful.
Another tip, keeping your mouth closed during irrigating is supppose to stop you from getting water into your ear canal.
Try this as it has great potential to change your life. I am the luckiest guy to find a natural way to live life again.
Sophina
10-28-2003, 10:42 PM
I have became very chemically intolerant. My nose has swollen shut for years and I went to an allergist and no allergys. My nose swells shut,I get a horrible headache and nothing will help except Imitrex shots. I have had a continual headache for over 12 years. It never goes away, but gets worse when I eat or breathe chemicals. I have had three sinus surgeries just so I can breathe. I also lose part of my voice after a chemical exposure. I feel a heaviness in my lungs too.
The last three weeks it is effecting my ears. I have developed three different hums and rumblings in my right ear and the Audiologist says I have lost some of my low range hearing too. I personally feel the chemicals have caused me to develope an autoimmune disease that is attacking my respiratory system and other parts of my body.
The last three weeks it is effecting my ears. I have developed three different hums and rumblings in my right ear and the Audiologist says I have lost some of my low range hearing too. I personally feel the chemicals have caused me to develope an autoimmune disease that is attacking my respiratory system and other parts of my body.
turl
10-28-2003, 11:51 PM
Originally posted by Sophina:
I have became very chemically intolerant. My nose has swollen shut for years and I went to an allergist and no allergys. My nose swells shut,I get a horrible headache and nothing will help except Imitrex shots. I have had a continual headache for over 12 years. It never goes away, but gets worse when I eat or breathe chemicals. I have had three sinus surgeries just so I can breathe. I also lose part of my voice after a chemical exposure. I feel a heaviness in my lungs too.
The last three weeks it is effecting my ears. I have developed three different hums and rumblings in my right ear and the Audiologist says I have lost some of my low range hearing too. I personally feel the chemicals have caused me to develope an autoimmune disease that is attacking my respiratory system and other parts of my body.
Oh, gosh, Sophina! I feel for you....I have chemical sensitivities too, and while I consider myself ill sometimes, it doesn't sound as bad as you! Have you seen anyone about the environmental sensitivities? I've been wanting to go to a doctor about this, but knowing it's not allergies that I have, I figure I'd be wasting my money since I think the usual response is to avoid the offending irritant (yeah, right--in this day and age!). Mine started with me getting post nasal drip feeling from smelling perfumes, etc. Then it was contact dermatitis from my usual soaps, shampoos, dryer sheets, etc. (VERY itchy private parts). I did some research and concluded it was Candida that was the underlying culprit, so I cleaned up my diet and started on an anti-fungal. Well, I guess that is indeed what I have since it created a die-off....and now worsening symptoms, which I've been told is the yeast releasing their toxins when killed. I don't understand it all, though. Anyway, NOW I have constant swollen nasal passages to add to the list and a heavy feeling in my chest--makes me feel tired of breathing. All I want to do is breathe normally--I know you can relate. Lately, I too, seem to always have a headache. Even one ear is stuffy. Sounds a lot like you! If you'd care for a fellow chemical sensitivity penpal (suffer-pal), feel free to email me at [removed]
Take care,
Tabby
I have became very chemically intolerant. My nose has swollen shut for years and I went to an allergist and no allergys. My nose swells shut,I get a horrible headache and nothing will help except Imitrex shots. I have had a continual headache for over 12 years. It never goes away, but gets worse when I eat or breathe chemicals. I have had three sinus surgeries just so I can breathe. I also lose part of my voice after a chemical exposure. I feel a heaviness in my lungs too.
The last three weeks it is effecting my ears. I have developed three different hums and rumblings in my right ear and the Audiologist says I have lost some of my low range hearing too. I personally feel the chemicals have caused me to develope an autoimmune disease that is attacking my respiratory system and other parts of my body.
Oh, gosh, Sophina! I feel for you....I have chemical sensitivities too, and while I consider myself ill sometimes, it doesn't sound as bad as you! Have you seen anyone about the environmental sensitivities? I've been wanting to go to a doctor about this, but knowing it's not allergies that I have, I figure I'd be wasting my money since I think the usual response is to avoid the offending irritant (yeah, right--in this day and age!). Mine started with me getting post nasal drip feeling from smelling perfumes, etc. Then it was contact dermatitis from my usual soaps, shampoos, dryer sheets, etc. (VERY itchy private parts). I did some research and concluded it was Candida that was the underlying culprit, so I cleaned up my diet and started on an anti-fungal. Well, I guess that is indeed what I have since it created a die-off....and now worsening symptoms, which I've been told is the yeast releasing their toxins when killed. I don't understand it all, though. Anyway, NOW I have constant swollen nasal passages to add to the list and a heavy feeling in my chest--makes me feel tired of breathing. All I want to do is breathe normally--I know you can relate. Lately, I too, seem to always have a headache. Even one ear is stuffy. Sounds a lot like you! If you'd care for a fellow chemical sensitivity penpal (suffer-pal), feel free to email me at [removed]
Take care,
Tabby
MrsLee
10-31-2003, 01:43 PM
Wow, I'm sorry to hear about what you are all going through! It's amazing how so many people can be suffering and none of these doctors can diagnose or treat it.
STAGRE--please, before you have the deviated septum surgery, do some research! I had the surgery 7/30/03, and it has not worked nearly as well as I expected it should. I can breath just a little better, but I really wish I would have tried some other options before haveing surgery. My nose is still stuffy all the time, and none of my other symtoms have gone away. I am not sure what turbinates are though.
I am going to look into the Volative Organic Sensativites. I have always known I am really sensitive to certain things, and perhaps some research into this topic will help me.
Sophina--I am sorry to hear of all your problems. I think you sound worse than me, but it is obvious that all these symptoms affect our quality of life. I too have constant headaches, although I have found that drinking A LOT of water helps with them. Lately my ears have been bothering me a lot.
I have been having ringing/buzzing/humming (hard to describe) in my ears that only really bothers me when it's quiet. It seems machines, especially the sound computers make when they are on really bothers me. Sometimes I wonder if I am just going crazy and this is all in my head. I really don't think it is though....arrrgh
STAGRE--please, before you have the deviated septum surgery, do some research! I had the surgery 7/30/03, and it has not worked nearly as well as I expected it should. I can breath just a little better, but I really wish I would have tried some other options before haveing surgery. My nose is still stuffy all the time, and none of my other symtoms have gone away. I am not sure what turbinates are though.
I am going to look into the Volative Organic Sensativites. I have always known I am really sensitive to certain things, and perhaps some research into this topic will help me.
Sophina--I am sorry to hear of all your problems. I think you sound worse than me, but it is obvious that all these symptoms affect our quality of life. I too have constant headaches, although I have found that drinking A LOT of water helps with them. Lately my ears have been bothering me a lot.
I have been having ringing/buzzing/humming (hard to describe) in my ears that only really bothers me when it's quiet. It seems machines, especially the sound computers make when they are on really bothers me. Sometimes I wonder if I am just going crazy and this is all in my head. I really don't think it is though....arrrgh
Divermon
11-11-2003, 07:22 PM
n7ynk, when you irigate, is that just squirting the mixture into your nose, and letting it drain out, or are you going further up there?
Bothrops
11-11-2003, 10:55 PM
Hi,
I found a site that you might want to check out. From what I read it seems to be very broad.
http://www.medschool.lsumc.edu/otor/Vasorhi.htm
Could you tell me all of your symptoms and do they or did they ever include lightheadedness, spacy-foggy feeling and fullness in the ears.
Derek
I found a site that you might want to check out. From what I read it seems to be very broad.
http://www.medschool.lsumc.edu/otor/Vasorhi.htm
Could you tell me all of your symptoms and do they or did they ever include lightheadedness, spacy-foggy feeling and fullness in the ears.
Derek
MrsLee
11-12-2003, 12:39 AM
HI Derek, I don;t know who's sypmtoms you want to hear, but I posted some in this thread already. I said before that I have a constantly stuffy, itchy nose, dry, irritated eyes, drainage down the back of my throat, crackling, full-feeling ears (leading to dizziness), and constant headaches. My headaches are mostly around my forehead and face. So , to answer your question, yes, I get lightheadedness, spacy-foggy feeling AND fullness in the ears.
I do not know if all of these symtoms are caused by my rhinitis. I have suspected that some are caused by my TMJ disorder. It is just so frustrating when doctors cannot tell you why you're sick all the time.
I checked out that website, and I thought it was pretty interesting.
I do not know if all of these symtoms are caused by my rhinitis. I have suspected that some are caused by my TMJ disorder. It is just so frustrating when doctors cannot tell you why you're sick all the time.
I checked out that website, and I thought it was pretty interesting.
becky1954
11-12-2003, 06:36 AM
I can relate to what you have been talking about. I have been to 3 allergy doctors. One doctor did a skin test and came up with about 5 or 6 things I was allergic to. But he is kind of a quack. I have gone to 2 others and they both used the same kind of skin test(a different one than the first doctor used) and found no allergies. They said I have non allergic rhinitis. Then tell me why my nose itches all the time. I am supposed to be sensitive to odors. And I have found that to be true. The last doctor I went to told me it walks like a duck and talks like a duck but it is not a duck. Meaning no allergies. He has me on Clarinex which helps some and 2 different nasal sprays. One is for itching and one is for stuffiness. I don't know what to do either.
Divermon
11-12-2003, 04:50 PM
Becky, do either of those sprays help?
becky1954
11-12-2003, 07:48 PM
Astelin works for itchy nose but right now I have a sinus infection and bronchitis and nothing helps. :yawn:
n7ynk
11-12-2003, 11:06 PM
n7ynk, when you irigate, is that just squirting the mixture into your nose, and letting it drain out, or are you going further up there?
The salt watter goes into the left nostril and comes out the right side. Fantastic. I use a syringe, 100CC with a special silicon tip that forms a seal around your nostril, very important. I control the flow with the plunger on the syringe & push the salt water from the left nostril to the right. Takes about 2 seconds before water starts coming out the other side.
It has changed my life. No allergy meds since May 03. I must irrigate 2-3 times daily to keep up my nose from getting stuffy, but NO MEDS! It is all natural. I no longer have reactions to finger nail polish, chlorine, a skin rash has disappered, my dairy, chicken, & coffee allergies are gone, irritability is gone, shall I go on. :cool:
The salt watter goes into the left nostril and comes out the right side. Fantastic. I use a syringe, 100CC with a special silicon tip that forms a seal around your nostril, very important. I control the flow with the plunger on the syringe & push the salt water from the left nostril to the right. Takes about 2 seconds before water starts coming out the other side.
It has changed my life. No allergy meds since May 03. I must irrigate 2-3 times daily to keep up my nose from getting stuffy, but NO MEDS! It is all natural. I no longer have reactions to finger nail polish, chlorine, a skin rash has disappered, my dairy, chicken, & coffee allergies are gone, irritability is gone, shall I go on. :cool:
Divermon
11-13-2003, 01:06 AM
shall I go on.
By all means, do.
I tried something like that, by suggestion of an ENT, years ago. His version, I think had Karo syrup in it too. But I didn't know you shoot it up that far. Is there any trouble with going that far up there? And I assume you have your face in the sink, so at that tilt, you would not get anything back into the throat?
By all means, do.
I tried something like that, by suggestion of an ENT, years ago. His version, I think had Karo syrup in it too. But I didn't know you shoot it up that far. Is there any trouble with going that far up there? And I assume you have your face in the sink, so at that tilt, you would not get anything back into the throat?
n7ynk
11-13-2003, 07:56 AM
:wave: I have been irrigating since May & no problems. If anything, I am hooked on the process it gives such relief. My allergist gave me my kit & added the baking soda in the mixture. I have heard of people getting the salt water in their ear canal, but I have also read if you close you mouth during irrigating this will decrease the chances of this happening. My frined who was having canla problems did this and it worked for him. I myself have not had that problem.
Yes, I have my face looking down into the sink, not hyperextended or anything just a natural position. During irrigating sometimes I will pinch off the other nostril & stand straight up to get some salt water down my throat, it is only a trickle. It helps break up the stuff.
I have heard of the karo syrup but have not tried that.
Yes, I have my face looking down into the sink, not hyperextended or anything just a natural position. During irrigating sometimes I will pinch off the other nostril & stand straight up to get some salt water down my throat, it is only a trickle. It helps break up the stuff.
I have heard of the karo syrup but have not tried that.
gemini74
11-14-2003, 06:35 PM
Hello everyone. I am new here and just recently discovered the boards. It's nice to have a place to exchange information with people and realize that you are not alone! I apologize ahead of time for the long post, but this is my first one!
My doctor recently diagnosed me with vasomotor (non allergic) rhinits as well. This is the first time since I was a kid that I have had any sinus problems and it is driving me crazy! It sprang up from a cold type of virus I had about 4 months ago or so. My doctor thinks the virus is what triggered it, since I have no history of problems.
It's as if the cold never went away and the symptoms persist - runny nose, thick post nasal drip, bouts of sneezing, foggy head etc. The upper sinus cavities feel as if they are clogged, swollen and won't drain (except down my throat - yuck!). It is extremely frustrating because it seems very hard to treat. Since it is not really an allergy, you can't avoid the "source" of the problem. It seems to be with you all the time. It does worsen around cigarette smoke, car fumes and any outdoor air pollutants in general. Some days are much worse than others. This week has been particuarly bad as the symptoms can sometimes make you feel as if you are coming down with the flu or some other type of virus. It literally will make you do nothing but sleep.
I have had blood work and a cat scan done but everything came back as "normal". Doctor sent me to an ENT but he was a bit of a quack and told me it would "eventually go away". I swear the guy only talked to me for about 30 seconds and was rude. Very frustrating. I'm getting tired of giving my money to so called medical professionals who really don't care. I am going to see an allergist next week and have recently started acupunture. I did some research and supposedly it is quite successful for this type of ailment. Have only had 2 treatments so far but supposedly you need to have at least 6 or 7 to really start feeling results. Hopefully I am on my way. I'll try anything at this point.
Curious if anyone has had success with acupunture for their allergies or sinus problems? Will keep you all posted with results and I'll let everyone know what the allergist comes up with after my appointment next Friday. In the meantime, I have tried Allegra D, Claritin, Claritin D, Nasonex, Flonase, Nasarell, Astelin, Biaxin, Augmentin, Duratess, Singular and a couple of others I'm sure I'm forgetting at the moment. Very few positive results with all. Have not tried nasal irrigation yet. From the posts I have read, it seems several people have obtained some very positive results. Think I will ask the allergist about that next week.
If anyone has additional information or can recommend another treatement, I would greatly appreciate the the advice! Thank you all very much! Again, sorry for the long post but I'm at my wit's end!!! :P
My doctor recently diagnosed me with vasomotor (non allergic) rhinits as well. This is the first time since I was a kid that I have had any sinus problems and it is driving me crazy! It sprang up from a cold type of virus I had about 4 months ago or so. My doctor thinks the virus is what triggered it, since I have no history of problems.
It's as if the cold never went away and the symptoms persist - runny nose, thick post nasal drip, bouts of sneezing, foggy head etc. The upper sinus cavities feel as if they are clogged, swollen and won't drain (except down my throat - yuck!). It is extremely frustrating because it seems very hard to treat. Since it is not really an allergy, you can't avoid the "source" of the problem. It seems to be with you all the time. It does worsen around cigarette smoke, car fumes and any outdoor air pollutants in general. Some days are much worse than others. This week has been particuarly bad as the symptoms can sometimes make you feel as if you are coming down with the flu or some other type of virus. It literally will make you do nothing but sleep.
I have had blood work and a cat scan done but everything came back as "normal". Doctor sent me to an ENT but he was a bit of a quack and told me it would "eventually go away". I swear the guy only talked to me for about 30 seconds and was rude. Very frustrating. I'm getting tired of giving my money to so called medical professionals who really don't care. I am going to see an allergist next week and have recently started acupunture. I did some research and supposedly it is quite successful for this type of ailment. Have only had 2 treatments so far but supposedly you need to have at least 6 or 7 to really start feeling results. Hopefully I am on my way. I'll try anything at this point.
Curious if anyone has had success with acupunture for their allergies or sinus problems? Will keep you all posted with results and I'll let everyone know what the allergist comes up with after my appointment next Friday. In the meantime, I have tried Allegra D, Claritin, Claritin D, Nasonex, Flonase, Nasarell, Astelin, Biaxin, Augmentin, Duratess, Singular and a couple of others I'm sure I'm forgetting at the moment. Very few positive results with all. Have not tried nasal irrigation yet. From the posts I have read, it seems several people have obtained some very positive results. Think I will ask the allergist about that next week.
If anyone has additional information or can recommend another treatement, I would greatly appreciate the the advice! Thank you all very much! Again, sorry for the long post but I'm at my wit's end!!! :P
SaraLee
11-18-2003, 07:32 PM
I'm interested in the Nasaline syringe. My specialist wants me to irrigate my nose but also to allow the water mixuture to flow over my pallet, which does not happen with my netti pot, no matter how hard I try to bend my head this way or that way. Will the Nasaline syringe allow the water mixture to flow over my pallett as well as through the sinus cavities? I have a lot of post nasal drip and after I wash my sinus cavities, I am left with all this nasty stuff clinging to my throat. I'd love to wash my pallett as well.
Thanks, SaraLee
Thanks, SaraLee
SaraLee
11-19-2003, 10:13 AM
Hi gemini, I don't have any experience with acupuncture, but have been diagnoses with a few allergies and vasomotor rhinits, and a few more things. My allergist started me on a very heavy duty regime of pills and sprays, which took about 3 months before I saw some results. He started me out with the Flonaise spray, one squirt in each side of the nose, the a spray of Afrin on each side, wait 5 minutes and do the same thing, twice a day, plus I took a decongestant and antihistimine each day and did a nasal wash twice a day.
After three months, I felt better but not well and that is when he began addressing the rhinits. He kept me on the Flonaise twice a day, one squirt each side, and Astelin twice a day (he got rid of the Afrin spray) and I continued with the nasal wash and decongestant and antihistimine also for another two months. I am still using the sprays twice a day but since I'm feeling better I want to cut that down to once a day, which is what the specialist recommended. The cooler weather seems to help me as well, as during those high humidity days in spring and summer, life was almost intolerable. I also bought a dehumidifier for my home, and I use a small air filter in my bedroom. I hope to keep this under control, but I don't forsee a cure for me, only controlling the situation. My point is that it took a long time for me to see results. I don't know how long you used any of the drugs you mentioned, but for me, I was in it for the long haul, and as I said, I see maintaince as part of my life from here on in. Thanks, I wish you well.
SaraLee
After three months, I felt better but not well and that is when he began addressing the rhinits. He kept me on the Flonaise twice a day, one squirt each side, and Astelin twice a day (he got rid of the Afrin spray) and I continued with the nasal wash and decongestant and antihistimine also for another two months. I am still using the sprays twice a day but since I'm feeling better I want to cut that down to once a day, which is what the specialist recommended. The cooler weather seems to help me as well, as during those high humidity days in spring and summer, life was almost intolerable. I also bought a dehumidifier for my home, and I use a small air filter in my bedroom. I hope to keep this under control, but I don't forsee a cure for me, only controlling the situation. My point is that it took a long time for me to see results. I don't know how long you used any of the drugs you mentioned, but for me, I was in it for the long haul, and as I said, I see maintaince as part of my life from here on in. Thanks, I wish you well.
SaraLee
gemini74
11-19-2003, 03:18 PM
Hello Sara! I really appreciate your response and information. Thank you very much.
Well, this all happened about 4 months ago after a cold virus I had. I agree. I think you really have to stay on some of these sprays to see any results. I was just diagnosed with the rhinits AFTER my doctor tried several sprays and oral meds on me with no results. Since then, I have been using Nasonex spray once a day for a little over a month now and decongestants when needed. Seems to help a bit, but I have been told it does take a couple of months to feel the full effect. Some days are much worse than others.
I am going to keep up with the acupuncture. I have only had two treatments so far and supposedly it takes at least 6 or 7 to start seeing results. I have talked to a couple of people who have had great success with it. Since eastern medicine is all about "healing" and "fixing" as opposed to the western "quick fix", I'm sure it will take some time. I will definitely keep you updated. Going to see an allergist on Friday so I will let you know how that turns out as well.
Like you said, it looks like we have possibly developed something that we are going to have to continually deal with. Since I have never had this problem before, I have to say this ordeal has literally been quite depressing for me. On the bad days, I would do anything to go back to feeling "normal" like I did before the virus. My doctor seems to think the vasomotor rhinits will eventually subside with occasional bad bouts like I am experiencing now. He just can't tell me when it will stop (if ever, as far as I'm concerned). I can only hope that you and I (and everyone out there who suffers) will eventually be able to keep it under total control.
More information forthcoming as I recieve it. Hang in there. Again, thank you so much for your response!
:wave:
Well, this all happened about 4 months ago after a cold virus I had. I agree. I think you really have to stay on some of these sprays to see any results. I was just diagnosed with the rhinits AFTER my doctor tried several sprays and oral meds on me with no results. Since then, I have been using Nasonex spray once a day for a little over a month now and decongestants when needed. Seems to help a bit, but I have been told it does take a couple of months to feel the full effect. Some days are much worse than others.
I am going to keep up with the acupuncture. I have only had two treatments so far and supposedly it takes at least 6 or 7 to start seeing results. I have talked to a couple of people who have had great success with it. Since eastern medicine is all about "healing" and "fixing" as opposed to the western "quick fix", I'm sure it will take some time. I will definitely keep you updated. Going to see an allergist on Friday so I will let you know how that turns out as well.
Like you said, it looks like we have possibly developed something that we are going to have to continually deal with. Since I have never had this problem before, I have to say this ordeal has literally been quite depressing for me. On the bad days, I would do anything to go back to feeling "normal" like I did before the virus. My doctor seems to think the vasomotor rhinits will eventually subside with occasional bad bouts like I am experiencing now. He just can't tell me when it will stop (if ever, as far as I'm concerned). I can only hope that you and I (and everyone out there who suffers) will eventually be able to keep it under total control.
More information forthcoming as I recieve it. Hang in there. Again, thank you so much for your response!
:wave:
SaraLee
11-19-2003, 04:01 PM
Yes gemeni, keep us posted here on your acupuncture sessions and how much help they bring to you. What does the acupuncturist say about this condition? Does he/she feel it can be cured or maintained and does one need to continue with the acupuncture sessions off and on to keep healthy? Like you, I just want to feel normal again....oh, how I took breathing for granted....
SaraLee
SaraLee
gemini74
11-20-2003, 01:48 PM
Hey there Sara.
The acupuncturist said they see quite a few people with allergy and rhinitis conditions on a regular basis. He said they have made some really great progress in bringing relief to people and the process can be quite successful for these conditions. I did some research on the internet and came up with the same positive information. Have also spoken to several people who said it has worked wonders for them. Supposedly it takes about 6 or 7 sessions to start feeling results since it's all about balancing and healing the body, not a quick fix. I am going for my third treatment tonight.
As far as maintaining rhinitis and keeping it under control, he said everyone reacts differently. Some people never have to have another session, while others will have to go through a few treatments a year. Either way, I feel that even a bit of relief for a somewhat extended period of time is definitely worth it!
Also have an appointment with the allergist for the first time tomorrow morning. We'll see how that goes. I will definitely keep all updated on the acupunture sessions and the progress. At this point I am willing to try ANYTHING! Yes, Sara, NORMAL would be WONDERFUL at this point!
:wave:
The acupuncturist said they see quite a few people with allergy and rhinitis conditions on a regular basis. He said they have made some really great progress in bringing relief to people and the process can be quite successful for these conditions. I did some research on the internet and came up with the same positive information. Have also spoken to several people who said it has worked wonders for them. Supposedly it takes about 6 or 7 sessions to start feeling results since it's all about balancing and healing the body, not a quick fix. I am going for my third treatment tonight.
As far as maintaining rhinitis and keeping it under control, he said everyone reacts differently. Some people never have to have another session, while others will have to go through a few treatments a year. Either way, I feel that even a bit of relief for a somewhat extended period of time is definitely worth it!
Also have an appointment with the allergist for the first time tomorrow morning. We'll see how that goes. I will definitely keep all updated on the acupunture sessions and the progress. At this point I am willing to try ANYTHING! Yes, Sara, NORMAL would be WONDERFUL at this point!
:wave:
AmyJoy
11-24-2003, 11:09 PM
I was so glad to find this thread! My problems started after I got water up my nose at the beach in the pool. Since then, I have had all sorts of sinus problems and tonsil stones (another story for another board on that). The doc finally told me I had vasomotor rhinitis. Astelin helped at first but not for long. I think will have to try the nasal lavage because the tonsil stone people also recommend that.
Does anyone have a strange pressure-like, tightness in the roof of your mouth? How about feeling like something is waiting to drain down your throat, but nothing comes? I just feel like something is there, behind my soft palate. Also, does anyone else have throat problems on top of the vasomotor rhinitis?
I am on antibiotics right now as well as a decongestant and antihistamine, with some relief but still can be really bad. I go back to my doc on 12/1 who is going to decide about sending me to an ENT but so many of you sound like you have already been through all that.
Does anyone have a strange pressure-like, tightness in the roof of your mouth? How about feeling like something is waiting to drain down your throat, but nothing comes? I just feel like something is there, behind my soft palate. Also, does anyone else have throat problems on top of the vasomotor rhinitis?
I am on antibiotics right now as well as a decongestant and antihistamine, with some relief but still can be really bad. I go back to my doc on 12/1 who is going to decide about sending me to an ENT but so many of you sound like you have already been through all that.
MrsLee
12-02-2003, 06:36 PM
Wow, I was surprised to check back and see that so many people have posted since I first asked about this condition.
AmyJoy--I too have the throat problems. I get tonsil stones and post nasal drip really bad (I clear my throat every 20-30 seconds and always feel as though I am drowning in my own mucus--yum!). I am convinced that everything is somehow related, I just need to figure out what causes it all.
Gemini74--please update us on your accupunture. I am very interested in trying it since it is a holistic approach, but the cost has kept me from trying. (Funny how I have spent thousands on prescription drugs though.) I really hope it works for you.
I wanted to point out that it is bad to use Afrin for more than three or so days in a row. I am an off-and-on Afrin addict, since it's the only thing that clears my nose, but according to my ENT it makes everything worse. It damages the inside of your nose and causes a rebound effect where you need to keep[ using it or you feel even worse. You may already know this, but I just wanted to point it out.
One last thing I wanted to point out: I quit smoking about 2 and a half weeks ago, and I have been feeling better in regards to some symptoms. I have had far less headaches and fewer tonsil stones (this was immediate) and I have noticed my ears have cleared considerably and I feel a little less "foggy." But my nose is still dry and stuffy, and the post nasal drip is terrible. I think this just goes to show how environmental things really can affect a person, especially "sensitive" people like us :)
Good luck to you all! Take care!
AmyJoy--I too have the throat problems. I get tonsil stones and post nasal drip really bad (I clear my throat every 20-30 seconds and always feel as though I am drowning in my own mucus--yum!). I am convinced that everything is somehow related, I just need to figure out what causes it all.
Gemini74--please update us on your accupunture. I am very interested in trying it since it is a holistic approach, but the cost has kept me from trying. (Funny how I have spent thousands on prescription drugs though.) I really hope it works for you.
I wanted to point out that it is bad to use Afrin for more than three or so days in a row. I am an off-and-on Afrin addict, since it's the only thing that clears my nose, but according to my ENT it makes everything worse. It damages the inside of your nose and causes a rebound effect where you need to keep[ using it or you feel even worse. You may already know this, but I just wanted to point it out.
One last thing I wanted to point out: I quit smoking about 2 and a half weeks ago, and I have been feeling better in regards to some symptoms. I have had far less headaches and fewer tonsil stones (this was immediate) and I have noticed my ears have cleared considerably and I feel a little less "foggy." But my nose is still dry and stuffy, and the post nasal drip is terrible. I think this just goes to show how environmental things really can affect a person, especially "sensitive" people like us :)
Good luck to you all! Take care!
perfix
12-02-2003, 06:50 PM
I was so glad to find this thread! My problems started after I got water up my nose at the beach in the pool. Since then, I have had all sorts of sinus problems and tonsil stones (another story for another board on that). The doc finally told me I had vasomotor rhinitis. Astelin helped at first but not for long. I think will have to try the nasal lavage because the tonsil stone people also recommend that.
Does anyone have a strange pressure-like, tightness in the roof of your mouth? How about feeling like something is waiting to drain down your throat, but nothing comes? I just feel like something is there, behind my soft palate. Also, does anyone else have throat problems on top of the vasomotor rhinitis?
I am on antibiotics right now as well as a decongestant and antihistamine, with some relief but still can be really bad. I go back to my doc on 12/1 who is going to decide about sending me to an ENT but so many of you sound like you have already been through all that.
Sounds a bit like what I have Amy, that area you are refering to is the nasopharynx or the upper part of the throat which is behind the nose.
My symptoms are as follow: many tonsil stones, a terrible smell from my nose, constant phlegm build up, very congested nose...
Also from time to time something which is called "compressed mucus", small parts of mostly yellow mucus, sometimes with blood in, which are as sticky as glue and smell terrible. I used to think they came from my lungs but now I am quite sure they come from the nose. I have the foggy head too, but please keep in mind all that this can be a symptom of many things (stress, anxiety, depression...)
My symptoms come and go and get worse during the winter, I have had days where I had spit out a dozen pieces of this compressed mucus and then it will stop for a few weeks.
However my sinuses are clear. I have not yet been allergy tested. Maybe I should. I have experienced that if I eat certain products like cheese I get a very nasty taste. Get it with milk too. Makes me sometimes almost vomitting after I ate it.
Also the mucus will be terrible just after I eat something. I don't not have any breathing problems but then I can actualy feel it dripping into my lungs. Coughing one time and it's over.
That's my story.
Does anyone have a strange pressure-like, tightness in the roof of your mouth? How about feeling like something is waiting to drain down your throat, but nothing comes? I just feel like something is there, behind my soft palate. Also, does anyone else have throat problems on top of the vasomotor rhinitis?
I am on antibiotics right now as well as a decongestant and antihistamine, with some relief but still can be really bad. I go back to my doc on 12/1 who is going to decide about sending me to an ENT but so many of you sound like you have already been through all that.
Sounds a bit like what I have Amy, that area you are refering to is the nasopharynx or the upper part of the throat which is behind the nose.
My symptoms are as follow: many tonsil stones, a terrible smell from my nose, constant phlegm build up, very congested nose...
Also from time to time something which is called "compressed mucus", small parts of mostly yellow mucus, sometimes with blood in, which are as sticky as glue and smell terrible. I used to think they came from my lungs but now I am quite sure they come from the nose. I have the foggy head too, but please keep in mind all that this can be a symptom of many things (stress, anxiety, depression...)
My symptoms come and go and get worse during the winter, I have had days where I had spit out a dozen pieces of this compressed mucus and then it will stop for a few weeks.
However my sinuses are clear. I have not yet been allergy tested. Maybe I should. I have experienced that if I eat certain products like cheese I get a very nasty taste. Get it with milk too. Makes me sometimes almost vomitting after I ate it.
Also the mucus will be terrible just after I eat something. I don't not have any breathing problems but then I can actualy feel it dripping into my lungs. Coughing one time and it's over.
That's my story.
Bothrops
12-02-2003, 09:14 PM
Wow, I was surprised to check back and see that so many people have posted since I first asked about this condition.
AmyJoy--I too have the throat problems. I get tonsil stones and post nasal drip really bad (I clear my throat every 20-30 seconds and always feel as though I am drowning in my own mucus--yum!). I am convinced that everything is somehow related, I just need to figure out what causes it all.
Gemini74--please update us on your accupunture. I am very interested in trying it since it is a holistic approach, but the cost has kept me from trying. (Funny how I have spent thousands on prescription drugs though.) I really hope it works for you.
I wanted to point out that it is bad to use Afrin for more than three or so days in a row. I am an off-and-on Afrin addict, since it's the only thing that clears my nose, but according to my ENT it makes everything worse. It damages the inside of your nose and causes a rebound effect where you need to keep[ using it or you feel even worse. You may already know this, but I just wanted to point it out.
One last thing I wanted to point out: I quit smoking about 2 and a half weeks ago, and I have been feeling better in regards to some symptoms. I have had far less headaches and fewer tonsil stones (this was immediate) and I have noticed my ears have cleared considerably and I feel a little less "foggy." But my nose is still dry and stuffy, and the post nasal drip is terrible. I think this just goes to show how environmental things really can affect a person, especially "sensitive" people like us :)
Good luck to you all! Take care!
How did you quit smoking, I so badly want to quit.
Derek
AmyJoy--I too have the throat problems. I get tonsil stones and post nasal drip really bad (I clear my throat every 20-30 seconds and always feel as though I am drowning in my own mucus--yum!). I am convinced that everything is somehow related, I just need to figure out what causes it all.
Gemini74--please update us on your accupunture. I am very interested in trying it since it is a holistic approach, but the cost has kept me from trying. (Funny how I have spent thousands on prescription drugs though.) I really hope it works for you.
I wanted to point out that it is bad to use Afrin for more than three or so days in a row. I am an off-and-on Afrin addict, since it's the only thing that clears my nose, but according to my ENT it makes everything worse. It damages the inside of your nose and causes a rebound effect where you need to keep[ using it or you feel even worse. You may already know this, but I just wanted to point it out.
One last thing I wanted to point out: I quit smoking about 2 and a half weeks ago, and I have been feeling better in regards to some symptoms. I have had far less headaches and fewer tonsil stones (this was immediate) and I have noticed my ears have cleared considerably and I feel a little less "foggy." But my nose is still dry and stuffy, and the post nasal drip is terrible. I think this just goes to show how environmental things really can affect a person, especially "sensitive" people like us :)
Good luck to you all! Take care!
How did you quit smoking, I so badly want to quit.
Derek
MrsLee
12-03-2003, 09:19 PM
Bothrops: Strangley as this may sound, I just made up my mind that I didn't want to feel sick anymore. I have smoked off and on since I was 13 (I'm 21 now). Many times I have quit, then allowed myself to have an ocassional cigarette or cigar, only start again. This last time I was trying to slow my smoking to a couple a day. Once I did this, I noticed that as soon as I lit up, I got a terrible headache and my nose stuffed up even worse. This went on for a couple days, then I finally just made up my mind that I don't want these headaches anymore. Now my ears pop less and my head is less stuffy. I like to feel better, and I just keep telling myself it's not worth it.
I think the thing I like best about smoking is the physical action of puffing and inhaling. It gives me something to do (I am very figety). Chewing gum or mints helps. I helps to figure out when you like to smoke the most, then that will help you learn how to stop. For me, I would smoke the most while driving. I am so used to multi-tasking that I get bored while driving. I just discovered that listening to books on CD while driving helps take my mind off smoking (while still paying attention to the road). I also like to smoke while drinking. I haven't found a great way to deal with this yet, except to stay away from the bar. (I have been avoiding bars anyway, as the loud music and smoke bother my eyes, head and ears) It helps if you are around people who are not smoking.
Try to look for other advantages to quiting. I didn't see where you are from, but here it gets really cold in the winter. I quit just in time to avoid freezing my fingers off smoking outside. And what about the cost? $4 a pack is absolutely ridiculous. I am trying so hard to save money, yet throwing money down the drain on something that makes me sick. Doesn't make any sense.
There is an entire board on this website called smoking cessation I believe. Maybe you could find some useful info there. This is just how I am doing it. There are plenty of other ways to stop, and some people need to do it in other ways than I have. In my case, I really believe it is mind over matter. We'll have to see how I do this weekend though, as I will be spending some time at the bar for a fundraiser. Anyways, I hope this helps and I wish you the very best of luck!
I think the thing I like best about smoking is the physical action of puffing and inhaling. It gives me something to do (I am very figety). Chewing gum or mints helps. I helps to figure out when you like to smoke the most, then that will help you learn how to stop. For me, I would smoke the most while driving. I am so used to multi-tasking that I get bored while driving. I just discovered that listening to books on CD while driving helps take my mind off smoking (while still paying attention to the road). I also like to smoke while drinking. I haven't found a great way to deal with this yet, except to stay away from the bar. (I have been avoiding bars anyway, as the loud music and smoke bother my eyes, head and ears) It helps if you are around people who are not smoking.
Try to look for other advantages to quiting. I didn't see where you are from, but here it gets really cold in the winter. I quit just in time to avoid freezing my fingers off smoking outside. And what about the cost? $4 a pack is absolutely ridiculous. I am trying so hard to save money, yet throwing money down the drain on something that makes me sick. Doesn't make any sense.
There is an entire board on this website called smoking cessation I believe. Maybe you could find some useful info there. This is just how I am doing it. There are plenty of other ways to stop, and some people need to do it in other ways than I have. In my case, I really believe it is mind over matter. We'll have to see how I do this weekend though, as I will be spending some time at the bar for a fundraiser. Anyways, I hope this helps and I wish you the very best of luck!
gemini74
12-04-2003, 02:45 PM
Hello everyone. Sorry it has taken me so long to get back. Holiday's and all. Just a general bad mood from all this nasal junk as well. I'm sure you all can relate.
Well, as you may have read in my last couple of posts, I have been going to acupuncture along with my doctor treating me with nasal sprays and various oral meds. He insisted I see an allergist so I did that just a couple of weeks ago.
The allergist thinks these symptoms of vasomotor rhinitis will eventually subside, since it was originally brought on by a virus over 4 months ago. OK, how much longer is this going to take!?!
He talked with me for quite awhile (the first doctor to actually do so) and then did an examination. He noticed that my nasal passages were completely swollen, red, raw and basically burned. He contributed it to the many medicated nasal sprays they have been treating me with for months now along with breathing in too much steam (!) to clear my sinuses. I always that was a good thing. He has a different opinion.
Unfortunately, these sprays have not seemed to help me at all and now have damaged my sinuses even more. So, he put me on an oral steroid for almost two weeks to take down the swelling (side effects not fun!!!) and insisted that I completely stop all nasal sprays and suspend my acupuncture treatments for at least a few weeks. Well, now I am having a complete rebound effect from the nasal sprays. My nose has gotten so dry it actually hurts to breath at times and I ocasionally get nose bleads. I'm supposed to moisturize my sinuses with a product called "Simply Saline" which is not all that bad. On top of that, since my nose has dried up from the rebound effect, the post nasal has increased ten fold this week. It's awful! I feel like I'm choking and you all know it leaves the worst taste in your mouth.
The allergist, along with my regular doctor, said this is completley normal and it will take at least a month to get rid of the rebound effect. It will then take another couple of months for the tissue in my nose/sinuses to grow back and recover from the "thermal burning" (whatever that is). In the meantime, I feel worse off than I was before.
I am going to start back with acupuncture treatments in the next couple of weeks, so I will keep you all posted. Unfortunately, I think the acupunturist is going to have to re-examine and start all over again, which means the previous treatments I have had, along with the lapse in time in between, probably mean nothing at this point. That's OK, I am willing to start treatments over and will try anything at this point.
MrsLee - I know acupunture is expensive, but have you checked out an eastern medicine university clinic? That's where I go. They have interns that perform the service for you that are under doctor supervison and have been studying for 4 or 5 years. So they are definitely competent. It also generally brings the cost down to about $15 - $25 per session which is not too bad. I will keep you updated when I start treament again.
Apologies for the long post. Thanks for listening to me about my messed up rhinitis! Would love other suggestions from people who have them!
:wave:
Well, as you may have read in my last couple of posts, I have been going to acupuncture along with my doctor treating me with nasal sprays and various oral meds. He insisted I see an allergist so I did that just a couple of weeks ago.
The allergist thinks these symptoms of vasomotor rhinitis will eventually subside, since it was originally brought on by a virus over 4 months ago. OK, how much longer is this going to take!?!
He talked with me for quite awhile (the first doctor to actually do so) and then did an examination. He noticed that my nasal passages were completely swollen, red, raw and basically burned. He contributed it to the many medicated nasal sprays they have been treating me with for months now along with breathing in too much steam (!) to clear my sinuses. I always that was a good thing. He has a different opinion.
Unfortunately, these sprays have not seemed to help me at all and now have damaged my sinuses even more. So, he put me on an oral steroid for almost two weeks to take down the swelling (side effects not fun!!!) and insisted that I completely stop all nasal sprays and suspend my acupuncture treatments for at least a few weeks. Well, now I am having a complete rebound effect from the nasal sprays. My nose has gotten so dry it actually hurts to breath at times and I ocasionally get nose bleads. I'm supposed to moisturize my sinuses with a product called "Simply Saline" which is not all that bad. On top of that, since my nose has dried up from the rebound effect, the post nasal has increased ten fold this week. It's awful! I feel like I'm choking and you all know it leaves the worst taste in your mouth.
The allergist, along with my regular doctor, said this is completley normal and it will take at least a month to get rid of the rebound effect. It will then take another couple of months for the tissue in my nose/sinuses to grow back and recover from the "thermal burning" (whatever that is). In the meantime, I feel worse off than I was before.
I am going to start back with acupuncture treatments in the next couple of weeks, so I will keep you all posted. Unfortunately, I think the acupunturist is going to have to re-examine and start all over again, which means the previous treatments I have had, along with the lapse in time in between, probably mean nothing at this point. That's OK, I am willing to start treatments over and will try anything at this point.
MrsLee - I know acupunture is expensive, but have you checked out an eastern medicine university clinic? That's where I go. They have interns that perform the service for you that are under doctor supervison and have been studying for 4 or 5 years. So they are definitely competent. It also generally brings the cost down to about $15 - $25 per session which is not too bad. I will keep you updated when I start treament again.
Apologies for the long post. Thanks for listening to me about my messed up rhinitis! Would love other suggestions from people who have them!
:wave:
n7ynk
12-05-2003, 10:10 AM
I see you are using nasal sprays but I don't hear you using nasal irrigation? I would rate the nasal sprays a 10 if used with irrigation. I define nasal sprays a saline mixture without the additive Bezalkonium Chloride for the purpose of providing moisture to your nasal membranes. If I relied on saline sprays only I could not have given up all my allergy meds long ago. With nasal irrigating, where you flush the saline thru once side of your nose and out the other side to rid the nose of allergens and mucous has been a life saver for me. With irrigating, no allergy meds since May 03. I gave up Allegra, tylenol sinus & prescription nasal sprays that were not saline ones. Just wondering if you have tried nasal irrigating and if so what were your experiences.
MrsLee
12-08-2003, 11:07 PM
gemini74-The Simply Saline spray actually works pretty well. I got a sample from my allergist, but I just ran out and I can't find it at the drugstore. I am still working up the nerve to try nasal irrigation, and I need to order a syringe thing to use. The Simply Saline flushes some crud out of your nose, so I can only imagine what the irrigation must do. Also, I live in the midwest (not a hick town or anything) and I don't think there are any eastern medicine universities around here, but I will certainly check into it. Don't apologize for long posts, we like to read them :) Take care!
gemini74
12-11-2003, 06:17 PM
Hey there MrsLee. Your right, the Simply Saline does work rather well. I like it because it's a mist instead of a stream. Do you have Sav-on or maybe Osco drug stores out there? That's where I get mine. It's about $6.99. Maybe you can order it on line?
I'm hoping to start acupuncure again in the the next couple of weeks, so I'll let you know how that goes. Dealing with the whole holidays and money issues at the moment if you know what I mean.
:wave:
I'm hoping to start acupuncure again in the the next couple of weeks, so I'll let you know how that goes. Dealing with the whole holidays and money issues at the moment if you know what I mean.
:wave:
MrsLee
12-12-2003, 01:37 AM
I know exactly what you mean about money and the holidays!
Yes, we have Osco here, I guess maybe I only looked at walgreens. I just ordered one of those syringes you use for nasal irrigation. I have finally worked up the nerve to try it. Now I just have to wait for it to come in the mail and I need to find some sea salt. If this doesn't work, now I know where to find the simply saline. Thanks!
Yes, we have Osco here, I guess maybe I only looked at walgreens. I just ordered one of those syringes you use for nasal irrigation. I have finally worked up the nerve to try it. Now I just have to wait for it to come in the mail and I need to find some sea salt. If this doesn't work, now I know where to find the simply saline. Thanks!
gemini74
12-12-2003, 05:33 PM
No problem, MrsLee.
Please keep me updated on how the irrigation goes. I haven't quite worked myself up to trying it yet. :rolleyes:
Please keep me updated on how the irrigation goes. I haven't quite worked myself up to trying it yet. :rolleyes:
fallen02
12-15-2003, 11:04 AM
I do not know what is wrong with me
I am 23, have been in perfect health all of my life.
My pain started 8 months ago.
This 'sickness' stresses me out more than anything has in my entire life.
My eyes constantly burn----constantly.
This is the most annoying part of everything.
I also have a dry- chalky type build-up in the back of my throat (slightly red throat)
and breath smells kind of bad?
My eyes looks really dark around the eye, eyelids, and when you look at me from the side,
my eyes look really 'hazed' ---dark.
I usually have to cutt my days short because I just look rough as hell at the end of the day.
I hide at my apartment, watching tv in the dark.
I have to get tons of sleep and even if I drink just a couple of beers during the week, the next day,
everyone at work thinks I have been up all night.
I do not have a runny, clogged up nose. My nose feels very clean (empty) and extremely sensitive. When I get out of the shower, use shampoo, soap, deo, shave, use cologne and hairspray, I start to feel like absolute crap.---and it effects me all throughout the day.(everyday)
I feel like there is someting that is really wrong with me.
It seems like everything goes straight to my nose. When I smell Poupori or hairspray it seems like it goes straight up my nose and right to my brain. I get a horrible headache and my eyes dry out and burn like 'mad'
The skin around my eyes get really sensitive to touch, like a layer of it has been stripped off.
Have spent tons of money trying to get to the bottom of it.
Physician has given me allegra, amoxicilan, even cipro (the stuff used for anthrax patients)
Othamologist has ran expensive blood test on me, glaucoma, macul, dry-eyes syndrome.
started to get headaches---went and got a CT scan----Nothing
I have been so 'wierded out' about this -- I even got an HIV test.
No one knows the anwser and the doctors really piss me off.
Is anyones nose really dry and chemicals just seem to really effect them in this way?
I just look like I am sick all of the time.
I cannot take it anymore---I will do anything!
What can I do, please respond
I am 23, have been in perfect health all of my life.
My pain started 8 months ago.
This 'sickness' stresses me out more than anything has in my entire life.
My eyes constantly burn----constantly.
This is the most annoying part of everything.
I also have a dry- chalky type build-up in the back of my throat (slightly red throat)
and breath smells kind of bad?
My eyes looks really dark around the eye, eyelids, and when you look at me from the side,
my eyes look really 'hazed' ---dark.
I usually have to cutt my days short because I just look rough as hell at the end of the day.
I hide at my apartment, watching tv in the dark.
I have to get tons of sleep and even if I drink just a couple of beers during the week, the next day,
everyone at work thinks I have been up all night.
I do not have a runny, clogged up nose. My nose feels very clean (empty) and extremely sensitive. When I get out of the shower, use shampoo, soap, deo, shave, use cologne and hairspray, I start to feel like absolute crap.---and it effects me all throughout the day.(everyday)
I feel like there is someting that is really wrong with me.
It seems like everything goes straight to my nose. When I smell Poupori or hairspray it seems like it goes straight up my nose and right to my brain. I get a horrible headache and my eyes dry out and burn like 'mad'
The skin around my eyes get really sensitive to touch, like a layer of it has been stripped off.
Have spent tons of money trying to get to the bottom of it.
Physician has given me allegra, amoxicilan, even cipro (the stuff used for anthrax patients)
Othamologist has ran expensive blood test on me, glaucoma, macul, dry-eyes syndrome.
started to get headaches---went and got a CT scan----Nothing
I have been so 'wierded out' about this -- I even got an HIV test.
No one knows the anwser and the doctors really piss me off.
Is anyones nose really dry and chemicals just seem to really effect them in this way?
I just look like I am sick all of the time.
I cannot take it anymore---I will do anything!
What can I do, please respond
gemini74
12-16-2003, 04:12 PM
Hey there Akita12. This is a big bummer, I know. It started for me about 4 or 5 months ago. I too had been in perfect health and I am now dealing with the same type of thing.
About 4 or 5 months ago I got some type of virus. Ever since then, I have had a constant post nasal drip, and my nose alternates from being stuffy to feeling completely hollow and sensitive. Sometimes it just straight up hurts to breathe. I, too, now have problems with car exhaust, cigarette smoke, cleaners, perfume or whatever. Never had this problem before the virus. Just last night it made me feel so sick I had to go home after work (which has been hard to get through) and just go to bed.
I also went throught the CAT scan and blood tests and they can find nothing. I had a quack ENT who didn't help at all so my doctor sent me to an allergist he really likes. Even though I don't have traditional allergies, he was able to look at my sinuses and said they were really raw, red and swollen. He pulled me off all the steroidal nasal sprays they had me on (which were not helping anyways) becuase they were making my nose worse. I am still suffering, and he has told me it is going to take months for me nasal tissue to properly regrow. In the meantime, I am miserable, so I feel for you. I would do anything right now as well. My nose is so dry right now it has caused the post nasal to increase 10 times what it was, and it's driving me crazy. I can get NOTHING out of my nose right now. The allergist suggested I moisturize using a product called Simply Saline. In fact, it's the only thing he wants me using in my nose right now. It's very gentle, non medicated and can help with the dryness for a bit. You can also use it as much as you want since it's non-addictive.
I am going to start going to acupuncture again soon to see if they can help me. You might want to consider that. I have spoken to several people who have had great success with it. I was going for a few weeks but the doctor put me back on on oral antibiotic and wanted me to stop everything else while I was taking it. I am going back as soon as the holidays are over and I have a bit more cash flow. The antibiotic, of course, ended up helping nothing. I have been put on allegra, cipro, amoxicilan, augmenten, minocycline, biaxin, duratuss, singular, claritin, prednisone blah blach blah. Not to mention the 4-6 steroidal nasal sprays.
Have you had any tests run by an allergist to see if you have developed an allergic reaction to anything? Have they tried any of the nasal sprays on you? Again, you may want to think about the acupuncture route.
I'm sorry I don't have more answers for you Akita, I just wanted to let you know that you are not alone.
:wave:
By the way, I understand what you mean by people saying you look like you have been up all night. The new joke in my office is "oh, he's always sick". Good times (insert sarcastic tone here). :confused:
About 4 or 5 months ago I got some type of virus. Ever since then, I have had a constant post nasal drip, and my nose alternates from being stuffy to feeling completely hollow and sensitive. Sometimes it just straight up hurts to breathe. I, too, now have problems with car exhaust, cigarette smoke, cleaners, perfume or whatever. Never had this problem before the virus. Just last night it made me feel so sick I had to go home after work (which has been hard to get through) and just go to bed.
I also went throught the CAT scan and blood tests and they can find nothing. I had a quack ENT who didn't help at all so my doctor sent me to an allergist he really likes. Even though I don't have traditional allergies, he was able to look at my sinuses and said they were really raw, red and swollen. He pulled me off all the steroidal nasal sprays they had me on (which were not helping anyways) becuase they were making my nose worse. I am still suffering, and he has told me it is going to take months for me nasal tissue to properly regrow. In the meantime, I am miserable, so I feel for you. I would do anything right now as well. My nose is so dry right now it has caused the post nasal to increase 10 times what it was, and it's driving me crazy. I can get NOTHING out of my nose right now. The allergist suggested I moisturize using a product called Simply Saline. In fact, it's the only thing he wants me using in my nose right now. It's very gentle, non medicated and can help with the dryness for a bit. You can also use it as much as you want since it's non-addictive.
I am going to start going to acupuncture again soon to see if they can help me. You might want to consider that. I have spoken to several people who have had great success with it. I was going for a few weeks but the doctor put me back on on oral antibiotic and wanted me to stop everything else while I was taking it. I am going back as soon as the holidays are over and I have a bit more cash flow. The antibiotic, of course, ended up helping nothing. I have been put on allegra, cipro, amoxicilan, augmenten, minocycline, biaxin, duratuss, singular, claritin, prednisone blah blach blah. Not to mention the 4-6 steroidal nasal sprays.
Have you had any tests run by an allergist to see if you have developed an allergic reaction to anything? Have they tried any of the nasal sprays on you? Again, you may want to think about the acupuncture route.
I'm sorry I don't have more answers for you Akita, I just wanted to let you know that you are not alone.
:wave:
By the way, I understand what you mean by people saying you look like you have been up all night. The new joke in my office is "oh, he's always sick". Good times (insert sarcastic tone here). :confused:
fallen02
12-16-2003, 06:13 PM
SO the doctor can to look at my sinuses and see if they are really raw, red and swollen?
When you say sinuses, you don;t mean throat, do you?
your quote" Have you had any tests run by an allergist to see if you have developed an allergic reaction to anything?"
Can they do this, I thought that the only thing they can test for is stuff like pollen, pet dander, -- I just feel like this disease(I feel like calling it a disease because of the way it brings me down")
is deeper than the stuff an allergist can test for---only because of the outstanding health that I have been in all of my life.
Also, It seems like if I put stuff (products) in my hair, (hairspray, gel, shampoo) that it just penetrates my scalp and 'seeps' into my brain, eyes and throat.
That sounds really wierd. (Its not rubbing alcohol, only hairspray) but it just feels this way.
I am going back to my physician tommorrow, you don't know how much I appreciate you responding to my post, I have been checking this board over and over.
What you said about "he's always sick"---that is the exact same way at my work.
Please keep me posted, it seems like you are the only one who has the same nose symptoms that I have, everyone else's is 'runny' or 'clogged', mine just feels like I am inhaling 'vapors' all day long.
my email address is [removed]
Look forward to hearing from you plus anyone else in this world
When you say sinuses, you don;t mean throat, do you?
your quote" Have you had any tests run by an allergist to see if you have developed an allergic reaction to anything?"
Can they do this, I thought that the only thing they can test for is stuff like pollen, pet dander, -- I just feel like this disease(I feel like calling it a disease because of the way it brings me down")
is deeper than the stuff an allergist can test for---only because of the outstanding health that I have been in all of my life.
Also, It seems like if I put stuff (products) in my hair, (hairspray, gel, shampoo) that it just penetrates my scalp and 'seeps' into my brain, eyes and throat.
That sounds really wierd. (Its not rubbing alcohol, only hairspray) but it just feels this way.
I am going back to my physician tommorrow, you don't know how much I appreciate you responding to my post, I have been checking this board over and over.
What you said about "he's always sick"---that is the exact same way at my work.
Please keep me posted, it seems like you are the only one who has the same nose symptoms that I have, everyone else's is 'runny' or 'clogged', mine just feels like I am inhaling 'vapors' all day long.
my email address is [removed]
Look forward to hearing from you plus anyone else in this world
perfix
12-16-2003, 06:58 PM
Hey there Akita12. This is a big bummer, I know. It started for me about 4 or 5 months ago. I too had been in perfect health and I am now dealing with the same type of thing.
About 4 or 5 months ago I got some type of virus. Ever since then, I have had a constant post nasal drip, and my nose alternates from being stuffy to feeling completely hollow and sensitive. Sometimes it just straight up hurts to breathe. I, too, now have problems with car exhaust, cigarette smoke, cleaners, perfume or whatever. Never had this problem before the virus. Just last night it made me feel so sick I had to go home after work (which has been hard to get through) and just go to bed.
I also went throught the CAT scan and blood tests and they can find nothing. I had a quack ENT who didn't help at all so my doctor sent me to an allergist he really likes. Even though I don't have traditional allergies, he was able to look at my sinuses and said they were really raw, red and swollen. He pulled me off all the steroidal nasal sprays they had me on (which were not helping anyways) becuase they were making my nose worse. I am still suffering, and he has told me it is going to take months for me nasal tissue to properly regrow. In the meantime, I am miserable, so I feel for you. I would do anything right now as well. My nose is so dry right now it has caused the post nasal to increase 10 times what it was, and it's driving me crazy. I can get NOTHING out of my nose right now. The allergist suggested I moisturize using a product called Simply Saline. In fact, it's the only thing he wants me using in my nose right now. It's very gentle, non medicated and can help with the dryness for a bit. You can also use it as much as you want since it's non-addictive.
I am going to start going to acupuncture again soon to see if they can help me. You might want to consider that. I have spoken to several people who have had great success with it. I was going for a few weeks but the doctor put me back on on oral antibiotic and wanted me to stop everything else while I was taking it. I am going back as soon as the holidays are over and I have a bit more cash flow. The antibiotic, of course, ended up helping nothing. I have been put on allegra, cipro, amoxicilan, augmenten, minocycline, biaxin, duratuss, singular, claritin, prednisone blah blach blah. Not to mention the 4-6 steroidal nasal sprays.
Have you had any tests run by an allergist to see if you have developed an allergic reaction to anything? Have they tried any of the nasal sprays on you? Again, you may want to think about the acupuncture route.
I'm sorry I don't have more answers for you Akita, I just wanted to let you know that you are not alone.
:wave:
By the way, I understand what you mean by people saying you look like you have been up all night. The new joke in my office is "oh, he's always sick". Good times (insert sarcastic tone here). :confused:
Hi there. Your symptoms look similar to mine. Mine started 2 months a sort of cold I catched which I treated myself with some leftover antibiotics. I shouldn't have done that of course, but it helped on the short term. I started to get phlegm in my throat all day, once a day i would spit out this nasty bad smelling mucus, sometimes containing blood. This would get really worse when it was cold or when I go the flu or some sort of cold(why? have no idea). My next was always congested, slight sore throat and lots of tonsil stones. I have experienced myself too that I can't bare somebofy smoking next to me. have it with certain perfumes too. My nose just completely closes.
Not long after this all I developed this terrible, awful smell from my nose. And the best thing is I can never blow my nose, I have to spit it out and it tastes terrible. My nose has ever since been feeling like I have the flu. You know when you have the flu your nose is congested and you have a certain smell in your nose. It's like it never went away. A CT showed that my sinuses were clear/ Doctor set me off with antibiotics and a nasal spray which brought only a short relief.
Has anyone heard about atrophic rhinitis, I am not sure about the symptoms but it resembles mine and probably yours.
About 4 or 5 months ago I got some type of virus. Ever since then, I have had a constant post nasal drip, and my nose alternates from being stuffy to feeling completely hollow and sensitive. Sometimes it just straight up hurts to breathe. I, too, now have problems with car exhaust, cigarette smoke, cleaners, perfume or whatever. Never had this problem before the virus. Just last night it made me feel so sick I had to go home after work (which has been hard to get through) and just go to bed.
I also went throught the CAT scan and blood tests and they can find nothing. I had a quack ENT who didn't help at all so my doctor sent me to an allergist he really likes. Even though I don't have traditional allergies, he was able to look at my sinuses and said they were really raw, red and swollen. He pulled me off all the steroidal nasal sprays they had me on (which were not helping anyways) becuase they were making my nose worse. I am still suffering, and he has told me it is going to take months for me nasal tissue to properly regrow. In the meantime, I am miserable, so I feel for you. I would do anything right now as well. My nose is so dry right now it has caused the post nasal to increase 10 times what it was, and it's driving me crazy. I can get NOTHING out of my nose right now. The allergist suggested I moisturize using a product called Simply Saline. In fact, it's the only thing he wants me using in my nose right now. It's very gentle, non medicated and can help with the dryness for a bit. You can also use it as much as you want since it's non-addictive.
I am going to start going to acupuncture again soon to see if they can help me. You might want to consider that. I have spoken to several people who have had great success with it. I was going for a few weeks but the doctor put me back on on oral antibiotic and wanted me to stop everything else while I was taking it. I am going back as soon as the holidays are over and I have a bit more cash flow. The antibiotic, of course, ended up helping nothing. I have been put on allegra, cipro, amoxicilan, augmenten, minocycline, biaxin, duratuss, singular, claritin, prednisone blah blach blah. Not to mention the 4-6 steroidal nasal sprays.
Have you had any tests run by an allergist to see if you have developed an allergic reaction to anything? Have they tried any of the nasal sprays on you? Again, you may want to think about the acupuncture route.
I'm sorry I don't have more answers for you Akita, I just wanted to let you know that you are not alone.
:wave:
By the way, I understand what you mean by people saying you look like you have been up all night. The new joke in my office is "oh, he's always sick". Good times (insert sarcastic tone here). :confused:
Hi there. Your symptoms look similar to mine. Mine started 2 months a sort of cold I catched which I treated myself with some leftover antibiotics. I shouldn't have done that of course, but it helped on the short term. I started to get phlegm in my throat all day, once a day i would spit out this nasty bad smelling mucus, sometimes containing blood. This would get really worse when it was cold or when I go the flu or some sort of cold(why? have no idea). My next was always congested, slight sore throat and lots of tonsil stones. I have experienced myself too that I can't bare somebofy smoking next to me. have it with certain perfumes too. My nose just completely closes.
Not long after this all I developed this terrible, awful smell from my nose. And the best thing is I can never blow my nose, I have to spit it out and it tastes terrible. My nose has ever since been feeling like I have the flu. You know when you have the flu your nose is congested and you have a certain smell in your nose. It's like it never went away. A CT showed that my sinuses were clear/ Doctor set me off with antibiotics and a nasal spray which brought only a short relief.
Has anyone heard about atrophic rhinitis, I am not sure about the symptoms but it resembles mine and probably yours.
MrsLee
12-17-2003, 01:12 PM
Akita12--when you said that hairspray bothers you it reminded me of something I experience. Whenever I put makeup on, especially eye makeup, I get stuffier, ususally get a headache and my eyes just feel more irritated. This stinks because I just started a professional job and I have to wear makeup when I go to work. I never noticed this with hair prodcuts. I wonder if this is the same kind of thing. I have pretty much figured out I am just really sensitive to a lot of weird, and not so weird things.
I also understand when you say people think you are always sick. My family, friends, coworkers and classmates all comment on how I am always sick. I think they are just sick of hearing me sniffle and sneeze and clear my throat all the time.
I am surprised at how many of you were fine until getting a virus and are now stuck with this problem. I think I have always felt like this, in fact I cannot remember ever feeling really well. It seems there is just so much the medical prfessional does not know about our bodies. ANd I don't think they'll ever figure it out. I think they just want to keep taking out money and writing us prescriptions for costly medicines.....sigh....anyways, I'll get off my soapbox! Take care everyone!
I also understand when you say people think you are always sick. My family, friends, coworkers and classmates all comment on how I am always sick. I think they are just sick of hearing me sniffle and sneeze and clear my throat all the time.
I am surprised at how many of you were fine until getting a virus and are now stuck with this problem. I think I have always felt like this, in fact I cannot remember ever feeling really well. It seems there is just so much the medical prfessional does not know about our bodies. ANd I don't think they'll ever figure it out. I think they just want to keep taking out money and writing us prescriptions for costly medicines.....sigh....anyways, I'll get off my soapbox! Take care everyone!
chigs489
01-04-2004, 01:42 PM
gemni,
I have had the EXACT same problem (and it's still with me, going on 5 weeks now).
It all started with a cold, or upper respatory tract infection over 2 months ago. That seemed to go away EXCEPT for the post nasal drip, and constant throat clearing. There was nasty weather in Chicago, but I didn't take it seriously, so I started going on in light jackets, etc. I was also doing a project at work that exposed me to a lot of dust. Suddenly, one night I developed asthmatic symptoms (wheezing). Hours later, my head seemed to swell up, giving me the feeling of descending in an airplane. My ears felt full, and I had mild dizziness. I also get some mild headaches that seem to "move around."
I went in to see my GP and he put me on Advair (which has helped the lungs), Zyrtec, and Flonase.
My head still feels like crap, and my nose still gets stuffed up, especially when I sleep. I haven't been to an allergist yet, but I will go.
It feels like a head cold that won't go away. I just ordered a nasal irrigation system that I hope will help me.
Some people on the board have said this could be sinusitis. But it is my understanding that when you have that condition, you have discolored mucus coming out of your nose, and the symptoms quickly get worse, especially if it is bacterial. My discharge is clear as water.
Ugh! I'm open to any advice. It seems like several people here are suffering from the same condition.
I have had the EXACT same problem (and it's still with me, going on 5 weeks now).
It all started with a cold, or upper respatory tract infection over 2 months ago. That seemed to go away EXCEPT for the post nasal drip, and constant throat clearing. There was nasty weather in Chicago, but I didn't take it seriously, so I started going on in light jackets, etc. I was also doing a project at work that exposed me to a lot of dust. Suddenly, one night I developed asthmatic symptoms (wheezing). Hours later, my head seemed to swell up, giving me the feeling of descending in an airplane. My ears felt full, and I had mild dizziness. I also get some mild headaches that seem to "move around."
I went in to see my GP and he put me on Advair (which has helped the lungs), Zyrtec, and Flonase.
My head still feels like crap, and my nose still gets stuffed up, especially when I sleep. I haven't been to an allergist yet, but I will go.
It feels like a head cold that won't go away. I just ordered a nasal irrigation system that I hope will help me.
Some people on the board have said this could be sinusitis. But it is my understanding that when you have that condition, you have discolored mucus coming out of your nose, and the symptoms quickly get worse, especially if it is bacterial. My discharge is clear as water.
Ugh! I'm open to any advice. It seems like several people here are suffering from the same condition.
gemini74
01-05-2004, 04:35 PM
Hey there, Chiggins.
Yes, the constant post nasal and throat clearing is maddening, isn't it? Not only that, but my doctor had me on nasal sprays for so long to try and clear up what is NOT an allergy, that now my nose feels dry, hollow and inflamed. The allergist told me I am just going to have to wait it out and try to avoid getting sick at all costs. He said if I keep getting sick (cold or whatever) it's going to keep setting me back. Not the easiest thing to avoid this time of year. I'm pounding the vitamins to boost the immune system. The only thing I am allowed to use is Simply Saline solution to help moisturize and irrigate my sinuses. He mentioned that the nasal tissue has been damaged from the virus and all the sprays and will take months to grow back. Good times. This has been going on for about 5 months now, so I feel for you. I never had a problem before the virus.
Your right about sinusitis. If that's what it was, the discharge would not be clear. Mine is as well. I almost wish it wasn't so I could clear it up with an antibiotic. I had a cat scan but it showed nothing, including sinusitis. I agree, it feels like a head cold that just won't go away!
I think all of this has something to do with the virus damaging the mucous membranes or turbinates or something. It takes a long time for them to heal. Over the past couple of weeks, I have noticed that my right sinus passage has started to feel a bit different. I feels almost "normal", but again, the left side still feels hollow and messed up, so maybe the right side is going back to normal and I don't remember what that feels like! Kind of feels like all the post nasal is now coming from the left sinus, the hollow feeling one. Maybe I'm on the right track back to healing? Don't know, but I sure hope so. Put another call in to the doctor this morning to check in with him, have not heard back yet.
Let me know if your allergist/doctor gives you any good advice. I will try anything at this point! I just want to know what this is and how to fix it!
:confused:
Yes, the constant post nasal and throat clearing is maddening, isn't it? Not only that, but my doctor had me on nasal sprays for so long to try and clear up what is NOT an allergy, that now my nose feels dry, hollow and inflamed. The allergist told me I am just going to have to wait it out and try to avoid getting sick at all costs. He said if I keep getting sick (cold or whatever) it's going to keep setting me back. Not the easiest thing to avoid this time of year. I'm pounding the vitamins to boost the immune system. The only thing I am allowed to use is Simply Saline solution to help moisturize and irrigate my sinuses. He mentioned that the nasal tissue has been damaged from the virus and all the sprays and will take months to grow back. Good times. This has been going on for about 5 months now, so I feel for you. I never had a problem before the virus.
Your right about sinusitis. If that's what it was, the discharge would not be clear. Mine is as well. I almost wish it wasn't so I could clear it up with an antibiotic. I had a cat scan but it showed nothing, including sinusitis. I agree, it feels like a head cold that just won't go away!
I think all of this has something to do with the virus damaging the mucous membranes or turbinates or something. It takes a long time for them to heal. Over the past couple of weeks, I have noticed that my right sinus passage has started to feel a bit different. I feels almost "normal", but again, the left side still feels hollow and messed up, so maybe the right side is going back to normal and I don't remember what that feels like! Kind of feels like all the post nasal is now coming from the left sinus, the hollow feeling one. Maybe I'm on the right track back to healing? Don't know, but I sure hope so. Put another call in to the doctor this morning to check in with him, have not heard back yet.
Let me know if your allergist/doctor gives you any good advice. I will try anything at this point! I just want to know what this is and how to fix it!
:confused:
chigs489
01-05-2004, 04:51 PM
hey gemni,
a couple updates. The Zyrtec seems to be working, at least to some degree. I've noticed an improvement within the last 48 hours or so. I'm about 50% less cloudy and dizzy. I will wait and see. After 5 weeks of misery (actually, 2 months if you count the cold/flu), I don't want to get overconfident.
I'm also taking Flonase and Advair (for the Asthma).
I still wake up in the morning stuffed up. I think my nose simply doesn't work when I lay down for a long period of time. I always end up breathing through my mouth. I'm going to see an ENT Monday. I have a deviated septum that could be causing problems.
I have a couple questions for you
1. What climate do you live in? I'm in Chicago, and I notice more problems when it begins to get cold, especially on rainy days.
2. Do you have pets? I have a 180 pound English Mastiff, so there is a lot of hair in the house.
I also got 2 HEPA filters for the house, about a week ago. Not sure if this is helping.
a couple updates. The Zyrtec seems to be working, at least to some degree. I've noticed an improvement within the last 48 hours or so. I'm about 50% less cloudy and dizzy. I will wait and see. After 5 weeks of misery (actually, 2 months if you count the cold/flu), I don't want to get overconfident.
I'm also taking Flonase and Advair (for the Asthma).
I still wake up in the morning stuffed up. I think my nose simply doesn't work when I lay down for a long period of time. I always end up breathing through my mouth. I'm going to see an ENT Monday. I have a deviated septum that could be causing problems.
I have a couple questions for you
1. What climate do you live in? I'm in Chicago, and I notice more problems when it begins to get cold, especially on rainy days.
2. Do you have pets? I have a 180 pound English Mastiff, so there is a lot of hair in the house.
I also got 2 HEPA filters for the house, about a week ago. Not sure if this is helping.
gemini74
01-05-2004, 05:54 PM
Hey Chiggins!
Glad to hear your feeling a bit better. I understand what your saying about not getting your hopes up. I was feeling better at one point then I got sick again and it started all over.
Ah yes, the cold! Never had a problem before the virus/cold but I do now. Granted, I definitely do not have the Chicago winter to deal with. I am in Los Angeles, but I grew up here and have never lived anywhere else (I know it's crazy) so it's all my body knows. I'm accustomed to a certain type of cold if you know what I mean. It was easier for me to deal with this in the summer, but now that it's much cooler during the day and night, I've noticed the post nasal has increased quite a bit. It just irritates my sinuses in general.
I have two cats, so I understand the hair issue. I also have a HEPA filter in my apartment (got it a little over a year ago) and you wouldn't believe what that thing picks up! I've never been allergic, but just knowing all that stuff is not in the air I'm breathing in my apartment makes me feel better. Not just cat hair either, but crazy dust type stuff and whatever else is floating around. It's even picked up stray feathers that have come out of my down comforter (thought maybe the down was a problem but it's not).
It's interesting that you have an asthma problem. I had VERY BAD asthma (was rushed to the emergency room on a regular basis) as a kid, but I was one of the lucky ones who grew out of it as an adult. However, the allergist told me that when you have an asthma, even if you out grow it, it leaves a small "impression" or "indentation" on your sinus cavities. He said it's usually not a problem, but all it takes is for one virus to knock things out of wack and cause an "imbalance" in your sinuses. It then takes forever to go away, but it eventually will. At least that's what I am being told. I just want to know when!!! Have you always had an asthma problem or did it just recently develop with this?
I have a feeling your deviated septum is definitely causing a big part of the problem. From what I hear, it's very easy to correct and can work wonders. Let me know what you find out from your ENT. I am extremely interested in different doctors opinions.
Thanks and hang in there!
:wave:
Glad to hear your feeling a bit better. I understand what your saying about not getting your hopes up. I was feeling better at one point then I got sick again and it started all over.
Ah yes, the cold! Never had a problem before the virus/cold but I do now. Granted, I definitely do not have the Chicago winter to deal with. I am in Los Angeles, but I grew up here and have never lived anywhere else (I know it's crazy) so it's all my body knows. I'm accustomed to a certain type of cold if you know what I mean. It was easier for me to deal with this in the summer, but now that it's much cooler during the day and night, I've noticed the post nasal has increased quite a bit. It just irritates my sinuses in general.
I have two cats, so I understand the hair issue. I also have a HEPA filter in my apartment (got it a little over a year ago) and you wouldn't believe what that thing picks up! I've never been allergic, but just knowing all that stuff is not in the air I'm breathing in my apartment makes me feel better. Not just cat hair either, but crazy dust type stuff and whatever else is floating around. It's even picked up stray feathers that have come out of my down comforter (thought maybe the down was a problem but it's not).
It's interesting that you have an asthma problem. I had VERY BAD asthma (was rushed to the emergency room on a regular basis) as a kid, but I was one of the lucky ones who grew out of it as an adult. However, the allergist told me that when you have an asthma, even if you out grow it, it leaves a small "impression" or "indentation" on your sinus cavities. He said it's usually not a problem, but all it takes is for one virus to knock things out of wack and cause an "imbalance" in your sinuses. It then takes forever to go away, but it eventually will. At least that's what I am being told. I just want to know when!!! Have you always had an asthma problem or did it just recently develop with this?
I have a feeling your deviated septum is definitely causing a big part of the problem. From what I hear, it's very easy to correct and can work wonders. Let me know what you find out from your ENT. I am extremely interested in different doctors opinions.
Thanks and hang in there!
:wave:
chigs489
01-05-2004, 08:26 PM
gemni,
I never had an asthma problem until now. Interestingly enough, two things may have contributed to this:
1. I was working in an environment with tons of dust, right as I was getting over the cold/flu.
2. I went to a Christmas party, and stood in a garage, drinking with people who were also smoking a lot. The garage was cold, and I wasn't dressed warmly. The next day, my lungs felt like hell.
My peak flow is only about 400-500 right now, and has been for 3 weeks. It is almost like my lungs were "damaged" by all this.
I wonder if this is an auto-immune disorder of some kind. We know the Asthma is an "overcompensation" by your immune system to environmental stimuli, but I wonder if the sinus issues are as well. This would explain the failure of drugs to treat the problem.
Last year, I had problems with "chronic pelvic pain syndrome (CPPS)" or Interstitial Cystitis. This is a mysterious thing that causes frequent urination, urgency, and even pain. It is virtually impossible to treat. Luckily, I made some lifestyle changes (no caffeine, cut back on alcohol and spicy food), took some supplements and a medication to treat the symptoms, and I got over it. But I believe (and others do as well), that it is an auto-immune disorder -your body at war with itself.
I'm willing to bet this is the same thing. I'm also willing to bet that it could be classified as a disorder unto itself. I bet we have the same thing, and that if you went into a very cold climate, you might develop lung symtpoms as well (like I did).
Ask your doctor about Zyrtec. So far, this is the only thing that has done anything for me. Other medications didn't do a thing. The other thing that seems to helpe me is running and working out. I feel less cloudy and congested afterwards.
I'll keep you updated.
I never had an asthma problem until now. Interestingly enough, two things may have contributed to this:
1. I was working in an environment with tons of dust, right as I was getting over the cold/flu.
2. I went to a Christmas party, and stood in a garage, drinking with people who were also smoking a lot. The garage was cold, and I wasn't dressed warmly. The next day, my lungs felt like hell.
My peak flow is only about 400-500 right now, and has been for 3 weeks. It is almost like my lungs were "damaged" by all this.
I wonder if this is an auto-immune disorder of some kind. We know the Asthma is an "overcompensation" by your immune system to environmental stimuli, but I wonder if the sinus issues are as well. This would explain the failure of drugs to treat the problem.
Last year, I had problems with "chronic pelvic pain syndrome (CPPS)" or Interstitial Cystitis. This is a mysterious thing that causes frequent urination, urgency, and even pain. It is virtually impossible to treat. Luckily, I made some lifestyle changes (no caffeine, cut back on alcohol and spicy food), took some supplements and a medication to treat the symptoms, and I got over it. But I believe (and others do as well), that it is an auto-immune disorder -your body at war with itself.
I'm willing to bet this is the same thing. I'm also willing to bet that it could be classified as a disorder unto itself. I bet we have the same thing, and that if you went into a very cold climate, you might develop lung symtpoms as well (like I did).
Ask your doctor about Zyrtec. So far, this is the only thing that has done anything for me. Other medications didn't do a thing. The other thing that seems to helpe me is running and working out. I feel less cloudy and congested afterwards.
I'll keep you updated.
MrsLee
01-06-2004, 11:04 AM
I have to warn you about the deviated septum correction!! I had this surgery in July and it didn't do a thing for me. The ENT told me it would be instant relief. Afterward he said it was allergies causing my problems. I didn't believe it so I got allergy tested, and I was right, no allergies. The reason, I have been told, is because I have the vasomotor rhinitis causing me to be congested and stuffy. So the deviated septum contributed to this, but it wasn't the only cause of my problems. I am so upset about this, as I have thousands of dollars in medical bills and no relief. I just wanted to share this because I wish I would have done more research before deciding to have this surgery. I am sure there are many people that have had relief from it, but there are others like me that have not.
As a side note, I tried the nasal irrigation and am getting no relief from it. I think I am going to buy some simply saline today because that works better. The only thing that really works is Afrin but I am not supposed to use it :(
I wish you all good luck in finding relief! Take care!
As a side note, I tried the nasal irrigation and am getting no relief from it. I think I am going to buy some simply saline today because that works better. The only thing that really works is Afrin but I am not supposed to use it :(
I wish you all good luck in finding relief! Take care!
gemini74
01-06-2004, 02:02 PM
Hi MrsLee. Good information on the deviated septum surgery!
I just read your posting on the scabs. My nose is so dry right now, it hurts to breathe in cool air and I practically went through an entire bottle of Simply Saline yesterday. It does help, though. I would definitely try it. I'm going back to my ENT this Friday because I just can't deal anymore. I'm determined to get some kind of answer or relief for this. I've absolutely had it! I'll let you all know.
:rolleyes:
I just read your posting on the scabs. My nose is so dry right now, it hurts to breathe in cool air and I practically went through an entire bottle of Simply Saline yesterday. It does help, though. I would definitely try it. I'm going back to my ENT this Friday because I just can't deal anymore. I'm determined to get some kind of answer or relief for this. I've absolutely had it! I'll let you all know.
:rolleyes:
gemini74
01-06-2004, 02:16 PM
Chiggins,
Wow, that's really interesting. Right before I got the cold virus that caused this, I came down with a very bad stomach/intestinal infection (never had this before). Literally a week after the doctor supposedly got rid of that, I came down with the cold that caused this. I have actually brought this up to a couple of doctors but they keep blowing this theory off. I, on the other hand, have been quite convinced the entire time that the stomach infection has something to do with this. I am going to bring this up again when I go in this week and try to make them at least look into it.
I am a runner, too. Or at least I was. I used to go at least four days a week. I say that because by the end of the day, the sinus condition makes me feel so tired and sick sometimes, I have no engery left. All I can do is sleep. I have not been running for three weeks, and it's driving me crazy. I'm sure that's part of the reason I have a lower energy level, but it's almost a catch 22 if you know what I mean. Depending on the day, the running can either make me feel better or ten times worse. Yesterday it was all I could do to get through work and go home to bed. Good times. :rolleyes:
I hear on the cigarette smoke by the way. I was at a New Year's party where everyone was smoking and it was KILLING me! Never had that problem before this. I'm soooo tired of this. It really needs to go away!
Thanks for the info. I'll keep you posted as well.
Wow, that's really interesting. Right before I got the cold virus that caused this, I came down with a very bad stomach/intestinal infection (never had this before). Literally a week after the doctor supposedly got rid of that, I came down with the cold that caused this. I have actually brought this up to a couple of doctors but they keep blowing this theory off. I, on the other hand, have been quite convinced the entire time that the stomach infection has something to do with this. I am going to bring this up again when I go in this week and try to make them at least look into it.
I am a runner, too. Or at least I was. I used to go at least four days a week. I say that because by the end of the day, the sinus condition makes me feel so tired and sick sometimes, I have no engery left. All I can do is sleep. I have not been running for three weeks, and it's driving me crazy. I'm sure that's part of the reason I have a lower energy level, but it's almost a catch 22 if you know what I mean. Depending on the day, the running can either make me feel better or ten times worse. Yesterday it was all I could do to get through work and go home to bed. Good times. :rolleyes:
I hear on the cigarette smoke by the way. I was at a New Year's party where everyone was smoking and it was KILLING me! Never had that problem before this. I'm soooo tired of this. It really needs to go away!
Thanks for the info. I'll keep you posted as well.
MrsLee
01-07-2004, 09:08 PM
I finally got a new bottle of Simply Saline yesterday! It helps get the scabs out of my nose--yippee! I understand what you mean when you say you've "absolutely had it." I am so tired of feeling sick all the time. It doesn't seem to do any good when I go to the doctor though. They all just try to hurry up and give me a prescription and send me on my way. If only I could find a doctor that will actually listen to me and care about me feeling better!
UH-60
01-09-2004, 09:35 AM
I have had chemical sensitivity and allergies for several years now. I recently read some promising information from a guy that uses saline irrigation to flush the sinuses. I plan on trying it this weekend. Supposedly it rinses away the irritants and heals the inflamed tissues in the sinuses. Do a search on Jala Neti or neti pot and you'll get lots of info.
chigs489
01-09-2004, 11:12 AM
how is this for weird?
Today I woke up and spit out a bunch of brown gunk, most likely blood, and who knows what else. I used a sinus irrigator the night before, so it probably freed up some gunk. The strange thing is, my nasal discharge was white.
Evidence of infection? Or just nasty irritation and scabs?
Today I woke up and spit out a bunch of brown gunk, most likely blood, and who knows what else. I used a sinus irrigator the night before, so it probably freed up some gunk. The strange thing is, my nasal discharge was white.
Evidence of infection? Or just nasty irritation and scabs?
dsanchez
08-06-2007, 07:18 PM
I do not know what is wrong with me
I am 23, have been in perfect health all of my life.
My pain started 8 months ago.
This 'sickness' stresses me out more than anything has in my entire life.
My eyes constantly burn----constantly.
This is the most annoying part of everything.
I also have a dry- chalky type build-up in the back of my throat (slightly red throat)
and breath smells kind of bad?
Similar story here. My health was perfect, but since april 2007 (we have august already) I have the following:
-Can't breath good (left/right nostril alternate)
-Have this called post-nasal-drip
-The breathing problem affects my throat, which is usually "burning", specially if I want to speak loud (I'm a teacher)
Went to 5 different doctors, all they say is that I have a rhinitis allergy and slightly deviated septum. Doctor gave me "Rhinocort Aqua" for the breathing problem plus Loratadina as antihistaminic.
Both reduce the problem but not solve it. I didn't do any allergy test yet.
Doctor says the problem might be because I moved to a most cold/wet place than the warmer one where I was living before.
I am 23, have been in perfect health all of my life.
My pain started 8 months ago.
This 'sickness' stresses me out more than anything has in my entire life.
My eyes constantly burn----constantly.
This is the most annoying part of everything.
I also have a dry- chalky type build-up in the back of my throat (slightly red throat)
and breath smells kind of bad?
Similar story here. My health was perfect, but since april 2007 (we have august already) I have the following:
-Can't breath good (left/right nostril alternate)
-Have this called post-nasal-drip
-The breathing problem affects my throat, which is usually "burning", specially if I want to speak loud (I'm a teacher)
Went to 5 different doctors, all they say is that I have a rhinitis allergy and slightly deviated septum. Doctor gave me "Rhinocort Aqua" for the breathing problem plus Loratadina as antihistaminic.
Both reduce the problem but not solve it. I didn't do any allergy test yet.
Doctor says the problem might be because I moved to a most cold/wet place than the warmer one where I was living before.
JCL223
08-15-2007, 10:21 PM
Very interesting thread.
I started to be allergic after being exposed to mold, then to chemical smells since August 2002. It's called also MCS. I couldn't stay in a Home Depot or a furniture store, for more than 2 minutes w/o getting headaches, sinusitus, coughing, bronchitis and asthma. Consulted also w. prominents Allergists, MD's ect.
Did lots of research on my own. I feel better now, but still have to be very careful when and where I go indoors.
It's a very complex illness.
Best is to avoid trigger chemicals and sensitive areas to be in and around.
Clean digestive track. Eat less, drink less or no alcohol. Drink water.
Take good enzymes from a reputable heath food Co.
Avoid stress and drama. Do Yoga and mental relaxation.
Smile, be happy. Help others w/o asking anything in return.
Go to beach or mountain a lot, and deep breathe fresh and clean air.
Best of Luck.
I started to be allergic after being exposed to mold, then to chemical smells since August 2002. It's called also MCS. I couldn't stay in a Home Depot or a furniture store, for more than 2 minutes w/o getting headaches, sinusitus, coughing, bronchitis and asthma. Consulted also w. prominents Allergists, MD's ect.
Did lots of research on my own. I feel better now, but still have to be very careful when and where I go indoors.
It's a very complex illness.
Best is to avoid trigger chemicals and sensitive areas to be in and around.
Clean digestive track. Eat less, drink less or no alcohol. Drink water.
Take good enzymes from a reputable heath food Co.
Avoid stress and drama. Do Yoga and mental relaxation.
Smile, be happy. Help others w/o asking anything in return.
Go to beach or mountain a lot, and deep breathe fresh and clean air.
Best of Luck.
Dianna116
08-22-2007, 11:35 AM
Very interesting thread.
I started to be allergic after being exposed to mold, then to chemical smells since August 2002. It's called also MCS. I couldn't stay in a Home Depot or a furniture store, for more than 2 minutes w/o getting headaches, sinusitus, coughing, bronchitis and asthma. Consulted also w. prominents Allergists, MD's ect.
Did lots of research on my own. I feel better now, but still have to be very careful when and where I go indoors.
It's a very complex illness.
Best is to avoid trigger chemicals and sensitive areas to be in and around.
Clean digestive track. Eat less, drink less or no alcohol. Drink water.
Take good enzymes from a reputable heath food Co.
Avoid stress and drama. Do Yoga and mental relaxation.
Smile, be happy. Help others w/o asking anything in return.
Go to beach or mountain a lot, and deep breathe fresh and clean air.
Best of Luck.
I have had MCS for 12 years. Cannot fine any relief. It is so bad I stay in my home because every where I go there is some sort of scent,.The right side of my body feels like someone just beat me up after smelling anything. It has attacked my nerve system. I have tried changing my diet and getting rid of anything with a scent. How can you be around other family members when the soap they used that morning sends you into pain that lasts for hours. It also makes me sick and totaly drained after. My body just can't handle the least little bit of scent, and it seems that we are a generation that has to have everything with some type of scent. I am reading a book called Multiple Chemical Sensitivity by Pamela Reed Gibson. If you even think you have MCS read this book. It will get worse!!
I started to be allergic after being exposed to mold, then to chemical smells since August 2002. It's called also MCS. I couldn't stay in a Home Depot or a furniture store, for more than 2 minutes w/o getting headaches, sinusitus, coughing, bronchitis and asthma. Consulted also w. prominents Allergists, MD's ect.
Did lots of research on my own. I feel better now, but still have to be very careful when and where I go indoors.
It's a very complex illness.
Best is to avoid trigger chemicals and sensitive areas to be in and around.
Clean digestive track. Eat less, drink less or no alcohol. Drink water.
Take good enzymes from a reputable heath food Co.
Avoid stress and drama. Do Yoga and mental relaxation.
Smile, be happy. Help others w/o asking anything in return.
Go to beach or mountain a lot, and deep breathe fresh and clean air.
Best of Luck.
I have had MCS for 12 years. Cannot fine any relief. It is so bad I stay in my home because every where I go there is some sort of scent,.The right side of my body feels like someone just beat me up after smelling anything. It has attacked my nerve system. I have tried changing my diet and getting rid of anything with a scent. How can you be around other family members when the soap they used that morning sends you into pain that lasts for hours. It also makes me sick and totaly drained after. My body just can't handle the least little bit of scent, and it seems that we are a generation that has to have everything with some type of scent. I am reading a book called Multiple Chemical Sensitivity by Pamela Reed Gibson. If you even think you have MCS read this book. It will get worse!!