Hey guys! I went to the neuro on Monday and I feel as though I wasn't in the room (if that makes sense :rolleyes: ) Bare with me.... He uped my topamax to 100mg a day and decreased my magnesuim oxide to 200mg a day. ( Before you read anymore cross your fingers.... are they crossed.... you sure..... I'm trusting you..... I'm on my 15th day without a seizure!!! Thats my best in two years!!) This is only my second day on the increase so I haven't noticed to much on side-effects.... alittle anxiety maybe and jitters but thats about it!!

The reason I say I feel I wasn't in the room was my husband was talking to me in the car about the appointment and he was saying something about understanding more about the mag oxide. And I was like... what? He goes well I understand why he prescribed it to you more now and why you can't take as much now. And I was like, well he just wants to see if I'm still having the side effect headaches. My husband gives me this weird look and goes into this big discussion. Well I won't bore you with it, but I can't take such a big dose of mag oxide (400 mg) with a bigger dose of topamax (100mg)! I missed the doctor explaining this!? How? I was in the room, I'm sure of that. What the heck happened?

I'm not gonna call the doctor and tell him, I'll note it in my seizure calendar. Could you imagine that phone call though? But I just don't understand how I could of been right there and not of heard any of that...

More good news, there was no mention of a hospital stay!!!!! Maybe I got my point across last time better than what I thought I had, so thanks to all who gave me advice in my last post!!

Lisa

Hey Lisa, It is also possible that you were on onformation overlaod. It is always good to have someone go with you. I do not have seizures and think I have a good memory, and I have had appointments just like you described. I did not think I missed a thing, but the person with me catches info that I missed. It is a GREAT idea to write it in the seizure log though, because it is weird to be there and feel like you were not. Sure hope the changes help you a lot....

Lisa *~*

*c*o*n*g*r*a*t*u*l*a*t*i*o*n*s, thought if I didn't put the word all together it wouldn't jenx your new record... :) Hoping it's still holding ~

Jake is 136 days and Jenny is 130 days without one!!! ssshhh! Be very, very quiet - we're dodging seizures - In my best Elmer Fud voice! ;)

Would have to agree with the pp above. We (mommy and daddy) always try to go together for the kids appt. because one of us will always miss something. Don't beat yourself up over it too bad.

And Lisa - even those of us who don't seize "check out" now and again, where we just aren't engaged so to speek in what's going on around us. You just may have been thinking WuHu... no seizure today... WuHu... Happy Dance... oh... what was that you said? Don't stress it to bad!

(((HUGS)))

Love and light :wave:

Lisa and kids

Lisa, I am whispering a quiet YAHOOOOOOO for the seizures staying at bay,SHHHHHHHH

Thanks guys, sometimes I don't know when to be worried and when to just let things go, you know!

I'm doing the happy dance for you very quietly Lisa :bouncing: :bouncing: :bouncing: :bouncing: :bouncing: :p

Have a good one everyone!
Lisa

Today is day 17 :D

Hi Lisa, I'm glad you've been doing well. Do you think you had a seizure or do you think you just missed it. I had the same thing at my last doctor appt. and I thought I must be nuts cuz surely the doctor would have noticed. Wouldn't he???? Just a total loss of time in the conversation and no one noticed. It makes me wonder how much that happens. I think I should have said something right then. But, it's like things are wierd when you "wake up" so to speak. And, it doesn't seem rational and I'm not bold then, like I would normally be. I'm glad you write it down. Do you carry a card with your medicines and your seizures on it? I just got a bracelet too. Anyway, hang in there. Crystal

Been there, done that!

Sometimes, especially since my partial seizures began, my attention just isn't sharp enough to catch everything that's been said to me. I thought I maybe had adult ADD but I'm really beginning to think seizure activity must be the culprit. There are so many affects on the brain. I don't know if that's the case for you, but it sounds like something I do more often than I'd like to admit. But look--call them if you're not clear! They are in this profession to help you, and you deserve to be 100% certain about your medical regimen. I'm in healthcare and if someone called me back and asked me to go over everything again, I would be so glad that they decided to speak up because I don't want them to be unclear for their sake. (And for mine, because then I reevaluate myself and consider if maybe I spoke too fast or gave too much information at once, etc., so I can learn from it myself and teach the next patient better.) Hope this helps!! Good luck to you!