Hey there Subs,

If I remember correctly you were having your follow up appointment around about now. Hope the tests were ok and you're still 100%. Be great to hear how it went - what the doc said.

Anyway, keep us posted,

best,

hbep.

[QUOTE=hbep]Hey there Subs,

If I remember correctly you were having your follow up appointment around about now. Hope the tests were ok and you're still 100%. Be great to hear how it went - what the doc said.

Anyway, keep us posted,


Hi hbep

Yep---thanks for asking---was all scheduled---but then---yesterday morning--

Got rescheduled--to a later date---seems that there was some type of emergency---going on---they will (have to) get back with a new date.

Still at 100%---no setbacks---so far---continue with the VRT's. walking day/night---getting out and about & doing things

---if they(Hosp) never call---don't think---I would mind---it is getting sort of academic now.....looking back...it is clear (now)---that it was my pre-existing eye problems---that prevented---the compensation.....lession learned....should have guessed!

How about you?

:cool:

Hi there Subs,

Glad to hear you're still doing well - and understand what you mean about not needing to go back to the hospital, often if someone's lived with something for a while, with time and restrospect, they have a better idea than the docs what's going on.

I am doing fine. I have been resigned for a long time to this being a very slow recovery for me. I am basing this on my trajectory so far - progress, but very slow, baby steps. Compared to where I was, say 12 months ago, my life is currently a picnic. I am mostly 98% around my flat, my biggest hurdle is going out. I still experience visual vertigo - not spinning - but off vision, slight fogging of thought etc when I spend a while out of my house, although I am pretty ok in some places, the main problem being busy environments. In a few more weeks I will have finished the VRT the hospital gave me, then I'll move on to their visual VRT exercises. I have definitely improved out and about, which tells me I can improve more, so will keep pushing and pushing.

I think in my case my slow recovery has been partly bad luck - some people just seem to be slow recoverers. I also work at home, and have definitely been guilty of not going out enough - pushing it. Now that I feel better I am rectifying that error and forcing myself to do more. That does seem to explain the big discrepancy btwn how well I feel in my flat and how well I feel out of it. I fought hard and long to win back my ability to read/think straight, work at my computer - I did it without thinking about it, as I couldn't bear to lose those things. Now I have to fight as hard to have the same level of health when in a large bookstore etc... Also my at times chronic muscular problems in my neck and jaw and ears and the concurrent headaches have also, I feel, slowed my progress down. The discovery that this could have something to do with a magnesium deficiency I suffered from before, and subsequently starting on large doses of magnesium a while back, seem to be helping (touch wood) along with stretching regularly and time.

I hope I will get there in the end, I keep believing I will and it's working so far, which doesn't mean to say I don't still get very grumpy about still being ill :)

Great that you're doing so well, Subs, here's to you never spending another day dizzy.

best,

hbep.

Hey, Hbep!
Glad to hear that you are having near 100% times. I just relish the moments when I feel normal and am not feeling anything bad!

As you have probably seen on other posts I went to the Balance Center in Chicago. I am doing the eye exercises that the PT feels confidently will have me well in 6 - 8 weeks. Something that they stressed to me is to move freely. When we are dizzy, we tend to guard our movement, without even realizing it. It is very important to get the head movement back to normal. I don't remember if you suffer from stiff neck, but that can be a challenge! I am really trying to do things as much as I can and trying to turn my head normally. The brain can't really full compensate until head movement is normal. One of the PTs told me that she has an elderly lady who can't move her head normall because of arthritis and basically she is not recovering from her dizziness.

It is a challenge each day even tho' I am so much better. Since I know that I am on the road to recovery I ignore my symptoms as much as I can and do what I would normally do. Overall, I am truly enjoying life again!

Hope you continue to get better and better!!! You will!!!

Vicki