Carmaanne
01-17-2004, 08:32 PM
I have been recommended by two different doctors to have a total joint replacement on my right side. I was wondering if anyone has had this surgery, what it entailed and if they had successful results with it.
Thank you so much for your time in responding.
Carmaanne :angel:
Thank you so much for your time in responding.
Carmaanne :angel:
Sponsor
Cymy Sue
01-18-2004, 10:06 AM
Hello Carmaanne,
I have not had implants, but considered it several times, going back to the days of Vitek's. I had a surgeon at that time who had already seen some problems with these and I was spared.
There have been many discussions redarding implants going back several years.
You can use the "Search" feature at the top right of the page next to Home and use terms such as Implants, the name of the kind you are considering, TMJ Surgeries, etc., and should get a lot of threads and long discussions.
Please remember that the majority of people who would come to our support group, have had problems. I'm afraid most of the successes with Implants have no need for further information or support.
I have had several surgeries starting in the 80's with Orthognathic's and the last in 97 being a Bilateral Discectomy. During this time, I did speak to and was referred to surgeons regarding bilateral implants and even a total prosthesis.
I know I'm not who you would need to speak to regarding your questions. I did want to ask if you have been told about the risks involved and the possibility of more pain.
I did speak with surgeons who were bluntly honest regarding the outcome and that was the reason I decided against this option for myself when my cartilage grafts failed and had the discectomy. The surgeon I spoke to at this time, regarding Implants, wanted to do a Total Prosthesis. My replacement disc were shredded, my condyles (one permanently dislocated from a prior surgery) are referred to as looking like toothpicks and he thought I had maybe a year left until the bones snapped. He told me that with a Total, I would have better function, but most likely an increase in pain.
I could still eat and talk, so I declined. He was wrong about the condyles breaking. They are still intact.
I had the Disectomy and it does take a very long time to get well. I was not put into a splint to help support my joints and get the muscles back to normal, so 5 years later, I was still trying to recover.
I went back to my Discectomy Surgeon, and ask for Implants or a Total, I didn't think I could live with it anymore and was turned down due to prior damage, age, (50) multiple surgeries, fragile bone, etc. I was told again, that this would only create more pain and problems.
I do believe the surgeon who had wanted to do it in 96, would have done it for me, regardless of the outcome. I took the advice of the Surgeon I knew better. I believed he did have my best interest in mind.
Last year, I did get the correct splint for a multi-surgical and now am doing incredibly well for someone with my history.
I realize from your other post that you do have a good deal more damage than I have and may not have the option to try something else.
I just wanted to tell you of my experience and to tell you to be very sure to get as much information as possible from the surgeon regarding what he expects the outcome to be. I've found in most cases, if you ask point blank about possible ongoing problems and more pain or any of the risks involved, the majority of them will tell you.
As with all surgeries for TMJ problems and in trying to replace the disc or the entire joint, the risks are always a consideration. I'm sure you already know this to be true.
I do hope you will look at some of the discussions on the board. We do have some members who have had a similar history as you and I hope someone who does have the experience to answer your questions will come along. I do wish you the very best,
Cymy Sue
I did have one last thought. I don't know how extensive your damage is after having the other removed, but you mentioned arthritis. The splint that has helped me return to the "living" is based on a design for people with disc and joints destroyed by rheumatoid and osteo arthritis. I have no disc and very little left in the condyle dept. Also, my joint structure is abnormal (since birth they think) I was told that people with some pretty severe arthritis and damage
were getting relief with these splints. I just thought I would mention this, just in case no one had suggested it. I think it is a relatively new concept for arthritic and surgically damaged joints. I had never heard of a splint helping with this type of damage until I ask.
I have not had implants, but considered it several times, going back to the days of Vitek's. I had a surgeon at that time who had already seen some problems with these and I was spared.
There have been many discussions redarding implants going back several years.
You can use the "Search" feature at the top right of the page next to Home and use terms such as Implants, the name of the kind you are considering, TMJ Surgeries, etc., and should get a lot of threads and long discussions.
Please remember that the majority of people who would come to our support group, have had problems. I'm afraid most of the successes with Implants have no need for further information or support.
I have had several surgeries starting in the 80's with Orthognathic's and the last in 97 being a Bilateral Discectomy. During this time, I did speak to and was referred to surgeons regarding bilateral implants and even a total prosthesis.
I know I'm not who you would need to speak to regarding your questions. I did want to ask if you have been told about the risks involved and the possibility of more pain.
I did speak with surgeons who were bluntly honest regarding the outcome and that was the reason I decided against this option for myself when my cartilage grafts failed and had the discectomy. The surgeon I spoke to at this time, regarding Implants, wanted to do a Total Prosthesis. My replacement disc were shredded, my condyles (one permanently dislocated from a prior surgery) are referred to as looking like toothpicks and he thought I had maybe a year left until the bones snapped. He told me that with a Total, I would have better function, but most likely an increase in pain.
I could still eat and talk, so I declined. He was wrong about the condyles breaking. They are still intact.
I had the Disectomy and it does take a very long time to get well. I was not put into a splint to help support my joints and get the muscles back to normal, so 5 years later, I was still trying to recover.
I went back to my Discectomy Surgeon, and ask for Implants or a Total, I didn't think I could live with it anymore and was turned down due to prior damage, age, (50) multiple surgeries, fragile bone, etc. I was told again, that this would only create more pain and problems.
I do believe the surgeon who had wanted to do it in 96, would have done it for me, regardless of the outcome. I took the advice of the Surgeon I knew better. I believed he did have my best interest in mind.
Last year, I did get the correct splint for a multi-surgical and now am doing incredibly well for someone with my history.
I realize from your other post that you do have a good deal more damage than I have and may not have the option to try something else.
I just wanted to tell you of my experience and to tell you to be very sure to get as much information as possible from the surgeon regarding what he expects the outcome to be. I've found in most cases, if you ask point blank about possible ongoing problems and more pain or any of the risks involved, the majority of them will tell you.
As with all surgeries for TMJ problems and in trying to replace the disc or the entire joint, the risks are always a consideration. I'm sure you already know this to be true.
I do hope you will look at some of the discussions on the board. We do have some members who have had a similar history as you and I hope someone who does have the experience to answer your questions will come along. I do wish you the very best,
Cymy Sue
I did have one last thought. I don't know how extensive your damage is after having the other removed, but you mentioned arthritis. The splint that has helped me return to the "living" is based on a design for people with disc and joints destroyed by rheumatoid and osteo arthritis. I have no disc and very little left in the condyle dept. Also, my joint structure is abnormal (since birth they think) I was told that people with some pretty severe arthritis and damage
were getting relief with these splints. I just thought I would mention this, just in case no one had suggested it. I think it is a relatively new concept for arthritic and surgically damaged joints. I had never heard of a splint helping with this type of damage until I ask.
Carmaanne
01-18-2004, 10:32 AM
Thank you for the information. My 2nd opinion doctor, is mentioned on this board, Dr. S. Sewall at Froedtert in Milwaukee, WI.. I would venture to guess he knows what he is talking about given his credentials. I went to him knowing that the 1st doctor that told me I needed this was not that well known or into the specialty. ---- as for my history. I have been wearing a splint for years now and actually on my 3rd one! I have also tried the steriod injections and had several of those in fact. ---- Thanks
Cymy Sue
01-18-2004, 11:06 AM
I'm sure he does, too.
Again, Good Luck.
Cymy Sue
Again, Good Luck.
Cymy Sue
Elayne4002
01-22-2004, 12:29 AM
Carmaanne,
While it is tempting to jump into whatever therapy might help pain control, the old adage "If it sounds too good to be true, it probably isn't true" holds. Many in medicine prey on those who suffer and who have unrealistic hopes of miracle cures.
I would definitely check out all options before submitting to TJR. The lifetime for these joints is approximately five years. Do you have insurance coverage for further surgeries down the road? Has your oral surgeon mentioned problems with scar tissue/ arthritis with or without surgery? I know of several with total joints, none of who are pain free by any means. I also know of some who have taken the joints out due to serious problems and basically are jointless so to speak. Which joint are you considering? TMJ Concepts or TMJ Implants?
Elayne
While it is tempting to jump into whatever therapy might help pain control, the old adage "If it sounds too good to be true, it probably isn't true" holds. Many in medicine prey on those who suffer and who have unrealistic hopes of miracle cures.
I would definitely check out all options before submitting to TJR. The lifetime for these joints is approximately five years. Do you have insurance coverage for further surgeries down the road? Has your oral surgeon mentioned problems with scar tissue/ arthritis with or without surgery? I know of several with total joints, none of who are pain free by any means. I also know of some who have taken the joints out due to serious problems and basically are jointless so to speak. Which joint are you considering? TMJ Concepts or TMJ Implants?
Elayne
Carmaanne
01-22-2004, 12:42 AM
The insurance I have now is from an auto accident and they have agreed to pay for the sugery. The joint i was considering is TMJ concepts. I do have yet another consultation scheduled for Feb. 4, I am waiting for someone to tell me this isn't my only option!
The 4 doctors I have seen now all seem to think this is my only route to get some relief. I have seen a pain ctr physcian, 2 maxiofacial surgeons specializing in TMJ treatment, and a neurologist.
I already have artheritus and some scar tissue. The goal is to get the joint in before that gets to bad to have a successful outcome from what I understand.
This will be my last resort as I don't think my personal health coverage will cover tmj treatments.
Please fill me in with anymore information you have.
Thanks
Carmaanne :angel:
Carmaanne,
While it is tempting to jump into whatever therapy might help pain control, the old adage "If it sounds too good to be true, it probably isn't true" holds. Many in medicine prey on those who suffer and who have unrealistic hopes of miracle cures.
I would definitely check out all options before submitting to TJR. The lifetime for these joints is approximately five years. Do you have insurance coverage for further surgeries down the road? Has your oral surgeon mentioned problems with scar tissue/ arthritis with or without surgery? I know of several with total joints, none of who are pain free by any means. I also know of some who have taken the joints out due to serious problems and basically are jointless so to speak. Which joint are you considering? TMJ Concepts or TMJ Implants?
Elayne
The 4 doctors I have seen now all seem to think this is my only route to get some relief. I have seen a pain ctr physcian, 2 maxiofacial surgeons specializing in TMJ treatment, and a neurologist.
I already have artheritus and some scar tissue. The goal is to get the joint in before that gets to bad to have a successful outcome from what I understand.
This will be my last resort as I don't think my personal health coverage will cover tmj treatments.
Please fill me in with anymore information you have.
Thanks
Carmaanne :angel:
Carmaanne,
While it is tempting to jump into whatever therapy might help pain control, the old adage "If it sounds too good to be true, it probably isn't true" holds. Many in medicine prey on those who suffer and who have unrealistic hopes of miracle cures.
I would definitely check out all options before submitting to TJR. The lifetime for these joints is approximately five years. Do you have insurance coverage for further surgeries down the road? Has your oral surgeon mentioned problems with scar tissue/ arthritis with or without surgery? I know of several with total joints, none of who are pain free by any means. I also know of some who have taken the joints out due to serious problems and basically are jointless so to speak. Which joint are you considering? TMJ Concepts or TMJ Implants?
Elayne
Elayne4002
01-22-2004, 05:05 PM
Chronic pain sufferers are desperate and will do almost anything for "promised" relief. When any type of TMJ surgery is done, irreparable
changes occur. Surgery does not guarantee pain relief. Most times, you are changing one type of pain for another. I am not sure I am understanding the reasons for the joint replacement? You say you already have arthritis and scar tissue? It can be cleaned out with surgery but having surgery will cause more to develop. If auto insurance is covering this surgery, will they continue to cover more that is needed later? That is the trap so many fall into, thinking a one time surgery is going to be the cure all. We wish it were that way, but only in fairy tales.
When the total joint wears out or screws come loose or something goes wrong, who is going to cover further expenses? That is one of the main concerns I would be thinking about while there is still time to do conservative measures. TMJ surgery should be done for function such as if you are in a closed or open lock (if even then) never for the promise of pain relief. All I can say is research, research, and research some more. Too many TMJ surgeries are failures and cause worse problems than what you started with.
Elayne
changes occur. Surgery does not guarantee pain relief. Most times, you are changing one type of pain for another. I am not sure I am understanding the reasons for the joint replacement? You say you already have arthritis and scar tissue? It can be cleaned out with surgery but having surgery will cause more to develop. If auto insurance is covering this surgery, will they continue to cover more that is needed later? That is the trap so many fall into, thinking a one time surgery is going to be the cure all. We wish it were that way, but only in fairy tales.
When the total joint wears out or screws come loose or something goes wrong, who is going to cover further expenses? That is one of the main concerns I would be thinking about while there is still time to do conservative measures. TMJ surgery should be done for function such as if you are in a closed or open lock (if even then) never for the promise of pain relief. All I can say is research, research, and research some more. Too many TMJ surgeries are failures and cause worse problems than what you started with.
Elayne
Carmaanne
01-23-2004, 12:03 AM
Hi Elayne
Thank you for your concern and I do appreciate it. I am not doing it strictly for pain relief. I have functional problems as well. I was however under the impression from all of the different doctors I have talked to that the headaches would disappear. or at least be lessend.
Please let me know what you think of this device and everything that goes along with it.
Carmaanne
Chronic pain sufferers are desperate and will do almost anything for "promised" relief. When any type of TMJ surgery is done, irreparable
changes occur. Surgery does not guarantee pain relief. Most times, you are changing one type of pain for another. I am not sure I am understanding the reasons for the joint replacement? You say you already have arthritis and scar tissue? It can be cleaned out with surgery but having surgery will cause more to develop. If auto insurance is covering this surgery, will they continue to cover more that is needed later? That is the trap so many fall into, thinking a one time surgery is going to be the cure all. We wish it were that way, but only in fairy tales.
When the total joint wears out or screws come loose or something goes wrong, who is going to cover further expenses? That is one of the main concerns I would be thinking about while there is still time to do conservative measures. TMJ surgery should be done for function such as if you are in a closed or open lock (if even then) never for the promise of pain relief. All I can say is research, research, and research some more. Too many TMJ surgeries are failures and cause worse problems than what you started with.
Elayne
Thank you for your concern and I do appreciate it. I am not doing it strictly for pain relief. I have functional problems as well. I was however under the impression from all of the different doctors I have talked to that the headaches would disappear. or at least be lessend.
Please let me know what you think of this device and everything that goes along with it.
Carmaanne
Chronic pain sufferers are desperate and will do almost anything for "promised" relief. When any type of TMJ surgery is done, irreparable
changes occur. Surgery does not guarantee pain relief. Most times, you are changing one type of pain for another. I am not sure I am understanding the reasons for the joint replacement? You say you already have arthritis and scar tissue? It can be cleaned out with surgery but having surgery will cause more to develop. If auto insurance is covering this surgery, will they continue to cover more that is needed later? That is the trap so many fall into, thinking a one time surgery is going to be the cure all. We wish it were that way, but only in fairy tales.
When the total joint wears out or screws come loose or something goes wrong, who is going to cover further expenses? That is one of the main concerns I would be thinking about while there is still time to do conservative measures. TMJ surgery should be done for function such as if you are in a closed or open lock (if even then) never for the promise of pain relief. All I can say is research, research, and research some more. Too many TMJ surgeries are failures and cause worse problems than what you started with.
Elayne
Elayne4002
01-23-2004, 01:25 AM
Carmaanne,
Yes, the headaches will lessen for awhile but only until all the nerves and muscles that were cut during surgery grow back. When these nerves rejuvenate, it may be worse than the pain you are dealing with.
In order to implant these devices, certain muscles which assist in jaw function will have to be removed if they have not already been removed from a previous surgery. This removal will reduce your ability to move your jaw from side to side and forward and down. Some of this motion may be regained. I don't think I know of anyone with TJR who doesn't have some type of pain. If you are a clencher or a grinder they advise against the implants and Total Joint Replacement.
Like I said in my other post, with this surgery you are basically trading one type of pain for another and the other may be worse than what you are dealing with right now. You have to make the decision if you are willing to take the chance that things may be worse??? Also will you have further medical coverage later on or is the auto insurance going to cover one surgery and drop you? Should you have further problems after surgery, make sure you are going to be covered or you will end up like so many others that can't afford treatment.
You didn't mention what type of function problem you are having? I guess I would be curious to know what your opening is?
I don't know if you read this list of complications that may/do occur? You are only having one joint done and there is a warning about that also.
Elayne
Complications may occur following placement of these implants and may require further treatment.
These complications include but are not limited to:
Continued or increased pain levels or worsening of other present TMJ symptoms
Infection
Facial and jaw swelling after surgery usually lasting several days
Bruising and discoloration of the skin around the eyes, ears, and jaw
Temporary or chronic jaw muscle spasm
Temporary or permanent facial muscle weakness resulting from motor nerve injury during surgery (The most common problems are an inability to wrinkle the brow, raise the eyebrow, or fully close the eyelids.)
Temporary or permanent numbness of certain areas of the skin in the region of the joint and sometimes in more remote areas of the face and scalp
Ear problems, including inflammation of the ear canal, middle or inner ear infections, perforation of the ear drum, temporary or permanent hearing loss, ringing in the ears, and equilibrium or eustachian tube problems
Loss of joint mobility due to the development of scar tissue (adhesions), heterotopic bone, or ankylosis
Dental malocclusion (improper bite) requiring bite adjustment, orthodontia, or reoperation
Resorption or erosion of the glenoid fossa, mandible, or surrounding tissues
Foreign body reaction or allergic reaction to implant components
Wear, displacement, breakage, or loosening of implant components
Functional compromise of the opposite TMJ when only one joint is being reconstructed
Allergic reaction to any of the medications given during or after the surgery
Objectionable scarring of the incisions
Yes, the headaches will lessen for awhile but only until all the nerves and muscles that were cut during surgery grow back. When these nerves rejuvenate, it may be worse than the pain you are dealing with.
In order to implant these devices, certain muscles which assist in jaw function will have to be removed if they have not already been removed from a previous surgery. This removal will reduce your ability to move your jaw from side to side and forward and down. Some of this motion may be regained. I don't think I know of anyone with TJR who doesn't have some type of pain. If you are a clencher or a grinder they advise against the implants and Total Joint Replacement.
Like I said in my other post, with this surgery you are basically trading one type of pain for another and the other may be worse than what you are dealing with right now. You have to make the decision if you are willing to take the chance that things may be worse??? Also will you have further medical coverage later on or is the auto insurance going to cover one surgery and drop you? Should you have further problems after surgery, make sure you are going to be covered or you will end up like so many others that can't afford treatment.
You didn't mention what type of function problem you are having? I guess I would be curious to know what your opening is?
I don't know if you read this list of complications that may/do occur? You are only having one joint done and there is a warning about that also.
Elayne
Complications may occur following placement of these implants and may require further treatment.
These complications include but are not limited to:
Continued or increased pain levels or worsening of other present TMJ symptoms
Infection
Facial and jaw swelling after surgery usually lasting several days
Bruising and discoloration of the skin around the eyes, ears, and jaw
Temporary or chronic jaw muscle spasm
Temporary or permanent facial muscle weakness resulting from motor nerve injury during surgery (The most common problems are an inability to wrinkle the brow, raise the eyebrow, or fully close the eyelids.)
Temporary or permanent numbness of certain areas of the skin in the region of the joint and sometimes in more remote areas of the face and scalp
Ear problems, including inflammation of the ear canal, middle or inner ear infections, perforation of the ear drum, temporary or permanent hearing loss, ringing in the ears, and equilibrium or eustachian tube problems
Loss of joint mobility due to the development of scar tissue (adhesions), heterotopic bone, or ankylosis
Dental malocclusion (improper bite) requiring bite adjustment, orthodontia, or reoperation
Resorption or erosion of the glenoid fossa, mandible, or surrounding tissues
Foreign body reaction or allergic reaction to implant components
Wear, displacement, breakage, or loosening of implant components
Functional compromise of the opposite TMJ when only one joint is being reconstructed
Allergic reaction to any of the medications given during or after the surgery
Objectionable scarring of the incisions
Carmaanne
01-23-2004, 09:25 AM
hI Elayne
What would you suggest if you were in my shoes? I am just curious. I have been on a totally soft food/ liquid diet for years, I can't open, far at all, can't shift from side to side or move lower forward. Loud clicks and pops. I don't know the measurments. I can't even get some dental work done because of my limited opening abilities.
I am disabled already. So live in constant pain so I know about trade offs so to speak but there isn't any sort of a doctor around here that is offering me any other suggestions and i have went in a 90 mile radious!
Carmaanne :angel: :angel:
Carmaanne,
Yes, the headaches will lessen for awhile but only until all the nerves and muscles that were cut during surgery grow back. When these nerves rejuvenate, it may be worse than the pain you are dealing with.
In order to implant these devices, certain muscles which assist in jaw function will have to be removed if they have not already been removed from a previous surgery. This removal will reduce your ability to move your jaw from side to side and forward and down. Some of this motion may be regained. I don't think I know of anyone with TJR who doesn't have some type of pain. If you are a clencher or a grinder they advise against the implants and Total Joint Replacement.
Like I said in my other post, with this surgery you are basically trading one type of pain for another and the other may be worse than what you are dealing with right now. You have to make the decision if you are willing to take the chance that things may be worse??? Also will you have further medical coverage later on or is the auto insurance going to cover one surgery and drop you? Should you have further problems after surgery, make sure you are going to be covered or you will end up like so many others that can't afford treatment.
You didn't mention what type of function problem you are having? I guess I would be curious to know what your opening is?
I don't know if you read this list of complications that may/do occur? You are only having one joint done and there is a warning about that also.
Elayne
Complications may occur following placement of these implants and may require further treatment.
These complications include but are not limited to:
Continued or increased pain levels or worsening of other present TMJ symptoms
Infection
Facial and jaw swelling after surgery usually lasting several days
Bruising and discoloration of the skin around the eyes, ears, and jaw
Temporary or chronic jaw muscle spasm
Temporary or permanent facial muscle weakness resulting from motor nerve injury during surgery (The most common problems are an inability to wrinkle the brow, raise the eyebrow, or fully close the eyelids.)
Temporary or permanent numbness of certain areas of the skin in the region of the joint and sometimes in more remote areas of the face and scalp
Ear problems, including inflammation of the ear canal, middle or inner ear infections, perforation of the ear drum, temporary or permanent hearing loss, ringing in the ears, and equilibrium or eustachian tube problems
Loss of joint mobility due to the development of scar tissue (adhesions), heterotopic bone, or ankylosis
Dental malocclusion (improper bite) requiring bite adjustment, orthodontia, or reoperation
Resorption or erosion of the glenoid fossa, mandible, or surrounding tissues
Foreign body reaction or allergic reaction to implant components
Wear, displacement, breakage, or loosening of implant components
Functional compromise of the opposite TMJ when only one joint is being reconstructed
Allergic reaction to any of the medications given during or after the surgery
Objectionable scarring of the incisions
What would you suggest if you were in my shoes? I am just curious. I have been on a totally soft food/ liquid diet for years, I can't open, far at all, can't shift from side to side or move lower forward. Loud clicks and pops. I don't know the measurments. I can't even get some dental work done because of my limited opening abilities.
I am disabled already. So live in constant pain so I know about trade offs so to speak but there isn't any sort of a doctor around here that is offering me any other suggestions and i have went in a 90 mile radious!
Carmaanne :angel: :angel:
Carmaanne,
Yes, the headaches will lessen for awhile but only until all the nerves and muscles that were cut during surgery grow back. When these nerves rejuvenate, it may be worse than the pain you are dealing with.
In order to implant these devices, certain muscles which assist in jaw function will have to be removed if they have not already been removed from a previous surgery. This removal will reduce your ability to move your jaw from side to side and forward and down. Some of this motion may be regained. I don't think I know of anyone with TJR who doesn't have some type of pain. If you are a clencher or a grinder they advise against the implants and Total Joint Replacement.
Like I said in my other post, with this surgery you are basically trading one type of pain for another and the other may be worse than what you are dealing with right now. You have to make the decision if you are willing to take the chance that things may be worse??? Also will you have further medical coverage later on or is the auto insurance going to cover one surgery and drop you? Should you have further problems after surgery, make sure you are going to be covered or you will end up like so many others that can't afford treatment.
You didn't mention what type of function problem you are having? I guess I would be curious to know what your opening is?
I don't know if you read this list of complications that may/do occur? You are only having one joint done and there is a warning about that also.
Elayne
Complications may occur following placement of these implants and may require further treatment.
These complications include but are not limited to:
Continued or increased pain levels or worsening of other present TMJ symptoms
Infection
Facial and jaw swelling after surgery usually lasting several days
Bruising and discoloration of the skin around the eyes, ears, and jaw
Temporary or chronic jaw muscle spasm
Temporary or permanent facial muscle weakness resulting from motor nerve injury during surgery (The most common problems are an inability to wrinkle the brow, raise the eyebrow, or fully close the eyelids.)
Temporary or permanent numbness of certain areas of the skin in the region of the joint and sometimes in more remote areas of the face and scalp
Ear problems, including inflammation of the ear canal, middle or inner ear infections, perforation of the ear drum, temporary or permanent hearing loss, ringing in the ears, and equilibrium or eustachian tube problems
Loss of joint mobility due to the development of scar tissue (adhesions), heterotopic bone, or ankylosis
Dental malocclusion (improper bite) requiring bite adjustment, orthodontia, or reoperation
Resorption or erosion of the glenoid fossa, mandible, or surrounding tissues
Foreign body reaction or allergic reaction to implant components
Wear, displacement, breakage, or loosening of implant components
Functional compromise of the opposite TMJ when only one joint is being reconstructed
Allergic reaction to any of the medications given during or after the surgery
Objectionable scarring of the incisions
Elayne4002
01-23-2004, 10:50 PM
Carmaanne,
What would I do if I were in your shoes? Or what would I do in my own shoes, IF I had it to do over again? I have already went the surgical route, implants etc. Nothing has changed other than my bite is way off, my jaw deviates to one side, I have been on soft/liquids foods for as long as I can remember. I guess one difference is I don't have clicking/popping anymore as I am all tied up with scar tissue, not to mention osteo-arthritis. Surgery does not cure all these symptoms. In some cases it will make it worse after a period of time. It will be relief at first but the relief doesn't last. It "usually" will require further surgery and I hope you will have that part covered before/if you agree to the first surgery. So many, including me, have no insurance coverage and can't afford further treatment to correct something that in my opinion, should have never been done to begin with. It is a big decision and not one to enter into lightly. I was surprised when I was looking for help that a lot of doctors I talked to, would not even agree to see me once they learned I had already had surgery. A lot of doctors don't believe in this type of surgery, instead a good one can bring relief with splint therapy. Reading Cymy Sues post on this thread will explain that. Again, finding a good one is the hard part. I would suggest traveling outside of your 90 mile radius and get further opinions. You say you are disabled? Do you have medical coverage beside the auto insurance from the accident?
Elayne
What would I do if I were in your shoes? Or what would I do in my own shoes, IF I had it to do over again? I have already went the surgical route, implants etc. Nothing has changed other than my bite is way off, my jaw deviates to one side, I have been on soft/liquids foods for as long as I can remember. I guess one difference is I don't have clicking/popping anymore as I am all tied up with scar tissue, not to mention osteo-arthritis. Surgery does not cure all these symptoms. In some cases it will make it worse after a period of time. It will be relief at first but the relief doesn't last. It "usually" will require further surgery and I hope you will have that part covered before/if you agree to the first surgery. So many, including me, have no insurance coverage and can't afford further treatment to correct something that in my opinion, should have never been done to begin with. It is a big decision and not one to enter into lightly. I was surprised when I was looking for help that a lot of doctors I talked to, would not even agree to see me once they learned I had already had surgery. A lot of doctors don't believe in this type of surgery, instead a good one can bring relief with splint therapy. Reading Cymy Sues post on this thread will explain that. Again, finding a good one is the hard part. I would suggest traveling outside of your 90 mile radius and get further opinions. You say you are disabled? Do you have medical coverage beside the auto insurance from the accident?
Elayne
Carmaanne
01-23-2004, 11:16 PM
Hi Elaine;
I have went to mayo clinic in Rochester MN. as well as to a physician that came to milwaukee from Chicago. I have been treating with this instance for a number of years and have been going through splint therapy with NO luck. I have what are rated some of the best physicians. I just feel trapped like this is the last resort. The soft foods have become my friend for at least 4 or better years and I have grown used to 'baby food' as I call it.
I have medical assistance and medicare/medicaid insurance in addition to the auto accident insurance.
I am going to make another appointment to discuss all of these questions with the surgeon and have scheduled another appointment to meet with yet another doctor that specializes in TMJ to get yet another opinion in lieu of what people have stated here.
I also read one of the posts that said the people here are the ones that have trouble. The ones that have had the positive results most generally don't come back. What is your thoughts on this?
I appreicate you taking the time for me.
Carmaanne :angel:
Carmaanne,
What would I do if I were in your shoes? Or what would I do in my own shoes, IF I had it to do over again? I have already went the surgical route, implants etc. Nothing has changed other than my bite is way off, my jaw deviates to one side, I have been on soft/liquids foods for as long as I can remember. I guess one difference is I don't have clicking/popping anymore as I am all tied up with scar tissue, not to mention osteo-arthritis. Surgery does not cure all these symptoms. In some cases it will make it worse after a period of time. It will be relief at first but the relief doesn't last. It "usually" will require further surgery and I hope you will have that part covered before/if you agree to the first surgery. So many, including me, have no insurance coverage and can't afford further treatment to correct something that in my opinion, should have never been done to begin with. It is a big decision and not one to enter into lightly. I was surprised when I was looking for help that a lot of doctors I talked to, would not even agree to see me once they learned I had already had surgery. A lot of doctors don't believe in this type of surgery, instead a good one can bring relief with splint therapy. Reading Cymy Sues post on this thread will explain that. Again, finding a good one is the hard part. I would suggest traveling outside of your 90 mile radius and get further opinions. You say you are disabled? Do you have medical coverage beside the auto insurance from the accident?
Elayne
I have went to mayo clinic in Rochester MN. as well as to a physician that came to milwaukee from Chicago. I have been treating with this instance for a number of years and have been going through splint therapy with NO luck. I have what are rated some of the best physicians. I just feel trapped like this is the last resort. The soft foods have become my friend for at least 4 or better years and I have grown used to 'baby food' as I call it.
I have medical assistance and medicare/medicaid insurance in addition to the auto accident insurance.
I am going to make another appointment to discuss all of these questions with the surgeon and have scheduled another appointment to meet with yet another doctor that specializes in TMJ to get yet another opinion in lieu of what people have stated here.
I also read one of the posts that said the people here are the ones that have trouble. The ones that have had the positive results most generally don't come back. What is your thoughts on this?
I appreicate you taking the time for me.
Carmaanne :angel:
Carmaanne,
What would I do if I were in your shoes? Or what would I do in my own shoes, IF I had it to do over again? I have already went the surgical route, implants etc. Nothing has changed other than my bite is way off, my jaw deviates to one side, I have been on soft/liquids foods for as long as I can remember. I guess one difference is I don't have clicking/popping anymore as I am all tied up with scar tissue, not to mention osteo-arthritis. Surgery does not cure all these symptoms. In some cases it will make it worse after a period of time. It will be relief at first but the relief doesn't last. It "usually" will require further surgery and I hope you will have that part covered before/if you agree to the first surgery. So many, including me, have no insurance coverage and can't afford further treatment to correct something that in my opinion, should have never been done to begin with. It is a big decision and not one to enter into lightly. I was surprised when I was looking for help that a lot of doctors I talked to, would not even agree to see me once they learned I had already had surgery. A lot of doctors don't believe in this type of surgery, instead a good one can bring relief with splint therapy. Reading Cymy Sues post on this thread will explain that. Again, finding a good one is the hard part. I would suggest traveling outside of your 90 mile radius and get further opinions. You say you are disabled? Do you have medical coverage beside the auto insurance from the accident?
Elayne
Elayne4002
01-24-2004, 07:08 PM
Carmaanne,
"Quote"
I also read one of the posts that said the people here are the ones that have trouble. The ones that have had the positive results most generally don't come back. What is your thoughts on this?
There are some postive results on this site. Cymy Sue for example. She had several surgeries and ended up being helped with a splint when nothing else worked. There are others doing well with splints without any surgery. I guess in all my search all over the net, I have found very few success stories with surgery. Bad thing is the ones who had surgery good or bad don't come back and tell their story. I don't think its the theory that they had good results. Maybe they don't want to hear the words, "I told you so", not that it would happen. It would be hard for me to let someone know I didn't heed their warnings, go ahead with surgery, then come back and say, "I am worse, why didn't I listen"? I would choose to ignore the situation. But that is just me.
Not being able to eat anything but baby food is not going to change with a $100,000 surgery. You will be on a diet not much different than what you are on now. I can't nor would I ever want to tell you what to do. You are the one who has to make the decision and live with it the rest of your life. Just remember, more surgery in the future is almost a given with the joints. Make sure whoever your treating doctor is that they accept Medicare/ Medcaid whichever you have. Not all doctors accept it and after the auto insurance is through, you don't want to be left out in the cold with no treatment available. I don't know what else I can tell you. Go with your gut instinct...Maybe like some of the others, you just didn't have the right splint and further splint theapy could help you???
Best wishes,
Elayne the pain!!!
"Quote"
I also read one of the posts that said the people here are the ones that have trouble. The ones that have had the positive results most generally don't come back. What is your thoughts on this?
There are some postive results on this site. Cymy Sue for example. She had several surgeries and ended up being helped with a splint when nothing else worked. There are others doing well with splints without any surgery. I guess in all my search all over the net, I have found very few success stories with surgery. Bad thing is the ones who had surgery good or bad don't come back and tell their story. I don't think its the theory that they had good results. Maybe they don't want to hear the words, "I told you so", not that it would happen. It would be hard for me to let someone know I didn't heed their warnings, go ahead with surgery, then come back and say, "I am worse, why didn't I listen"? I would choose to ignore the situation. But that is just me.
Not being able to eat anything but baby food is not going to change with a $100,000 surgery. You will be on a diet not much different than what you are on now. I can't nor would I ever want to tell you what to do. You are the one who has to make the decision and live with it the rest of your life. Just remember, more surgery in the future is almost a given with the joints. Make sure whoever your treating doctor is that they accept Medicare/ Medcaid whichever you have. Not all doctors accept it and after the auto insurance is through, you don't want to be left out in the cold with no treatment available. I don't know what else I can tell you. Go with your gut instinct...Maybe like some of the others, you just didn't have the right splint and further splint theapy could help you???
Best wishes,
Elayne the pain!!!
saaraah
01-25-2004, 11:16 AM
carmaanne - hope you dont mind me jumping in here, but i consider myself to be a semi-success story. i've been going thru splint therapy for the past 4.5 months, and i have seen incredible results. i can actually function fairly well now. i still get a headache almost everyday, but it's manageable. i dont know if i'll get any better than i am now, but that's fine with me.
another reason this is amazing to me is because i have gone thru countless failed treatments, and have been told numerous times that nothing else can be done for me and to just learn to live with the pain.
anyway, what im trying to say is that there is always someone out there who doesnt believe in surgery as being the only way to help someone. sure, it takes a ton of time and money to find that health professional, but it is possible.
personally, i'd stay as far away from TMJD surgery as i could because of all of the research i've done in the past.
take care and good luck :)
- saaraah.
another reason this is amazing to me is because i have gone thru countless failed treatments, and have been told numerous times that nothing else can be done for me and to just learn to live with the pain.
anyway, what im trying to say is that there is always someone out there who doesnt believe in surgery as being the only way to help someone. sure, it takes a ton of time and money to find that health professional, but it is possible.
personally, i'd stay as far away from TMJD surgery as i could because of all of the research i've done in the past.
take care and good luck :)
- saaraah.
Carmaanne
01-25-2004, 10:27 PM
Thanks Sarah
for your thoughts and concerns. I have been going through splint therapy for years now. 4 and counting with NO change and no results.
I know that the surgery should be the last thing tried, but what else is there for me? I have tried more doctors and dental professionals then i can count!
Thanks... please keep offering help!
Carmaane
carmaanne - hope you dont mind me jumping in here, but i consider myself to be a semi-success story. i've been going thru splint therapy for the past 4.5 months, and i have seen incredible results. i can actually function fairly well now. i still get a headache almost everyday, but it's manageable. i dont know if i'll get any better than i am now, but that's fine with me.
another reason this is amazing to me is because i have gone thru countless failed treatments, and have been told numerous times that nothing else can be done for me and to just learn to live with the pain.
anyway, what im trying to say is that there is always someone out there who doesnt believe in surgery as being the only way to help someone. sure, it takes a ton of time and money to find that health professional, but it is possible.
personally, i'd stay as far away from TMJD surgery as i could because of all of the research i've done in the past.
take care and good luck :)
- saaraah.
for your thoughts and concerns. I have been going through splint therapy for years now. 4 and counting with NO change and no results.
I know that the surgery should be the last thing tried, but what else is there for me? I have tried more doctors and dental professionals then i can count!
Thanks... please keep offering help!
Carmaane
carmaanne - hope you dont mind me jumping in here, but i consider myself to be a semi-success story. i've been going thru splint therapy for the past 4.5 months, and i have seen incredible results. i can actually function fairly well now. i still get a headache almost everyday, but it's manageable. i dont know if i'll get any better than i am now, but that's fine with me.
another reason this is amazing to me is because i have gone thru countless failed treatments, and have been told numerous times that nothing else can be done for me and to just learn to live with the pain.
anyway, what im trying to say is that there is always someone out there who doesnt believe in surgery as being the only way to help someone. sure, it takes a ton of time and money to find that health professional, but it is possible.
personally, i'd stay as far away from TMJD surgery as i could because of all of the research i've done in the past.
take care and good luck :)
- saaraah.
Kerri532
01-29-2004, 03:23 AM
Carmaanne,
You have lots of good advice on this thread. It is up to you to digest it all and make an informed decision. I don't post on here a whole lot but I do read. I remember reading several members posts who were at the last resort or so they thought and were ready to jump into surgery for relief. One I recall is Jill who decided to do further splint therapy and is doing well. I can tell you the surgery is not all its "cut" out to be. I fell into the same promise as many others did, that the pain would lessen. Expect the worst but hope for the best! Not very encouraging but when it comes to TMJD surgery, what is?
Kerri
You have lots of good advice on this thread. It is up to you to digest it all and make an informed decision. I don't post on here a whole lot but I do read. I remember reading several members posts who were at the last resort or so they thought and were ready to jump into surgery for relief. One I recall is Jill who decided to do further splint therapy and is doing well. I can tell you the surgery is not all its "cut" out to be. I fell into the same promise as many others did, that the pain would lessen. Expect the worst but hope for the best! Not very encouraging but when it comes to TMJD surgery, what is?
Kerri
autumn83175
01-29-2004, 07:29 PM
Carmaanne,
I had custom made bi-lateral total joint replacements done in March of 2003. I had pretty extensive damage like you do. I had some nerve damage in the beginning (couldn't lift one eyebrow), but that has healed itself. The only problem I have now is at times I have some facial pain when I take the first two bites of food. I am actually inclined to think that is because I have not used my tens machine in some time now. Anyway, as of year one, I am glad I had the surgery.
However, some people require further surgery after a few years because of premature wear or infection (which is a risk at anytime through life). I would never tell you what decision to make for yourself. But I thought I would let you know how I made out. Of course everyone is unique so you will have to make your decision based on your history. I heal very well and I had an exceptional surgeon do my implants.
If you are interested I believe you can search the results and find my prior posts from before and after my surgery. I do find some truth to the statements of the sucessful implant people moving on and not posting, as I don't came here nearly as often as I used to. Please feel free to ask me any questions you want. I try to give the facts of my case without biasing anyone. I will try to check back often over the next couple days to see if you would like to know anything else.
I wish you the best of luck in whatever decision you make.
Autumn
I had custom made bi-lateral total joint replacements done in March of 2003. I had pretty extensive damage like you do. I had some nerve damage in the beginning (couldn't lift one eyebrow), but that has healed itself. The only problem I have now is at times I have some facial pain when I take the first two bites of food. I am actually inclined to think that is because I have not used my tens machine in some time now. Anyway, as of year one, I am glad I had the surgery.
However, some people require further surgery after a few years because of premature wear or infection (which is a risk at anytime through life). I would never tell you what decision to make for yourself. But I thought I would let you know how I made out. Of course everyone is unique so you will have to make your decision based on your history. I heal very well and I had an exceptional surgeon do my implants.
If you are interested I believe you can search the results and find my prior posts from before and after my surgery. I do find some truth to the statements of the sucessful implant people moving on and not posting, as I don't came here nearly as often as I used to. Please feel free to ask me any questions you want. I try to give the facts of my case without biasing anyone. I will try to check back often over the next couple days to see if you would like to know anything else.
I wish you the best of luck in whatever decision you make.
Autumn
Carmaanne
01-30-2004, 11:31 PM
HI Autumn
I really appreciate you offering some positive advice to this. I knew there had to be people out there that had good outcomes or they wouldn't be still doing this type of surgery.
My joint from what I am told will be custom made from a place called tmj concepts. It is for the right side only because my left side is fine and why mess with something that isn't broken!
As far as I know I don't currently have nerve damage, but I do know that nerves do heal themselves and quickley at that.
Do you still require a splint or have to eat baby food? Where did you have the surgery and what can you tell me about the process?
Thanks I am willing to listen to anything you can tell me.
Carmaanne
Carmaanne,
I had custom made bi-lateral total joint replacements done in March of 2003. I had pretty extensive damage like you do. I had some nerve damage in the beginning (couldn't lift one eyebrow), but that has healed itself. The only problem I have now is at times I have some facial pain when I take the first two bites of food. I am actually inclined to think that is because I have not used my tens machine in some time now. Anyway, as of year one, I am glad I had the surgery.
However, some people require further surgery after a few years because of premature wear or infection (which is a risk at anytime through life). I would never tell you what decision to make for yourself. But I thought I would let you know how I made out. Of course everyone is unique so you will have to make your decision based on your history. I heal very well and I had an exceptional surgeon do my implants.
If you are interested I believe you can search the results and find my prior posts from before and after my surgery. I do find some truth to the statements of the sucessful implant people moving on and not posting, as I don't came here nearly as often as I used to. Please feel free to ask me any questions you want. I try to give the facts of my case without biasing anyone. I will try to check back often over the next couple days to see if you would like to know anything else.
I wish you the best of luck in whatever decision you make.
Autumn
I really appreciate you offering some positive advice to this. I knew there had to be people out there that had good outcomes or they wouldn't be still doing this type of surgery.
My joint from what I am told will be custom made from a place called tmj concepts. It is for the right side only because my left side is fine and why mess with something that isn't broken!
As far as I know I don't currently have nerve damage, but I do know that nerves do heal themselves and quickley at that.
Do you still require a splint or have to eat baby food? Where did you have the surgery and what can you tell me about the process?
Thanks I am willing to listen to anything you can tell me.
Carmaanne
Carmaanne,
I had custom made bi-lateral total joint replacements done in March of 2003. I had pretty extensive damage like you do. I had some nerve damage in the beginning (couldn't lift one eyebrow), but that has healed itself. The only problem I have now is at times I have some facial pain when I take the first two bites of food. I am actually inclined to think that is because I have not used my tens machine in some time now. Anyway, as of year one, I am glad I had the surgery.
However, some people require further surgery after a few years because of premature wear or infection (which is a risk at anytime through life). I would never tell you what decision to make for yourself. But I thought I would let you know how I made out. Of course everyone is unique so you will have to make your decision based on your history. I heal very well and I had an exceptional surgeon do my implants.
If you are interested I believe you can search the results and find my prior posts from before and after my surgery. I do find some truth to the statements of the sucessful implant people moving on and not posting, as I don't came here nearly as often as I used to. Please feel free to ask me any questions you want. I try to give the facts of my case without biasing anyone. I will try to check back often over the next couple days to see if you would like to know anything else.
I wish you the best of luck in whatever decision you make.
Autumn
autumn83175
01-31-2004, 01:22 AM
Carmaanne,
I had my surgery done by Dr. Guy Lanzi. He works out of Cooper Hospital in Camden, NJ. I was very impressed with his background and prior work. After surgery I had to wear rubber bands for about 1 mouth to secure my mouth in place (I had braces). For me the worst part of the healing process was the swelling, which felt like it took forever to go away, but was really about 6 weeks. I had to go to physical therapy for about 6 weeks to work on my opening. I still have a tens unit I use occasionally and I have a therabite which is designed to expand your opening gradually. I eat regular food and have since about 3 months after the surgery. I started with soft foods but now I eat almost anything with the exception of beef jerky (and I do miss that), taffys, nuts (I do splurge occasionally). Basically I limit anything really chewy or hard. I have steak sometimes, but I do wear myself out if I eat too much tough food. I don't have a splint, I haven't had one since before my surgery. I do however wear a retainer since my braces and now off, but I think that is more for the orthodontics than the TMJ. I am actually surprised because I thought that the winter would kill me, I have heard that implants usually make it more painful in that area, but I haven't had any problem with the cold air. I do however find that my teeth hurt when it is cold now but again, that may be all of the orthodontic work.
To be honest with you, and no offense to anyone else reading, I did find a very negative reaction to surgery here. I had already made my decision when I came to this board and I am stubborn so I listened but I always take everything with a grain of salt. I did however find that once people get over trying to talk you out of it, that most are very supportive and encouraging. I must say this board helped me get through many long days of recovery.
I actually lucked out because I found someone in my town who had implants about 10 years ago before I went in for surgery. She is doing wonderful with no side effects. That obviously made me feel better. (Although I got references from my Doctors prior patients, common sense dictates that they are only going to give you the names of the sucessful patients.) As anyone else would be I am a little nervous about the long term results, nothing is guaranteed, but you never know until you try. My case was so severe that my entire face was distorted. I have to tell you that I would do it again because as vain as it seems, I have a beautiful face now. I can't believe the response I get even from strangers. My self confidence is much better. I am only 28 and I could not have gone through life looking like I did (and getting worse every year). If I could send you the pictures you would be absolutely stunned.
Again, I do not wish to waiver your decision, but I think someone needed to bring you a little positivity. I think that helps both in treatment and recovery. Please feel free to ask if you think of anything else.
Autumn
PS- Hope I did not offend anyone as that is not my intention. My opinion is just one of many...
I had my surgery done by Dr. Guy Lanzi. He works out of Cooper Hospital in Camden, NJ. I was very impressed with his background and prior work. After surgery I had to wear rubber bands for about 1 mouth to secure my mouth in place (I had braces). For me the worst part of the healing process was the swelling, which felt like it took forever to go away, but was really about 6 weeks. I had to go to physical therapy for about 6 weeks to work on my opening. I still have a tens unit I use occasionally and I have a therabite which is designed to expand your opening gradually. I eat regular food and have since about 3 months after the surgery. I started with soft foods but now I eat almost anything with the exception of beef jerky (and I do miss that), taffys, nuts (I do splurge occasionally). Basically I limit anything really chewy or hard. I have steak sometimes, but I do wear myself out if I eat too much tough food. I don't have a splint, I haven't had one since before my surgery. I do however wear a retainer since my braces and now off, but I think that is more for the orthodontics than the TMJ. I am actually surprised because I thought that the winter would kill me, I have heard that implants usually make it more painful in that area, but I haven't had any problem with the cold air. I do however find that my teeth hurt when it is cold now but again, that may be all of the orthodontic work.
To be honest with you, and no offense to anyone else reading, I did find a very negative reaction to surgery here. I had already made my decision when I came to this board and I am stubborn so I listened but I always take everything with a grain of salt. I did however find that once people get over trying to talk you out of it, that most are very supportive and encouraging. I must say this board helped me get through many long days of recovery.
I actually lucked out because I found someone in my town who had implants about 10 years ago before I went in for surgery. She is doing wonderful with no side effects. That obviously made me feel better. (Although I got references from my Doctors prior patients, common sense dictates that they are only going to give you the names of the sucessful patients.) As anyone else would be I am a little nervous about the long term results, nothing is guaranteed, but you never know until you try. My case was so severe that my entire face was distorted. I have to tell you that I would do it again because as vain as it seems, I have a beautiful face now. I can't believe the response I get even from strangers. My self confidence is much better. I am only 28 and I could not have gone through life looking like I did (and getting worse every year). If I could send you the pictures you would be absolutely stunned.
Again, I do not wish to waiver your decision, but I think someone needed to bring you a little positivity. I think that helps both in treatment and recovery. Please feel free to ask if you think of anything else.
Autumn
PS- Hope I did not offend anyone as that is not my intention. My opinion is just one of many...
Carmaanne
01-31-2004, 10:36 AM
Autumn
Thank you for your positive comments, I do wish there was a way that you could continue to talk about your results and such to me and that I could see the difference. How many scars did you get from your sugery ? just 2 right? I don't have braces so not sure what they will do as far as taht goes. He did talk about the possibility for physical therapy for me following the surgery.
How long did the surgery take? How long was your hospital stay?
I have found in my post most people trying to discourage me, and it was nice to have you come and offer some positive to me. I sincerely appreciate it.
Carmaanne :angel:
Carmaanne,
I had my surgery done by Dr. Guy Lanzi. He works out of Cooper Hospital in Camden, NJ. I was very impressed with his background and prior work. After surgery I had to wear rubber bands for about 1 mouth to secure my mouth in place (I had braces). For me the worst part of the healing process was the swelling, which felt like it took forever to go away, but was really about 6 weeks. I had to go to physical therapy for about 6 weeks to work on my opening. I still have a tens unit I use occasionally and I have a therabite which is designed to expand your opening gradually. I eat regular food and have since about 3 months after the surgery. I started with soft foods but now I eat almost anything with the exception of beef jerky (and I do miss that), taffys, nuts (I do splurge occasionally). Basically I limit anything really chewy or hard. I have steak sometimes, but I do wear myself out if I eat too much tough food. I don't have a splint, I haven't had one since before my surgery. I do however wear a retainer since my braces and now off, but I think that is more for the orthodontics than the TMJ. I am actually surprised because I thought that the winter would kill me, I have heard that implants usually make it more painful in that area, but I haven't had any problem with the cold air. I do however find that my teeth hurt when it is cold now but again, that may be all of the orthodontic work.
To be honest with you, and no offense to anyone else reading, I did find a very negative reaction to surgery here. I had already made my decision when I came to this board and I am stubborn so I listened but I always take everything with a grain of salt. I did however find that once people get over trying to talk you out of it, that most are very supportive and encouraging. I must say this board helped me get through many long days of recovery.
I actually lucked out because I found someone in my town who had implants about 10 years ago before I went in for surgery. She is doing wonderful with no side effects. That obviously made me feel better. (Although I got references from my Doctors prior patients, common sense dictates that they are only going to give you the names of the sucessful patients.) As anyone else would be I am a little nervous about the long term results, nothing is guaranteed, but you never know until you try. My case was so severe that my entire face was distorted. I have to tell you that I would do it again because as vain as it seems, I have a beautiful face now. I can't believe the response I get even from strangers. My self confidence is much better. I am only 28 and I could not have gone through life looking like I did (and getting worse every year). If I could send you the pictures you would be absolutely stunned.
Again, I do not wish to waiver your decision, but I think someone needed to bring you a little positivity. I think that helps both in treatment and recovery. Please feel free to ask if you think of anything else.
Autumn
PS- Hope I did not offend anyone as that is not my intention. My opinion is just one of many...
Thank you for your positive comments, I do wish there was a way that you could continue to talk about your results and such to me and that I could see the difference. How many scars did you get from your sugery ? just 2 right? I don't have braces so not sure what they will do as far as taht goes. He did talk about the possibility for physical therapy for me following the surgery.
How long did the surgery take? How long was your hospital stay?
I have found in my post most people trying to discourage me, and it was nice to have you come and offer some positive to me. I sincerely appreciate it.
Carmaanne :angel:
Carmaanne,
I had my surgery done by Dr. Guy Lanzi. He works out of Cooper Hospital in Camden, NJ. I was very impressed with his background and prior work. After surgery I had to wear rubber bands for about 1 mouth to secure my mouth in place (I had braces). For me the worst part of the healing process was the swelling, which felt like it took forever to go away, but was really about 6 weeks. I had to go to physical therapy for about 6 weeks to work on my opening. I still have a tens unit I use occasionally and I have a therabite which is designed to expand your opening gradually. I eat regular food and have since about 3 months after the surgery. I started with soft foods but now I eat almost anything with the exception of beef jerky (and I do miss that), taffys, nuts (I do splurge occasionally). Basically I limit anything really chewy or hard. I have steak sometimes, but I do wear myself out if I eat too much tough food. I don't have a splint, I haven't had one since before my surgery. I do however wear a retainer since my braces and now off, but I think that is more for the orthodontics than the TMJ. I am actually surprised because I thought that the winter would kill me, I have heard that implants usually make it more painful in that area, but I haven't had any problem with the cold air. I do however find that my teeth hurt when it is cold now but again, that may be all of the orthodontic work.
To be honest with you, and no offense to anyone else reading, I did find a very negative reaction to surgery here. I had already made my decision when I came to this board and I am stubborn so I listened but I always take everything with a grain of salt. I did however find that once people get over trying to talk you out of it, that most are very supportive and encouraging. I must say this board helped me get through many long days of recovery.
I actually lucked out because I found someone in my town who had implants about 10 years ago before I went in for surgery. She is doing wonderful with no side effects. That obviously made me feel better. (Although I got references from my Doctors prior patients, common sense dictates that they are only going to give you the names of the sucessful patients.) As anyone else would be I am a little nervous about the long term results, nothing is guaranteed, but you never know until you try. My case was so severe that my entire face was distorted. I have to tell you that I would do it again because as vain as it seems, I have a beautiful face now. I can't believe the response I get even from strangers. My self confidence is much better. I am only 28 and I could not have gone through life looking like I did (and getting worse every year). If I could send you the pictures you would be absolutely stunned.
Again, I do not wish to waiver your decision, but I think someone needed to bring you a little positivity. I think that helps both in treatment and recovery. Please feel free to ask if you think of anything else.
Autumn
PS- Hope I did not offend anyone as that is not my intention. My opinion is just one of many...
CherylLynn24
01-31-2004, 02:31 PM
Quote from Carmaanne "As far as I know I don't currently have nerve damage, but I do know that nerves do heal themselves and quickley at that."
Nerves can heal themselves, very slowly if ever at all.
Nerves can heal themselves, very slowly if ever at all.
Cymy Sue
01-31-2004, 04:10 PM
Cheryl,
You're absolutely right. I have been completely numb from my nose down for 16 years, since my first surgery for TMJD. Lips, chin and lower part of my face.
In the last few months, I've regained some feeling in my upper lip, not much.
I had nerve damage or other nerve related problems with every surgery thereafter.The worst pain caused by unintended nerve regeneration of those cut 7 years ago, with my last surgery.
I can't tell you why this happened, because they can't tell me. They know very little about the nerves in your face and how each person will respond to surgery. Once they're damaged, it's anyone's guess how long it will last and what kind of problem will result.
I was told if they haven't healed or quit hurting in 2 years, you're most likely stuck with what you got.
16 to 7 years was a long time ago and you would think they would know better now or the 3 different surgeons I had didn't do a good job.
I believe we currently have 3 members with (possible) nerve damage related problems who have all had surgery within the last year.
It's definetly a consideration.
Cymy Sue
You're absolutely right. I have been completely numb from my nose down for 16 years, since my first surgery for TMJD. Lips, chin and lower part of my face.
In the last few months, I've regained some feeling in my upper lip, not much.
I had nerve damage or other nerve related problems with every surgery thereafter.The worst pain caused by unintended nerve regeneration of those cut 7 years ago, with my last surgery.
I can't tell you why this happened, because they can't tell me. They know very little about the nerves in your face and how each person will respond to surgery. Once they're damaged, it's anyone's guess how long it will last and what kind of problem will result.
I was told if they haven't healed or quit hurting in 2 years, you're most likely stuck with what you got.
16 to 7 years was a long time ago and you would think they would know better now or the 3 different surgeons I had didn't do a good job.
I believe we currently have 3 members with (possible) nerve damage related problems who have all had surgery within the last year.
It's definetly a consideration.
Cymy Sue
Carmaanne
02-01-2004, 12:04 AM
Thanks for the information. I have had extensive nerve damage to other limbs of my body and they fixed themselves very quickly. I was unaware of the facial nerves healing any differently. THanks though.
Carmaane :angel:
QUOTE=Cymy Sue]Cheryl,
You're absolutely right. I have been completely numb from my nose down for 16 years, since my first surgery for TMJD. Lips, chin and lower part of my face.
In the last few months, I've regained some feeling in my upper lip, not much.
I had nerve damage or other nerve related problems with every surgery thereafter.The worst pain caused by unintended nerve regeneration of those cut 7 years ago, with my last surgery.
I can't tell you why this happened, because they can't tell me. They know very little about the nerves in your face and how each person will respond to surgery. Once they're damaged, it's anyone's guess how long it will last and what kind of problem will result.
I was told if they haven't healed or quit hurting in 2 years, you're most likely stuck with what you got.
16 to 7 years was a long time ago and you would think they would know better now or the 3 different surgeons I had didn't do a good job.
I believe we currently have 3 members with (possible) nerve damage related problems who have all had surgery within the last year.
It's definetly a consideration.
Cymy Sue[/QUOTE]
Carmaane :angel:
QUOTE=Cymy Sue]Cheryl,
You're absolutely right. I have been completely numb from my nose down for 16 years, since my first surgery for TMJD. Lips, chin and lower part of my face.
In the last few months, I've regained some feeling in my upper lip, not much.
I had nerve damage or other nerve related problems with every surgery thereafter.The worst pain caused by unintended nerve regeneration of those cut 7 years ago, with my last surgery.
I can't tell you why this happened, because they can't tell me. They know very little about the nerves in your face and how each person will respond to surgery. Once they're damaged, it's anyone's guess how long it will last and what kind of problem will result.
I was told if they haven't healed or quit hurting in 2 years, you're most likely stuck with what you got.
16 to 7 years was a long time ago and you would think they would know better now or the 3 different surgeons I had didn't do a good job.
I believe we currently have 3 members with (possible) nerve damage related problems who have all had surgery within the last year.
It's definetly a consideration.
Cymy Sue[/QUOTE]
Cymy Sue
02-01-2004, 11:34 AM
Carmaanne,
Being "AWARE" is the point. I am not trying to discourage you or anyone regarding a surgery that could make your life better. I considered this surgery for nearly 10 years, everytime I reached that point of thinking I could not live with the condition I was in.
Nerves in extremities compared to the nerves in your face are quite different.
The incisions made for this surgery (and others for TMJD) are in the area of where the Trigeminal Nerve enters the face and branches out. If the Trigeminals are injured, moved or even disturbed, the consequences are not pleasant, can affect movement, feeling, all sensory functions and it can be permanent. There are other nerves that can be damaged, also.
I find some surgeons to be brutally honest in telling you the possible consequences and some who will not. I consulted with both.
My message is not to say "Don't do it". My message is to say "Find out about every possible complication or consequence and make a decision based on how much you are willing to risk."
All Implant Surgeries do not turn out bad, I'm sure. I would assume it could be the only option for some people. I thought it was for me, for many years. I'm sure you have studied TMJ Concept's Brochure and know there are certain expected functional limitations and the possibility of ongoing symtoms, even if the surgery is a success with no unintended damage.
I would have not made another comment, except that you mentioned facial nerve damage being similar to other nerve damage. It is not.
I had read your posts on the Back Forum and assumed you realized any nerve damage or surgical procedure could cause long term problems that sometimes never heals or can not be repaired.
Anyone considering surgery on their face and and especially a type that requires incisions in the vincinity of TN's, even superficial incisions, such as with "Face Lifts", should read everything they can find about the multiple functions of the Trigeminals and Axillary Nerves. If they're damaged, it can produce inconceivable pain and consequences.
People who have had (just) Face Lifts have sustained irreparable nerve damage. The surgery you're considering is quite invasive.
My message has always been, "Be Aware". Nothing more.
Information was not available on these possible long term complications when I sustained them.
Cymy Sue
Being "AWARE" is the point. I am not trying to discourage you or anyone regarding a surgery that could make your life better. I considered this surgery for nearly 10 years, everytime I reached that point of thinking I could not live with the condition I was in.
Nerves in extremities compared to the nerves in your face are quite different.
The incisions made for this surgery (and others for TMJD) are in the area of where the Trigeminal Nerve enters the face and branches out. If the Trigeminals are injured, moved or even disturbed, the consequences are not pleasant, can affect movement, feeling, all sensory functions and it can be permanent. There are other nerves that can be damaged, also.
I find some surgeons to be brutally honest in telling you the possible consequences and some who will not. I consulted with both.
My message is not to say "Don't do it". My message is to say "Find out about every possible complication or consequence and make a decision based on how much you are willing to risk."
All Implant Surgeries do not turn out bad, I'm sure. I would assume it could be the only option for some people. I thought it was for me, for many years. I'm sure you have studied TMJ Concept's Brochure and know there are certain expected functional limitations and the possibility of ongoing symtoms, even if the surgery is a success with no unintended damage.
I would have not made another comment, except that you mentioned facial nerve damage being similar to other nerve damage. It is not.
I had read your posts on the Back Forum and assumed you realized any nerve damage or surgical procedure could cause long term problems that sometimes never heals or can not be repaired.
Anyone considering surgery on their face and and especially a type that requires incisions in the vincinity of TN's, even superficial incisions, such as with "Face Lifts", should read everything they can find about the multiple functions of the Trigeminals and Axillary Nerves. If they're damaged, it can produce inconceivable pain and consequences.
People who have had (just) Face Lifts have sustained irreparable nerve damage. The surgery you're considering is quite invasive.
My message has always been, "Be Aware". Nothing more.
Information was not available on these possible long term complications when I sustained them.
Cymy Sue
autumn83175
02-01-2004, 02:02 PM
Carmaanne,
I have four scars from surgery. Two are along my ear into the hairline and are not even noticable at this point. I have two more that are along my lower jaw, underneath my face. If I look straight into the mirror I cannot see them, however if I look to the side I see them. They were wider and longer and therfore more noticable. Most people don't notice them unless I point them out. Scars vary among people. I believe alot of it has to do with how they are stitched up, and what you do afterwards to help them heal. I had my stitches removed fairly early and med tape was used to minimize scarring. I also used lotion with lots of Vitamin E in it as soon as possible. I tried Maderma, which I heard was very good at healing scars, but it made me itch.
I was in surgery about 14 hours. I had several surgeries at once. I had both joints replaced, bilateral sagittal split osteotomies, and genioplasty (chin implant). When they went to tube me they found a huge tumor in my nose (third one now), so that had to be removed first. I am not the person to compare the time it will take to do the surgery with. I would definitely discuss that more with your doctor. I was in ICU for 3 days. I left on the 3rd day because they were short on beds and my mother was taking very good care of me and promised to stay at my house with me for a few days. They had originally told me to expect to stay up to 10 days.
When I came home I was on a very high dose pain killer for about a week. Then a lighter dose for about a week. Then I quit taking pain meds altogether. I had to take antibiotics for about two weeks. I took a muscle relaxer, Soma, randomly for about a month, usually before or after physical therapy.
Please feel free to ask any other questions.
Autumn
I have four scars from surgery. Two are along my ear into the hairline and are not even noticable at this point. I have two more that are along my lower jaw, underneath my face. If I look straight into the mirror I cannot see them, however if I look to the side I see them. They were wider and longer and therfore more noticable. Most people don't notice them unless I point them out. Scars vary among people. I believe alot of it has to do with how they are stitched up, and what you do afterwards to help them heal. I had my stitches removed fairly early and med tape was used to minimize scarring. I also used lotion with lots of Vitamin E in it as soon as possible. I tried Maderma, which I heard was very good at healing scars, but it made me itch.
I was in surgery about 14 hours. I had several surgeries at once. I had both joints replaced, bilateral sagittal split osteotomies, and genioplasty (chin implant). When they went to tube me they found a huge tumor in my nose (third one now), so that had to be removed first. I am not the person to compare the time it will take to do the surgery with. I would definitely discuss that more with your doctor. I was in ICU for 3 days. I left on the 3rd day because they were short on beds and my mother was taking very good care of me and promised to stay at my house with me for a few days. They had originally told me to expect to stay up to 10 days.
When I came home I was on a very high dose pain killer for about a week. Then a lighter dose for about a week. Then I quit taking pain meds altogether. I had to take antibiotics for about two weeks. I took a muscle relaxer, Soma, randomly for about a month, usually before or after physical therapy.
Please feel free to ask any other questions.
Autumn
Marlene
02-02-2004, 09:53 PM
Carmaanne,
"I knew there had to be people out there that had good outcomes or they wouldn't be still doing this type of surgery."
Some implants still being used in the U.S. have been banned for use here in Canada for a number of years now, because of their failure rate.
Marlene
"I knew there had to be people out there that had good outcomes or they wouldn't be still doing this type of surgery."
Some implants still being used in the U.S. have been banned for use here in Canada for a number of years now, because of their failure rate.
Marlene
Marlene
02-02-2004, 10:05 PM
autumn83175,
I hope things will work out well for you with the surgeries you had. If I remember your particular situation, didn't you also have an osteotomy with bone graft and orthognathic surgery done with your implants as well? If you don't mind me asking, what was the reason you had to have all these surgeries done? I'm curious - do you have any pain, numbness, or nerve damage after this length of time post-operatively? I'd also be interested to know what your opening width is, after almost a year after surgery?
Thanks,
Marlene
I hope things will work out well for you with the surgeries you had. If I remember your particular situation, didn't you also have an osteotomy with bone graft and orthognathic surgery done with your implants as well? If you don't mind me asking, what was the reason you had to have all these surgeries done? I'm curious - do you have any pain, numbness, or nerve damage after this length of time post-operatively? I'd also be interested to know what your opening width is, after almost a year after surgery?
Thanks,
Marlene
Carmaanne
02-03-2004, 09:20 AM
Hi Autumn
Thank you for writing back to me. Do you still speak to your friend that had the same opertation but just the TMJ one? Could you bother to ask her the questions I asked you also? To find out what was the additional for your surgery.
I am so glad that you are doing wonderful now. You have gone through a lot.
What else could you tell me about after the surgery.
Carmaanne
Carmaanne,
I have four scars from surgery. Two are along my ear into the hairline and are not even noticable at this point. I have two more that are along my lower jaw, underneath my face. If I look straight into the mirror I cannot see them, however if I look to the side I see them. They were wider and longer and therfore more noticable. Most people don't notice them unless I point them out. Scars vary among people. I believe alot of it has to do with how they are stitched up, and what you do afterwards to help them heal. I had my stitches removed fairly early and med tape was used to minimize scarring. I also used lotion with lots of Vitamin E in it as soon as possible. I tried Maderma, which I heard was very good at healing scars, but it made me itch.
I was in surgery about 14 hours. I had several surgeries at once. I had both joints replaced, bilateral sagittal split osteotomies, and genioplasty (chin implant). When they went to tube me they found a huge tumor in my nose (third one now), so that had to be removed first. I am not the person to compare the time it will take to do the surgery with. I would definitely discuss that more with your doctor. I was in ICU for 3 days. I left on the 3rd day because they were short on beds and my mother was taking very good care of me and promised to stay at my house with me for a few days. They had originally told me to expect to stay up to 10 days.
When I came home I was on a very high dose pain killer for about a week. Then a lighter dose for about a week. Then I quit taking pain meds altogether. I had to take antibiotics for about two weeks. I took a muscle relaxer, Soma, randomly for about a month, usually before or after physical therapy.
Please feel free to ask any other questions.
Autumn
Thank you for writing back to me. Do you still speak to your friend that had the same opertation but just the TMJ one? Could you bother to ask her the questions I asked you also? To find out what was the additional for your surgery.
I am so glad that you are doing wonderful now. You have gone through a lot.
What else could you tell me about after the surgery.
Carmaanne
Carmaanne,
I have four scars from surgery. Two are along my ear into the hairline and are not even noticable at this point. I have two more that are along my lower jaw, underneath my face. If I look straight into the mirror I cannot see them, however if I look to the side I see them. They were wider and longer and therfore more noticable. Most people don't notice them unless I point them out. Scars vary among people. I believe alot of it has to do with how they are stitched up, and what you do afterwards to help them heal. I had my stitches removed fairly early and med tape was used to minimize scarring. I also used lotion with lots of Vitamin E in it as soon as possible. I tried Maderma, which I heard was very good at healing scars, but it made me itch.
I was in surgery about 14 hours. I had several surgeries at once. I had both joints replaced, bilateral sagittal split osteotomies, and genioplasty (chin implant). When they went to tube me they found a huge tumor in my nose (third one now), so that had to be removed first. I am not the person to compare the time it will take to do the surgery with. I would definitely discuss that more with your doctor. I was in ICU for 3 days. I left on the 3rd day because they were short on beds and my mother was taking very good care of me and promised to stay at my house with me for a few days. They had originally told me to expect to stay up to 10 days.
When I came home I was on a very high dose pain killer for about a week. Then a lighter dose for about a week. Then I quit taking pain meds altogether. I had to take antibiotics for about two weeks. I took a muscle relaxer, Soma, randomly for about a month, usually before or after physical therapy.
Please feel free to ask any other questions.
Autumn
sppamantha
02-07-2004, 06:25 AM
I have had bilateral total replacements with the tmj concepts joints. I can open my mouth a little wider, but it has been over a year and the pain has not diminished much. I still have headaches, pain, difficulty opening and muscle spasms all over. If you have an option whether or not to get it done, don't.
Phylly4
02-10-2004, 07:25 PM
I have been recommended by two different doctors to have a total joint replacement on my right side. I was wondering if anyone has had this surgery, what it entailed and if they had successful results with it.
Thank you so much for your time in responding.
Carmaanne :angel:
Hi Carmaane
Yes, I had both joints totally replaced in 1998. My life of TMJ surgery began in 1989. At that time I had Dow Corning implants put in. Because of an adverse reaction to them I had 10 other surgeries on both joints. For me joint replacement :angel: was my last hope. It has been the best thing I have done for myself. The joint replacements surgery took 11 hours. Weigh it over and over. Make sure it is your last hope. Once it is done there is no turning back. I wish you the best of luck.
God be with you.
Phyllis
Thank you so much for your time in responding.
Carmaanne :angel:
Hi Carmaane
Yes, I had both joints totally replaced in 1998. My life of TMJ surgery began in 1989. At that time I had Dow Corning implants put in. Because of an adverse reaction to them I had 10 other surgeries on both joints. For me joint replacement :angel: was my last hope. It has been the best thing I have done for myself. The joint replacements surgery took 11 hours. Weigh it over and over. Make sure it is your last hope. Once it is done there is no turning back. I wish you the best of luck.
God be with you.
Phyllis
Carmaanne
02-12-2004, 10:09 AM
Hi Phyllis
Thank you for your kind words and sharing with me. I have had prior TMJ surgeries. Not 10 of them but a few. Where are you from? Who was your doctor? What was it like after the surgery?
Thank you so much for sharing.
Carmaanne :angel:
Hi Carmaane
Yes, I had both joints totally replaced in 1998. My life of TMJ surgery began in 1989. At that time I had Dow Corning implants put in. Because of an adverse reaction to them I had 10 other surgeries on both joints. For me joint replacement :angel: was my last hope. It has been the best thing I have done for myself. The joint replacements surgery took 11 hours. Weigh it over and over. Make sure it is your last hope. Once it is done there is no turning back. I wish you the best of luck.
God be with you.
Phyllis
Thank you for your kind words and sharing with me. I have had prior TMJ surgeries. Not 10 of them but a few. Where are you from? Who was your doctor? What was it like after the surgery?
Thank you so much for sharing.
Carmaanne :angel:
Hi Carmaane
Yes, I had both joints totally replaced in 1998. My life of TMJ surgery began in 1989. At that time I had Dow Corning implants put in. Because of an adverse reaction to them I had 10 other surgeries on both joints. For me joint replacement :angel: was my last hope. It has been the best thing I have done for myself. The joint replacements surgery took 11 hours. Weigh it over and over. Make sure it is your last hope. Once it is done there is no turning back. I wish you the best of luck.
God be with you.
Phyllis
Kerri532
02-12-2004, 02:56 PM
Phyllis,
Dow corning implants must have done a number on you. Also the fact you had ten more surgeries to follow. What shape were your joints in when they put in the total replacements? I am sure you probably had no other options at this point. I have also been suggested TJR but I am still exploring other options. I have a partial and I keep thinking if I had not had that initial surgery, that I would be a whole lot better off. What is your view on this? What was the reason for the dow corning implants?
Kerri
Dow corning implants must have done a number on you. Also the fact you had ten more surgeries to follow. What shape were your joints in when they put in the total replacements? I am sure you probably had no other options at this point. I have also been suggested TJR but I am still exploring other options. I have a partial and I keep thinking if I had not had that initial surgery, that I would be a whole lot better off. What is your view on this? What was the reason for the dow corning implants?
Kerri
KFergBTMD
03-18-2004, 11:24 AM
I have been recommended by two different doctors to have a total joint replacement on my right side. I was wondering if anyone has had this surgery, what it entailed and if they had successful results with it.
Thank you so much for your time in responding.
Carmaanne :angel:
I have just gone throught 2 operations with total joint replacements on both sides with the TMJ Concepts custome fitted joints. This was also operation #9 and #10. I had this done in Chicago. My surgeon is one of the iventors of this device and has been putting it in since it's beginning. Milwakee isn't that far from Chicago, it may be worth the trip. Kathy
Thank you so much for your time in responding.
Carmaanne :angel:
I have just gone throught 2 operations with total joint replacements on both sides with the TMJ Concepts custome fitted joints. This was also operation #9 and #10. I had this done in Chicago. My surgeon is one of the iventors of this device and has been putting it in since it's beginning. Milwakee isn't that far from Chicago, it may be worth the trip. Kathy
KFergBTMD
03-18-2004, 11:38 AM
Carmaanne,
I have four scars from surgery. Two are along my ear into the hairline and are not even noticable at this point. I have two more that are along my lower jaw, underneath my face. If I look straight into the mirror I cannot see them, however if I look to the side I see them. They were wider and longer and therfore more noticable. Most people don't notice them unless I point them out. Scars vary among people. I believe alot of it has to do with how they are stitched up, and what you do afterwards to help them heal. I had my stitches removed fairly early and med tape was used to minimize scarring. I also used lotion with lots of Vitamin E in it as soon as possible. I tried Maderma, which I heard was very good at healing scars, but it made me itch.
I was in surgery about 14 hours. I had several surgeries at once. I had both joints replaced, bilateral sagittal split osteotomies, and genioplasty (chin implant). When they went to tube me they found a huge tumor in my nose (third one now), so that had to be removed first. I am not the person to compare the time it will take to do the surgery with. I would definitely discuss that more with your doctor. I was in ICU for 3 days. I left on the 3rd day because they were short on beds and my mother was taking very good care of me and promised to stay at my house with me for a few days. They had originally told me to expect to stay up to 10 days.
When I came home I was on a very high dose pain killer for about a week. Then a lighter dose for about a week. Then I quit taking pain meds altogether. I had to take antibiotics for about two weeks. I took a muscle relaxer, Soma, randomly for about a month, usually before or after physical therapy.
Please feel free to ask any other questions.
Autumn
Hi Autumn/Carmaanne,
KaFer from last fall. I talked to Autumn last Fall. I am two months post from the TMJ Concepts joint replacement. I am doing well. I know I have my life back, the headache is gone. I am not done yet unfortunately. Now my teeth don't match. I need a total mouth reconstruction. I just had my two month check-up and the dr.'s response was "REMARKABLE" He said it was so bad in there he had trouble comprehending how I was functioning. Both joints were practically fused together. My masseteer muscle was imbedded in the bone. Before surgery my opening was 19.5 yesterday it was 41.5!!!. I am not sorry I had the surgery It is what I should have done about 6 years ago. Kathy
I have four scars from surgery. Two are along my ear into the hairline and are not even noticable at this point. I have two more that are along my lower jaw, underneath my face. If I look straight into the mirror I cannot see them, however if I look to the side I see them. They were wider and longer and therfore more noticable. Most people don't notice them unless I point them out. Scars vary among people. I believe alot of it has to do with how they are stitched up, and what you do afterwards to help them heal. I had my stitches removed fairly early and med tape was used to minimize scarring. I also used lotion with lots of Vitamin E in it as soon as possible. I tried Maderma, which I heard was very good at healing scars, but it made me itch.
I was in surgery about 14 hours. I had several surgeries at once. I had both joints replaced, bilateral sagittal split osteotomies, and genioplasty (chin implant). When they went to tube me they found a huge tumor in my nose (third one now), so that had to be removed first. I am not the person to compare the time it will take to do the surgery with. I would definitely discuss that more with your doctor. I was in ICU for 3 days. I left on the 3rd day because they were short on beds and my mother was taking very good care of me and promised to stay at my house with me for a few days. They had originally told me to expect to stay up to 10 days.
When I came home I was on a very high dose pain killer for about a week. Then a lighter dose for about a week. Then I quit taking pain meds altogether. I had to take antibiotics for about two weeks. I took a muscle relaxer, Soma, randomly for about a month, usually before or after physical therapy.
Please feel free to ask any other questions.
Autumn
Hi Autumn/Carmaanne,
KaFer from last fall. I talked to Autumn last Fall. I am two months post from the TMJ Concepts joint replacement. I am doing well. I know I have my life back, the headache is gone. I am not done yet unfortunately. Now my teeth don't match. I need a total mouth reconstruction. I just had my two month check-up and the dr.'s response was "REMARKABLE" He said it was so bad in there he had trouble comprehending how I was functioning. Both joints were practically fused together. My masseteer muscle was imbedded in the bone. Before surgery my opening was 19.5 yesterday it was 41.5!!!. I am not sorry I had the surgery It is what I should have done about 6 years ago. Kathy
Cymy Sue
03-22-2004, 07:05 PM
Bump for Michael.
KFergBTMD
03-24-2004, 07:27 AM
Carmaanne,
Milwalkee isn't that far from Chicago. It is worth the trip for another opinion. In my research over the past 7 years the surgeon in Chicago has the most experience. He was one of the the first to place the TMJ Concepts prosthesis and also one of the inventors. If you go to TMJ Concepts website you can get more info including studies and statistics. Just e-mail them and they will send you info via US Mail. Kathy
Milwalkee isn't that far from Chicago. It is worth the trip for another opinion. In my research over the past 7 years the surgeon in Chicago has the most experience. He was one of the the first to place the TMJ Concepts prosthesis and also one of the inventors. If you go to TMJ Concepts website you can get more info including studies and statistics. Just e-mail them and they will send you info via US Mail. Kathy
Carmaanne
03-24-2004, 08:12 PM
Hi
Thanks for your input. My surgeon is quite experienced. I am going to talk to him one last time before I decide on what to do. I know something needs to be done though. I am going to ask him about the tooth realignment again though as he has previously assured me that wouldn't change.
thanks again
Carmaanne
Carmaanne,
Milwalkee isn't that far from Chicago. It is worth the trip for another opinion. In my research over the past 7 years the surgeon in Chicago has the most experience. He was one of the the first to place the TMJ Concepts prosthesis and also one of the inventors. If you go to TMJ Concepts website you can get more info including studies and statistics. Just e-mail them and they will send you info via US Mail. Kathy
Thanks for your input. My surgeon is quite experienced. I am going to talk to him one last time before I decide on what to do. I know something needs to be done though. I am going to ask him about the tooth realignment again though as he has previously assured me that wouldn't change.
thanks again
Carmaanne
Carmaanne,
Milwalkee isn't that far from Chicago. It is worth the trip for another opinion. In my research over the past 7 years the surgeon in Chicago has the most experience. He was one of the the first to place the TMJ Concepts prosthesis and also one of the inventors. If you go to TMJ Concepts website you can get more info including studies and statistics. Just e-mail them and they will send you info via US Mail. Kathy
nettiebish
04-28-2004, 02:06 PM
Hi! I have had a TJR (TMJ Implants) on both sides. I flew to Denver to have it done because the Dr. was on board with the company who makes the joints. About 5 years later I had to have the TMJ Implants joints removed because of "screw" problems. At that time, I had the TMJ Concepts bilateral TJR implanted. This was surgery 14 & 15!! My pain was reduced at that time. I have some nerve damage to my eye/eyebrow and different areas of numbness on my face. Shortly after the Concepts joints were put in, the pain was back...a bit worse! I have headaches EVERY day. I have joint pain EVERY day. It has taken over my life. My first surgery was in 1988. In fact I am receiving my Social Security disability. (it is very hard to get the disability) It has been 4 years now and I am living on pain meds. Fortunately, I have a very wonderful husband who is trying his hardest to understand. Some days I want to just have the joints removed and try living with no joints. I am sorry to be so negative. My TMJ Implants, also referred to as Christiansen joints, surgeries were done by the "master" TMJ Implants Dr. As you can see, just because you have the surgery by the Dr. who helped design the joint doesn't mean it will be a success.
It has been said on this board that TJR people aren't around after having TJR surgery. I am one of those people. I am so tired of talking about my situation. I wish that it is because I had good results, but it isn't. Please, please pray about your situation before you forge ahead with any TJR. I'm sorry for making this so long.
Ann
It has been said on this board that TJR people aren't around after having TJR surgery. I am one of those people. I am so tired of talking about my situation. I wish that it is because I had good results, but it isn't. Please, please pray about your situation before you forge ahead with any TJR. I'm sorry for making this so long.
Ann
autumn83175
06-13-2004, 12:08 AM
Carmannee,
I was just wondering if you were still around & if you had made a decision. Please hop on and let me know how you made out.
Thanks
Autumn :wave:
I was just wondering if you were still around & if you had made a decision. Please hop on and let me know how you made out.
Thanks
Autumn :wave:
Carmaanne
06-14-2004, 08:23 AM
I decided to go ahead with it. I am praying and crossing my fingers for a positive outcome but at this point there is nothing else to do. My surgery date is June 28th. I go to today for my pre-op physical and to meet with the surgeon one last time.
Carmaanne
Carmaanne
mybobby
06-27-2004, 05:02 AM
Autumn,
I was wondering, did your doctor ever recommend bone grafts (rib specifically) for your replacements? If not, did you ever consider that? Also how many prior total TMJ replacements has he done? I am on the West Coast, California specifically, and the only doctors that I was able to find, that do these types of surgeries are part of teaching institutions, I am not sure, if your doctor is. It would be interesting to find out, if you have encountered patients, who are "success stories" after surgery.
I appreciate your help.
I was wondering, did your doctor ever recommend bone grafts (rib specifically) for your replacements? If not, did you ever consider that? Also how many prior total TMJ replacements has he done? I am on the West Coast, California specifically, and the only doctors that I was able to find, that do these types of surgeries are part of teaching institutions, I am not sure, if your doctor is. It would be interesting to find out, if you have encountered patients, who are "success stories" after surgery.
I appreciate your help.
autumn83175
08-01-2004, 01:40 AM
Autumn,
I was wondering, did your doctor ever recommend bone grafts (rib specifically) for your replacements? If not, did you ever consider that? Also how many prior total TMJ replacements has he done? I am on the West Coast, California specifically, and the only doctors that I was able to find, that do these types of surgeries are part of teaching institutions, I am not sure, if your doctor is. It would be interesting to find out, if you have encountered patients, who are "success stories" after surgery.
I appreciate your help.
Mybobby,
Sorry, I haven't been around in awhile. No, my doctor did not recommend bone grafts. I have custom replacement joints. I have seen a few success stories with the replacement joints. I have seen a few failures (mainly on this board). My doctor has been doing these for quite a while, several years at least. He has done hundreds of them. He was the head of oral and maxiofacial surgery at Cooper University Hospital and team doctor for major & minor league hockey teams. He is pretty aggressive in his treatment and not for everyone. So far I am 1 1/2 years post op and very happy. The only advice I would give you is research. Not just here but an gov sites & med sites, anywhere you can find. Goodluck!
Autumn
I was wondering, did your doctor ever recommend bone grafts (rib specifically) for your replacements? If not, did you ever consider that? Also how many prior total TMJ replacements has he done? I am on the West Coast, California specifically, and the only doctors that I was able to find, that do these types of surgeries are part of teaching institutions, I am not sure, if your doctor is. It would be interesting to find out, if you have encountered patients, who are "success stories" after surgery.
I appreciate your help.
Mybobby,
Sorry, I haven't been around in awhile. No, my doctor did not recommend bone grafts. I have custom replacement joints. I have seen a few success stories with the replacement joints. I have seen a few failures (mainly on this board). My doctor has been doing these for quite a while, several years at least. He has done hundreds of them. He was the head of oral and maxiofacial surgery at Cooper University Hospital and team doctor for major & minor league hockey teams. He is pretty aggressive in his treatment and not for everyone. So far I am 1 1/2 years post op and very happy. The only advice I would give you is research. Not just here but an gov sites & med sites, anywhere you can find. Goodluck!
Autumn
protemduck
08-03-2004, 12:40 AM
i as well am going to my 1st oral surg. soon what can I expect?
autumn83175
08-03-2004, 12:47 AM
That is a tough question because I don't know anything about you.
My advice would be check out the doctor. Make sure you feel comfortable with them and how they treat you. (I met several I hated before the right one). Talk to other patients. Research their recommendations (not just here but try government sites, etc.). I personally did my research than trusted my gut on what direction to take.
Sorry I couldn't be more specific, but I didn't have much to go on.
Good Luck
Autumn
My advice would be check out the doctor. Make sure you feel comfortable with them and how they treat you. (I met several I hated before the right one). Talk to other patients. Research their recommendations (not just here but try government sites, etc.). I personally did my research than trusted my gut on what direction to take.
Sorry I couldn't be more specific, but I didn't have much to go on.
Good Luck
Autumn
mckinley
11-27-2004, 03:56 PM
Hi,
Today is my first day on! I've spent hours reading your posted messages, and yes, how supportive to read discussions from those "who know what tmjd is like to deal with". My left disk is now in an anterior position, I am sure, as I can feel it wobble back and forth just touching my ear at the joint. I no longer feel it click out of place, so I think it is now out front of the joint. Can my splint, which I've been wearing for 5 months, still help if the disk is in this position versus exterior positioning? Anyone experienced in this?
McKinley
Today is my first day on! I've spent hours reading your posted messages, and yes, how supportive to read discussions from those "who know what tmjd is like to deal with". My left disk is now in an anterior position, I am sure, as I can feel it wobble back and forth just touching my ear at the joint. I no longer feel it click out of place, so I think it is now out front of the joint. Can my splint, which I've been wearing for 5 months, still help if the disk is in this position versus exterior positioning? Anyone experienced in this?
McKinley
mckinley
11-27-2004, 10:34 PM
I have just gone throught 2 operations with total joint replacements on both sides with the TMJ Concepts custome fitted joints. This was also operation #9 and #10. I had this done in Chicago. My surgeon is one of the iventors of this device and has been putting it in since it's beginning. Milwakee isn't that far from Chicago, it may be worth the trip. Kathy
Kathy,
May I ask who was your dr. and where is his office? I want to be prepared for possible future surgery, and Chicago isn't far for me. Thanks much.
Mckinley
Kathy,
May I ask who was your dr. and where is his office? I want to be prepared for possible future surgery, and Chicago isn't far for me. Thanks much.
Mckinley
littlegreek25
11-29-2004, 01:02 PM
I just finished reading the posts in this thread and I found them to be very informative. I was really hoping that Carmaanne would have posted after her surgery. I would like to know how she's doing. I'm really hoping everything went well for her. Good luck to us all.
Amy
Amy
tealadyjudy111
02-06-2005, 02:24 PM
Hi Carmaanne Im from the uk and have also been recomended to have double jaw replacements by two doctors. I wondered if you went ahead with your op and how you are getting on. I hope all went well for you. I dont know what to do but I cant take this for much longer Hope to hear from you, thanks for listening judy.
Shirlett
02-28-2005, 01:58 AM
I guess no one has heard from Carmaanne? I hate to drag up old post but I feel I must say something..Implant surgery is to be taken very serious and is not something one can hear about at an appointment from ones oral surgeon and make a decision about during that appointment. I feel a person really needs to think about such a drastic procedure. As I have posted I have the TMJ Concepts and would not change anything and if I had to do it again I would. But that is MY DECISION. Again, Implant surgery is NOT A CURE. If is was everyone would be doing it! I had nothing to loose, both of my joints had been taken out way before I decided to have the TMJ Concepts put in. Does anyone else out there have the TMJ Concepts?
Shirlett
Shirlett
raylp
05-22-2005, 02:39 PM
Carmaanne has posted since the operation, it just was under a different thread. Go to her name, and then search under her posts. Her surgery was successful as far I as I have read so far.