HIS ANGEL
01-18-2004, 04:44 PM
Hello All,
I am a 32yo female, history of Autoimmune Disease in myself and my family. I have had hypothyroidism since age 11, just recently had an antibody test done that came back high. So, I have read that when you have one autoimmune condition it is possiable to have others, So could I have MS?
Thyroid problem is under control. All levels are good there. I seem to have unresolved symptoms that my endo does not think are related to the hypo. Some of the problems that I still have are, HORRIFIC fatigue, tiredness, I seem to be off balance (I find myself walking like a drunk, I stumble and trip all the time,) I drop things and some times I find that when I do have ahold of something it's like when I want to let go of it, I wont, I also have pins and needles feelings in my hands and arms. I also have had an "electric shock" in my eye, I have never had any kind of problems with my eyes, now I find that I have a hard time seeimg at night and I have floaters in both eyes.
I also have no memory anymore. If I am talking to someone I will forget mid-sentence what I was talking about. Some times I will get an itch that feels like It is under my skin, this is mostly in my legs. No matter how much I scratch, it does no good. I have had my PCP test for anemia, he said I am not. I do have low Vitamin B-12. I have read that this might be associated with MS.
My father had MS. He passed away when I was 11, so I did not get to see how this Disease progresses. Any help that you can provide would be great.
THANK YOU :angel:
I am a 32yo female, history of Autoimmune Disease in myself and my family. I have had hypothyroidism since age 11, just recently had an antibody test done that came back high. So, I have read that when you have one autoimmune condition it is possiable to have others, So could I have MS?
Thyroid problem is under control. All levels are good there. I seem to have unresolved symptoms that my endo does not think are related to the hypo. Some of the problems that I still have are, HORRIFIC fatigue, tiredness, I seem to be off balance (I find myself walking like a drunk, I stumble and trip all the time,) I drop things and some times I find that when I do have ahold of something it's like when I want to let go of it, I wont, I also have pins and needles feelings in my hands and arms. I also have had an "electric shock" in my eye, I have never had any kind of problems with my eyes, now I find that I have a hard time seeimg at night and I have floaters in both eyes.
I also have no memory anymore. If I am talking to someone I will forget mid-sentence what I was talking about. Some times I will get an itch that feels like It is under my skin, this is mostly in my legs. No matter how much I scratch, it does no good. I have had my PCP test for anemia, he said I am not. I do have low Vitamin B-12. I have read that this might be associated with MS.
My father had MS. He passed away when I was 11, so I did not get to see how this Disease progresses. Any help that you can provide would be great.
THANK YOU :angel:
Sponsor
Mom_of_two
01-18-2004, 07:59 PM
I'm assuming you have told your doctor about all of these symptoms? If not, then you should, then he should refer you to a neurologist. MRI and possibly a lumbar puncture would be needed to give you any kind of an answer, as well as plenty of blood work to rule out any other problems it might be.
Good luck and God bless! :)
Good luck and God bless! :)
HIS ANGEL
01-18-2004, 11:22 PM
Yes I did tell my PCP about these symptoms, all he had to say was that it was depression and that I need antidepressants. I am so sick of Dr.'s pushing antidepressants for everything. It really must make there job alot easier. He told me the same when I wanted him to test me for anemia, although he did the test and he said that I am not anemic. And I am sick of them telling us this is all in our heads. I know it's not in my head when I go into town and when I get there I don't know why I am there, or when I try to get out of bed in the morning and can hardly walk. I wish these Dr.'s could live one day in our shoes.
Sorry I just needed to vent a little. I would also like to add that I am very short tempered lately, moody, moody, moody. Thanks for letting me vent.
Sorry I just needed to vent a little. I would also like to add that I am very short tempered lately, moody, moody, moody. Thanks for letting me vent.
SapphireSky
01-23-2004, 02:54 AM
Go see another physician.....I am surprised with a close family history of MS, that your doctor is not pursuing something other than depression (yes, I know that MS is not considered genetic, but there is a lot of evidence that sometimes it seems to run in families)!
Good Luck!!!!
Good Luck!!!!
Mom_of_two
01-23-2004, 12:24 PM
Vent anytime! It helps, I know I have done my own share of venting here. :)
Yes, so many doctors push the antidepressants instead of trying to get to the root of the problem. I've been there, done that. It's very frustrating! But keep on trucking along, and don't ever give up. Sooner or later (hopefully sooner), you'll find someone who will listen and take your symptoms seriously. Continuing to wish you the best of luck! God bless.
Yes, so many doctors push the antidepressants instead of trying to get to the root of the problem. I've been there, done that. It's very frustrating! But keep on trucking along, and don't ever give up. Sooner or later (hopefully sooner), you'll find someone who will listen and take your symptoms seriously. Continuing to wish you the best of luck! God bless.
HIS ANGEL
01-27-2004, 08:45 PM
Thanks, Sorry I Havent Posted Sooner. My Mom Was Just Dx'ed With Congestive Heart Failure And I Have Been Spending Alot Of Time At The Doc. I Plan On Finding A New Dr. As Soon As I Get Things Straightened Out With My Mom. It's Funny Because Most Of What My Mom Has Had In Her Life As Far As Sickness I Have Also Had, So I Hope That I Dont Take That Much After My Father. But When Life Gives You Lemons.................................. ...............................you Make Lemon-aid. So I Will Do The Best I Can With The Hand I Am Delt.
HIS ANGEL
03-04-2004, 08:57 PM
Hello all,
I finally made it to see a nuro. I dont know anything yet. The slip she gave me had the dx's of NP, muscle pain, gait,vertigo and extremity weakness. She did ask several questions about my dad and his dx' with Ms. I have to have am MRI on the 10th and I see her again on the 16th. :( I hope I can finally find something out. :yawn:
I finally made it to see a nuro. I dont know anything yet. The slip she gave me had the dx's of NP, muscle pain, gait,vertigo and extremity weakness. She did ask several questions about my dad and his dx' with Ms. I have to have am MRI on the 10th and I see her again on the 16th. :( I hope I can finally find something out. :yawn:
Jewel2
03-04-2004, 10:02 PM
Hi Angel,
I'm sorry that you are having to deal with so much, especially with your mother having health problems. I'm glad you got to see a Neuro and that you will be getting an MRI. I hope that it will help determine the cause of your symptoms so that you can get treatment.
Best wishes,
Julie
I'm sorry that you are having to deal with so much, especially with your mother having health problems. I'm glad you got to see a Neuro and that you will be getting an MRI. I hope that it will help determine the cause of your symptoms so that you can get treatment.
Best wishes,
Julie
HIS ANGEL
03-04-2004, 10:23 PM
Julie, Thanks a bunch. It's funny, I hope this MRI shows something so at last I would have an answer. I as so tired of feeling bad, but in the same breath I must say that I am tired of trying to find the answer also.
Jewel2
03-05-2004, 12:30 AM
Angel,
I know exactly what you mean. The unknown or unexplained is so hard to deal with. Having answers, even if they aren't what you want, allows you to be more proactive in your health care instead of being so helpless.
Again, best wishes!
Julie
I know exactly what you mean. The unknown or unexplained is so hard to deal with. Having answers, even if they aren't what you want, allows you to be more proactive in your health care instead of being so helpless.
Again, best wishes!
Julie
HIS ANGEL
03-19-2004, 08:04 PM
Hello all, Just thought that I would drop a line and let you know that my appointment on the 16th was postponed. After she got the report from the MRI an X-rays, they called to say that she wanted me to have another MRI. I go tommorow for that then back to see her on the 23rd. I will post what I find out.
attheendofmyrope
03-21-2004, 06:45 PM
Hi...that does sound like a lot of the symptoms of MS. I was just diagnosed a couple of weeks ago myself and I have similar symptoms. I was wondering about the blood test you had done that was high....was it the sed rate? I went to the ER for fainting and vision problems in January and they did bloodwork and all it showed was an elevated sed rate and the ER physician said that although he could not diagnose me in the ER, he would highly recommend further testing for autoimmune disorders. That was my first clue something was seriously wrong.
Anyway-I'm rambling....I hope you get an answer. I KNOW how frustrating it is to have the doctors not listen to you. I dealt with that for a long time before finally getting my diagnosis.
Staci
Anyway-I'm rambling....I hope you get an answer. I KNOW how frustrating it is to have the doctors not listen to you. I dealt with that for a long time before finally getting my diagnosis.
Staci
capp3735
03-22-2004, 07:54 PM
Hi,
I have several autoimmune diseases one of which is MS. Definitely see another Dr. My neuro symptoms started in 1995 and I have a copy of the first neuro i went to notes.
First, let me say that in 1971 there was a question of MS but my spinal fluid was normal.
anyways....in 95 I told the neuro of past history with possible MS. and my new symptoms were bumping into things, losing my balance, trouble word seeking and "feeling like I lost my intelligence." He did not order any test. Three years ago i had to pick up all Dr's reports and his notes were hand written. He quoted what I told him and then wrote "patient is bipolar and suffers depression.
by all means go to another Dr. And even if you have normal spinal fluid, you could still have MS. I do....it shows up in my brain and I had evoked potential test to confirm the MS.
Margie
I have several autoimmune diseases one of which is MS. Definitely see another Dr. My neuro symptoms started in 1995 and I have a copy of the first neuro i went to notes.
First, let me say that in 1971 there was a question of MS but my spinal fluid was normal.
anyways....in 95 I told the neuro of past history with possible MS. and my new symptoms were bumping into things, losing my balance, trouble word seeking and "feeling like I lost my intelligence." He did not order any test. Three years ago i had to pick up all Dr's reports and his notes were hand written. He quoted what I told him and then wrote "patient is bipolar and suffers depression.
by all means go to another Dr. And even if you have normal spinal fluid, you could still have MS. I do....it shows up in my brain and I had evoked potential test to confirm the MS.
Margie
HIS ANGEL
03-22-2004, 08:10 PM
As far as the autoimmune thing goes I do have autoimmune thyroid disease. How high does your Sed. Rate have to be to be considered high or elevated? I have also read somewhere that if your IgG (Immunoglobin G) is high or elevated that that is an indicator of MS also. Is this true?
attheendofmyrope
03-22-2004, 09:17 PM
My sed rate was 66, I think anything over 15 is elevated. Thats when they started running every test "in the book" on me and taking my symptoms seriously. It took several months before the MRI with contrast finally showed lesions in different areas of my brain. I dont know anything about the other blood test you asked about.
Sampy123
03-23-2004, 08:28 AM
An elevated IgG is also indicative of antiphospholipid antibody syndrome, have you been tested?
HIS ANGEL
03-23-2004, 07:13 PM
Well all, the Neuro said that there was nothing wrong with me. "All blood work looks GREAT." She said it must be Depression.
attheendofmyrope
03-23-2004, 10:56 PM
Well, hang in there and keep trying. It takes a lot of persistence sometimes to get the doctors to listen to you. I got the "it's just depression and anxiety" thing too for a long time...gee...who WOULDNT be depressed and anxious if their body started doing all these weird things and nobody would take them seriously???
Staci
Staci
Jewel2
03-23-2004, 11:37 PM
Hi Angel,
That 'depression' diagnosis is so lame! I'm sure you must be discouraged right now, so take a few days off and give yourself a break and then start again. Staci is right about being persistent about finding a good doctor and getting them to listen to you. Perhaps you could contact your local MS support group and ask them what doctor they see. They usually know all about the different neuros and clinics, who to see, who not to see.
Hang in there. Don't give up.
Best wishes,
Julie
That 'depression' diagnosis is so lame! I'm sure you must be discouraged right now, so take a few days off and give yourself a break and then start again. Staci is right about being persistent about finding a good doctor and getting them to listen to you. Perhaps you could contact your local MS support group and ask them what doctor they see. They usually know all about the different neuros and clinics, who to see, who not to see.
Hang in there. Don't give up.
Best wishes,
Julie
HIS ANGEL
04-24-2004, 06:52 PM
HELLO ALL,
Well I finally saw another Neuro. She decided that it would be good to have their radiologist re-read the MRI that I took with me. I just got a letter fron then that states
" Two small foci of t2 prolongation in the subcortical white matter. Findings are nonspefic, however sometimes seen in association with migraine headaches. Differential diagnosis would include early small vessel ischemic disease, demyelinating disease, CADASIL, other."
Could some one please help to decifer this. one Neuro says its nothing then another says this. What do I do now?
Well I finally saw another Neuro. She decided that it would be good to have their radiologist re-read the MRI that I took with me. I just got a letter fron then that states
" Two small foci of t2 prolongation in the subcortical white matter. Findings are nonspefic, however sometimes seen in association with migraine headaches. Differential diagnosis would include early small vessel ischemic disease, demyelinating disease, CADASIL, other."
Could some one please help to decifer this. one Neuro says its nothing then another says this. What do I do now?
HIS ANGEL
04-25-2004, 09:42 AM
I asked my PCP about that and he said that he had never heard about such a thing as adrenal burnout. I have an appointment with my Endo on the 3rd of May, I will ask her to test.
HIS ANGEL
09-05-2004, 02:09 PM
Chris,
Sorry it took so long to get back to you. I did ask my endo about the Addisons, she said that she didn't think that was my problem because I didn't have that "look". What ever that means. She said that the people that she treats for addisons have a look about them. So on tho the next thought.
Sorry it took so long to get back to you. I did ask my endo about the Addisons, she said that she didn't think that was my problem because I didn't have that "look". What ever that means. She said that the people that she treats for addisons have a look about them. So on tho the next thought.