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feelbad
01-05-2004, 07:42 PM
I wasn't sure if I should post this here or not. Should we go to the depression site? But the more I thought about it, the more I realized that having chronic ,unrelenting pain causes a whole different kind of depression,and I am sure that I am not the only one here living on narcotics and antidepressants. Over the years ,as my pain has gotten worse and I have been forced to give up most of any kind of social life,and a job that I absolutely loved,I started to notice a rather big decline in the number of friends that I used to have.When you are not seeing people at work everyday,you miss out on alot of the normal person to person contact that you used to have,and those last minute ,end of the day "hey do you want to go some where for dinner"?Do you want to stop for a drink?"And the people who you used to spend alot of time with,going out and just having fun,doing ...whatever.All of these people that you used to consider your "friends",are they still around?Do they call you as much as they used to?I have been sitting here thinking about my "friends" and have come to the conclusion that most of them just aren't in my life anymore.Is it due to the fact that i just cannot go out at the drop of a hat anymore? Can't go out dancing?are they tired of hearing me ramble on about my pain?I know that alot of my family dosen't even understand just how much this pain affects EVERYTHING in my life,how can I expect my friends to understand.I guess the real reason that i am writing this is i feel like I have just lost a very special friend.He lives in another state so we don't see each other but we have been corresponding by email for about a year now,and for about the last couple weeks he has written only once or twice and it wasn't a "real" mail ,you know ,thoughts and feelings?This friend also suffers with some rather significant lower spinal degeneration and also suffers with some very significant pain.We have always been a really great support system for each other,and no matter how busy things got, we always seemed to make getting mails from each other a priority.I don't know if I have just been hammering the poor guy so much with all of the really strange and bizarre types of pain and weird sensations that I have been experiencing since the last surgery to remove the cavernous angioma from inside of my spinal cord or if I said something wrong ,although I mentioned that to him and he said that the reason he hasn't mailed is that he has just been too busy. I just don't think I can stand to lose yet another friend.This particular friend came into my life when I was really in a bad place both physically and emotionally.It is bad enough that we have to live with the pain and everything that goes along with it,but to keep losing people that you really cared about because they just don't want to deal with it,or you anymore,it just kind of tears you up inside you know?I guess what I am asking is, how do you deal with this ongoing loss?How do you get through this.We lose so much because of pain,it is really unbelievable.I am having quite the little pity party today.Anyone care to join me?We can get it all out of our systems and move on okay? Sorry to ramble, but I really needed to vent.Thanks. marcia

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carol632
01-05-2004, 10:10 PM
Marcia, this is a tough one. I don't think there is anyone here who hasn't felt at least some of what you are feeling. I can only hope for you that this "gap" you are feeling between the two of you is just due to extenuating circumstances and has nothing to do with you, personally. Lucky for me, I am not very thin-skinned any more. I experienced the loss of a lot of friends, like you, after I quit working. The 3-4 other friends I had were lost to me, too...one died, one moved, and the other 2 just drifted away. I have survived because that is what we do...we survive.. one thing at a time. I no longer expect much from people, and I say that with no cynicism...I just understand that I cannot do the things others can, not physically and not financially for that matter. I have many people I correspond with and I belong to a couple of support boards. I do have my husband and my beloved pet as well as children (all grown). So, I manage and so can you. You just have to keep pushing and keeping all your options open. Good luck, Marcia...I hope this all works out.
Carol

wastefulltick
01-06-2004, 01:15 AM
hi feelbad
i too am suffering from the disapearing friends syndrome now family too!! i think they get tired of hearing about my daily pain and i dont like to go out much anymore even out to eat which i used to love to do as well as fishing and having parties at my house for friends and family i just hurt so much now that i would rather sit home where i can make myself comfortible in my akward position that cause the least amount of pain cant do that at resturants i have to keep getting up walking around because of the pain and friends get annoyed when we do have parties now i sometimes go to my room for short period of time to ease the pain a little freinds and family get annoyed at that so the hell with them let me be in pain in peace
sorry about the post having a bad painful day needed to vent
bob

Rob61
01-06-2004, 10:49 AM
Just thought id add my 2 cents for what it's worth.

I have found the same thing you all have stated, I was told a long time a go by my mother put ALL your so called friends in a strainer and shake it real hard (for the bad times you have ) and see who's left if you have 1 you have a true friend. I too have noticed that they go away one by one day after day. Thats why I'm glad people made boards like this we all know when we say we have this or that kind of pain everyone knows what were talking about. I also lost a job i loved doing making very good money and i some times feel down but i figure it like this this was done for a reason there must be a bigger plan for me. I found it's very hard to have a relationship ( who wants a disabled person) I tell people I'm retired so they don't think less of me. I have found a women who also has problems we talk a lot and its nice to say I have this or that pain and we both understand. Sorry for rambling but i had to get it out.


May we all a one pain free day

Rob

Kayley
01-06-2004, 11:47 AM
I know exactly how you all feel. All the people I used to work with, who I thought were good friends, all the sudden dissapeared. I have only one friend left, and I know I'm lucky to have her. I realize now that the people that dissapeared were NEVER friends to begin with. Friends are supposed to be there for you in good times and bad times. If not, they are not friends, and you are better off without them. If all they want you for is the fun times, then they are not worth it! Anyone can get sick. My sister used to tell me if I would just excercise my back would get better. Now she has a bad back too, and she apologized to me for how she used to treat me. People just don't understand till they go throught it themselves. If there is one good thing to come out of this for me, it is that it has taught me to love myself and be more compassionate towards others. I think groups like this are wonderful, because pain is such a lonely thing, and being able to talk to others in your shoes helps a ton!
Bless you all!
Kayley

Wittesea
01-06-2004, 04:24 PM
My goodness, I can certainly relate to loosing friends!

I used to have a lot of "friends"... a lot of them disappeared when I started to get Fibromyalgia, and the rest of them disappeared when my husband got Cancer. My hubby and I are both 28 and a lot our friends (in my opinion) just couldn't handle looking at reality.

There are some people who are the type of friends that just want to have fun, these are the friends that we would go out to parties with... they are the ones who disappeared right away.

There are the people who don't understand anything about chronic illness... they had an injury once and they were able to "grin and bear it" through their pain. Why can you do the same? or they had surgery once, and the pain was horrible but they didn't get all depressed and upset about it. Why do you get so sad sometimes? They suggest all sorts of exercises or other things that they believe will help you, and they become upset when you won't try their ideas.

They will never understand the difference between acute pain (where there is hope of healing) and chronic pain (that can be relieved sometimes, but never healed). They don't understand that the fact that they had hope for healing made their pain more bearable... so they start to think that you just don't want to get better, or that you aren't even trying.

Then there are the friends that always need someone else to help them with all of their problems... but they can never offer any help in return. These are the friends that don't want anything to do with you anymore if you can't be there for them for every little 'crisis'... but yet they have no understanding what a real crisis is.

There are the people who try to hang on and be your friend for a while, but after a while, they meet new people that are more fun, so they hang around the new friends and forget all about you.

There are people who have never ever had anything bad happen in their lives, so they just don't know what to say or what to do when something bad happenes to someone... they stop calling because they just don't know how to deal with it... or they stop calling because they need their lives to continue to be perfect and peaceful, and they don't want to have to worry about or think about anything sad, scary, or anything that resembles real life.

There are the friends who hold on for a really long time... they help you out a lot, drive you to the store, help with some house cleaning sometimes in the beginning of your illness... They come to your house to spend time with you, and they understand when you have to change plans with them when you feel awful on that day... they seem so supportive, loving and caring. They seem like such good and true friends.

But eventually it justs to be too much for them. Maybe because they thought all along that you would someday get better, maybe because their normal lives got too busy, maybe because it's just too depressing for them...


My opinion is that for most people, it's just too much "real life" for them to handle.

I can also recognize the frustration that they feel sometimes though. For me anyway, I don't have a lot to talk about because I don't have a day at work to discuss, or kids, or my weekend away.... I run out of things to have a conversation about. I love to hear other people tell me about their days, but there is nothing for me to tell them about my day... I try so hard not to focus on my pain... and for the 'normal' people, it isn't all that interesting to them that I did 2 loads of laundry today... they don't understand that doing laundry is a major accomplishment for me. :)

So we run out of things to talk about...

It's so sad to loose freinds, especially because it is so hard to find new friends...

~Wittesea

Mara
01-08-2004, 07:14 PM
I understand how you feel and have been going through similar. It is a different kind of suffering. You came to the right place as far as I'm concerned. Chronic pain or illness can lead to major depression-hand in hand. Chronic pain changes a person’s personality and focus changes and shifts. The focus tends to be, please G-d, let me sleep through the night and grant me the mental energy required to get through it and another day or another hour... Yes. I hear you loud and clear. It's not difficult getting sucked into the pain that is looming and dooming. It is not a happy place to be, not easy to hear about and a downer. I'm dealing with that. The body is fighting me and I do what I can, try to get better but sometimes It is out of my hands. Hearing somebody say, chin-up, push forward, look what I have, look what you don't does not help. Don’t kick em when there down or rub some ebsom salt in that gaping wound.

Friendships require investment of time and that takes availability and energy both ways. When in pain, we are needy and it is unpleasant to dwell on. We don’t dwell on it because it’s part of life. That is one big difference understanding can make. Needy in the sense that we are overwhelmed with it and the outpouring of description is a relief valve for us, but a bomb to the listener. The thing to change is to not have it (the pain) be the focus. It is taxing to others to hear it is the major focus in our lives. We are different but everyone is human. When I have a good day I am thrilled and happy because of it but days like that tend to be short lived. When they end bouts of crying follow. It's continual adjustment and re-adjustment. I don't want to be that way but when in pain there is nothing else on my mind but killing the pain. Not placing a phone call, not planning a visit-killing the pain, waiting for something to help so I can think or have a conversation with someone. By the time that happens, it is sometimes to late then recycles and before you know it months go by that turn into years. You are not alone.

The man you have been corresponding with would not say something to hurt your feelings. He could be dropping a hint. Sometimes I don't pick up the phone because it tends to be a call with bad news and I have not yet dumped my trash. He has pain of his own, may be drained whatever the reason, he's not going to tell you because of your history which is thoughtful. He may be letting you down gently. Leave it as that and let him go.

You had friendships that drifted everyone does. They do and it happens. This happens and there is a way to remedy it. Not to expect things to return as they were but into something new. Touch bases via a short note to let them know you are thinking of them. Remember birthdays with a note. Not for a shoulder to lean or cry on but to reach out to them and leave open the door. If you are well enough to see a movie go to one and make an invitation. Create options and open yourself up to them. Alternatives. You can’t jog but can play cards. They should not hold physical limitations against you. Find out what is doable. I went fishing over the summer. Wow-wee fishing! Watch out! Exciting stuff happening here! lol Anyhow, I took a chance. A chance I would end up having to return home early. I could have decided not to and let pain govern life. This way I had options and ended up enjoying myself and company and company enjoyed me! It could happen!

We people in pain need to also understand that the people who love us suffer with our pain as well. The pain steals the old healthy person they once knew and replaces us with an imposter. It's a thief. It is good exercise when well enough to extend and reach out. It is important to let them know what they mean to us, that they mean more to us then our pain. Everyone has needs. I catch myself when I'm talking about medications or pain and limit it and I cut myself short. This way they are clued in without pressure. I don't have the support I would hope for but do understand. Start small and it will snowball from there. That is what I have been doing. It is working. Valentines day is near and would be a good excuse to send a cute, warm note. What opportunity awaits!!!

I am very aware of this aspect of not feeling well. Psychologists need consultations with other psychologists after all the sessions they have. I think a support group is your best outlet for discussing pain and everything that comes with it. Chronic pain sufferers understand because they are in the same boat. I'd keep it to that and understand that distance does not mean death of a relationship, just transformation of it. I don't want pain to be what I'm about but talk to these people. That is what is on the brain.

They may not understand but you could help them understand. I say, its...like a migraine in your foot that won't go away or if you pinched yourself and didn’t let go or something they have experienced. This way they can relate. Some people are fair weather friends. That's a hard fact to accept.

If you give up hope you give in and have given up. I refuse to succumb to this pain and immobility because it simply is not a lifestyle. If I were to lose hope and faith I would not be here. You can have hope and chronic pain. To accept things will never get better is putting yourself in an elevator mindset heading directly to the basement. I understand this is terrible and awful but throwing in the towel is not a way to manage it. If you have that mindset I can see why someone would pull away. I'm not steering clear from this because I understand it and have been there and fight it. Twofold one from not feeling well, the other from trying to work through some things on my own. Depression is a dark dreary place where there is absence of light. Get help for the depression. This is your life and very real.

Mara
01-08-2004, 07:15 PM
...It's so sad to loose freinds, especially because it is so hard to find new friends...~Wittesea[/QUOTE]

As long as there real friends.





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