pookah
01-30-2004, 09:26 PM
I haven't been dx'ed yet. Still waiting on blood work. This aching and fatigue *could* be caused by taking Coumadin (although I've been on it since Oct., and only started aching a month ago).
I asked a naturopath I just started seeing to do a Fibro exam, and either he didn't know what he was doing, or didn't want to pronounce me Fibro- I don't know. But everywhere he pressed hurt like h#ll.
I hurt. Ache. Am so tired I feel like I cannot function. My apartment is a horrific mess (luckily I live alone). I have no energy to even cook something in the microwave.
I told my mom last night that I am in worse pain than I've been in after any of my three surgeries. I would rather be dead sometimes. I hurt so much.
The only pain med they have found for me so far is Vicodin, and no one really wants to give that to me because they don't know what is wrong. I just want it to be over. I ache so bad. :(
Wittesea
02-01-2004, 01:30 AM
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pookah
02-01-2004, 01:43 AM
huge hugs- thank you. vicodin turned on me today ("forgetting" to breathe and waking up gasping, horrible nightmares) and it's just hard to believe the helpless feelings will go away. :( there has been so much, too much going on.
thank you for your notes of support. i wish this were only going to be temporary, but i have a bad feeling that it's not. :(
hugs again!
Wittesea
02-01-2004, 08:41 PM
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Cloie
02-02-2004, 11:52 AM
Hi everyone, (hugs) (more hugs),
Every time I come into one of these boards I learn something new or get something good out of it. Today, I learned I'm not only one with a messy house, so I can stop feeling guilty. I have had to learn some tricks to keep it clean...like just throwing everything in a box or closet till I feel up to straightening out the box or closet. Or using paper plates so the dishes don't pile up.
Also, just wanted to say, that severe pain can cause clinical depression and anxiety, which can make pain worse and becomes a vicious cycle. I fall victim to it so I take an antidepressant, which really helps alleviate both pain and depression/feelings of hopelessness.
Hang in there Pookah. Wittesea's right. At first, it can feel overwhelming. Feeling hopeless and helpless makes it worse. You will eventually get diagnosed and then discover ways to make it more tolerable and somewhat better. Once you know what's causing pain, then you candiscover remedies others have found useful. This is probably worst stage to be in not knowing what's causing it. In a short time, you will have more power and not be so helpless.
Be nice to yourself. Give yourself permission to have a messy house and to rest whenever you want to. Don't compound the problem with guilt or self-recrimination. (one I always have to work on). Pamper yourself with things you enjoy.
I also have found keeping a pain journal helps to pinpoint triggers and times. This helps you and doctors diagnose and find remedies. Hope this helps. Cloie :wave:
pookah
02-03-2004, 08:15 PM
thank you wittesea and cloie. :) i am going to call a rheumatologist as soon as i can get out of the house (long story, not supposed to drive right now).
i am waiting on pins and needles for the results of my blood tests, but my guess is that nothing is wrong, since he hasn't called me yet ("he" being the naturopath i saw).
i am going to keep a pain journal. 6 months ago this would have been unheard of for me. i never had any pain, at all. now i just realized i am having pain in my face. not sinus pain, but pain in the face. does this make sense?
anyway, i am going to go and await the phone call.
thanks again! :)