hello to all. I have been reading your posts for over 2 months now and it has been wonderfluu to not feel so alone w/ thisI have sufferd form fibro, si jiont dissfuntion coxidinia and bursitis for ovewr 2 yrs. now.i honestly cant remeberwhat it was like before this happened to me. thank god i was lucky and found a commpationate doctor who didnt dissmiss me b/c of my age i am only 34. The pain w/ this winter being so extremly cold( in the teens or below) has caued me severe pain. He put me on something called actiq and it has been a god send for the days when i cant do anything but lay on the couch and cry. jusst thought i would passs this on if it may help anyone its not as strong as a duragesic patch and less of a pain ithe @#$! your posts give me hope and make me feel as if i am not abnormall. befor this awfull thing hit me i led a full life and a fast paced one and it all came to a screeching halt. I lost the man i loved appaarentlly he didnt love me enough to be there no producing no me simple as that. blessing in disguise i guess.my mother has been my only constant support and even corrosponds w/ my doctor. thank you all again so much for sharing and wittessa you are a wealth of info god bless you and everyone. have a great winter and look foward to the sun shinning again and remeber who we were before our illness is still who we are now with a few adjustments the body is a vessle only for our everlasting spirits. on bad days remeber that.
love to all
lme ps i forgot to mention arthritis in my back !!!

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"remeber who we were before our illness is still who we are now with a few adjustments the body is a vessle only for our everlasting spirits. on bad days remeber that."

Thank you, as I found a kindred thought in your's. I was finally diagnosed today with FM, and TOS. I have so may other things happening in my weary body I will stop here as the time would not honor the initial thought. Thank you

"remeber who we were before our illness is still who we are now with a few adjustments the body is a vessle only for our everlasting spirits. on bad days remeber that."

Thank you, as I found a kindred thought in your's. I was finally diagnosed today with FM, and TOS. I have so may other things happening in my weary body I will stop here as the time would not honor the initial thought. Thank you


thank you for the info and im glad i could help. its so hard to think back on our lives fro all of us. there are days when i remeber getting up enjoying my mornings and off to work i went running a major cosmetics co,pany i have lost my pheonce my carreer and so much more but through it all it has brought me closer to my faith and the belief that i am valuable for who i am on the inside and what i have to offer as a person and i firmally belive i will find the right combo so that i can live my life again. your were right about the aqtic it was not covered by insurance and it really did work well it figures theyll cover oxycottin which i want nothing to do with but this was a problem and my doctor is starting to really dissapiont me in his attitude he gave them to me i never asked him for any particullar med not ever but i just dont like the way hes beeen dissmissing my issues latly i had a bone scana nd found that i have arthritis in my entire spine so at least i know im not craZY WHICH YOU CAN BEGIN TO FEEL when you go throught this long enough but im going to start being much more assertive my next visit and and ask why i know people who have nothing wrong whith them yet they have virtuall pharmacies in there homes that they use to make house payments with i have had it constantly tryiing to prove myself i wish just for one day a doctor that DEALS W/PAIN MANAGMENT COULD BE ME FOR ONE DAY,NOT TOMENTION THE ONES YOU SEE PRACTICALLY FOAMING AT THE MOUTH AND SPEEDING THERE BRAINS OUT. IM REALLY TIRED OF THE HYPOCRACY .YOU HANG IN THERE AND WHAT EVER RESULTS I GET THIS NEXT VISIT ILL BE SURE TO LET YOU KNOW IM GOIN STRAIGHT TO THE PIONT SO ILL LET YOU KNOW HOWIT WORKED OUT AND IF ITS NOT WELL RECIEVED I HAVE A SECOND OPINION WAITING TO BE REFERD TO . I WANT MY LIFE BACK AND IF I JHAVE TO FIGHT TOOTH AND NAIL I WILL BE FUNCTIONAL AGIAN NO MATTER WHWAT IT TAKES. IM GLAD THE AQTIC DIDNT GET COVERED THOUGH IT LEAVES AWFULL ULCERS IN YOUR MOUTH AND LIKE YOU SAID ONLY LASTED FOR A MINAMAL TIME .THERERS MORE TO SAY BUT ILL CUT HTIS SHORT IF YOU WOULD LIKE TO CHAT MY E-MAIL IS [removed] THERES A LOT MORE I COULD SAY.
TAKE CARE DONT LET ANYOPNE PUT YOU DOWN AND REMEBER GOD SEES ALL AND YOUR SUFFERING HAS A SOLUTION AND ANYONE WHO WOULD KICK YOU WHEN YOUR DOWN WILL SUFFER THE KARMA THEY PUT OUT INTO THIS WORLD I HAVE SEEN IT I KNOW IT ITS TRUE. SOMEONE WHO MADE FUN OF ME IN THE BEGINING OF ALL THIS JUST SHATTERED THERE SHOULDER. NOW BY NO MEANS AM I HAPPY FOR THAT NEVER BUT DO YOU SEE WHAT I MEAN THAT PERSON WILL NOW KNOW WHAT IT IS LIKE TO LIVE WITH SEVER CONSTANTPAIN,BE CAREFULL HOW HARSHLY YOU JUDGE OTHERS FOR BY THE SAME MEASURE YOU SHALL BE JUDGED.
BE WELL GOD BLESS AND I HOPE YOU ARE HAVING A GOOD DAY THANK YOU FOR CARING ENOUHG FOR THE WARNING I AM GRATEFULL
BE WELL
LME724

"remeber who we were before our illness is still who we are now with a few adjustments the body is a vessle only for our everlasting spirits. on bad days remeber that."

Thank you, as I found a kindred thought in your's. I was finally diagnosed today with FM, and TOS. I have so may other things happening in my weary body I will stop here as the time would not honor the initial thought. Thank you
Kare Kare, I just wanted to tell you that your words posted here are probably the most uplifting and true that I have seen or heard regarding Fibro in a long time. You hit the nail on the head! Bravo to you! Although it's hard we need to know that Fibro does not define who we are. I know that I, myself, need to remember who I was, and who I am now, and not let the condition determine who I will become. Thank you for your "to the point" insight!

tk