Hi all
I posted here back in Oct.
I have had a dry cough for 6-8 months. In Aug my doc did an x-ray and found a mass, they did a ct scan and said it is a pericardial cyst 5.5X7.5. At the suggestion from "Ellis" on this board, I went and found a "preferred surgeon". He was in a very big hurry, we didn't discuss much at all, he looked at the ct scan and said he thought it looked more like it was in the lung than the pericaardium. He scheduled a ct scan and bronchoscopy for the same day, two weeks from then.
We did the ct scan, but couldn't do the bronch because I had taken motrin two days before,,,, I was having a lot of problems getting answers on things from his nurse/scheduler ladies and she appeared to be very annoyed with me for having taken motrin, but had never told me not to. etce etc.. she rescheduled my bronch and didn't call me,,,, I finally got ahold of her and she said she had already told me my apt. and that it was that friday,,,,,I said ok, but I just came down with a cold is that going to be alright?, and she got irate with me she said the bronchoscopy isn't THAT big of a deal you'll be fine you know,,,, I said thats good, I just wanted to make sure I didn't turn up with a cold and have the doc not want to do it, she said she would check with him, she called back and said he was cancelling the bronch and I could call back after the first of the year to reschedule,,,,,,,I was really upset I felt that she was telling the doc I just didn't want to do the bronch, so I faxed him a short letter of explanation,,,,he called me and said that he had looked at the cat scan and the lung situation appeared to resolved itself but did anyone ever tell me I had a pericardial cyst ??? But that I didn't need to do anything about it unless I developed a cough or a cough with blood. ......... oh boy ,,,the cough is what started this whole thing, and as I told him when I first saw him and yes I was the one who told him I had a pericardial cyst in the first place and he didn't think it was,,,,, I am also now having pain/pressure, difficulty swallowing,,,it FEELS like there is a ball down in my chest shoving on everything.
Anyone have any opinons on what in the world I should do now? He is a world reknowned doc and he thinks I don't need to do anything about it, but from what I have read these things can be dangerous,,, I just don't know where to turn, so here I am ....help please if you can.
Cheri

Did they find that mass in a chest xray? Any other symptoms?
Modmomm

Did they find that mass in a chest xray? Any other symptoms?
Modmomm
they found it in an x-ray and confirmed it in 2 cat scans.
Other symptoms....yes, I have heavy night sweats, bouts of dizziness, weakness and seeing stars when I exert (not walking or anything that simple, when I REALLY exert like playing badminton) and heat intolerance, also been having sporadically HIGH blood pressure, not always sometimes I go to the doc and its just beautifull other times its sky high. thanks for your interest.
Cheri

p.s. hospital called this morning and said WHERE ARE YOU the doctor and anesthesiologist are ready and waiting to do your bronchoscopy!!!! I told them the doc had called me and cancelled that procedure,,,,they couldn't believe it. sheesh that doc really needs new office help.

I think I'd get a second opinion. We only get 1 chance at living...what do you have to lose?
Modmomm

I think I'd get a second opinion. We only get 1 chance at living...what do you have to lose?
Modmomm
hmm well lets see, My primary care dr. might get the idear that I am a crazy lady for not just taking this famous docs diagnoses (hypochondriac or something). Also it would be much more relaxing and pleasant to just sayokey dokey Im fine and go about my daily living, if I call another doc I have to go through all that again,,Also I don't want to be just going to surgeons until I find one that says he wants to do surgery,,,,, I am aware that at SOME point I am going to have to accept what SOME doctor tells me,,,,, do I want to stop now and accept this guys word or do I want to go to another and what if he says I need surgery will I believe HIM? or will I need a two out of three diagnosis,,,,,EEEEEEEEE jSo I was really wanting to talk to people out there who might have experienced both sides ,,,,,those who did have surgery and those who didn't,,, but folks who have had these types of cyst seem to be few and far between........ Thanks for your interest. I really appreciate talking. Cheri