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tiffanyharrison
01-27-2004, 02:08 PM
Emily is going to have a double tethered cord release done on feb 11th,they wanted it next tues but i gotta get enough time to get my hsband here as i just cant do this by myself. She has a fibrous band running front to back that is tethering it at the t10 and attached at the left side of the split cord along with the tethering at the bottom. hopefully this will be a smooth as possible surgery and we can travel home soon afterwards.
Tiffany
Emily 4 split spinal cord,tethered,peanut allergy

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nero
01-27-2004, 05:43 PM
Hi there Ms. Tiffany,

I just wanted to wish your little girl and family well.

My daughter is 11 and has a life threatening peanut allergy (which i noted you have indicated) and i worry every day since I have had her. I lost my first daughter at birth with nothing notably wrong with her and so my little girl, like yours, is very special to me.

I pray that things go well. When my girl had pneumonia very severely in Grade 1 and was hospitalized twice in one month because of it, and the doctors kept asking me was there a predisposition, and kept trying different drugs I felt extremely frightened that i may lose her and that just could not happen again. So I made a vow that whatever God, medicine and science could do to help her i would gladly take and thus remain strong the rest of my life and challenge any further difficulties that confronted me. So with my ACDF c5 ,6 disc herniation and spinal chord compression and l5s1 herniation injury, I remembered that there were interventions that saved my daughter and I was going to take full use of any help i could absorb and meet my situation head on.

My point being, is that although some situations seem insurmountable, remember that through science and God's promises (if you are so inclined) your little one will get better and from what I have read of your postings, she has the best help possible - you, her mom (and her dad) advocating for her.

All the best my dear,

Nero





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