This site has grown so much! I see more and more people reading the posts. I want to eccourage more people to speak out. Espeically PALS. I have learned so much from this forum and wish for it to help others as well. You all really help me to cope.
With the diagnoses of ALS happening more every year. This disease is not going to stop affecting people and families. The disease may take away a lot from people, but we can still gain something positive from it as well. Knowing we are not alone, and reading what others have to say can be really good therapy. I talk too much huh? sorry...

No, Slaughter -

You're right. I post on several boards here as I've been trying to understand my physical symptoms. On this board I've noticed that alot of people read, but few reply. Maybe that's because of the seriousness of the disease being discussed, but how will we all support one another and ease each other's fears if we don't talk? I vote for more conversation.

Kael

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Practice Compassion...Heal The World

I certainly agree with Slaughter,and Kael. I come here every day, several times a day just to check for new post, I am stll looking for answers too, and the Dr.s seem to take so long to get you back in to see them its pathetic, really! These forums give so much information, I believe I could diagnose myself now.
Motor Neuron Disease takes on such a varied aray of symtoms,that Dr.s are reluctant to use ALS as the Answer. Only time can allow them to give the answers we are looking for, and then for some, that may be to late to get the financial, mental, support they need to get past this dreadful disease.
I only pray that the insurance, and social security people aren't putting pressure on the DR.S about their diagnosis. If thats even possible. If im correct, in europe, they consider all motor neuron diseases to be als. Anyone else know this to be a fact??
Slaughter, I think, that what you have already been through yourself, its amazing and down right heavenly of you to remain on this board. If you didn't post I believe a lot of people would not come back here, which is sad, cause I too, think the people reading this are looking for more answers also. Anyway, this should take some heat off you about writing to much HE HE.
Im still waiting to see the Dr in october, I tried to get an earlier appointment, but ALL BOOKED UP!
I have learned enough to really put him to the test about my Diagnosis, Which was PLS, however, that is good for me if its correct, but the wasting of muscle in my shoulders and arms has me really thinking?
A friend that is an advocate of an ALS chapter told me that I should get the DR to Diagnose ALS, That way they will do every test in the book to prove its not.
I can barely lift my left arm, and my right is getting weaker all the time, hand co-ordianation is getting tough too! My legs seem to get tired quickly,as does the rest of my body, still having twitches in right leg above the knee, and some at night in different areas.
but I still feel great, considering, the facts, and writing this all down really does help, relieve the tension. THANKS FOR BEING HERE.